#CFS exercise

[compassionmattersmost]

3: The Benefits of Visualization in Exercise for Those Living With Post-Viral ME/CFS

When living with Post-Viral ME/CFS, the very thought of physical movement can feel overwhelming, even impossible. However, for many, the desire to engage with your body, to improve mobility, and to gently build strength remains alive. Yet, finding ways to exercise that honor your energy levels without triggering post-exertional malaise (PEM) may feel like a delicate balancing act. In this post,…

[opalsiren]

we as a society have got to stop prescribing exercise as a universal cure for chronic illness. yes exercise can be extremely beneficial for certain chronic conditions, especially under the guidance of a physical therapist or physiotherapist. how and ever acting like exercise will undoubtedly reduce the symptoms of every single chronic illness on the face of the planet just isn't it. exercise is even known to worsen the symptoms brought about by certain illnesses and disabilities, and can have detrimental effects if not approached with the utmost care. 'exercise can be beneficial for certain conditions' well yes. 'exercise will have a 100% positive impact on any and all chronic illness' no no nope and also no

[spacedocmom]

Doctor Beverly Crusher @SpaceDocMom "No pain, no gain," is only said by the health-privileged and they're mostly wrong about it for their own bodies too. For anyone with a chronic illness, more pain is likely to equal less gain. Listen to your body, not ignorant people. emojis: black heart, blue heart, masked 2:31 PM · Sep 21, 2023

[myalgicencephalomyelitiscfstom]

Exercise and other forms of exertion can cause profound and lasting harm to people with ME: various forms of evidence

My 2011 paper, "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome" included data from earlier surveys and discussed the issue of reporting of harms

[rars]

in 4 days it'll be a year since the last time i coughed up blood :)

[anxious-and-in-pain]

[ID: screenshot of a YouTube video thumbnail. the image is of a person lying on their back in a weight room with their hand over their face. the title is “Exercise Actually Makes Chronic Fatigue Syndrome Worse”. the channel is “SciShow” and the video has 4.8K views after being posted 37 minutes ago. the video is 8 minutes and 12 seconds long. end ID]

hell yeah, SciShow!!!! bust those misconceptions!

video link

[primrosebitch]

Tbh it really is something to have grandmothers (one late 70s other late 80s) who are in better shape than you are, like I go see my grandma and we walk somewhere and i'll be panting before she's even slightly out of breath and it's not like she's in the best of conditions either, and then don't even get me started on my other grandma, she still does sports.

[fishparasite]

today my mom was like "do you know you can come to me for help and support?" well. um. no

[angeltheghoul]

I wish doctors would actually listen too their patients with concerns >:(

[lakeeffectbitch]

I will be the first to admit that the evidence is anecdotal and theoretical and has not been explored robustly in a study. But for the love of god, please tell everyone you know that you should be resting after an acute viral infection. If you still feel “off” after the rest of your symptoms have gone away, exercise is much more likely to make it worse than better. Kill the doctor in your mind that believes exercise is good for you in all cases

[xieliansbignaturals]

The next time someone suggests exercise to help with Long Covid/etc., I'm going to ask them if they're scared of boobs, too.

[harriehq]

Jesus fucking christ!!! I'M AUDHD. I'm just trying to figure out how to start very beginner minimal exercise because I'm really fucking exhausted and WEAK all the time. Did I mention I'm autistic AND have ADHD?! I'm lucky if I remember to EAT most days. And I'm supposed to figure all THIS SHIT out, just to deal with chronic fatigue?? I'M WIPED OUT JUST READING IT.

[she-is-ovarit]

It's been over 10 years, but one of the most motivational things I have heard was during high school. My friend had mentioned he just began working out. I said something along the lines of, "I always think about working out but it takes awhile for anything to actually happen."

And he very simply responded with, "Why? I feel it physically right now and it's been three days."

I don't know why that was so perspective-shifting to me but I think of him whenever I'm done working out now.

It's because of that small exchange that on days where I severely lack motivation or am edging into or just out of a CFS/ME episode I still just show up at the gym just to physically be in that space even if I don't exercise. I feel the effect of just existing in that space in gym clothes and continuing the routine of being present there. I stay 5 minutes and listen to a song or part of a podcast and leave. Sometimes I just stretch and leave. Sometimes, if it's just an unmotivating day and I am not in a PEM episode and am physiologically able to exercise, it becomes me getting hyped and I surprise myself by being there for 45 minutes.

The goal for me is often to just be present. Sometimes I meet it. Sometimes I'm not physically able to achieve that goal and the goal becomes respecting my physical limits. I might not be able to get out of bed to even change clothes. That is part of the process, there is a limit that I don't exceed. I take it easy. Other times I exceed the goal of just showing up and do more. All because my way too honest autistic buddy in high school challenged my thinking by pointing out you can feel the effects and influences immediately, and I applied that not just to exercise itself but the process that supports it to occur either right then or in the future.

[opalsiren]

* graded exercise therapy is defined as 'a programme of physical activity that starts very slowly and gradually increases over time,' usually under supervision of a physical therapist or physiotherapist. the theory is that, if daily activity is increased in small increments, the body will build up a tolerance to increased activity and symptoms of pain and fatigue will subside

[disabled-dyke]

the fatigue and weakness is so bad now i dont even have the strength to hold my phone up

i was originally making this post about not being able to propel my chair but then i couldnt hold my hand up

[celepeace]

If exercise is so good for you, but one of the main reasons why people don't do it is because it makes you feel like mega garbage if you're out of shape, then instead of urging people to exercise I think we should put all that effort and money into designing a drug that makes exercise not suck. Something that either gets rid of that awful out of breath feeling and pain or makes them less terrible. With this I predict we could improve the health of a large percentage of the population. The slogan should be "makes exercise not make you want to kill yourself! :)" or something to that effect