#and I'm way more fatigued

[nexus-nebulae]

do my sleep meds make my fucking time blindness worse

[acarrcreations]

Chronic fatigue syndrome isn't just "being tired all the time" it's:

• Cancelling plans last minute, even if they've been planned weeks in advance/you really wanted to go/even if it's just talking over voice chat online because of exhaustion or pain

• Having insomnia because of waking up in the night due to pain

• Being so tired you struggle to string a sentence together/ forgetting what you were saying half way through a sentence/memory issues

• Struggling to do the hobbies you loved or completely giving up on them

• Having to suddenly drop what you were doing to go sit/lie down because of dizziness/breathlessness/muscle pain/exhaustion/chest pains

• The frustration and boredom of not being able to do what you want, even simple everyday things

• Having a full night's sleep and feeling exactly how you did the night before

• Having to deal with the bs that is post exertional malaise, and calculating what days/activities are worth more than others

• Realising how much you took for granted before getting sick

[halogalopaghost]

I can really judge how bad of a day I'm having based on how hard it is to get tucked in bed. Sometimes just lifting my weighted blanket to get under it is a HERCULEAN effort. Im working on coming to terms with the fact that this is not my fault.

[phoenixcatch7]

Love how sometimes I'm like 'I've been doing pretty well recently, maybe I'm not as ill as I thought, I need to get out and do something' and then I go to the library, spend the whole time face down on the table, and then need to recover for a full week and I'm like 'nvm lol'.

[afniel]

God damn I'm tired and extra dizzy today, which I've figured out some of why that happens. Evidently that's my reaction to overstimulation fatigue. Good to know, explains a lot. No idea what to do about it and I did expect to have some sucky days after going to San Francisco anyway so it's whatever, but it's nice to have figured out a specific trigger.

Except that's cool and all but I almost couldn't fold laundry today because it involved a lot of looking up and down and that was unnecessarily rough. This was after sleeping like 11 hours because my shit-ass tired-ass brain demanded a hard reboot more or less, and I'm still kind of gross today even so. Kind of glad they rescheduled the root canal I was gonna have Tuesday for like two weeks out, because I am probably not gonna be quite recovered for another week at least and dental work fucks me up also so that would have been an Everything Hurty Syndrome 2x Combo.

Bleh. At least when I'm writing chronic illness/disability it's some own voices legit type ass shit, but does it have to be, because I could do without this. My whole me hurts and nothing seems to help and also turning my head too fast will knock me the hell over. Good times. ✌️😔

[wewontbesleeping]

i love going to target and looking at all the Items, but now everything is behind a locked wall and it's not fun anymore :-/

[screambirdscreaming]

ok this is a long fucking shot but does anyone out here know anything about. Allergies but rather than having itchy runny-nose symptoms you just feel systemically like shit. Like fatigue, nausea, vague headache, moderate-to-severe excercise intolerance, that sort of thing. But correlated to like, pollen exposure. Or just air quality in general?

The best ballpark diagnosis I have is asthma, but I've never actually had An Asthma Attack so I don't know if that's.... right. And even if it is, I can't really find good research or resources on managing systematic effects of asthma at this like... non-acute, non life-threatening severity.

Sometimes with weird medical shit like this, there's information that exists if only you can find the right keyword to search.... maybe somebody's got something?

Or even just, it'd be nice to hear if anyone elae deals with this and I'm not, like, completely insane*

*for this. other insanity unspecified.

[thethingything]

had to lay down. woke up at nearly 7am. got overwhelmed by our sleep schedule once again being fucked because yesterday we actually went to bed at roughly the right time and thought "oh this is great we've fixed it". decided that we're just gonna deal with it and it'll be fine. and then our brain decided that no actually we're gonna have a combination of emotions that's maybe gonna give me another breakdown if I can't figure out how to deal with them but I have no fucking clue what to do with them

[plexippusangel]

I either need to accept that I am just a way stronger person than this friend and can handle way more while still being able to engage with the world as a person, or recognize excuses as excuses, accept that I am not valued and be done or. Maybe both. Idk. It might be somewhere between the two. I am just sick of regular life stuff rendering him unable to spend any time with me, and of him being unable to bear any of the details of my life, when I would move mountains to rekindle our friendship. Though I'm starting to wonder if I still would.

[paintalyx]

it might have taken me a month to do so, but i'm glad that i finally worked up the strength to be able to do ten proper pushups on the floor. it doesn't sound like much, but considering how i was recovering from muscle atrophy that stemmed from a health condition, i'm damn proud of the progress

[vivid-vices]

i really think the world could stand to be a tiny bit more understanding of low-empathy people

[jamboreeartsupplies]

MEET S.P.O.O.N, my emotional support Zebra Furby Buddy 🖤

S.P.O.O.N stands for Sir Princess of Obvious Neurodivergence because i insisted he has a long funny name that can be shortened. she uses any pronouns and goes by both Spoon and Sir Princess as nicknames lol

i take them with me to doctor appointments and stuff 🖤 also my dog Sunny loves Spoon, i think she likes that it doesn't make noise lol

[dadbots]

August… time to get spooky.

[manasurge]

ugh vyvanse is on backorder :( and it's the long weekend too. Looks like I'm probably going without it for a number of days, which is going to suck significantly for me. This sorta thing ALWAYS happens on long weekends I stg (also wasn't the patent supposed to be removed? shouldn't this sort of thing be easier now? idk maybe it's going to be super delayed for Canada as usual. Sobs).

[of-another-broken-heart]

Damn, that survey about jam on toast really has me wishing we had bread (and butter) because I could DESTROY like half a loaf all by myself right now.

Which of my menagerie of maladies is to blame for me craving salt and fat above all else?

I don't fucking know.

Even day-old bread costs like $4 a loaf now. And butter, that shit's like, double digits for a pound.

I don't remember the last time I could eat enough to actually feel full.

I say, while just wanting fucking. Bread.

Hit me with the peasant scraps. I will take your stale heels and I will be delighted.

[thatwitchrevan]

I'm not on the internet bc I don't have a life or need to be constantly entertained I literally spend car rides thinking and daydreaming and my idea of fun is making shit and organizing and being outside. I just have adhd and chronic fatigue and need to be able to do something interesting when i have no focus or energy to do something which is a lot of the time. I swear I am doing everything in my ability. Thanks 🙏