Gonna be slowly working on my blog for the next few days. The last week has been emotional. It started with my birbie, Smokie (a 20+ year old cockatiel) not feeling well. He wasn't eating ( I made sure though he was hydrated), he was mouth breathing (which is kinda scary for a birb) and just really sleepy. and he didn't want to stay in his cage. but that was a few days ago and things have been getting better in regards to his health. He is eating and drinking, he is trying to perch again. He is slowly moving around in his cage again. But still sleeping in his favorite spot on the back of the couch. And I have been getting on and off again sleep. I am feeling like I want to write for the first time in about a week.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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How does it feel being the only entertaining Helldivers 2 streamer?
im gonna get some grocery store deli chicken tenders for my birthday
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"FREEZE YOUR BRAIN"
THIS IS NOT AN EXACT TRANSLATION, THIS IS AN ADAPTATION (AND ONE THAT STILL NEEDS TONS OF FIXING AT THAT)
I regret my life choices of not being able to actually start studying.
Here's "Freeze Your Brain" adapted in Italian!
ASK ME FOR PERMISSION BEFORE USING THIS, DO CREDIT ME IF YOU EVER USE THIS (I doubt you will it’s impractical and still needs so much fixing it’s unbelievable) AND TELL ME/LINK WHATEVER YOU USED IT FOR USING REBLOGS (because for some reason Tumblr doesn’t like comments with links and while I do think I understand why I don’t always like it)
(the apostrophes [or however ’ is called] are used to shorten the number of syllables often in poetry so I’m obviously abusing that power.)
[J.D.]
Sono stato in dieci superiori
Tutte la stessa scenetta
Inutile abituarsi
Perché ce ne andiamo di fretta
Mio padre tiene nel baule pronti due bagagli
Quindi è solo una questione di ricaricarli
I nomi non imparo
Che faccia è di chi non m'è chiaro
La fiducia in questa oasi di cemento riparo
Sembra che ogni volta che sto per disperarmi
C'è un 7-Eleven ad aspettarmi
Ogni negozio è lo stesso
Da Las Vegas all'Ohio
Corsie di linoleum che adoro
Vagare io
Prego al mio altare di granita;
Sì, adoro quella dolce botta di vita...
Congela il cervello
Succhia dalla cannuccia
Meglio di un coltello
Arriva la felicità
Quando tutto se ne va
A chi serve uno spinello?
Congela il cervello
Congela il cervello
[J.D., parlato]
Ti va un tiro?
[VERONICA, parlato]
La tua mammina sa che mangi tutta quella merda?
[J.D., parlato]
Non più
(cantato)
Quando mamma era viva
Vivevamo quasi normalmente
Ora siamo solo io e mio padre
Stiamo meno formalmente
Ho imparato a cucinare
Le tasse a pagare;
Imparato che'l mondo
Nemmeno un cent ti vorrà dare
Il tuo futuro hai pianificato
Veronica Sawyer
Andrai a qualche college
E sposerai un avvocato
Ma il cielo farà male
Quando su di te sarà demolito
Quindi è meglio se
Il tuo muro l'avrai già costruito...
Congela il cervello
Nuota nel ghiaccio
Perditi nel suo doloroso bello
Chiudi bene i tuoi occhi
Fino a che non ti vedran quegli sciocchi
Non diventare uno zimbello
Congela il cervello
Distruggiti il teschio
Combatti il dolore con uno più bello
Dimentica chi sei
Liberati da quel peso
Dimentica in un mese e mezzo
Riavrai lo stesso frainteso
Quando la voce nella tua testa
Dice ch'uno come te è meglio se non resta
Non ascoltare a quello
Solo congela il cervello
Congela il cervello
Vai avanti e congela il cervello...
(parlato)
Provaci
So, direct translation! (used in this to specify the meanings and explain certain word choices)
[J.D.]
I've been through ten high schools
They're all the same little scene (but little in this case is meant in a negative light)
No point getting used to it
'Cause we're gone in a hurry
My dad keeps two suitcases ready in the den
So it's only a matter of refilling(/repacking) them
I don't learn the names
Whose faces is whose isn't clear to me
My trust resides in this concrete oasis
Seems every time I'm about to despair
There's a 7-Eleven waiting for me
Each store is the same
From Las Vegas to Ohio
Linoleum aisles that I love
To walk around in
I pray at my altar of slush;
Yeah, I live for sweet hit of life (or however you call that, basically gives life force again but something that gives you life force not in a literal sense)...
Freeze your brain
Suck from that straw
Better than a knife
Happiness comes
When everything goes
Who needs a joint?
Freeze your brain
Freeze your brain
[J.D., spoken]
You want a hit?
[VERONICA, spoken]
Does your mommy know you eat all that crap?
[J.D., spoken]
Not anymore
(sung)
When mom was alive
We lived almost normally
But now it's just me and my dad
We live less formally
I learned to cook pasta
To pay taxes;
Learned the world
Won't want to give you even a cent
You've planned your future
Veronica Sawyer
You'll go to some college
And marry a lawyer
But the sky's gonna hurt
When it'll be demolished on you
So it'll be better if
You'll have already built your wall
Freeze your brain
Swim in the ice
Get lost in its beautiful pain
Shut your eyes tight(/well)
Till those fools (sorry I had to use this for the rhyme) won't see you
Don't become a laughingstock
Freeze your brain
Destroy your skull
Fight pain with a more beautiful one
Forget who you are
Free yourself from that weight
Forget in a month and a half
You'll have the same misunderstanding again
When the voice in your head
Says someone like you is better off gone
Don't listen to that guy(/him)
Just freeze your brain
Freeze your brain
Go on and freeze your brain...
(spoken)
Try it
OG LYRICS (if you’re seeing this I doubt you don’t know them, but here they are anyway):
[J.D.]
I've been through ten high schools
They start to get blurry
No point planting roots
'Cause you're gone in a hurry
My dad keeps two suitcases packed in the den
So it's only a matter of when
I don't learn the names
Don't bother with faces
All I can trust is this concrete oasis
Seems every time I'm about to despair
There's a 7-Eleven right there
Each store is the same
From Las Vegas to Boston
Linoleum aisles that I love
To get lost in
I pray at my altar of slush;
Yeah, I live for that sweet frozen rush...
Freeze your brain
Suck on that straw
Get lost in the pain
Happiness comes
When everything numbs
Who needs cocaine?
Freeze your brain
Freeze your brain
See upcoming pop shows
Get tickets for your favorite artists
[J.D., spoken]
Care for a hit?
[VERONICA, spoken]
Does your mommy know you eat all that crap?
[J.D., spoken]
Not anymore
(sung)
When mom was alive
We lived halfway normal
But now it's just me and my dad
We're less formal
I learned to cook pasta
I learned to pay rent;
Learned the world
Doesn't owe you a cent
You're planning your future
Veronica Sawyer
You'll go to some college
And marry a lawyer
But the sky's gonna hurt
When it falls
So you better start
Building some walls...
Freeze your brain
Swim in the ice
Get lost in the pain
Shut your eyes tight
Till you vanish from sight
Let nothing remain
Freeze your brain
Shatter your skull
Fight pain with more pain
Forget who you are
Unburden your load
Forget in six weeks
You'll be back on the road
When the voice in your head
Says you're better off dead
Don't open a vein
Just freeze your brain
Freeze your brain
Go on and freeze your brain...
(spoken)
Try it
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