#Long covid research

[pandemic-info]

https://twitter.com/coffeeteanxiety/status/1736750299551826127 I’ll stop masking when the world’s leading researchers on Long C0vid do. Prof. Akiko Iwasaki: "I'm still wearing my 😷 everywhere." Michael Peluso, MD: "I'm very strict, actually, about 😷." Ziyad Ai-Aly, MD: "Yes, primarily because of Long C0vid. I don't want Long C0vid."

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https://twitter.com/sri_srikrishna/status/1736460422499459115 Full of DEEP INSIGHTS ABOUT LONG COVID. At 1:01:15, panelists were asked if they continue to be covid-cautious by wearing masks 😷(even though many at infectious disease conferences no longer do), all three nodded yes with a smile 😃 and they MASK TO AVOID LONG COVID

[lcacommunuty]

Join the Best Long COVID Community Online: LCA Community Unveiled! 

Are you one of the individuals who just recovered from Long COVID using Apheresis treatment or some healthcare professional treating Long COVID patients? Then, you’re eligible to join the best Long COVID community – LCA Community. We are a group of health enthusiasts aiming to draft a comprehensive study on the effectiveness of each form of Apheresis treatment. You can join your reports or research findings to help us. Visit our website to contact us now! 

[pandemichub]

Take action on RECOVER and NIH below

[intersectionalpraxis]

"For the study, the team at the University of Georgia prepared the drink using one tea bag per cup steeped for 10 minutes, with no additions such as milk or sugar. They found that all five teas reduced the virus by at least 96 per cent within 10 seconds in the mouth, while black tea reduced the virus by 99.9 per cent." "Inactivating Covid in the mouth works as the virus often infects and replicates inside the oral cavity, passing through the middle part of the throat before reaching the lungs. Malak Esseili, a virologist with the University of Georgia, who led the study, said: “At this stage, we are not suggesting tea as a stand-alone intervention against Covid, because the virus also replicates in the nose and may have already reached the lung by the time a person tests positive." “But tea can be an additional layer of intervention that the patients and their families can easily adopt on a routine basis.” She added that “having something that is accessible, easily prepared, and suitable for all the family would be ideal” to protect against the virus." "The results come after a study published last year in Japan found that drinking a matcha latte or a green tea could “effectively inactivate” Covid. Scientists at the Kyoto Prefectural University of Medicine found that chemicals in tea could bind to the spike protein sticking out from the surface of the virus and prevent it from infecting cells."

I am such a huge tea lover and this is incredible! I hope we get more studies about this in the future too!

[puppyeared]

Why are ppl scared to call it what it is and say we’re still going thru covid on top of seasonal illness. Like. That’s pretty important right. I was watching the news and they were like oh yeah we have an unprecedented number of flu cases “as well as other sicknesses” without actually saying Covid. No announcement abt vaccinations or masking or anything. Also if I hear someone joking abt “war flashbacks” for mentioning covid I fucking hate u

[flango87]

I’m looking to compile current resources (studies and such) on Covid and long covid, so they’re all in one place and I can have the information on hand when ppl argue that covid isn’t a thing anymore, or that it’s just a flu. If you have any good resources pls send them my way!!! Ill create a master doc or something with everything so other ppl can have it too

[snzluv3r]

i actually feel so incredibly uncomfortable and isolated in this space right now and i know that’s silly because of how many people there are just like me who share the same feelings but idk…the fact that people even think this is defensible behavior is making me feel sick

[daisiesonafield-blog]

Abstract:

Full article here

[theculturedmarxist]

[thepastisalreadywritten]

[pandemic-info]

What Is Long COVID? Understanding the Pandemic’s Mysterious Fallout > News > Yale Medicine

Originally published: April 15, 2024. Updated: June 4, 2024

Just weeks after the first cases of COVID-19 hit U.S. shores, an op-ed appeared in The New York Times titled “We Need to Talk About What Coronavirus Recoveries Look Like: They're a lot more complicated than most people realize.”

...

Unlike most diseases, Long COVID was first described not by doctors, but by the patients themselves. Even the term “Long COVID” was coined by a patient. Dr. Elisa Perego, an honorary research fellow at University College in London, came up with the hashtag #LongCOVID when tweeting about her own experience with the post-COVID syndrome. The term went viral and suddenly social media, and then the media itself, was full of these stories.

Complaints like "I can't seem to concentrate anymore" or "I'm constantly fatigued throughout the day" became increasingly common, seemingly appearing out of nowhere. With nothing abnormal turning up from their many thorough lab tests, patients and their physicians were left feeling helpless and frustrated.

The World Health Organization (WHO) has defined Long COVID as the "continuation or development of new symptoms three months after the initial SARS-CoV-2 infection, with these symptoms lasting for at least two months with no other explanation." This deliberately broad definition reflects the complex nature of this syndrome. We now understand that these symptoms are wide-ranging, including heart palpitations, cough, nausea, fatigue, cognitive impairment (commonly referred to as "brain fog"), and more. Also, many who experience Long COVID following an acute infection face an elevated risk of such medical complications as blood clots and (type 2) diabetes.

In April 2024, an estimated 5.3% of all adults in the United States reported having Long COVID, according to the Centers for Disease Control and Prevention (CDC). Data from the CDC suggest that Long COVID disproportionately affects women, and individuals between the ages of 40 and 59 have the highest reported rates of developing this post-acute infection syndrome.

...

Inderjit Singh, MBChB, a YSM assistant professor specializing in pulmonary, critical care, and sleep medicine, and director of the Pulmonary Vascular Program, is actively engaged in clinical trials aimed at uncovering the fundamental underpinnings of Long COVID.

...

Through this work, a significant revelation emerged. They observed that patients grappling with Long COVID and facing exercise difficulties were unable to efficiently extract oxygen from their bloodstream during physical exertion. This discovery identifies a specific cause underlying the biological underpinnings of Long COVID.

... Dr. Singh, along with other researchers, is focused on the identification of blood-based markers to assess the severity of Long COVID. For example, a research group, led by Akiko Iwasaki, PhD, Sterling Professor of Immunobiology and Molecular, Cellular, and Developmental Biology, and director of the Center for Infection & Immunity at YSM, most recently created a new method to classify Long COVID severity with circulating immune markers.

Further investigations conducted by Dr. Singh's team identified distinctive protein signatures in the blood of Long COVID patients, which correlated with the degree of Long COVID severity. Researchers identified two major and distinct blood profiles among the patients. Some of them exhibited blood profiles indicating that excessive inflammation played a prominent role in their condition, while others displayed profiles indicative of impaired metabolism.

...

Researchers currently believe that the impairment of a spectrum of key bodily functions may contribute to these diverse symptoms. These potential mechanisms include compromised immune system function, damage to blood vessels, and direct harm to the brain and nervous system. Importantly, it's likely that most patients experience symptoms arising from multiple underlying causes, which complicates both the diagnosis and treatment of Long COVID.

...

The last word from Lisa Sanders, MD:

I’m the internist who sees patients at Yale New Haven Health’s Multidisciplinary Long COVID Care Center. In our clinic, patients are examined by a variety of specialists to determine the best next steps for these complex patients. Sometimes that entails more testing. Often patients have had extensive testing even before they arrive, and far too often—when all the tests are normal—both doctors and patients worry that their symptoms are “all in their head.”

One of our first tasks is to reassure patients that many parts of Long COVID don’t show up on tests. We don’t know enough about the cause of many of these symptoms to create a test for them. The problem is not with the patient with the symptoms, but of the science surrounding them. If any good can be said to come out of this pandemic, it will be a better understanding of Long COVID and many of the other post-acute infection syndromes that have existed as long as the infections themselves.

[crowniko]

guys!!! I used my cane out in public for the first time today!!! :D

I was so nervous bc I'm an ambulatory cane user, and there's nothing wrong with that, but there's a lot of confusion from abled bodied people when they see me pick my cane up to quickly do something and then use it again, or swap it to my other hand. they don't need an explanation though, and it's none of their business. they can inform themselves and I'm allowed to use a cane, so I did and I'm proud of myself.

due to my ME CFS and long COVID I've grown really weak and it's hard for me to balance when I walk or stand for a long time, so I got a cane to help with that. I'm hoping that it'll help me prolong my period of activity/energy and reduce my PEM. I'm hoping to also talk to my doctor in the future about other mobility aides but for now this will do.

overall, today was a good first experience. I did get some odd looks from people, but I'm just gonna take it as them checking me out bc I looked cool as fuck in my tech wear with my black cane.

hell yeah.

(important note: stickers are on the way to make my cane even cooler)

please excuse me if something doesn't make sense wording wise. due to my brain fog it's really hard for me to write and think of the correct words for what I'm trying to say. thanks! <33

-nico

[thatdiabolicalfeminist]

If you haven't been keeping up with all the latest long covid research, it's neatly summarised and sourced here.

[pandemichub]

More information about Stanford research goals and the RECOVER Program/Initiative:

[palms-upturned]

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[sesamenom-misc]

brief survey

*common symptoms include:

physiological - lingering chest pain, shortness of breath, lingering cough, heart palpitations, abnormal heart rate

neurological - brain fog, general cognitive decline, fatigue, language/word retrieval issues, short term and long term memory issues, abnormal executive dysfunction, difficulty concentrating, exacerbation of pre-existing depression or anxiety

**if you first contracted covid before vaccines were available, you can count it as unvaccinated