#chronichealth

[impactofhealth]

Empower Yourself: Thriving Despite Chronic Health Conditions

Living with chronic health conditions can be challenging, often requiring significant adjustments to daily life. From managing symptoms to navigating healthcare systems, individuals with chronic illnesses face unique hurdles. However, despite these obstacles, it’s possible to not only cope but thrive. Empowerment plays a crucial role in this journey, empowering individuals to take control of their health and well-being. Read More...

[dashinghealth]

Living with Chronic Disease: A Journey Through Hope and Perseverance by Idongesit Okpombor MD

Living with chronic disease can be a challenging and overwhelming experience. It can change every aspect of your life and create deep feelings of fear, discomfort, and uncertainty.

However, it's important to understand that living with chronic disease does not have to be a death sentence. For those who choose to navigate through the difficulties, it can be a journey of hope and perseverance.

This blog post will explore what it means to live with a chronic disease and the steps you can take to maintain a positive outlook on life. We'll cover everything from the physiological effects of chronic disease to the emotional toll it can take on your mental health.

Additionally, we'll look at different coping mechanisms that patients living with chronic diseases use to maintain hope and focus on the present.

We'll touch on the importance of taking care of your physical well-being, seeking support from loved ones, finding purpose in life, and setting realistic goals.

Accepting a New Reality

One of the key steps to living with chronic disease is accepting a new reality. This can be a difficult task, as it may involve giving up activities and routines that were once enjoyed, as well as adjusting to new limitations and uncertainties.

However, acceptance is an essential part of the journey through hope and perseverance. It allows you to redirect your energy towards finding new ways to adapt and manage your condition, rather than clinging to unrealistic expectations or continuously mourning what was lost.

While coming to terms with a chronic illness may be a challenging process, it is important to remember that it is a journey, not a destination. By accepting a new reality and approaching each day with a positive mindset, you can take steps towards finding joy and fulfilment in your life, regardless of your health challenges.

Openly Communicating With Your Care Team

Living with a chronic illness can be challenging, but openly communicating with your care team is one of the most important things you can do to manage your condition.

Your care team may include doctors, nurses, and other healthcare professionals who work together to support your treatment and care.

By communicating openly, you can help your care team understand your needs and goals, and work together to develop a personalised care plan that suits your unique situation. This may include discussing your symptoms, medications, lifestyle choices, and any concerns you may have about your condition.

By working together and staying informed, you can optimise your care and better manage your chronic disease over time.

Adapting to New Demands on Your Time

Living with a chronic disease can significantly alter your life and priorities, leading to new demands on your time. Adapting to these changes can be a challenging process, but it is essential for managing the disease effectively.

One approach that can help is to create a daily routine that incorporates the necessary treatments and self-management practises.

This might involve scheduling medication times, keeping track of daily symptoms, and arranging for transportation to medical appointments.

Additionally, it is crucial to communicate openly with family, friends, and colleagues about the changes in your life and your need for support. With dedication and flexibility, it is possible to find a new balance and adapt to the demands of living with a chronic disease.

Making Healthy Lifestyle Changes

Making healthy lifestyle changes can be intimidating for those suffering from chronic diseases, but it is a necessary step on the path to better health.

Making small changes to your everyday routine can have a significant impact on your overall wellbeing.

It's important to start with manageable changes, such as increasing physical activity by taking a 10-minute walk each day or swapping out processed snacks for fresh fruits and vegetables.

Gradually increasing the duration and intensity of physical activity and incorporating healthy food habits can lead to long-term success.

It's also important to prioritise adequate sleep and stress management techniques, as both can have a significant impact on overall health.

Remember, making healthy lifestyle changes is a process that requires patience, perseverance, and a supportive network that includes healthcare providers, friends, and family.

Developing Coping Strategies

Developing coping strategies is an essential aspect of living with chronic disease.

Coping strategies refer to the techniques and approaches that people use to manage the physical, emotional, and psychological challenges that arise from living with chronic disease.

Coping strategies can vary from person to person and even from day to day. It is important to identify strategies that work best for each individual, and this may involve experimentation and trial and error.

Some common coping strategies include stress reduction techniques, such as meditation or deep breathing exercises, creating a strong support system with family and friends, seeking professional counselling, and engaging in regular physical activity.

Developing coping strategies can help individuals maintain a positive outlook, reduce stress, and improve their overall well-being while living with chronic disease.

Connecting with Others Living with Chronic Disease

Connecting with others who are also living with chronic disease can provide powerful emotional and practical support. Sharing similar experiences and feelings with others can make you feel less alone and help normalise the challenges of living with chronic illness.

There are many ways to get connected, including joining in-person support groups, participating in online forums and chat rooms, and attending educational events or workshops.

These connections can also provide a wealth of valuable information, resources, and strategies for managing symptoms and coping with the emotional impact of chronic disease.

Remember, you don't need to go through this journey alone. Building a support network with other individuals who understand what you are going through can be a vital aspect of living with chronic disease.

Staying Informed About Your Condition

Staying informed about your condition is an integral part of managing chronic disease.

Healthcare providers are the primary source of information, but there are also several other reliable sources of information available.

Make sure to regularly consult with your healthcare team and ask questions. They can provide you with the latest updates and developments in treatment options and advise you of lifestyle changes that can have an impact on your condition.

Additionally, there are many reputable resources, such as online articles, support groups, and community forums, that can provide valuable information and support.

Remember, it is crucial to prioritise staying informed about your condition and to constantly evaluate and adjust your strategies for managing it. This will empower you to take an active role in your healthcare and make informed decisions to improve your quality of life.

Seeking Support from Family and Friends

Living with a chronic disease can be challenging and emotionally draining, but seeking support from loved ones can be invaluable.

Family and friends can provide a source of emotional support, motivation, and encouragement. It is important to have a supportive network of people who understand the struggles they face.

This can come in the form of physical support, such as assistance with daily tasks or transportation to medical appointments, as well as emotional support, such as being a listening ear or providing words of encouragement.

It is crucial to communicate openly and honestly with loved ones about the challenges of living with a chronic disease and to reach out to them for help when needed. Seeking support from family and friends can not only ease the burden of living with a chronic disease, but can also lead to a greater sense of connection, hope, and perseverance.

Finding Ways to Celebrate Your Wins

Living with a chronic disease can feel like an uphill battle, but it is important to remember that even small victories deserve to be celebrated.

Whether you have achieved a goal related to managing your symptoms, completed a task that may have felt overwhelming before, or simply had a good day despite the challenges that you face, finding ways to celebrate your wins can help you stay motivated and keep your spirits up.

It is important to acknowledge the hard work and effort that you put in every day to manage your chronic condition, as this can help build resilience and promote a positive outlook.

Some ways to celebrate your wins could be by treating yourself to a favourite activity, spending time with loved ones, or acknowledging your successes in a journal or gratitude list.

Don't forget to also surround yourself with supportive individuals that will acknowledge your wins and cheer you on as you go through this journey of hope and perseverance.

Finding Your Own Path to Hope and Perseverance

Finding your own path to hope and perseverance is an essential part of living with a chronic disease. No matter what condition you have, it's important to remember that you are not alone in your journey.

Many people with chronic illnesses have found that connecting with others who share their struggles has been incredibly helpful in maintaining hope and perseverance. You may find online support groups, local support groups, or friends and loved ones to talk to about your experiences.

Additionally, mindfulness practises, such as meditation and yoga, have been shown to decrease stress levels and improve overall wellbeing. It's important to experiment with different coping strategies until you find what works best for you.

Remember to take things one day at a time, and celebrate each small victory along the way. With perseverance and a positive attitude, you can continue to thrive in spite of your chronic illness.

In conclusion, living with a chronic disease is a difficult journey that challenges a person's physical and emotional well-being. However, the journey can also be an opportunity for growth, hope, and perseverance.

Through self-care, seeking support from loved ones and healthcare professionals, and living a purposeful life, you can break free from a victim mentality and find strength and resilience to thrive.

As difficult as it may be, every day of living with a chronic disease is an opportunity to appreciate life and all it has to offer.

NEXT READ: Understanding the Complexities of Chronic Diseases

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[leeharrington]

It’s been a whirlwind body week+ and today I had the delight of an excited dog landing full force on my left hip causing a cascade of functionality drop. Feeling such gratitude for the folks I was supposed to be on different zoom calls/sessions with today moving plans to the weekend or next week. Gratitude to my Boy helping get me standing, fed, drugged, into/out of baths, even getting my shoes on so I could take an Uber home. I need home time. One of the challenges with my body adventures though is that if it is hip, knee, back, general vertigo, or Meniere’s related, going up and down stairs is tricky… if possible. Had the aha 2 weeks ago to offer keys to my building/home to a few extra folks, plus that if I remove the bug screens from a window I can toss my keys down so others can come up. I have such gratitude for the people in my life. For their generous spirits and open hearts. Now to battle internalized ableism mixed with the dance of not always being able to “prove” it is bad. Plus, to feel the love of well-intended offers of ideas that are not actually viable for me. Having groceries or food delivered, for example, is a well intended offer… but if I can’t go down 2 flights to then carry stuff back up… such a kind gift becomes a challenge I must now overcome. I feel the love, and, breathing deep, I also ask folks to know what helps someone else. What helps you might not help me. The golden rule states “do unto others as you would have them do unto you.” A beautiful intention. I believe in the platinum rule, “do unto others as they actually want done.” Today I breathe, stretch, hold, whimper, breathe, hydrate, lay flat, stand up, move slow, move a centimeter at a time, letting tears flow and gasps escape. It is okay to be I say to myself. It is beautiful to be in community and a web that carries such love to and from me. Blessed to have those who do not say “get better soon,” as this is a long-term dance. Blessed be. Blessed be. #SpoonieLife #ChronicHealth #ChronicHealthIssues #Gratitude #AttitudeOfGrattitude #CommunityLove #BreatheDeep #PassionAndSoul #LoveMyWeb https://www.instagram.com/p/CmNL89LObNR/?igshid=NGJjMDIxMWI=

[wondawoman007]

[sharingnatural]

Do like to see my client’s feedback ? Here is how I can help you with natural health solutions ! #what are you hoping to learn here? I am a doctor of naturopathy and certified yoga therapist. Let me help you with my unique all inclusive natural remedies. I help you to prevent chronic diseases such as heart disease , diabetes, abd even cancer . If you are a busy mom in middle age and believe in natural remedies , I am here to help you more . Create a great life quality , with practicing what I teach. Comment below 👇. what health problem do you need solution to? To learn more, follow @sharingnaturaly Save and share it. #naturalremedieswork m#feedback #holistichealthcoach #review #holisticlifestyle #naturalsolutionsmama #naturalsolutions #naturalhealingremedies #naturalhealer #naturalhealthtips #naturalhealthsolutions #naturalhealthrevolution #naturalhealthandwellness #askhealth #chronichealth #chronicpainawareness #chronicillnessawareness #chronichealthissues #preventcancer #cancerprevention #cancerpreventiondiet #iridology #iriseye #newportbeachca #naturopathinnewportca #holistichealthdoctor #busymoms #midlifewomen #midlifewoman (at Dr. Shari) https://www.instagram.com/p/ChxoWfIvn9Z/?igshid=NGJjMDIxMWI=

[trikerpoet]

Free money!

please read and share

“Claimants of PIP and other benefits could get £9000 free!” Absolute bollocks!! When you see these headlines do not be taken in. Free cash doesn’t come to anyone but the rich. The vile hacks putting out such shit should be …..erm…..ashamed (very revised comment upon my part) firstly there is no such thing as a benefit, that is a term to fool the foolish. You do not claim a benefit, you claim an…

[chronicfunsyndrome]

My own healing journey progress and reflection for the new year

[upcycleprojectbyrubes]

Neurological disorders- learning disability's.

A learning disability is a neurological condition which affects the brain's ability to send, receive, and process information as a "normal" person would be. A child with a learning disability may have difficulties in reading, writing, speaking, listening, understanding mathematical concepts, and with general comprehension resulting in them having difficulties within school and their learning time as they find it harder to process than a child without one of these disorders. Learning disabilities include a group of disorders such as dyslexia, dyspraxia, dyscalculia and dysgraphia. Each type of disorder may coexist with another.

Harvard referencing:

(No date) Neurological disorders. Available at: https://dphhs.mt.gov/schoolhealth/chronichealth/neurologicaldisorders#:~:text=Neurological%20disabilities%20include%20a%20wide,are%20congenital%2C%20emerging%20before%20birth. (Accessed: 08 November 2023).

Gupta, S. (2022) What is a learning disability?, Verywell Mind. Available at: https://www.verywellmind.com/learning-disabilities-types-causes-symptoms-and-treatment-6386232 (Accessed: 08 November 2023).

Learning disability (no date) Psychology Today. Available at: https://www.psychologytoday.com/us/conditions/learning-disability (Accessed: 08 November 2023).

Neurological disorders (2023) Johns Hopkins Medicine. Available at: https://www.hopkinsmedicine.org/health/conditions-and-diseases/neurological-disorders (Accessed: 08 November 2023).

[unwanted-life-me]

Spoon Theory: A Simple Explanation Of Energy Usage

Spoon Theory: A Simple Explanation Of Energy Usage Spoons equal energy, energy equal spoons. That's the simple takeaway from spoon theory. But there's a lot more too it than that #ASD #MentalHealth #Disability #Health #ChronicHealth #Illness #Motivation

  When I started my blog as a personal mental health blog, I often came across other bloggers talking about spoons, which confused me. But I soon came to learn what they meant by spoons. Since those early days, my blog has grown to include invisible disabilities. It also has less personal mental health stuff, so I could focus on information sharing. Now I want to share what I learnt about spoon…

[dashinghealth]

Understanding the Complexities of Chronic Diseases

Chronic diseases are often referred to as silent killers, mainly because they develop slowly over time and can remain undetected until they reach advanced stages. These conditions are characterized by long-lasting effects on the body, and they can result in significant limitations in daily life activities.

The burden of chronic diseases is enormous, affecting millions of people worldwide, and the prevalence is continually increasing. While the causes of these diseases are multifactorial, they are often linked to lifestyle choices, such as poor diet, lack of exercise, and smoking.

Understanding the complexities of chronic diseases is critical to managing and preventing their onset. Chronic diseases are long-term, persistent, and often incurable, requiring a comprehensive approach to treatment that focuses on minimizing the impact and improving quality of life.

This approach entails understanding the biological, genetic, environmental, and social factors that contribute to chronic diseases' development and progression.

In this blog post, we delve into the complexities of chronic diseases. READ MORE

[daaconnections]

What do you think doctors should understand about your condition(s)? We would love to know your thoughts and concerns, and believe that the medical community should listen. Follow us @Servicedogforum and @daaconnections on tiktok, Twitter, Facebook, Instagram! #invisibledisability #invisibledisabilities #disabled #disability #disabilities #disabilityawareness #disabilitiesawareness #equality #medical #doctors #patients #chronichealth #pain #chronicpain #chronicillness #chronicillnesswarrior #illness #mental #mentalhealth #mentalhealthawareness #mentalhealthawarenessmonth https://www.instagram.com/p/CU6m3AEsN-Z/?utm_medium=tumblr

[charlie-in-a-beanie]

I created an Instagram to talk about my chronic health conditions (aka I need to learn to cope after 7 years of pretending I’m okay)

These photos have nothing to do with my new insta but I look cute and gay so ¯\_(ツ)_/¯

It’s @/awalkinreality if anyone wants to follow ✌🏻

[thefeministbibliothecary]

Today is my third infusion to treat my ankylosing spondylitis. Getting these infusions is especially scary right now since they make me more susceptible to contracting illnesses, and I have to be in a clinic with other people to get them. Fortunately the clinic I go to takes many precautions, including providing a mask for while I'm here. Hopefully it helps to improve my condition in the long run though, I would love to be in less pain. The risks are worth it when it could help at all. In the meantime, I get to sit in a comfy chair with some white noise and a decent little ebook (By These Ten Bones by Clare B. Dunkle, for those who wanted to know). #ankylosingspondylitis #chronicillness #chronicpain #chronichealth #spoonie #infusiontherapy #reading https://www.instagram.com/p/CAam5d0A8ug/?igshid=1lpd8c6ic5ltu

[trikerpoet]

Chronic Health, the battle of the seasons.

I am bored of exhaustion and pain. This time of year truly does become a form of perdition. It makes the stresses & worries placed upon us by others seem completely inconsequential. Opiates and all the other prescribed analgesia has little effect. A few hours of trying to live for the expectation of others leads to days or weeks of immobility and struggle. Chronic illness is not living, it is…

[diaryoftheuglygirl-blog]

Have you heard of Lipoedema ?

No probably not and hey im not surprised.

Let me tell you a little more about the chronic health condition that affects around 11% of the female population.

The info below is grabbed from the NHS website who have only just recently added this to there acknowledged conditions.

Lipoedema is a long-term (chronic) condition where there's an abnormal build-up of fat cells in the legs, thighs and buttocks, and sometimes in the arms.

The condition usually only affects women, although in rare cases it can also affect men.

Symptoms of lipoedema

In lipoedema, the thighs, buttocks, lower legs, and sometimes the arms, become enlarged due to a build-up of abnormal fat cells. Both legs and/or the arms are usually enlarged at the same time and to the same extent.

The feet and hands aren't affected, which creates a "bracelet" effect or "band-like" appearance just above the ankles and wrists.

Leg and arm size can vary between individuals with lipoedema, and the condition can gradually get worse over time.

As well as becoming enlarged, affected areas of the body may:

feel soft, "doughy" and cold 

bruise easily

ache or feel painful or tender

have small broken veins under the skin

Someone with lipoedema may eventually get fluid retention (lymphoedema) in their legs. This type of swelling can worsen by the end of the day and may improve overnight, whereas the fatty swelling of lipoedema is constant.

The combination of these symptoms can lead to reduced mobility and psychological issues, such as low self-esteem.

There's been little research into lipoedema, so there's some uncertainty about the best way to treat the condition.

Causes of lipoedema

The cause of lipoedema isn't known, but in some cases there's a family history of the condition. It seems likely that the genes you inherit from your parents play a role.

Lipoedema tends to start at puberty or at other times of hormonal change, such during pregnancy or the menopause, which suggests hormones may also have an influence.