#unknown disability

[chaoss-incarnate]

my mum got a pill off an elderly neighbour of ours that helps her with pains, thinking that it might help me to (don't say anything about it, i researched the pill and it treats the problem i believe i have, and its all fine)

so i took it last night and?? i woke up and no pain??? WHAT?? we took a walk on the mountain with the dog and i only took my cane and i ended up folding it away in the backpack?? I RAN??? I WALKED PROPERLY WITH NO FEET SHUFFLING OR LIMPING OR ANYTHING?!

the thing is that now my pains are back :( i got up from the sofa and my knees almost gave out from under me :( BUT it was a good experience and certainly says something about my body

[eddybear-owo]

OH MY GOD DO U GUYS ALSO HAVE MYSTERIOUS LEG PROBLEMS THAT LIKE TO FLARE UP RANDOMLY???? :0

[alexstyx]

officially I’m diagnosed with either adrenal insufficiency or adisson’s disease. the doctors haven’t told me which yet. and some sort of thyroid issue

[dumbwolfdog]

by the way, the "unknown disability" in my bio is due to my situation and the fact doctors don't know what i have lol. they thought i had charcot marie tooth because i fit the criteria to a T, but all genetic testing came back negative so ....Ya. Im disabled but with what..........Who knows

[samsayswhatever]

It's strange having disability's that I can't quite name.

I've been to doctors and they have definitively confirmed that the symptoms are real, but they never gave me a piece of paper that told me what to call it.

I have this *thing* with my arms.

That's what I say in my head.

I was injured, and now I can't always extend my arms, pick things up, or even carry the weight of my own arms with my shoulders. I often am unable to type, use a phone, or even make my own food. I can't drive, sleep on my side, or open the door to my apartment building.

It's thoroughly debilitating, but not having a word for it kills me even more.

If anyone out there has thoughts of what to call it, or what it might be called, let me know. I'm on a hunt for a community, and for me it starts with words.

[haunted-bread]

Of course all my lab results were normal. That would have been too easy of an answer. Hopefully the EMG will find something. I hate not knowing what’s going on.

[spooniestrong]

[fellow-queer-birdguy]

Did anyone else's chronic pain go from just bothering you to FUCKING everything up??

Because that sure happened to me. Went from "my hip kinda hurts when I walk and my joints crack a bit. Slight headache too." to "oww my hips gave out again, and hurt like hell. Also my joints are cracking and it's very painful. Can't walk anymore today. Oh and my head hurts for the 3rd month in a row."

[pulchrasilva]

Thinking about William as a metaphor for disability again. Thinking about how William got into an accident and suddenly he's watching his body rot and fall apart. How does he cope with that? How do his family and friends cope with that? Thinking about how he died, and in a way he and the people around him have to mourn that. How when you're recently disabled you might mourn the ability you've lost, and people around you might mourn because they believe they've lost something too even though you're still RIGHT THERE. Thinking about the monsters in Deadwood being attracted to the wisps and ultimately forcing him to leave home and how that reflects the world suddenly becoming inhospitable and hostile towards you overnight. How rather than making Deadwood safer for William, he had to just leave. How often the way the world treats disabled people forces them to retreat from it in some way. How William was just arguing that the Lich didn't have rights because it wasn't alive, and then finding out he's dead too. How disabled people have their personhood stripped from them by people who think they'll never be disabled so why should they care. Are you listening to me

[punkeropercyjackson]

Team Parent Percy Jackson headcanons

Before i forget to do them again!!He is canonically but Rick dosen't expand on it and i also don't wanna hear any critisism because this is based off irl experiences and Percy used to his full potential because he deserves better

I wanna start off with the canon evidence:He's the eldest main hero in the franchise(T.oa is Not Real)and the most experienced one too,he feels the need to look out for younger people all the time and this is a springoff growing up a bully beater that was so set on protecting the innocent he never stopped even after getting kicked out of 6 schools by age 12,he's constantly compared to Poseidon as a foil to him whos's him but better,Hazel said he looked like a roman god which her dad is and Percy himself even compared his relathionship with Nico to acting like Sally does with him

He also said Sadie looks like his daughter and he specifically used 'mother' for the Nico part so darkskin afro-dominican and transfem bigender Percy is hashtag real <3

Nico and Hazel are his platonic soulmates by choice in every universe and they're known as 'The Dead Sea Siblings'.No Hoo retcons for Nico and Percy's dynamic and in fact between Botl and Tlo they spent the year bonding and reconnecting so when Hazel comes in to complete them they're a proper trio like they were always meant to be and Sally legally adopts Nico and Hazel after Tlo and after Boo respectively but they keep their birth surnames just for shortness' sake

He calls them 'Papito' and 'Mamita' and helps them take care of their hair and they have wash day together with Percy doing the work most often and Nico and Hazel lean on him for support both emotionally and literally when they're exhausted.They hang out almost 24/7 and the younger two are enrolled at a Special ED school as Percy convinced them to out of regret from rejecting Sally's offer to him when he was in elementary school because his internalized ableism was so bad already he had a meltdown and then a shutdown about it.He made sure to tell Nico and Hazel how smart they are too since he knows what it's like to have almost nobody say it to you

He guiltrips Poseidon into giving him money for Nico's chronic pain meds and mobility aids and helps Hazel out with girls,with her love life being as Mabel Pines-esque as she is(Nico is Dipper obviously)

He radicalized them as a multitype punk(afropunk,crustpunk,seapunk and solarpunk-The sea does not like to be restrained)so Nico's goth punk and Hazel's pastel goth punk.He taught them all they needed to know and takes them to safer punk activities like charity events and shows until they get old enough he's comfortable taking them on riots with him too.His battle jacket patches include a skull and a yellow diamond to represent them and a part of punk culture that appealed to him big time was the emphasis on children's rights in the form of older punks taking care of and protecting baby punks.Naturally he did Nico and Hazel's piercings for them too

He uses his powers to make beach days straight up tropical for them and just in general loves making kids happy by doing water tricks for them.He himself is pretty kiddy as a way of healing his inner child and having intergenerational friends where he gets to be the caretaker so he can give kids who're like he used to be a better childhood than he had which includes not making them be his therapist but the reverse is a huge help(Percy just like me fr fr).He loves legos,video games,cats,cartoons,princesses(also his type in women,specifically BLACK princess-y girls since i mean Andromeda?Duh)and pink is his second favorite color after blue

He looks like as much of a dad as he acts like.He's 6'4,thick as fuck(healthy fat and muscles mix),has long hair,super darkskinned and strongfeatured and radiates a vibe that puts off normies and makes children think he's trustworthy.The piercings(tongue ring,eyebrow,spider bite and forward helix on both ears)give him an edge that's oddly friendly

His cooking skills are on par with Sally's so he packs Nico and Hazel lunch and leaves them little sticky notes with positive words/gentle reminders on them.They share the bed often so they can all have good sleep schedules and it was Percy's idea with Hazel's convincing Nico after his initial hesitance out of worry his boney cold build would be uncomfortable to sleep with but they think he's as snuggly as a teddy bear and Percy having boobs thanks to being on estrogen in the past makes his chest comfortable to lay on(Nonsexually for them.If you make it sexual please repent and disintegrate,i literally grew up doing this with my relatives who're girls like me)

Has a 'Protect Trans Kids' banner in his room and a pin of it on his battle jacket.He's known as the cool punk Manhattan dude you go to if you're having gender troubles because he knows his shit and just what to say because of his extreme gender fuckery and obviously Nico and Hazel are his trans kids and inspired him to start handing out knowledge of transgenderism to younger generations in general and same goes for autism,even more so because he's literally the most autistic character ever

The little kids at camp consider him more their parent than their godly ones and some of them even call him 'Dad' or 'Mom'.It makes Percy tear up every time because it makes him feel like really succeeded in breaking the cycle of abuse and changing the system(as if he didn't straight up kill Zeus and cause a revolution he helped out on a lot)

Owns matching Aquapets with Nico and Hazel and it was their idea to buy them so they searched for ones together at thrift stores

He gets maddddddd if someone hurts younger people even if he dosen't even know them and jumps to their defense because it's a built in instinct at this point

Carries around a backpack with emergency items in case anything happens and has important facts about the kids memorized

Wholesome memes connoiseur.These are literally Percy core but he has an entire phone gallery of them saved for when his loved ones are sad:

I wanna make the obvious nsfw jokes but i also want to keep this post to be pg so imma just say Dilf Percy.Yeah that's it

[chaoss-incarnate]

hi everyone! i don't think people are really interested but since i started talking about a possible disability, my cane, etc, on here, i thought i might update jsjsj

SO i went to the doctors three (i think?) weeks ago, and he told me that the problems i was having were caused by bad posture and my feet are a weird shape because of me walking weird (i was not aware of this lmaooo). so he said i should start swimming (i was gonna start this week but i got super sick).

the problem. my issues are DEFINETLY not caused by the shape of my feet and poor posture. i mean, i could certainly improve my posture and do more exercise (in fact, i'm working on it, remembering to sit up straight, doing stretching/yoga usually once a day, etc), but like?? theres def an underlying problem that i think is chronic pain and fatigue. like, doing simple tasks around the house leaves me pretty tired (like now for example, i washed the dishes, cleaned the stove and brushed the floor, and my back, arms and knees are KILLING me, and i feel pretty lightheaded). so yeah, i know this is most likely worsened by the fact that im sick and on my period (triple whammy lmao) but its been getting worse for over a month. like, i leave my house and stay out for like 3-4h doing errands and shit and i can barely walk home, having to use my cane AND my mum's support to walk around. it just kills me. plus sometimes my legs get so tired from pain and shit that my knees buckle and they hit the floor, overall making it worse. plus my fucking migraines-

okay, im SO SORRY for ranting about this, its turned into a vent about my pain and honestly you dont have to read it. the thing is that me and my mum were planning to go to the emergency room at some point when possible, but today she told me to call my regular doctor? i haven't done it yet since i want her to explain why to me.

one big problem regarding this is that i downgrade my symptoms to people, i worry about being a nuisance. however, i do this at the doctors too, and thats not good because they wont take me seriously unless i tell them everything (and maybe even exaggerate a little, everyone says to do it). if anyone has any tips for this lmk .

also! i quite like my cane but sometimes i believe that i could use some more support, and i really hurt my arms and shoulders using my cane. i was looking into crutches? im honestly not sure. anyways, if you have an opinion also lmk <3

i apologise for this absolute rant, but i think i needed it, thanks for reading if you've reached here

extra: i was reading about spoon theory and i definetly will be using!

[muzzleoleum]

this is how i feel when i go to appointments for them to tell me "we know there's something functionally wrong, and it's serious, but we have no idea what it is!!" then do literally anything to try and figure out what it is?? like i might need more acute care for this and they just keep saying something is wrong but they don't know what it is. I've had chronic GI issues since i was like 7-8 years old, and every time I go to the doctor they say "we know there's something functional, and some of your tests show that, but we don't know what exactly is going on because we don't have the full picture" LIKE omg i'm losing my mind at this point. I've been diagnosed with other stuff but for some reason they cant figure out what's wrong with my gi tract right now

[feelingthemode]

disability pride month userboxes part 5/5

posted these on insta throughout the month :3

[b-blushes]

thursday quest - no physical therapy today - make and eat lunch sooooo early but i can do it!!!!! - get ready for wedding - attend wedding! yay! (: - decompress well when i get home <3

[traashgremlin]

Hm question to my disabled folks who suffer chronic all over body pain and chronic heavy never goes away exhaustion. Mobility aids?

Cane's don't seem to work well for me.

So i was thinking crutches. But I'm so tired all the time that I worry that wouldn't work either.. but being plus sized. And young. I'm so scared of judgement by others over me being in a wheelchair.

But. My current thing is is i don't have a diagnosis yet. But I've been seeing doctors for almost 5 years trying to find out what is wrong. Over these years I've been suffering from a horrible exhaustion that doesn't go away no matter what I do. And pain that is most times unbearable but I grit my teeth and deal for the time being.

But I'm just looking for some advice I suppose

[spooniestrong]