#medicallycomplex

[medically-a-ms-tree]

This post has both made my heart so full and brought tears to my eyes. Thank you for raising awareness around #enteralfeeding, #gastroparesis, #superiormesentericarterysyndrome, #elhersdanlossyndrome, #dysmotility, #nasojenunal, #medicallycomplex, #heds, #chronicillness, #tubefeeding, #medicalisedlife, and done it through your art and love for all things owl house. Thank you for being my Luz and making sure I’ve never felt alone in my transition to tube feeding. You are beyond amazing.

Luz is helping Hunter to do his meds, not because he really needs it, but because it's an excuse for them to spend time talking together, Hunter takes medication to help him digest food and not throw up, bur even then, he can only have around one small meal a day for purely social and taste reasons, he gets near no nutritional value from it.

Description: Hunter and Luz are sitting on the bottom bunk of the bed (so Hunter can manage being connected overnight easily). Luz is running the meds through his line while they both chat enthusiastically and happily. There is a wolf plush on the bed.

[medicallycomplexawareness2023]

My Story

Welcome to my page. I am MedicallyComplex aka Sarah I am a 24 Year old living with multiple chronic illnesses and disabilities from Pots, Epilepsy, IBS, Fibromyalgia, Chronic migraines, Chronic pain just to name a few. I am here sharing my story and sharing awareness about living with chronic illnesses and how it effects my life on a daily basis. I hope you can join me in sharing your story and follow my page for more updates and awareness posts Soon I will be Posting something I have been working on which will hopefully be helpful and beneficial for everyone looking for or currently living with Pots diagnosis.

Let’s all be Kind to each other and support each other no matter what they are going through 🥰🥰🥰

Medicallycomplex (Aka Sarah)

🥰🥰🥰

[handsofspirit]

Happy Giving Tuesday Now and Cinco de Mayo! 🎉 The rescue I helped start is named @unitedpawsrescueinc Donations can be made to: unitedpawsrescue@gmail.com or to our FB fundraiser. Please share or tag to help as well. We are a tiny rescue- just a small collection of volunteers. Despite our small size, we have always tried to go above and beyond to save as many kitties as possible. We have always gone for the underdogs, the less desirable ones with little to no chance. We save the FIV, FELV, blind, senior, injured, and overall medically or behaviorally needy kitties. If you have followed our page over the past few months, you’ll know that many of our kitties we have saved off the euthanasia list with only “behavior” issues have turned into kitties needing help with severe eye issues, leg amputations, larynx surgery, and more. Even when we don’t have the funds available, we do NOT give up on kitties once they are in our care- we do everything we possibly can to get them better. Once they are better, we work tirelessly to find them the perfect home- even if that means flying them to another state if that’s where their perfect home is. Currently, we are thousands of dollars in debt from these kitties we have saved. Our goal for this #GivingTuesdayNow is to pay off our debt, as well as hopefully get a little left over so that we can continue to save cats like these. No amount donated is too small, every little bit helps toward the kitties! On @unitedpawsrescueinc FB page there are more pics and info. 🐾🐾🐾🐾🐈❤️ - - - #shareyourheart #givingtuesdaynow #givingbacktothecommunity #catrescue #catsofig #catsofinstagram #givingtuesday #givingtuesdaymeow #yarn #cattoy #helpingothers #ittakesavillage #crystalcommunity #catcommunity #donate #ocassurvivor #greeneyes #specialneedscats #medicallycomplex #tabbycat #tabbycats #tabbycatsofinstagram #tabbycatworlddomination #helpinghands #helpingcats #ellendegeneres #taylorswift #meow #handsofspirit https://www.instagram.com/p/B_z_eM4nXbD/?igshid=5msks6a7gx1g

[mayomhospital155]

Mayom Hospital | Best Hospital | Best Hospital in Gurgaon Haryana

The Best Hospital in Gurgaon Haryana is well known for its good reputation world widely and best patients care.

[1step2life]

How Do Doctors Build Trust?

How Do Doctors Build Trust?

Doctors, patients, and caregivers all bring something different to the table. All contribute to healing.The patient has the lived experience. It is their body. Their life. It is their decision what they decide to do and take from the relationship in the hope of moving forward. The caregiver brings support. Often – especially when it’s a parent caring for a sick child – they bring endless hours…

[epiclifechoices]

One of my many reasons I am apart of the Epic Movement is because anything can happen. Please send love to my son! #loveyourbaby #changeyourlife #hope #feelbetter #snuggles #er #entrepreneur #workfromhome #mymotivation #autismawareness #makeithappen #forex #trader #momlife #epiclifechoices #medicallycomplex #takecareofyourself #epic #epilepsy #warrior #bossmom #chkd #vcu #sleepy #greatful #mom https://www.instagram.com/p/CEzWWaBDiSw/?igshid=1sonbcl6q22er

[rory-of-nantes-insta]

INSTAGRAM: @rorysdeafdiary uploaded a new photo!

After my post regarding #WorldRareDiseaseDay yesterday, I had a few people reach out asking me what my crazy laundry list of diagnoses were. And I’ll be honest: I didn’t want to share the whole list at first as it is quite overwhelming to acknowledge sometimes. But upon giving it some thought and ultimately sleeping on it, I’ve decided I might as well share the full list. So here goes nothing...

Bilateral Sensorineural Hearing Loss, Tetralogy of Fallot, Unilateral Clubfoot (formerly), Unilateral Mondini Dysplasia (formerly), Febrile Seizures (formerly), Frontal Lisp, Iron/Vitamin Deficiency Anaemia, Mild Persistent Asthma, Bilateral Astigmatism, Raynaud’s Phenomenon, Atypical Trigeminal Neuralgia, Ventricular Arrhythmia (unspecified), Central Sleep Apnoea, Mast Cell Activation Syndrome, Congenital Perilymphatic Fistula, Generalised Anxiety Disorder, Posttraumatic Stress Disorder; Mild Obsessive Compulsive Disorder (suspected)

Yeah... I know it’s a lot; but that’s my life!!! #medicallycomplex #medicallyrare #medicalunicorn #rorycorn

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[rivercove04]

Our beautiful kids! #fostercare #adoption #medicallycomplex #specialneeds #therapeuticfostercare #specialneedsfostercare #sayyes #adoptionisbeautiful https://www.instagram.com/p/CQDuiLoH-Fh/?utm_medium=tumblr

[jarmomma]

#ourlife #medicallycomplex https://www.instagram.com/p/BrIR7OZgKbfRObLcBb1QiK-AtdTjCSpVmhzVY40/?utm_source=ig_tumblr_share&igshid=4g5vk1lvu1xr

[mayomhospital155]

Mayom Hospital

Get the sight for the facility and services of the Best Hospital in Gurgaon Haryana.

[parihomehealthcare]

What is Tracheotomy?

Link : http://parihomehealthcare.com/what-is-tracheostomy/

 #tracheostomycareathome #tracheostomy #Whatistracheostomy #Care #PariHomeHealthCare #trach #gtube #medicallycomplex #tracheostomyawareness #trachlife #ventilator #micropreemie #feedingtubeawareness #tubie

[thecaregiverspace]

😬Say Teeese😬 #evelyntheresa #littleandbrave #tubie #tubiebaby #jtube #njtube #tpn #totalparentalnutrition #centralline #hickmanline #gtube #cipo #dysmotility #flna #pvnh #ketotichypoglycemia #facesofcare #chronicintestinalpseudoobstruction #hypoglycemia #myheartkid #medicallycomplex #hospitallife #rare #raredisease #livingwithraredisease #careaboutrare #mightyrare ( #📷 @3_little_misses ) https://ift.tt/2Od659e

[epiclifechoices]

Y’all COVID is not letting up and seems like we are close to going back into full lockdown yet again! I will be putting my order in on Sunday!! You can honestly not have enough right now! I know with having medically complex children as well as myself that we have gone through so much it is crazy! Message me what ones you want and I’ll put those in as well. #teamwashhands #washhands #handsoap #keepclean #keepsafe #kids #mom #dad #family #familyiseverything #covid_19 #covid #shutdown #goawaycovid19 #goawaycoronavirus #2020 #orderonline #ordernow #order #disability #medicallycomplex #beatcovid19 #mask #facemask #newnormal #staysafe #scentsy https://www.instagram.com/p/CH1KF2Sn28Y/?igshid=8umdq2km49uf

[rory-of-nantes-insta]

INSTAGRAM: @rorysdeafdiary uploaded a new photo!

The last day of February is #WorldRareDiseaseDay!!! And you know why??? Because when we have a leap year and the last day of February is the 29th, that is considered the rarest day of the year!!! Though when not a leap year, World Rare Disease Day falls on the 28th...

What is World Rare Disease Day? It’s a day whose goal is to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families... Now is it a surprise to anybody that I’m one of those individuals with rare diseases? If you know me, probably not... #rarediseaseday #rarediseaseawareness #raredisease #rarediseases #rare #medicallyrare #medicalzebra #medicalzebras #medicallycomplex #tetralogyoffallot #tof #mondinidysplasia #trigeminalneuralgia #atypicalneuralgia #mastcellactivicationsyndrome #mcas #perilymphaticfistula #perilymphfistula #plf

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[jarmomma]

#needtoplaylottery? #medicallycomplex https://www.instagram.com/p/BrzvHGpAk_rqI3dswBkUcyDA0CEMdfXuI0CEBY0/?utm_source=ig_tumblr_share&igshid=q193gfj1vrk5