#CFS exercise
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3: The Benefits of Visualization in Exercise for Those Living With Post-Viral ME/CFS
When living with Post-Viral ME/CFS, the very thought of physical movement can feel overwhelming, even impossible. However, for many, the desire to engage with your body, to improve mobility, and to gently build strength remains alive. Yet, finding ways to exercise that honor your energy levels without triggering post-exertional malaise (PEM) may feel like a delicate balancing act. In this post,…
#CFS exercise#chronic disease#chronic fatigue#chronic fatigue exercise tips#chronic fatigue recovery#chronic fatigue syndrome#chronic illness#chronic illness workout#energy envelope#energy management#exercise pacing#exercise with chronic illness#Gentle exercise#gentle fitness#Healing journey#Health and Wellness#light exercise#ME/CFS support#mental exercise#Mindful movement#mindful workout#post-exertional malaise#Post-Viral ME/CFS#self-compassion#visualization#visualization techniques
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we as a society have got to stop prescribing exercise as a universal cure for chronic illness. yes exercise can be extremely beneficial for certain chronic conditions, especially under the guidance of a physical therapist or physiotherapist. how and ever acting like exercise will undoubtedly reduce the symptoms of every single chronic illness on the face of the planet just isn't it. exercise is even known to worsen the symptoms brought about by certain illnesses and disabilities, and can have detrimental effects if not approached with the utmost care. 'exercise can be beneficial for certain conditions' well yes. 'exercise will have a 100% positive impact on any and all chronic illness' no no nope and also no
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Doctor Beverly Crusher @SpaceDocMom "No pain, no gain," is only said by the health-privileged and they're mostly wrong about it for their own bodies too. For anyone with a chronic illness, more pain is likely to equal less gain. Listen to your body, not ignorant people. emojis: black heart, blue heart, masked 2:31 PM · Sep 21, 2023
#star trek#doctor crusher#star trek the next generation#star trek memes#star trek tng#support#kindness#care#compassion#health care#healthcare#medicine#exercise#me cfs#fibromyalgia#chronic fatigue syndrome#chronic illness#spoonie#disabled#spoons#chronic fatigue#chronic pain#post exertional malaise
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Exercise and other forms of exertion can cause profound and lasting harm to people with ME: various forms of evidence
My 2011 paper, "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome" included data from earlier surveys and discussed the issue of reporting of harms
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in 4 days it'll be a year since the last time i coughed up blood :)
#i guess i can attribute it to lifestyle changes (more exercise and sticking to treatments) and not forcing myself to cough nearly as much#also not taking hypertonic saline#i know that the smiley face in this post may be sarcastic-looking but i promise it's genuine#i used to have hemoptysis often so this is a nice change in my life#cf talk
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[ID: screenshot of a YouTube video thumbnail. the image is of a person lying on their back in a weight room with their hand over their face. the title is “Exercise Actually Makes Chronic Fatigue Syndrome Worse”. the channel is “SciShow” and the video has 4.8K views after being posted 37 minutes ago. the video is 8 minutes and 12 seconds long. end ID]
hell yeah, SciShow!!!! bust those misconceptions!
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Tbh it really is something to have grandmothers (one late 70s other late 80s) who are in better shape than you are, like I go see my grandma and we walk somewhere and i'll be panting before she's even slightly out of breath and it's not like she's in the best of conditions either, and then don't even get me started on my other grandma, she still does sports.
#chronic illness#disabled#disability#chronic pain#chronically ill#postural orthostatic tachycardia syndrome#pots#ehlers danlos syndrome#heds#chronic fatigue syndrome#cfs#me cfs#myalgic encephalomyelitis#(grandfathers aren't mentioned due to both of them being dead)#my grandma's are both not in the best of conditions#but at least stamina and exercise wise they are both in better shape than i am#which is certainly a Feeling#i do walk faster than my grandma from the first example#but that's more because i am tall and she is very short#and that she is a bit unstable#but both distance and time wise she can walk more than i can#and then sports grandma...#even as a kid she could keep up with her energetic grandchildren#out of the two of us guess which one uses a rollator#it's me#i started using a mobility aid before either of my grandmas#and while the older one has started using a cane sometimes#sports grandma only needed one for a bit after her knee surgery
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today my mom was like "do you know you can come to me for help and support?" well. um. no
#very interesting conversations with my mother today.......#she said some things that were good and some things that weren't#idk whenever i criticize something she does she always says how everyone thinks she's insane for supporting me in the way she does#like she does too much for me#(i am disabled)#(even before i was physically disabled to this extent i was disabled)#and just because other people think she's lost her mind because she. tries to do things for me.#doesn't mean that she's doing enough#i've posted about the things she's told me a lot. and i've told a lot of people even more#she...has no idea how my chronic illness works#i did bring up getting a wheelchair and to her credit she didn't immediately hate it#but it revealed a lot about how she thinks it all works#''as long as your legs work you should get your strength back slowly''#well you see. that's not how it works.#that's really not how it works#''it's what i know'' well it's. it's wrong#i have me/cfs#i can't get my strength back by exercising a little bit every day#it's not how it works!#i understand it seems logical to her#but it's not how it works. i can point to any articles about how graded exercise therapy isn't recommended#honestly as terrible as she is about me being disabled#the rest of my family is so much worse#my father had a plan for me or whatever.#my sister thinks my mother is keeping me at home.#christ.#i'm DISABLED i'm CHRONICALLY ILL.#AND I WILL BE DISABLED FOR THE REST OF MY FUCKING LIFE#i don't know what my future looks like. but trying to do what i would have done if i weren't chronically ill won't help me#my father doesn't care about who i am
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I wish doctors would actually listen too their patients with concerns >:(
#went to the cardiologist today and was just told to exercise and shit when I brought up IV Therapy#cripplepunk#spoonie#cripple punk#fibromyalgia#cpunk#cfs/me#hypermobility#pots syndrome
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I will be the first to admit that the evidence is anecdotal and theoretical and has not been explored robustly in a study. But for the love of god, please tell everyone you know that you should be resting after an acute viral infection. If you still feel “off” after the rest of your symptoms have gone away, exercise is much more likely to make it worse than better. Kill the doctor in your mind that believes exercise is good for you in all cases
#and yes I say doctor because actual medical doctors are unbelievably poorly informed about this#and refuse to change beliefs when confronted with contradictory evidence#just tired of seeing one too many people exercise their way into ME/CFS
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The next time someone suggests exercise to help with Long Covid/etc., I'm going to ask them if they're scared of boobs, too.
#footnotes: 1. during the flashbacks feng xin (boobs phobia guy) suggested everyone work out to stop the human face disease pandemic#2. exercise can cause extreme harm to people with long covid; me/cfs; etc.#ableism mention
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Jesus fucking christ!!! I'M AUDHD. I'm just trying to figure out how to start very beginner minimal exercise because I'm really fucking exhausted and WEAK all the time. Did I mention I'm autistic AND have ADHD?! I'm lucky if I remember to EAT most days. And I'm supposed to figure all THIS SHIT out, just to deal with chronic fatigue?? I'M WIPED OUT JUST READING IT.
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It's been over 10 years, but one of the most motivational things I have heard was during high school. My friend had mentioned he just began working out. I said something along the lines of, "I always think about working out but it takes awhile for anything to actually happen."
And he very simply responded with, "Why? I feel it physically right now and it's been three days."
I don't know why that was so perspective-shifting to me but I think of him whenever I'm done working out now.
It's because of that small exchange that on days where I severely lack motivation or am edging into or just out of a CFS/ME episode I still just show up at the gym just to physically be in that space even if I don't exercise. I feel the effect of just existing in that space in gym clothes and continuing the routine of being present there. I stay 5 minutes and listen to a song or part of a podcast and leave. Sometimes I just stretch and leave. Sometimes, if it's just an unmotivating day and I am not in a PEM episode and am physiologically able to exercise, it becomes me getting hyped and I surprise myself by being there for 45 minutes.
The goal for me is often to just be present. Sometimes I meet it. Sometimes I'm not physically able to achieve that goal and the goal becomes respecting my physical limits. I might not be able to get out of bed to even change clothes. That is part of the process, there is a limit that I don't exceed. I take it easy. Other times I exceed the goal of just showing up and do more. All because my way too honest autistic buddy in high school challenged my thinking by pointing out you can feel the effects and influences immediately, and I applied that not just to exercise itself but the process that supports it to occur either right then or in the future.
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* graded exercise therapy is defined as 'a programme of physical activity that starts very slowly and gradually increases over time,' usually under supervision of a physical therapist or physiotherapist. the theory is that, if daily activity is increased in small increments, the body will build up a tolerance to increased activity and symptoms of pain and fatigue will subside
#i know graded exercise therapy is generally the term ascribed to treatment for me/cfs but i don't have it and have been offered the same#treatment for my chronic pain. so for the purpose of this poll anything that matches the above definition counts as graded exercise therapy#polls#chronic pain#spoonie#chronic illness
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the fatigue and weakness is so bad now i dont even have the strength to hold my phone up
i was originally making this post about not being able to propel my chair but then i couldnt hold my hand up
#this crash was caused by walking two blocks#‘try to exercise and walk as much as you can’ look where that got me#im not seeing the me/cfs specialist until february
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If exercise is so good for you, but one of the main reasons why people don't do it is because it makes you feel like mega garbage if you're out of shape, then instead of urging people to exercise I think we should put all that effort and money into designing a drug that makes exercise not suck. Something that either gets rid of that awful out of breath feeling and pain or makes them less terrible. With this I predict we could improve the health of a large percentage of the population. The slogan should be "makes exercise not make you want to kill yourself! :)" or something to that effect
#i was just thinking about like. the no such thing as lazy philosophy#which i agree with#and i was like well the fact that exercise is good for you is unargued. so if people aren't doing it there's gotta be some OTHER barrier#so people won't exercise unless that other barrier is removed. telling them over and over they should exercise will do nothing#and i have chronic fatigue syndrome so for a long time exercise actually made me so physically miserable#that the thought of exertion made me cry#low dose naltrexone and antihistamines made my post exertional malaise go away largely#so i was like. what if we could do that for people without cfs. cause i know EVERYONE hates exercising when out of shape
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