#pwd

[youvegotmoxie]

Two patches left, then it's done!!

Watching: Black Panther (2018)

[tasia-reader]

JULY 11

I have been crowdfunding for two full months now, and have managed to raise $4100 total! That is absolutely amazing, and never could have happened without the support of everyone on Tumblr. Thank you so much to everyone continuing to share my post, and an especially big thank you to those who donated. I have just under $3,000 in direct debt currently, and I have until December 1 to find a new place to live, regardless of if I have been placed by BC Housing into housing whose rent is geared to my disability income. Vancouver rents are about $2,000/month for 1 bedroom, I don't have a prayer of keeping a roof over my head without donations.

So that's where I am now, to be clear, the money not spent directly on debt was spent on food, monthly bills, and transit. Even so, I ended up needing to take out payday loans to get through this month, and am out of funds for now.

I have more appointments and transit costs than ever right now, and with time running out to clear my debts before I'm on my own I'm really feeling the strain. There is much more information on the gofundme page, I also, of course, have my original post, which I am retiring because it seems to have lost traction now.

I'd appreciate anything anyone has to offer, from $1-$5 on paypal, to $5+ on gofundme, literally ANYTHING helps. I feel abandoned and alone and I don't know what to do other than beg the public for help. Please.

[underneaththatblackblanket]

"The 200+ Symptoms of Fibromyalgia"

(Note: Some symptoms may overlap)

GENERAL

1. Activity level decreased to less than 50% of pre-illness activity level

2. Cold hands and feet (extremities)

3. Cough

4. Craving carbohydrates

5. Delayed reaction to physical activity or stressful events

6. Dryness of eyes and/or mouth

7. Edema (Oedema)

8. Family member(s) with Fibromyalgia

9. Fatigue, made worse by physical exertion or stress

10. Feeling cold often

11. Feeling hot often

12. Frequent sighing

13. Heart palpitations

14. Hoarseness

15. Hypoglycemia (blood sugar falls or low)

16. Increased thirst

17. Low blood pressure (below 110/70)

18. Low body temperature (below 97.6)

19. Low-grade fevers

20. Night sweats

21. Noisy joints – with or without pain

22. Poor circulation in hands/feet

23. Profuse sweating

24. Recurrent flu-like illness

25. Shortness of breath with little or no exertion

26. Severe nasal allergies (new or worsening allergies)

27. Sore throat

28. Subjective swelling of extremities – (feels swollen Bu can’t find anything)

29. Sweats

30. Symptoms worsened by air travel

31. Symptoms worsened by stress

32. Symptoms worsened by temperature changes

33. Tender or swollen lymph nodes, especially in neck and underarms

34. Tremor or trembling

35. Unexplained weight gain or loss

PAIN

36. Abdominal wall pain

37. Bad hip pain

38. Burning Nerve Pain

39. Chest pain

40. Collarbone pain

41. Diffuse swelling

42. Elbow pain

43. Exacerbated Plantar arch or heel pain

44. “Growing” pains that don’t go away once you are done growing

45. Headache – tension or migraine

46. Inflamed Rib Cartilage

47. Joint pain

48. Lumpy, tender breasts

49. Morning stiffness

50. Muscle pain - widespread

51. Muscle spasms

52. Muscle twitching

53. Muscle weakness

54. Pain that ranges from moderate to severe

55. Pain that moves around the body

56. Paralysis or severe weakness of an arm or leg

57. Restless Leg Syndrome

58. Rib Pain

59. Scalp Pain (like hair being pulled out)

60. Sciatica-like pain

61. Tender points or trigger points

62. TMJ syndrome

63. “Voodoo Doll” Poking Sensation in random places

NEUROLOGICAL

64. Blackouts

65. Brain fog

66. Carpal Tunnel

67. Feeling spaced out

68. Hallucinating smells

69. Inability to think clearly

70. Lightheadedness

71. Noise intolerance

72. Numbness or tingling sensations

73. Photophobia (sensitivity to light)

74. Seizures

75. Seizure-like episodes

76. Sensation that you might faint

77. Syncope (fainting)

78. Tinnitus (ringing in one or both ears)

79. Vertigo or dizziness

EQUILIBRIUM/PERCEPTION

80. Bumping into things

81. Clumsy Walking

82. Difficulty balancing

83. Difficulty judging distances (when driving, etc.)

84. Directional disorientation

85. Dropping things frequently

86. Feeling spatially disoriented

87. Frequent tripping or stumbling

88. Not seeing what you’re looking at

89. Poor balance and coordination

90. Staggering gait

SLEEP

91. Alertness/energy best late at night

92. Altered sleep/wake schedule

93. Awakening frequently

94. Difficulty falling asleep

95. Difficulty staying asleep

96. Excessive sleeping

97. Extreme alertness or energy levels late at night

98. Falling asleep at random and sometimes dangerous moments

99. Fatigue

100. Light or broken sleep pattern

101. Muscle spasms/twitches at night

102. Narcolepsy

103. Sleep disturbances

104. Sleep starts or falling sensations

105. Teeth grinding - "Bruxism"

106. Tossing and turning

107. Un-refreshing or non-restorative sleep

108. Vivid or disturbing dreams/nightmares

EYES/VISION

109. Blind spots in vision

110. Eye pain

111. Difficulty switching focus from one thing to another

112. Frequent changes in ability to see well

113. Night driving difficulty

114. Occasional Blurry vision

115. Poor night vision

116. Rapidly worsening vision

117. Vision changes

COGNITIVE

118. Becoming lost in familiar locations when driving

119. Confusion

120. Difficulty expressing ideas in words

121. Difficulty following conversation (especially if background noise present)

122. Difficulty following directions while driving

123. Difficulty following oral instructions

124. Difficulty following written instructions

125. Difficulty making decisions

126. Difficulty moving your mouth to speak

127. Difficulty paying attention

128. Difficulty putting ideas together to form a complete picture

129. Difficulty putting tasks or things in proper sequence

130. Difficulty recognizing faces

131. Difficulty speaking known words

132. Difficulty remembering names of objects

133. Difficulty remembering names of people

134. Difficulty understanding what you read

135. Difficulty with long-term memory

136. Difficulty with simple calculations

137. Difficulty with short-term memory

138. Easily distracted during a task

139. Dyslexia-type symptoms occasionally

140. Feeling too disoriented to drive

141. Forgetting how to do routine things

142. Impaired ability to concentrate

143. Inability to recognize familiar surroundings

144. Losing track in the middle of a task (remembering what to do next)

145. Losing your train of thought in the middle of a sentence

146. Loss of ability to distinguish some colors

147. Poor judgment

148. Short term memory impairment

149. Slowed speech

150. Staring into space trying to think

151. Stuttering; stammering

152. Switching left and right

153. Transposition (reversal) of numbers, words and/or letters when you speak

154. Transposition (reversal) of numbers, words and/or letters when you write

155. Trouble concentrating

156. Using the wrong word

157. Word-finding difficulty

EMOTIONAL

158. Abrupt and/or unpredictable mood swings

159. Anger outbursts

160. Anxiety or fear when there is no obvious cause

161. Attacks of uncontrollable rage

162. Decreased appetite

163. Depressed mood

164. Feeling helpless and/or hopeless

165. Fear of someone knocking on the door

166. Fear of telephone ringing

167. Feeling worthless

168. Frequent crying

169. Heightened awareness – of symptoms

170. Inability to enjoy previously enjoyed activities

171. Irrational fears

172. Irritability

173. Overreaction

174. Panic attacks

175. Personality changes –usually a worsening of pervious condition

176. Phobias

177. Suicide attempts

178. Suicidal thoughts

179. Tendency to cry easily

GASTROINTESTINAL

180. Abdominal cramps

181. Bloating

182. Decreased appetite

183. Food cravings

184. Frequent constipation

185. Frequent diarrhea

186. Gerd-like Symptoms

187. Heartburn

188. Increased appetite

189. Intestinal gas

190. Irritable bladder - "Angry Bladder Syndrome"

191. Irritable bowel syndrome - IBS-C, IBS-D

192. Nausea

193. Regurgitation

194. Stomachache

195. Vomiting

196. Weight gain - unexplained

197. Weight loss - unexplained

UROGENITAL

198. Decreased libido (sex drive)

199. Endometriosis

200. Frequent urination

201. Impotence

202. Menstrual problems

203. Painful urination or bladder pain - "Interstitial Cystitis"

204. Pelvic pain

205. Prostate pain

206. Worsening of (or severe) premenstrual syndrome (PMS or PMDD)

SENSITIVITIES

207. Alcohol intolerance

208. Allodynia (hypersensitive to touch)

209. Alteration of taste, smell, and/or hearing

210. Sensitivity to chemicals in cleaning products, perfumes, etc.

211. Sensitivities to foods

212. Sensitivity to light

213. Sensitivity to mold

214. Sensitivity to noise

215. Sensitivity to odors

216. Sensitivity to yeast (getting yeast infections frequently on skin, etc.)

217. Sensory overload

218. Sensitivity to pressure & humidity changes

219. Sensitivity to extreme temperature changes

220. Vulvodynia

SKIN

221. Able to “write” on skin with finger

222. Bruising easily

223. Bumps and lumps

224. Eczema or psoriasis

225. Hot/dry skin

226. Ingrown hairs

227. Itchy/Irritable skin

228. Mottled skin

229. Rashes or sores

230. Scarring easily

231. Sensitivity to the sun

232. Skin suddenly turns bright red

CARDIOVASCULAR (Heart)

233. “Click-murmur” sounds through stethoscope

234. Fluttery heartbeat

235. Heart palpitations

236. Irregular heartbeat

237. Loud pulse in ear

238. Pain that mimics heart attack - "Costochondritis"

239. Rapid heartbeat

HAIR/NAILS

240. Dull, listless hair

241. Heavy and splitting cuticles

242. Irritated nail beds

243. Nails that curve under

244. Pronounced nail ridges

245. Temporary hair loss

OTHER

246. Canker sores

247. Dental problems

248. Disk Degeneration

​249. Hemorrhoids

250. Nose bleeds

251. Periodontal (gum) disease

252. Need for early hysterectomy

[canadiankels]

I have so much fucking internalized ableism and I KNOW I do because every single god damn time my disabilities actually dare to disable me, I get so unreasonably angry. Like what the fuck do you mean I can’t walk today? I’m not ✨THAT✨ kind of disabled. So yeah can’t walk today and I have ample time to examine how much bias I have actually *not* unlearned haha oops I suck 💀

[yours-trudy]

These guys need better benefits.

[hold-fast-and-rise]

[magedrifter]

I want to try something new, for my birthday I want to raise 2,000, once the fundraiser ends, I pledge to donate 50% of whatever I raised to help out other fellow disabled people I know on social media who are struggling right now to survive in legislated poverty, 10% will go to a charitable cause and the rest will go to me but only for necessities like food, clothing, etc. If you think this is a good idea, please donate if you can, thank you 🙏

PLEASE SHARE WIDELY

[youvegotmoxie]

I think the "don't wear political patches on your back" advice I've seen everywhere lately can be really harmful and take attention away from things that can actually put you in danger. We keep us safe!

[tasia-reader]

Trying to raise $60 to support myself until disability checks on Sept 18th

please throw me even $1 if you have it <3

[a-pun--k]

S A C R E D - P A R K W A Y D R I V E

[girlsoutloud-orphanage]

Extending our help to those in need. Our disabled brother was very happy when we paid a visit to him. There are more like him who need us

[nikko-leoven]

March 05, 2025

It was so nice to share thoughts, experiences and inspiring stories to this group. Thank you, Federation of PWDs Alitagtag for having me as a Resource Speaker and facilitator of your Team Building Event!

[vertexlex]

Poor Elliot...

[digiweed]

Honestly the best part of being on disability is not having to go to work when you have your period

[hold-fast-and-rise]

The Portuguese Water Dog is a breed that was bred for swimming. Originally used by fishermen to herd fish into nets and retrieve items from the water, this breed is known for its endurance and love of water.

Why Are Portuguese Water Dogs Great Swimmers ?

Webbed feet for enhanced swimming ability

Curly, water-resistant coat

Great stamina and high energy levels

Strong instincts for water-based tasks

[iammadelinepod]

I was really struggling today with working to do advocacy while also trying to navigate issues with my landlords and trying to figure out how to get a human rights case started and how to have enough time to see that through all with so many things asking energy and money of me that I don't have.

So to decompress and collect myself to get rolling I did a podcast episode. In it I talk not just about the pain and exhaustion of pushing through to get ready for the second fire inspection, but individual and collective ableism creating a situation that sends the message, in no uncertain terms, whether overt or covert, my country wants me dead. But I also talk about how for most people it's really a lack of understanding and totally unconscious. And how each person working to understand means we begin to address that larger conscious or unconscious collective ableism infecting bureaucracies, medicine, journalism, politics and the larger society

Also I just realized I passed my 44th anniversary of being post viral epstein-barr😟. Sadly still no improvements to supports or research yet. But I haven't finished fighting and with your help I will continue to as long as I can!

Links for you to have handy

RICHOCHET article, (please share💗)

And here is a tweet thread by the journalist who wrote the Ricochet article so that you can share it on Facebook or Instagram as Canadian news links are still not permitted there

Listen to the most recent episode of my podcast: Crush https://anchor.fm/i-am-madeline/episodes/Crush-e2c5131