#MIgraine

[antiadvil]

"phil is winning the idgaf war" WRONG the true winner is my neurologist who still has not prescribed botox or a CGRP antagonist for my migraines

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me

[mybodychoseviolence]

“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness

[keplercryptids]

common myths about migraines (AKA if you get headaches regularly, please seek treatment for migraines)

"i don't have migraines because while i get them several times a week, it's only when i am hungry or dehydrated."

those are probably migraines. thirst, hunger, sleep disturbances, or any disruption to routine are common migraine triggers.

"my headaches are specifically barometric related, i get them when the weather/altitude changes."

those are probably migraines. barometric pressure is a common migraine trigger.

"i get headaches all the time but ibuprofen gets rid of them so they can't be migraines."

that's not true. ibuprofen works great at relieving migraine pain for many people.

"my consistent headaches are tension headaches. i feel them originate in my neck/shoulders."

those are probably migraines. muscle tension is a common migraine trigger.

if you are regularly getting headaches (once a week or more), you are likely getting migraines. in fact, a good rule of thumb if you're consistently getting headaches is to treat them as migraines until you can rule out migraines. that's how common "chronic headache = migraine" actually is.

migraines are a neurological disorder wherein pain is one symptom. pain is often the MAIN symptom, and the most noticeable symptom, which can make diagnosis tricky. other symptoms of migraine include:

fatigue

nausea/vomiting

digestive issues

visual disturbances (auras)

sensitivity to light and/or sound

mood changes

brain fog/cognitive changes

ringing in the ears

dizziness/vertigo

numbness/weakness on one side of the body

this list is NOT complete, but is a starting point. i really like the comparison to a hangover. if you generally feel hungover when you get a headache (without having consumed alcohol), that's a classic migraine presentation.

so many people suffer from migraine and don't even know it, so they aren't able to advocate for themselves to get treatment. there are great new migraine treatments on the market! if you're able, please seek treatment for your migraines. a better quality of life is possible.

[alteregozowie]

I get intense migraines....and meds aren't working as well, so I did this real quick. (I get clingy too) 🤕

*Upset radio frequency*

Rosie knows just what to do ~

📻🌹

[chronicsymptomsyndrome]

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

[gubgam]

Y’all, tumblr is letting you report ads for having flashing lights! Tap on the 3 dots at the top and look at the bottom! Please do this for your photosensitive friends!

[samhutson]

Idk who needs to hear this but you’re not lazy, you’re disabled

[thebibliosphere]

You know the cluster migraine is bad when your significant other ends up holding you while you clutch your head and sob about wanting to kill yourself to escape the pain.

Twelve hours. Twelve hours I was in so much pain I wanted to die.

And yet I still don’t qualify for pain management treatment and keep getting prescribed preventatives that don’t work for me because “we prefer not to prescribe painkillers where we can.”

Fuck you.

This is how people end up self-medicating and overdosing.

[wilsons-hotlittleprettyboymouth]

Photosensitivity warning for Good Omens season 2.

I can’t believe we have to keep doing this over and over again but in season 2 episode 1 of good omens there is a long scene (upwards of ten seconds, which to me is long for an extremely dangerous epilepsy trigger) of very bright white and red flashing lights. It’s the entire screen. Unfortunately for me I was already watching this with a migraine coming on and I’m immediately in agony. There was no warning whatsoever before this happened. It’s at almost the very end of the episode. Please reblog to save someone a migraine or seizure.

[atohii]

in yet another failure to care about people sensitive to flashing, the new Scream movie ad includes aggressive flashing within a second of the ad starting. It seems to just be in the usual format of an ad, not one that haunts the background, but if you see the below at the top of an ad

go ahead and either exit the app or close your eyes and scroll. I was not able to get a screenshot of how the whole ad starts as there is, again, less than a second before the flashing starts.

really loving how people stopped caring about flash sensitivities lmao

anyway you should reblog this to warn your followers as well, I'd rather as few people have this violent surprise as possible

[hoothootmotherf-ckers]

the hardest thing about chronic pain to me is how it makes me doubt my own brain.

I have chronic pain. specifically chronic migraines. and the hard thing about that, or neurological pain in general, or really just so fucking many different chronic pain conditions, is there is no proof.

there's no scan a doctor can do to show my pain level or symptoms. you can't look at my head and go "huh, looks fucked up, probably a 8/10 pain." absolutely everything I experience, in order to be understood by a medical professional or even just anyone really, has to be self-recognized and self reported.

and that requires so many steps and levels of trust. like just to fucking start, I have to be aware that the invisible thing I am experiencing is not a thing everyone feels! which again, fucking invisible! Then I have to be aware it's happening at all, which sounds basic but with chronic shit is not. I had to explain to a doctor this week that I do not know if I ever experience "normal" or low-level headaches, because I'm so used to severe migraines that anything below that doesn't register. Sometimes it even takes hours for me to notice I'm having a migraine!

and then I have to be able to assess my own pain, judge how bad it really is, when after nine fucking years my scale is goddamn broken. and the longer I've had a migraine, the further out of whack it goes. I have to recognize and categorize my symptoms, one of which is fucking brain fog, and I have to communicate these very nebulous and abstract concepts to other people.

And then. And then they have to actually believe me. I have to convince them I'm not lying, I'm not looking for attention or drugs or pity or excuses. with zero hard proof, just my words. and then it cycles, because if people doubt my pain, I start to doubt my own experiences. I start to think I'm being a wimp, I'm faking it, I can try harder. so then I downplay it, so then I think it's fine, so I push through it, and this works great until I am fully fucking incapacitated.

and then people are shocked and surprised because I "look healthy."

it has taken fucking years for me to accept that what I am experiencing is real and people who doubt me can go fuck themselves. and it's still very much a work in progress. every single day.

but my pain is real. and so is yours. and people who doubt us can, to reiterate, go fuck themselves.

[katy-l-wood]

Okay, so here's the sequence of events:

Bought a decorative barometer for my office in a fit of ADHD-must-buy-something boredom.

Thanks to decorative barometer, I start to realize that my migraines seem to be triggered more by high pressure than low, which is opposite how it works for a lot of people.

Winter rolls around.

My office is cold.

Put space heater in office and curtain over office door to heat office but not the whole apartment, but also allow the cats easy access to their litterbox.

Discover that this configuration SIGNIFICANTLY drops the pressure in my office compared to the rest of the apartment, no matter what the weather is doing.

Realize I have turned my office into something of an anti-migraine or at least migraine-reduction box.

Celebrate?

Today is the first day I've really been able to test this system out, despite suspecting it for a couple weeks. I woke up with a migraine that has gotten progressively worse throughout the day, but I have been working in the livingroom rather than the office because I needed more room.

Finally the migraine got to the point I couldn't really work anymore, and the Ibuprofen wasn't doing shit, so I wandered back into my office and turned on the space heater to drop the pressure so I could see what would happen.

It got better within MINUTES.

It is far from gone, but I no longer feel like I'm getting stabbed in the head either, so. I'm calling it a win. And I'm just gonna...nap on the floor now or something.

[jomasays]

“I want to live, not just survive”.

[tofu-bento-box]

i’ve started saying “i’ve been having health issues” like some sort of suburban mother and gotta say. would highly recommend. lets people know you’re not doin’ too hot without leaving room for questions. gets them off your ass. makes you mysterious. am i shitting myself blind or wasting away like a delicate victorian maiden? who knows! not you!

[sibmakesart]

uhhhhh migraine beating my ass