#supportneeds

[kittiesjournal]

Autism: Support needs, Spiky Profiles and my Experience

I wanted to take the chance to write about the levels of support and spiky profiles that are seen with being Autistic. It is a topic of importance to me as the growth of the Autistic community online increases, and it’s likely there is a percentage who are unaware of these terminologies. It also gives me a chance to share my experience as a medium support needs / Level 2 Autistic individual and to connect with other Autistic people and their experiences. 

First, let's discuss support needs. 

Autistic support needs refer to how much support, assistance and accommodations the individual requires in their day to day life. Currently many places will provide an indicated level of support to an Autistic person when they are diagnosed based on the information discussed in their assessment and Functional Capacity Report. This information will likely include, ability to perform self-care and home care tasks, ability in accessing the community, impacts from the need of routines, repetitive behaviours, sensory profile and special interests, and whether they require the assistance from other people (family, carers ect.)

There are Three Levels of Support, increasing in support needs:

Level 1 Needs Support, Level 2 Needs Substantial Support, Level 3 Needs Very Substantial Support. These are also often referred to Low, Medium, High Support Needs. 

But in continuing this discussion further it is important to specify some myths and facts surrounding these levels.

Every level indicates a need for support. If someone is diagnosed with Level 1, this does not mean they require no support, assistance, accommodations throughout their day. 

Every Autistic person is going to have their own set of support needs and accommodations that work for them and help them thrive as best they can. The aim of these support levels is not in line with the outdated language of functioning levels. There is no need to keep using “High-functioning” and “Low functioning” as they only get placed upon Autistic people based on the neurotypical standard of functioning, they are not indicative of the Autistic person's abilities and needs and no longer represent what we have learnt of the Autistic spectrum. Furthermore, an Autistic support needs are not set in stone, they are likely to change and shift throughout their life, even in a year, month, week depending on what is going on in their life, environment and other variables. Lastly, it's important to highlight the lives of all autistic people at different support levels and with different support needs. With the growing platform for autistic voices, higher support needs individuals may be overshadowed by lower support needs autistics. “Nothing about us, without us.” must include Medium/High support needs autistic people alongside Lower support needs autistic people. 

This can lead into the understanding of ‘Spiky profiles’.

This term refers to the skills and abilities autistic individuals have that may not correlate cohesively or expand into all areas. This is not something that is used officially in diagnosis, in support resources ect. But it has been developed by autistic people to explain that they may have high and well developed skills in a handful of areas while lacking in skills in other areas. For example an Autistic person may be really good with language, writing and literacy but struggle with self-care and require a support worker to help them get ready for the day. This allows us to honour our skills; sharing what we love to do, understanding where we need support, and help feel more positively about our skill set. No matter the level of support an autistic person has, each person has a skills profile that is a representation of themself, and is not something to compare yourself to others with.

Now that I have discussed the topics of Support needs and Spiky Profiles, I'd like to share my honest and real experience and my profile of where I am in my life currently. As I mentioned in the introduction, I have level 2 / medium support needs which was indicated by my diagnosing psychologist. In my understanding, having level 2 support needs feels like being in a middle void between having independence and being dependent, leaving my skills profile very spiky. My support needs expand to a range of areas:

I need prompting to complete self-care and house care tasks, meaning that i shower only a couple times a week, i rarely brush my teeth, i can forget to brush my hair, it takes a lot of energy to perform these tasks especially if i were to try to do them everyday. Furthermore, I need to be prompted to complete house chores fully and there are some chores I cannot do. This is often because of sensory sensitivities and executive dysfunction as well as pathological demand avoidance. 

I struggle with leaving the house by myself. There are instances where I have been physically able to, but it is dependent on different variables; is it somewhere I have been before with someone else? Do I know the route? Do I have sensory accommodations and comfort/safe items? 

It also takes a huge amount of energy to do so and leads me to be exhausted, needing to rest or I can even become overwhelmed and meltdown / shutdown. Therefore it is in my best interest to have a support person when I leave the house. 

This also expands into being unable to work in a standard job like my neurotypical peers. I have never been able to get a job as even an interview is too much for me. My psychologist indicated that even with support, I would only be able to work at most 10 hours a week. Because of this it is my goal to have a job that is not the standard 9-5 work; An Artist! 

My support needs also include needing support and guidance in social interaction. I have deficits in my social abilities as Autistic people do, leaving me “failing” social situations. My partner will guide and direct conversations in my place when we are together and socialising with other people. Additionally, I have periods of verbal shutdowns where I am unable to speak. I make use of an e-writer to communicate, i also plan to make communication cards and have text to audio AAC app as options. 

The last point i would like to share about my support needs is that i struggle with transitions and autistic inertia, i can often be driven to stay focused on one thing, stuck when it comes to changing or starting tasks, as well as having rigid thinking, being hyper focused on my special interests and overall finding it easier when i have a routine to follow. There are two things that help me when i'm stuck; a support person to guide me into the next task or if i'm alone; music, so there is something that is the same as i change tasks.

My support needs indicate the lower points of my Spiky profile; where my skills aren’t the strongest but I accept that, I accommodate that and then praise my high points.

I am a great learner! I can pick up skills pretty easily especially when they're on the creative side but overall I love learning. I was given the highest award at my high school graduation for Literary Studies, Psychology and Physic! I can draw traditionally, digitally, I can paint and craft, I'm learning to sew and I love to sing and write. I care about people, I'm good at listening and always want to show my love for people. I can cook a pretty good meal or bake yummy sweets most of the time.

Each person has a set of skills that makes them who they are, driven by their passions, interests and what's important to them. Autistic people will struggle in some skill areas, but they are able to balance out when they have the support, assistance and accommodations they need! Autistic people can thrive no matter the support they need. We are disabled but we have strengths too.

Thank you for reading!!

-Kittie

[monriatitans]

How to Explain the Fluidity of Needs Based on Energy Levels

Friday, March 15, 2024

If you would prefer to see this as a document, click here.

How to Explain the Fluidity of Needs Based on Energy Levels

Neurodivergent community, I have figured out a way to explain the fluidity of our needs based on our energy levels. Although, if one thinks about it, it applies to everyone. Imagine everyone has a Stamina/Energy Bar above their heads; we’ll use the color Yellow to represent the stamina available, and Grey to represent the stamina used. And every task, every action, has a set amount, a number, assigned to it. Now imagine every time someone picks up their bag, turns their head, moves in any way, speaks, does ANYTHING, the yellow area either steadily shrinks, or drops all at once to a specific point, while the rest of the bar it is greyed out. Now imagine when someone eats, drinks, sleeps, relaxes, RESTS, the yellow area of the bar steadily increases over time, shrinking the grey area. But what happens if we use all our energy during the day? Or go into the negative? If we don’t recoup stamina/energy throughout the day and while sleeping, then our Stamina Bar, going into the next day, is mostly greyed out. If there’s any yellow at all. We could have pushed the grey area past 0, into the negative. Now, because we’re either running on empty, or borrowing from tomorrow, tasks we could easily do yesterday cannot be done today, or they’re done “half-assed”, because we don’t have the Stamina to do them “properly”. We’d need more REST to replenish our stamina. We’d either need to INCREASE the size of the yellow area of the Stamina Bar and/or DECREASE the size of the grey area to bring us above 0. If we borrow too much of tomorrow, if we extend the grey area of the Stamina Bar too far past 0, it WILL cause burn out. AND irreparable damage if done too often and/or if we’re burnt out, in the negative, past 0, for too long.

View the rest on O&T

[teamlifebalance]

What Happens If You Want to Change Your NDIS Plan Midway?

The National Disability Insurance Scheme (NDIS) is designed to be flexible, but what happens if your needs change before your plan ends? If you find that your current NDIS plan no longer meets your needs, you may be able to request a plan change. Understanding the process and how plan management can help is essential for a smooth transition.

When Can You Request a Change to Your NDIS Plan?

You may want to change your NDIS plan midway for several reasons:

Changes in Your Support Needs: If your condition improves or worsens, you might need different types of support.

New Goals or Priorities: You may want to adjust your plan to better align with your personal and developmental goals.

Problems with Current Supports: If your current providers are not meeting your needs, you may wish to explore other options.

Unspent or Insufficient Funds: If you are not using your funding effectively or running out of funds too soon, adjustments may be needed.

Steps to Changing Your NDIS Plan

Contact the NDIS: You can request a plan review by calling the NDIS or speaking to your Local Area Coordinator (LAC) or Support Coordinator.

Provide Justification: Be prepared to explain why you need the change, including supporting documents from healthcare providers or service providers.

Attend a Plan Review Meeting: The NDIS may schedule a review meeting to assess your request and discuss the necessary adjustments.

Wait for Approval: If your request is approved, you will receive a new plan reflecting the changes. If denied, you may have the option to appeal the decision.

How Plan Management Helps with Midway Plan Changes

Plan managers assist in several ways when you need to change your plan:

Budget Monitoring: They track your spending and can alert you if funds are running low or not being used effectively.

Guidance on Available Supports: They help you understand if other support options are better suited to your needs.

Invoice Management: Ensuring payments are processed correctly so you can transition smoothly into a new plan.

Assistance in Documentation: Plan managers can help gather financial records and expenditure reports that may support your request for a plan change.

What to Do If Your Request Is Denied

If the NDIS does not approve your request to change your plan, you can:

Request an Internal Review: This allows you to appeal the decision within the NDIS.

Seek External Review: If needed, you can take your case to the Administrative Appeals Tribunal (AAT).

Work with Your Plan Manager: They can help explore alternative solutions to ensure you receive the necessary support.

Conclusion

Your NDIS plan should reflect your needs and goals. If circumstances change, you have options to request modifications. Having a plan manager can simplify the process, helping you track expenses, gather required documentation, and navigate plan reviews. If you need assistance with your NDIS funding, contact Life Balance NDIS Plan Management for expert support.

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[autism-actually]

Our latest meme explores a personal experience of Autistic burnout, and why mental health and wellbeing is important. [Text reads: Autism Actually. Autistic burnout is my body's way of restarting my system. It reminds me to unmask, and put my wellbieng and support needs at the forefront. Shadia Hancock. Copyright Autism Actually, 2020.] [Image description: Humanoid mesh figure sitting on a mountain with their head in their hands]. #Autism #Neurodiversity #ActuallyAutistic #Wellbeing #MentalHealth #Burnout #AutisticBurnout #Masking #SupportNeeds #AutismActually https://www.instagram.com/p/B_3bZbmB6N1/?igshid=11qotozzdeibd

[ikjun]

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[markg20]

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[five-thousand-loaves-of-bread]

it's also so fucking telling when i talk about being AAC user or nonverbal (FULL TIME) or high support needs autism or level 3 autism, it's radio silence

but when a certain group of low support needs autistic: autism spectrum condition! autism is not a disorder! autism doesn't need intervention! just accept us as we are! (All) autistic women mask! we so oppressed MOST oppressed because we mask, autism only taken seriously when it's visible autistic nonverbal white boy!!! or actually no, autism is an invisible disability! (all) autistic women are later diagnosed!

other certain group lower supportneeds late dx autistic classmates: *cant shut up in agreement*

*only talking about certain group of low support needs autistic not all LSN autistic

**masking cause devastating negative affects & diagnosis rates differ based on gender (and race but no one likes to talk abt it lmao bc people dominating this convo are white women lmao) & autism research biased yes but can people get out their fucking asses and actually have nuance and not spread misinformation

i fucking hate changing ASD autism spectrum disorder to ASC autism spectrum condition

tell me you only interact with a specific group of autistic people without telling me it

[teamlifebalance]

Adapting to Changes in Plan Management Rules Under the NDIS

Changes to plan management rules under the NDIS can impact how participants manage their funding and access supports. Staying informed about these changes is essential to ensure compliance and make the most of your plan. This article discusses the importance of understanding updates and how Plan Management assistance can help you adapt smoothly.

Understanding New Rules

NDIS rules are updated regularly to improve the program and its delivery. These changes may affect the way funding is allocated, the use of specific services, or eligibility for certain supports. Your plan management provider should keep you informed about these updates so you can adjust accordingly.

Communicating with Your Provider

When rules change, open communication with your provider becomes even more important. A reliable provider offering Plan Management assistance will explain how updates impact your plan and help you navigate the changes. This support ensures you stay compliant and continue to receive the services you need.

Reviewing Your Plan

Changes in plan management rules may require adjustments to your current NDIS plan. Reviewing your goals, spending, and support needs with the help of your plan manager can help you align with new regulations while maintaining your priorities.

Budget Adjustments

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Planning for the Future

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Why Shop at 101 Distributors GA?

When it comes to finding high-quality Delta disposable vapes, 101 Distributors GA is your trusted partner. Here’s what sets us apart:

Top-Quality SelectionWe source our products from trusted brands, ensuring every vape in our collection meets the highest standards of quality and safety.

Wide Variety of ChoicesOur range includes options for every taste, from bold and adventurous flavors to subtle and soothing ones. Whatever your preference, we’ve got you covered.

Competitive PricingPremium vaping doesn’t have to break the bank. We offer affordable pricing so you can enjoy high-quality products without overspending.

Exceptional Customer SupportNeed assistance or recommendations? Our knowledgeable team is here to guide you, ensuring your shopping experience is smooth and enjoyable.

How to Choose the Right Delta Disposable Vape

Selecting the perfect vape is simple when you shop with us:

Explore Our Website: Visit 101 Distributors GA to browse our collection of Delta disposable vapes.

Filter by Preference: Whether you’re looking for specific flavors or a particular style, our intuitive site makes it easy to find exactly what you want.

Place Your Order: Once you’ve made your choice, enjoy a seamless checkout process and fast shipping.

Take Your Vaping Experience to the Next Level

Delta disposable vapes are perfect for those who value convenience, quality, and flavor in their vaping journey. At 101 Distributors GA, we’re here to help you elevate your experience with products that deliver outstanding performance and satisfaction.

Ready to discover your next favorite vape? Visit our website today and explore the premium selection of Delta disposable vapes waiting for you. Your perfect puff is just a click away!