don't know if I'm late to this- but why are people acting so rude to you?- like wtf. you sound so nice and caring! I'm so sorry that you have to put up with this :(
and also aren't you hurt or something? AND THAT just makes it so much worse, I mean. Your trying to get better, that takes some time. No one should get rushed to write or really anything. (unless it's homework a month overdue of smth) Anyways, I hope it gets better for you! Remember to drink water and eat well! <3
Hi my little lovely anon!
Thank you for this message, it is very kind ๐
I completely agree with you. Iโm not sure why they were acting the way they did tbh
But yeah I am dealing with a lot outside of here and just had to go to the hospital at 5am for several hours ๐
Iโm hoping to still write daily once this medical flare up pain has gone away though
Tysm for reaching out!
I did a few IVs of fluid at the hospital to increase my hydration this AM and have had 2 bottles at home one with electrolytes so ๐ค
As far as food, not the healthiest because its just been soft and light things like rice and soup or mashed potatoes and jello ๐ซฃ but itโs all I can do with minimal nausea so itโll do hehe
I appreciate the support dear ๐๐
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NOVEMBER IS EPILEPSY AWARENESS MONTH ๐ โบหโ๏ฝกยฐ
Knowing how to help someone during a seizure can make a difference and save a life. While there areย many different types of seizures, people who experience seizures may be confused, not aware of what is going on, or unconscious. A person could get hurt during a seizure, a seizure could last too long, or theย seizures could cluster.
We, as people with epilepsy, learn to track seizures, manage our triggers, control our diets, identify seizure auras and answer all kind of questions, but having people around us who know how to react in the event of a seizure always helps and we appreciate it with our everything (I have had seizures at so many random places, but only on two occasions the people around me knew how to react, once at a festival and the other in the subway, and i'll be forever grateful with those people who helped a total stranger, took me to safety and waited with me for my mom)
For most seizures, basic seizure first aid is all that is needed, the steps are simple - Stay. Safe. Side - anyone can do them.
STAY with the person until they are awake and alert after the seizure.
Remain calm โ it will help others stay calm too.
Check for a medical ID. (If you don't have one, try getting one it safe my life once)
Timeย the seizure from beginning to the end, that will help you determine if emergency help is needed.
Keep the person SAFE.
Move or guide away from harmful or sharp objects.
If a person is wandering or confused, help steer them clear of dangerous situations.
Encourage people to step back and give the person some room.
Ask someone to stay nearby in case further help is needed.
Turn the person onto their SIDE if they are not awake and aware
Make the person as comfortable as possible.
Loosen tight clothes around neck.
If they are aware, help them sit down in a safe place.
If they are having a convulsive seizure orย tonic-clonic seizure:
- Lay them down on the floor, put something small and soft under the head.
- Turn them on their side with their mouth pointing toward the ground.
- Don't put any objects into a person's mouth.
- Do not restrain the movements, trying to stop movements or forcibly hold person down doesnโt stop a seizure, it lead to injuries and make the person more confused, agitated, or aggressive.
During a convulsion, it may look like the person has stopped breathing. This happens when the chest muscles tighten during the tonic phase of a seizure. As this part of a seizure ends, the muscles will relax and breathing will resume normally. Rescue breathing is generally not needed.
How can I tell if a person is okay after a seizure?
Ask simple questions to see if the person knows their name, where they are, what time ofย day it is, and what happened. If the person cannot answer these questions, tell them the information and offer reassurance that they are okay. This may help decrease confusion and orient them to their surroundings.ย
Donโt leave anyone alone after a seizure until:
- They are able to answer the four Wโs:ย who, what, when, and where
- They can talk or communicate in some way.
- They are breathing normally.
- You are able to wake them up if they fall asleep after a seizure.
(I'll add a personal one, don't try to give them meds in that moment, once the seizure has passed the brain recovers at its own pace and all brains are different, theres no med that puts you back on track in minutes, when I was in college they always asked me if I had meds with me that they could give me - and they were not even asking for my anti-epileptics)
Should I tell a person who had a seizure what happened?
If the personโs not remembering things well, write down what happened for them. They can then share this with their doctor, nurse, family, or others involved in their epilepsy care. This information can help the person and theirย healthcare providers to determine the type of seizures, whether treatment is working, and the need for changes. (My mom used to tape them, so my doctor knew exactly what happened and adjust my medication)
When to Call for Emergency Help
Seizure lasts longer than 5 minutes
Repeated seizures
Difficulty breathing
Seizure occurs in water
Person is injured, pregnant, or sick
Person does not return to their usual state
First time seizure
The person asks for medical help
Epilepsy is the most common neurological disorderย and you may need to help someone someday. Understanding the importance of seizure preparedness and learning what you can and can't do is the best way to help during what are scary situations for all involved.
Epilepsy Awareness Month is an effort to raise awareness and change the conversation around the epilepsies, seizures, and side effects, as well as to improve and save lives through care, advocacy, education and support - we must increase public knowledge about first aid to change the way people think about the epilepsies and seizures because - even today - the general public say they would be nervous around or even get involved with a person with epilepsy.
TLE with Focal to Bilateral Tonic-clonic Seizures and PNES is the diagnosis and at first I was embarrassed but Iโve learned to live with it. Epilepsy did shape who I am, but it isn't the only thing that makes me who I am.
_____
General first aid for seizures. Epilepsy Foundation.ย https://www.epilepsy.com/recognition/seizure-first-aid
Seizure first aid training and certification. Epilepsy Foundation.ย https://www.epilepsy.com/recognition/first-aid-resources
Help after a seizure. Epilepsy Foundation.ย https://www.epilepsy.com/recognition/help-after-seizure
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