#genetic pain

[fruitloopabernathy]

Finding out randomly at 5am that actually the reoccurring intense pain episodes you've been having in your hip from like age 16 have actually been genetic the whole time is wild like. What do you mean you had the same thing when you were my age grandma you were my age in 1959. What do you mean they said it was because of your POLIO??????? That you had when you were a BABY??? HUH?????

[grits-galraisedinthesouth]

Meghan Markle to NOprah: I can't imagine doing anything to intentionally cause PAIN to my child. Unlike what my father Thomas Markle did to me & to my future children when he posed for those flattering paparazzi photos

Also Meghan Markle to NOprah: I threatened to MURDER Harry's baby🙄

Meghan Markle to NOprah: I know the PAIN that comes with a title but that will be their decision to make

"All the grandeur surrounding this stuff is an attachment that I don’t personally have, right? So, for me, I’m clear on who I am, independent of all that stuff. And the most important title I will ever have is Mom. I know that  . . . even though I have a lot of clarity on what comes with the titles, good and bad — and from my experience, a lot of pain. I, again, wouldn’t wish pain on my child, but that is their birthright to then make a choice about.

Also Meghan Markle to the world: Presenting Princess White Lili Flour & Prince Arkie of Montecito intentionally baptized into a lifetime of genetic PAIN.

Interesting that the kiddo in the photographs is whiter than Meghan who is whiter than Harry. Dorito's new "Flower."

[asciidot]

what about yellow teeth? my teeth always stayed yellow and that + my poor mental health made brushing just so nightmarish

[teufort-cannibal]

@kimliptree 's headcanons rock,. good fortune! ..bad fortune for sniper

[neurodivergentbraingoblins]

This post is a shout out to all my chronically ill friends ❤️

"If you are in that much pain just go to the emergency room" 🤣🤣🤣 no, just no. The ER does not do what most people think it does. It exists for people who need to be stitched up or suddenly broke a bone. They do NOTHING for pain management and actually will verbally harass patients for going in and wasting their time. I know. I've been one of those patients harassed by the people who are supposed to help me.

"They gave you a referral to a specialist right? Are they going to see you next week then?" - it took 3 months for me to get an appointment with Neurology after getting the referral. Genetics took 2 months, cardiology was a month, and I'm still waiting to hear back from St. Louis about seeing a neurologist there (that referral was put in on August 9th). It takes months to get in to see these doctors, then they spend about 5 minutes (10 if you're lucky!) talking OVER you. Every visit is a fight against the doctors ego to see if you will actually get help this time.

"Maybe you should go to Mayo Clinic or some other place out of state!" - cool, who is going to take me? Who is going to take a few weeks out of their own life to drive me there and stay with me while the doctors do their thing? I can't see so I can't drive myself. I haven't worked since July because of being sick, so I can't afford a ride or place to stay.

"Can't you go a couple days without medication? I know the pharmacy ran out, but it really can't be that big of a deal right?" - I don't even know how to respond to this one. Seriously? The doctor put me on the meds for a reason. Most of them have serious and dangerous side effects when you go through withdrawal. Also depending on how long I'm without them, I have to start back at a lower dose and work back up to the dose I was originally on. Which means TWO prescriptions that I now have to pay for.

"Do you really need to bring your walker/cane with? It's annoying to try and get it in and out of the vehicle. Plus it just slows us down" - do you really need your legs with? It's annoying having to wait for you to put your shoes on. Plus when you wear those specific shoes you walk weird. If you can't stand someone using a mobility aid to help them get around then go find a new group of friends to do things with. I have just as much of a right to be able to go out and enjoy things as anyone else.

There are plenty more things I could add to this post but I'm exhausted.

[sergle]

I think my favorite thing about doing ginger red hair instead of cherry red hair is: lying to people about it

[unicorngunter]

Sometimes it's just a girl and her near death experience against the world

[annasellheim]

You can read my webcomic here for free in full. If you want a PDF or physical copy with a hand painted binder, feel free to DM me.

Again, feel free to read it here.

[soup-spoonie]

Similar to this excellent post about how accommodations can clash---

I would love to see more discussion on here about how very often, families have more than one disabled person—if not several.

It's just a whole other level of exhaustion. Asking for help means taking away their spoons. Enduring hours of pain and even a new injury because they absolutely need your help today and they have no one else. Get-togethers get changed/canceled more than they don't. Each of us has a thing none of the others understands, while also sharing the intense bond of going through another thing together. Psychoanalyzing each other's boundaries and our own boundaries even though we try not to. Watching not just abled people but abled families living a very foreign kind of life. Super awkward conversations about jobs and needing money. Weird living situations. Having to manage appointments and phone calls and meds for yourself but also for three other people. Unwanted advice and kindly meant ableism flying left and right. The pain of realizing you passed on a certain gene. Helplessly watching your elders' suffering and being terrified the same thing is already beginning to happen to you.

... and that's when we're being nice to each other.

It's an awful place for a family to be, and there's beauty in it every day. Sometimes it's a depth of compassion other families will never understand. Sometimes it's refusing to answer your phone because you just cannot deal with that person's problems today.

It's real and it's messy and it's just another way we need more nuance in our discussions about chronic illness, chronic pain, and disability.

[the-meme-monarch]

"i didn't have a horrible horrible cavity pain moment today :) that's great they hurt really really bad so I don't like when they happen" <- doesn't know they're about to brush their teeth and have a horrible horrible cavity pain moment

[tombraiderrocker]

I made a very niche meme to help me cope

[dreamsicle262]

gives everyone in bsd chronic pain. thank you for listening

[grits-galraisedinthesouth]

Why wasn't Byrony Gordon allowed to interview Harry inside the 16 bathroom Casa de Olive Garden? They conducted the interview in the "guest house" (where Harry had just hung photos on the wall) and afterwards she was invited into the "mansion" to observe their "normal" family life.

What a ridiculous Montecito purchase and we all know it wasn't for 2 dumb palm trees. 🏝🏝

[duality-disability]

Does any other disabled person with a mystery illness get the worry that their health problems are genetically caused?

like. I was adopted by my maternal grandparents. I dont know who my dad is, or his family history; My health issues are presenting in a way that no one else on my maternal side does, so I wonder if it's something that just.. Runs very strong genetically on my paternal side.

You don't know you're a zebra if you're in a pasture of horses, and well, you wont know unless someone tells you. A lot of the time you just get told "you're a weird lookin horse."

[the-mountain-flower]

Had a VERY enlightening conversation with my sibling who has chronic pain, and just learned about a LOT of things that aren't normal

Anyway I've got some research ahead of me...

[snarky-does-art]

‼️ATTENTION‼️

Werewolf Wednesday has been extended to all the time forever