#intercranial hypertension

[liminalpsych]

I am so tired of brain fog and fatigue

It was getting better and now it’s worse again

I would like to Do Things with my days. any Things. At all. Not have a few client sessions and then stare into space or have to be horizontal between each session in order to get through the day.

I am so tired.

[bunnywip]

𝘼-𝙕 𝙇𝙄𝙎𝙏 𝙊𝙁 𝘿𝙄𝙎𝙀𝘼𝙎𝙀𝙎/𝙄𝙇𝙇𝙉𝙀𝙎𝙎𝙀𝙎 𝙁𝙊𝙍 𝙎𝙄𝘾𝙆𝙁𝙄𝘾/𝙒𝙃𝙐𝙈𝙋

— A

Anemia.

Adenomyosis.

Asthma.

Arterial thrombosis.

Allergies.

Anxiety.

Angel toxicosis ( fictional ).

Acne.

Anorexia nervosa.

Anthrax.

Atma virus ( fictional ).

ADHD.

Agoraphobia.

Astrocytoma.

AIDS.

— B

Breast cancer.

Bunions.

Borderline personality disorder.

Botulism.

Barrett's esophagus.

Bowel polyps.

Brucellosis.

Bipolar disorder.

Bronchitis.

Bacterial vaginosis.

Binge eating disorder.

— C

Crohn's disease.

Conjunctivitis.

Coronavirus disease.

Coeliac disease.

Chronic migranes.

Coup.

Cushing syndrome.

Cystic fibrosis.

Cellulitis.

Coma.

Cooties  ( fictional ).

COPD.

Chickenpox.

Cholera.

Cerebral palsy.

Chlamydia.

Constipation.

Cancer.

Common cold.

Chronic pain.

— D

Diabetes.

Dyslexia.

Dissociative identify disorder.

Dengue fever.

Delirium.

Deep vein thrombosis.

Dementia.

Dysthimia.

Diphtheria.

Diarrhoea.

Disruptive mood dysregulation disorder.

Dyspraxia.

Dehydration.

— E

Ebola.

Endometriosis.

Epilepsy.

E-coli.

Ectopic pregnancy.

Enuresis.

Erectile dysfunction.

Exzema.

— F

Fusobacterium infection.

Filariasis.

Fibromyalgia.

Fascioliasis.

Fever.

Food poisoning.

Fatal familial insomnia.

— G

Gonorrhoea.

Ganser syndrome.

Gas gangrene.

Giardiasis.

Gastroesophageal reflux disease.

Gall stones.

Glandular fever.

Greyscale ( fictional ).

Glanders.

— H

Hookworm infection.

Hand, foot and mouth disease.

Hypoglycaemia.

Herpes.

Headache.

Hanahaki disease ( fictional ).

Hyperhidrosis.

Heat stroke.

Heat exhaustion.

Heart failure.

High blood pressure.

Human papillomavirus infection.

Hypersomnia.

HIV.

Heart failure.

Hay fever.

Hepatitis.

Hemorrhoids.

— I

Influenza.

Iron deficiency anemia.

Indigestion.

Inflammatory bowel disease.

Insomnia.

Irritable bowel syndrome.

Intercranial hypertension.

Impetigo.

— K

Keratitis.

Kidney stones.

Kidney infection.

Kawasaki disease.

Kaposi's sarcoma.

— L

Lyme disease.

Lassa fever.

Low blood pressure.

Lupus.

Lactose intolerance.

Lymphatic filariasis.

Leprosy.

— M

Measles.

Mad cow disease.

Mumps.

Major depressive disorder.

Malaria.

Malnutrition.

Motor neurone disease.

Mutism.

Mouth ulcer.

Monkeypox.

Multiple sclerosis.

Meningitis.

Menopause.

Mycetoma.

— N

Norovirus.

Nipah virus infection.

Narcolepsy.

Nosebleed.

Nocardiosis.

— O

Obsessive-compulsive disorder.

Osteoporosis.

Ovarian cyst.

Overactive thyroid.

Oral thrush.

Otitis externa.

— P

Pancreatic cancer.

Pneumonia.

Pelvic inflammatory disease.

PICA.

Premenstrual dysphoric disorder.

Psoriasis.

Parkinson's disease.

Panic disorder.

Polycystic ovarian syndrome.

Plague.

Postpartum depression.

Pediculosis capitis.

Psychosis.

Post-traumatic stress disorder.

— Q

Q fever.

Quintan fever.

— R

Rubella.

Rabbit fever.

Rotavirus infection.

Ringworm.

Restless legs syndrome.

Rhinovirus infection.

Rosacea.

Relapsing fever.

Rheumatoid arthritis.

Rabies.

— S

Shingles.

Sore throat.

Stutter.

Separation anxiety disorder.

Smallpox.

Scoliosis.

Septic shock.

Shigellosis.

Sepsis.

Social anxiety disorder.

Stroke.

Scarlet fever.

Schizophrenia.

Sleep apnea.

Sun burn.

Syphilis.

Sickle cell disease.

Scabies.

Selective mutism.

Salmonella.

Sensory processing disorder.

— T

Thyroid cancer.

Tuberculosis.

Thirst.

Trichuriasis.

Tinea pedis.

Tourette's syndrome.

Trachoma.

Tetanus.

Toxic shock syndrome.

Tinnitus.

Thyroid disease.

Typhus fever.

Tonsillitis.

Thrush.

— U

Urinary tract infection.

Underactive thyroid.

— V

Valley fever.

Vertigo.

Vomiting.

— W

White piedra.

Withdrawal.

Whooping cough.

West nile fever.

— X

Xerophthalmia.

— Y

Yersiniosis.

Yellow fever.

— Z

Zygomycosis.

Zika fever.

Zeaspora.

[christmaszombies]

I love the gaslighting they do in the NHS. Like I do not trust them for anything.

Went private about my migraines that had me bed bound and having panic attacks daily after starting Accutane. Every NHS doctor was basically like, meh.

This private doctor sees me for 20 minutes and he’s like ‘oh yeah you definitely had intercranial hypertension and should have had a scan and a lumbar puncture.’ But instead I spent the most miserable 3 months of my life not only feeling like I was dying but that I was over exaggerating how I was feeling. 3 months. Every day. Feeling like my head was a pressure cooker. Crying every day. Not being able to sleep from waking up in the night with full blown panic attacks. When they could have potentially given me a lumbar puncture and taken down my brain pressure.

Anyway, he’s giving me an MRI to make sure everything is okay now and that I may now be more prone to migraines going forward and to never EVER go on Accutane again. Which - I will not do. I am spotty and I am fine with that. Bring it on.

[garaktime]

What medication makes soda taste bad????

No pressure to like give a dosage or say why you take it but like 😳 that’s such a strange side effect

Diamox, I'm on it for intercranial hypertension

Side effects list say it just gives them a metallic taste but to me it makes everything taste like it went flat three days ago

[the-resident-wallflower]

My boyfriend is losing patience with me. I suffer from a condition called Idiopathic Intercranial Hypertension (IIH). I have too much spinal fluid in my brain and it causes a slew of issues including but not limited to: migraines, head pain, dizziness, nausea, aphasia, tinnitus, blindness, and brain fog. Aphasia is one I struggle with the most...I lose words constantly. It's not cute and it's not quirky. It's exhausting and borderline traumatizing.

I'm an avid reader - I always have been. I know a lot of words. The problem is I can't remember the word I need so often. Lately, I've noticed that my boyfriend is really having a hard time with it. He just asked me to help him remove the bed of his truck. I didn't know what I was supposed to be helping with and he got frustrated when I told him to hold on because what he set up was slipping. He said that I just needed to spit it out or something to that degree. I really stopped listening after he said that.

I can't help that I can't get words out. I can't remember what things are called. I'm so frustrated with so many things and this just adds to it.

[spikeymarshmallows]

Going home to see my folks for two weeks. Also going to see friends etc etc.

Cw: weight talk, eating disorders, family issues, etc.

I've gained... 30% of my original weight.

My family has encouraged Disordered Eating my whole damn life. Mom had an ED growing up but "got better when her mom found out and dragged her home and forced her to eat". Yet the way mom spoke about herself meant that 5yo me was too scared to wear shorts because "my knees were fat". Part of why I have hated sports and exercise for most of my life was because I had to wear shorts and my knees were fat, because I felt like my fat was bouncing around etc etc.

I learned these things from my mom.

And I realised as an adult... Some of it from my dad. I remember my dad quietly commenting to me, not even in a nasty way, "God your sister has gained so much weight". He worries. We have a family medical issue that is deeply exacerbated by weight issues (idiopathic intercranial hypertension. My sister was having weekly lumbar punctures due to hers. One of my first cousins had to have a shunt put into her neck. It's really scary tbh). But the way he goes about worrying is not kind.

I'm also seeing friends that I admittedly have avoided seeing due to said weight gain.

I also have a job my dad doesn't like, and my mom doesn't know about, and I just know I'll be asked so many questions about how I'm affording to live. I'll be asked questions about my doctorate that I will struggle to answer because I'm actually on a leave of absence due to some big trauma and burn out.

My family isn't placated by simple answers. It'll be huge conversations and I'm desperately trying to think of cover stories.

I nearly had a panic attack yesterday about it.

It'll be fine. I'll see my cat and mom's doggos. It's never as bad to visit them as I expect.

And I *do* love them. A lot. I moved back to Australia because I love them. I would help them bury a body. I just love them best when I'm not nearby all the time 😂

But I'm scared as fuck about this trip.

[memorymessage]

i hate anime art styles

me when i see anime art styles: ew, anime art styles

i mean- obviously, i mean for non-anime fandoms, because anime art of actual anime/manga is a given and i like it just fine.

okay okay okay, i really just mean anime-stylized silmarillion fanart.

LMAO

it's always about the silmarillion for me, lads. but anime art of tolkien is honestly vomit emoji for me.

BUT...

...i also hate hyper-realistic art that makes elves look like middle aged men in wigs, like that amazon lotr-inspired show.

we're talking about ethereal, immortal, eternally youthful beings. tolkien goes out of his way to clarify every visual descriptor for each elf introduced in his narrative like he's fanboying—"omg so fair, so tall, eyes so bright, hair so (golden, raven, etc.)"

we're not talking about some guy named john working at your local construction site in a wig and pointed ear prosthetics.

you do tolkien a disservice by making elves look human, normal, or otherwise basic.

ESPECIALLY FËANOR. who tolkien clarifies multiple times as being beautiful and fair of face. if i see one more fanart of fëanor looking like some middle aged man, my idiopathic intercranial hypertension is going to get worse, and i will SUE the artist.

[journalofsorts2]

okay i don't actually remember a lot from when i had iih (idiopathic intercranial hypertension, basically too much spinal fluid), cause it's like a brain issue and also depression and blah blah perfect storm for memory issues. but i do remember how i felt. not specifically the pain, but the way the mental fog felt. and i've been feeling eeriely similarly lately. and my head hurts a lot lately. and i know it's probably not iih again because that was like a once in a lifetime thing given the circumstances. but i really feel like somethings wrong. another time i had this type of mental fog is when i was in the psych ward and was given fluoxetine. and then i got off it cause it fucked me up, and we did testing to see what antidepressant would work with my body chemistry and it turns out fluoxetine was a big no no. idk, all i know is this fog usually doesn't mean good. but hey idk i've been wrong before

[mcdolann]

currently in the hospital bc I went to the optometrist and they found my optical nerves are super swollen (a medical emergency) and they’ve now diagnosed me with idiopathic intercranial hypertension which can cause all sorts of nasty stuff including vision loss. luckily it hasn’t gone that far yet. but I had to have a massive needle in my spine to remove spinal fluid and everything has been very uncomfortable.

side note: every time something happens to me I am overwhelmed with gratitude that I live in Australia where healthcare is essentially free and not shit hole America where I’d definitely be blind or dead.

[knowthelessyouneed]

BRB CRYING BC I WAS FINALLY ABLE TO GET MY ADDERALL SCRIPT FILLED

I can have a smidgen much more of my brain back when right now its all mush because idiopathic intercranial hypertension is horrid (i won't say the worst but as someone who's been thru some bad physical stuff in her life this is Decidedly in the Top Five**) and the treatment is torture and all I hear is screeching tinnitus constantly, seriously all the time, like what the actual fuck is that about???

It's seriously been a month and I think from the above YOU CAN TELL holy shit if it wouldn't keep me up all night I'd take one now.

[sensitivityreaders]

sensitivity reader

name: britt

pronouns: she/they

age: 18+

reads for: church of jesus christ of latter-day saints (mormon), autism, bisexual, gender indifferent, intercranial hypertension

sensitivity reading:

general questions and discussion: yes in-depth discussion of plots and characters: yes partial read (relevant sections): yes full read: yes

willing to read: original work, fanfiction (final fantasy 15, harry potter, winx club, huntik: secrets and seekers, dishonored, percy jackson, hunger games, leviathan - scott westerfield, fablehaven - brandon mull)

unwilling to read: erotica/nsfw/explicit scenes

rates: us dollars, case-by-case

contact: riskydabritt#1171 (discord)

additional notes: i am very sporadic, so i may take a couple days to get back (no more than 2), or i will get back with you within 5 minutes of information being sent

[captawesomesauce]

Anyone have any experience with applying for disability or disability attorneys?

[chronicallyjenna]

Hi, friends! I’m Jenna, I’m 21, and I have congenital hydrocephalus, or “water on the brain.” Basically the receptors in my brain didn’t work and cerebrospinal fluid was building up. Anyway I had a bunch of surgeries and then I was fine. I have a shunt to drain out excess fluid. When I was nine, my vision would black out for a few seconds at a time, and that’s when the opthamologist discovered swelling around my optic nerves. They were being choked by excess fluid. I had two more shunt-related surgeries. Fast-forward to this year! I’m a senior in college and I’m a journalism major with a minor in PR. I was lucky enough to go without a brain surgery for 11 years, but when I got a floater in my right eye back in March, we found bleeding and swelling in my eyes and determined my shunt had failed. Unfortunately, there’s a lot that’s misunderstood about hydrocephalus and shunts haven’t really been developed much further in years because of a lack of research funding. Shunts aren’t designed to be long-term treatments, but there isn’t really another option. Before too long, I had 3 more surgeries, another hospitalization, my vision was blacking out over 60 times a day, I had a meningitis scare, they had to externalize my shunt, which is one of the last resorts because of risk for infection, I nearly went completely blind in both eyes, and then I had 2 more surgeries during Hell Week and Finals Week. What a doozy 😂 Anyway, I have a lumbar shunt now instead of one in my head, and I’m wrapping up classes from the spring, but I’m beyond blessed. While there isn’t a cure for my disease, I know I can accomplish anything I set my mind to with the help of the loving people who have supported me this year. ❤️ If you want to support hydrocephalics like me, you can donate to the Hydrocephalus Association or you can consider supporting my friend’s twin brother, Victor, whose hydrocephalus developed after he got a tumor. The Hottel family is just amazing. Google Team Victor! Hydrocephalus is a fairly rare diagnosis, but it’s not a rare disease. There are just a large estimated amount of misdiagnoses. To all of my fellow Swifties out there who are struggling with disabilities, whether they are visible, or invisible like mine, you are loved and you are important. ❤️ To the people in the fandom who have been critical of people with disabilities, I haven’t heard from you yet, but I harbor no ill feelings toward you. I hope you become the most compassionate and empathetic people because you never know when something will happen to you— and if it ever did, you would appreciate the kindness more than you could ever imagine. Be kind, friends. ❤️

[my-wings-are-flawed]

I will always mourn the person I was before a chronic illness took over my life..

[baloney-boogaloo]

This is just gonna be a vent post cause I need to get this out somewhere and I don’t talk to anyone on here, let alone anyone at all. I’m having brain surgery soon. I’m terrified, absolutely petrified. Even though I’m gonna be in the hands of multiple skilled surgeons there’s always the chance of something going wrong, even if it’s less than 1%, you know? Even afterwards things can go wrong. I’m so fucking scared y’all, I’m 20, I’ve never experienced things, I don’t want anything to go wrong, I don’t want to die man. My chest hurts I’ve been so stressed cause of this and I’ve been working my ass off just to help with bills, my coworker I’m stuck with looks like a pedo and treats me like shit. I don’t think anyone but my momma will miss me if something happens. I don’t have any real friends. I don’t talk to anyone. I’m so fucking scared I just want to get given back some of the love I’ve given everyone else through my life. I don’t want to die and I don’t know what to do I feel like I’m crumbling at the seams and my poor therapist isn’t helping. I wish I had money for bills, I wish I was happy and healthy

[whenindoubtusebigwords]

Does anyone have—or know someone who has— fibromyalgia or intercranial pressure? If you wouldnt mind messaging me or commenting on here what your symptoms are and how you got a diagnosis (like did you go to your pcp, or a rheumatologist?)

I’ve been having health issues for over 6 months now and all any of my doctors have done is try to throw meds at me.

I’m 99% sure I have fibro, but I don’t know if that’s what’s causing my other issues..