#Actually Disabled

[jokerjokinghahaha]

Call now to recieve help with the inability to make phone calls!

Fill out this forum to receive assistance with your difficulty filling out forms

Come on down to our center thats two hours away so we can give assistance with your inability to walk or drive

There's help out there! You're just not trying hard enough!

[the-fictive-haven]

This is literally the mentality that is keeping us functioning. Especially as we're working on overcoming severe OCD on top of physical disability.

Y'all, you can just do things. Please just do things.

It doesn't have to be perfect or complete or "the correct way" or something you're proud of, your worst work is evidence of your tenacity. You put forth effort when you didn't think you could succeed. And if no one else in the world is, we're proud of you and we appreciate your effort, no matter how small.

tbh the ‘anything is better than nothing’ mindset has been invaluable to me, especially as a disabled person. like. half-assing things is the number one reason anything gets done for me.

run the dishwasher even if it’s not full. brush your teeth even if you aren’t going to floss. put away a single piece of clutter to make your space more livable. change your shirt and keep wearing the same pair of pants. eat a snack if you can’t make a meal.

it sucks to not be able to get stuff done as well as you’d like. i get that so much. but you have permission to half-ass stuff as much as you need. literally anything is better than nothing.

[bebsi-cola]

you can't be a disabled ally without also supporting homeless people and addicts like it's just not possible

[bonesbugsandballads]

Accommodating for your needs instead of fighting against them feels like switching from hardcore mode to peaceful mode in a video game.Like what do you mean I feel way better now.What do you mean getting ready for bed no longer leads to frustration/stress.This is awesome sauce.You’re telling me I could’ve just done this the whole time.Damn.

[mori-is-missing]

shoutout to all my people with invisible disabilities

shoutout to people who don’t feel disabled enough

shoutout to people who have been denied care because they don’t look disabled

shoutout to people who thug it out every single day because the world doesnt stop when you’re disabled no matter how much you wish it would

shoutout to people with no diagnosis but still have symptoms because you don’t need a diagnosis to have symptoms

[atinystraykid]

“If you have time to be on social media, you also have time for…” “If you have time to watch Netflix, you also have time for…” Yeah, but do I have the energy for it? Do I have the emotional and mental capacity for it? Am I pain-free enough for it? Can I focus on it? Can I do it without leaving my bed? Can I safely do it without risk of (physically or emotionally) injuring myself by pushing past my boundaries?

[the-cryptid-next-door]

I've been seeing some discourse in the community about how people with mild to moderate chronic illness/disability are bombarding posts from our severely disabled kin.

Community is about finding your people, of sharing experiences that align and learning from others who have different ones. We should never be speaking over others when they're coming from a place of intimate knowledge.

I.e, I have hEDS & Co on a moderate level. Some days are harder than others, and my disability is dynamic. I can only speak with certainty about my own experience. People in my position should not be lecturing people in the community who have more severe conditions. We should not be derailing their posts to make them centralized on ourselves.

If a person is speaking about the frustrations of full-time carers not meeting standards and you live independently? Not your time to speak about how "Oh, I wish I had someone to help me!!"

If someone is expressing frustrations about needing a new seating system for their powerchair because their current one is impacting their very ability to breathe/be upright/reduce their significant pain? Not the time for "You're so lucky, I wish I could have a wheelchair!"

If someone is visibly disabled all the time and you think that gives them some kind of privilege from the ableds? Dude, fucking what?

All I'm saying is "read the room." Listen when you don't know, relate where you can, and try to learn shit from one another. It's not that hard. And maybe, maaaybe, understand that the connotation of "hEDS girlies" are becoming more negative because the behaviors are fucked.

I don't like knowing that my diagnosis is associated with toxicity in my community, and I'm asking us all, formally, to do better. We need to if we're gonna fight the government for our basic rights.

[calugaritsa]

If you're a disabled young person, you've most likely been hit with the "pfft you think you're in pain now? Just wait til you're my age" bullshit from older people at least once. Everyone talks about how invalidating it is

But I haven't seen anybody mention how it's terrifying, too. Yes, I know health deteriorates with age. I know that old age is a disability unto itself. I know that the healthiest person alive will start getting aches and pains past the age of 40 and may even need mobility aids

I know all this stuff. And it always makes me think "yeah, if I can't walk without joint pain even while using mobility aids AT AGE 21, how painful will life be for me at the age where it gets painful for everyone?"

And it's hard not to feel like I'm doomed, y'know? Where most people get a period of health that they wish they appreciated more when they start to lose it, my starting point was a body that doesn't work properly and it's only gonna get worse from there. It's worse every fucking year.

TLDR stop telling disabled young people that their pain will only get worse to the point of being unimaginable as they age, WE FUCKING KNOW

[psychici-split]

”I just want you to be able to live life independently,” mom says to child with Cannot Live Without Assistance Disorder

[the-fictive-haven]

Us: minding our business in headspace

Caine: IIIT'S TIME TO PLAY EVERYONE'S FAVORITE GAME, "WHAT'S WRONG WITH THE BODY TODAY?"

*spins comically oversized wheel*

*wheel lands on "everything"*

Caine: Ooh, glad I was not planning on fronting today! Well, see you folks later!

(bonus) Jax in the background: you never [boing]ing front anyway

[bebsi-cola]

hey. don't tag real disabled people sharing their experiences as "writing ref". you didn't even ask. this isn't a teaching resource itself its someone's daily life. you know we're real people right. right.

[love-me-love-my-weirdness]

Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

[seph-ren]

doctors are NOT autonomically entitled to your respect just for existing

"you should just respect the doctor"

just because somebody is wearing a white coat doesn't mean they are endlessly entitled to do whatever the fuck they want.

you know who ACTUALLY deserves respect? PATIENTS AND THEIR AUTONOMY. being able to refuse medications (especially if the procedure isn't life saving) and to not being coerced/threatened into something they are not comfortable with.

i don't need tone policing . i don't need to be "doctorsplained" or "educated" on what standard protocol is. just respect my boundaries because at the end of the day I KNOW my body the best.

before my tilt table test i blatantly said i wasn't comfortable with being administered medication as i am consistently tachycardic upon standing, but instead i was told "you either take the drug or this whole test is inconclusive".

just for them to lo and behold not even need to use it bc it was so obvious on their monitor, and giving the drug didnt make sense bc i so clearly had pots. i was right all along because why wouldn't i be? ITS MY FUCKING BODY

it's the way healthcare systems are so fragile and reliant on patients being obedient, compliant, and passive that the second you actually voice a legitimate concern or ask for individualized care, you are treated like an "inconvenience to handle" instead of a real person with real fucking concerns and the right to informed care/autonomy.

it's exhausting, tiring, and i am sick of people acting like my tone is the problem when i am running on fumes and fighting on all fronts. i shouldn't be expected to perform politeness and gratefulness.

sick girls shouldn't have to beg and we don't owe anyone gratefulness or respect just for existing.

[thatgarden]

I really wish butchhood wasn't conflated with being a protector so much, honestly.

I'm a very vulnerable butch. I'm chronically ill, invisibly physically disabled, and have a lot of mental health issues. My masculinity doesn't inherently make me more strong or powerful.

But there's a huge amount of butch culture built on butches being protective of femmes, or just being strong and working in very physically laborious jobs. It feels disheartening to be locked out of a major part of my culture, just because I'm disabled.

So here's to all the disabled butches who want, or are expected to, be strong because toxic masculinity has taught us the mascs are the protectors, but we can't be.

We're the ones who need people to slow down for us. We're the ones who need to sit down and catch our breath after walking a bit. We're the ones who need help. And that doesn't make us any less butch.

[dissociacrip]

the worst thing about discovering more and more body problems that all went neglected over the years is that you start getting overcome by the insatiable urge to beat the heads in of people who did the neglecting with a brick