#semiverbal autistic

[spectrumgarden]

I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.

If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.

I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.

And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.

And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).

I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.

[meowtismz]

Something people NEED understand is.

NO we not WANT an AAC device

NO we not WANT a wherlchair

NO we not WANT use a cane

NO we not WANT any disability aid

We NEED it. Is not a desire is a NECESSITY

Get this inside dumbass brain of you already! Need stop think us disabled people like be disabled just because proud or aware need help.

[nebby-aac-blog]

people more nice me when be good quiet autism when can talk and be in too much overwhelming places stay quiet be good behave like not autism people do. people not nice when they think I bad autism semiverbal use AAC and loud distracting. when stim melt down cry or when understimulated loud have a lot energy run around make noise do lots things to try make brain slow down calm down. is unfair because I still autistic all time and I still person all time not just when mask seem not autistic. and some autistic people only ever second one they should get respect too they people too

[wxrmeaterz]

uh just cus u experience verbal shutdown does NOT mean u r semiverbal

semiverbality is not:

being unable to speak when anxious , stressed , tired or overwhelmed (this is verbal shutdown)

or

being unable to use most words or phrases when anxious , stressed , tired or overwhelmed (this is also verbal shutdown)

semiverbality is:

stop misusing verbality labels

we will not engage with discourse on this topic as we do not have to spoons to do so

-Arson (a semiverbal alter) (it/xe) + Sorine gatekeeper (death/hate/flesh)

[spooksforsammy]

Can make fun of me way talk all want

Still going talk wrong. Is still messed up. Will skip words. Stutter. Talk extremely fast. Say things don’t mean.

Can mock all want. Say need fix how speak, Is all wrong.

How I speak is how I speak. I have speech impairments and am semiverbal. No matter how much bully or make fun of or mock, my speech won’t get better because you want it to

Thank you <3

[autisticdreamdrop]

from autism regression Bug and system lost a lot of skills. being verbal is super hard. that's why Bug is unreliably verbal / semiverbal / semispeaking. kinda like Julia from Sesame Street. Bug love and relate to her a lot - Bug/Shane/Theo

[amethysticatboysyndrome]

Found a way to make communication cards a bit easier if you don't want to cut out many pieces of paper: flash cards!! You can buy a thing for flash cards like this one and write on those!! Also the paper is firm!!

[fishiepup]

HAPPY I GETS TRIPLE BACON BURGER NO TOPPINGS OMGOMGOMG BEST DAY EVER

[spectrumgarden]

Actually like. You can be super nice to disabled people and respect us and all that but the moment you talk about us instead of to us (when you havent been informed that it's what the person prefers) it really devalues all that prior positive interaction.

Like. I was visiting someone with my mother / caregiver today and the whole time she was really nice & would address me directly (like: this is x room, sure you can go on the balcony, oh you really did that? etc) but suddenly when I was pacing & stimming w my hands & just looking around she suddenly turned to my mother and went (paraphrased & translated) : "oh you can see theres lots of information bouncing around his brain right now haha" ??? Girl I'm right here? I can hear you? Why are you talking about me like I'm not? You literally could have said the same thing addressed to me. Then I can actually feel involved instead of like being an animal on display or something.

[meowtismz]

If you is look at AAC screen whilr AAC user is type. Please. Just stop please.

Is not cool. Not help. Is not thoughtful.

You is only make us anxious, or upset, or feel bad overall.

We need type process what is going say :(

[nebby-aac-blog]

going out have food soon. going try use AAC so can order for me on my own ! am scared because havent ordered own food ever by talk before.

[semispeaking-shapeshifter]

Teacher got sensory thing. Childish but love.

[wxrmeaterz]

collectively our ability to speak has been deteriorating sm... :(

[amethysticatboysyndrome]

I'm over here sitting and trying to make communication cards, and got a thought of "why should I make communication cards if I can just buy an AAC later, and they will be useless? I put so much work into them, and they won't even work."

It's a problem I've been having for a long time where I just drop what I want to do because there are "easier" ways to do something, even if they are more expensive. I might never get an AAC, never afford it. And even if I do at some point, communication cards will be useful to me for a few years at least. Also, despite all of that, having multiple options and multiple ways of communication is always good.

Just a note to self because I was about to give up on making communication cards, and I'm not letting myself.

-host