Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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A Beautiful Dream // A Harsh Reality
AKA As the World Falls Down from the Labyrinth movie works way too well with this Arc of Twst (especially if you’re a MalleYuu shipper)
AKA I come up with a theoretical Great Concept™️ but get bored of drawing it so I rush to finish it. This was supposed to be an animated GIF overlap where you could see the reality glitch onto screen…but again, boredom
I…would like to revisit this. But not right now. I need to let it sit and focus on other stuff. It’s still a concept I enjoy and it would be nice to Draw Malleus in Jareth’s actual garb properly
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i wonder if this scene has something to do with wille’s grief. wille appears to have all of his walls up and seems really angry or shut down in this scene. it could be directed at simon, but i think it’s likely and in character for him to be going through something deeper internally and unable to express that others yet. maybe it’s some kind of pressure building that he’s disappointing erik if he’s considering abdication? and maybe simon said something that hit a nerve and that’s why simon feels helpless - cause now wille’s shut him out. we’ve seen this behavior before in wille quite literally shutting his mom out of erik’s room to have a moment of missing his big brother, so it’s safe to say that’s a defense mechanism when he feels like someone doesn’t understand. and he seems to be having other moments in s3 where he’s also extremely frustrated and dysregulated, so could be a bunch of things boiling up at once.
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Do you ever think that when Cale was KRS, he subconsciously knew about the curse? All of those terrible things kept happening to people he cared about- so much so that it would become a recognizable pattern (that he would realize later on was an actual curse) so he unintentionally twisted his mind into the piece of origami it is now, attributing people to their worth and convenience and refusing to express care for anyone, inside of his heart or to the outside world.
… He fails at hiding it. He fails because he doesn’t even know what counts as caring about someone’s well being, he doesn’t know what it looks like! He’s only ever had his own concern towards himself (and Lee Soo Hyuk and Choi Jung Soo), and everyone who cares for him like he cares for them— dies.
He knows how to be a team leader and how to manage and take responsibility for his members, but he doesn’t want to outwardly or inwardly care. Even after finding out about the curse, he doesn’t see how he refuses to care about things.
Well- he does care about things. Arguably more than anyone else, because his internal longing for human connection is so bone-deep that he can only create reasons why he’s helping people, instead of saying that he wants to.
‘Want’ got Cale nowhere. ‘Family’ got him nowhere. ‘Friends’ left him to sweep up his broken remains. ‘Home’ didn’t last, ‘safety’ is an illusion, and ‘emotions’ have only ever gotten in his way. Time and time again, these facts got drummed and burned into his mind.
It’s all he knows. It’s all Kim Rok Soo knew for his aching, dragging 36 years of existence.
Now he’s Cale Henituse.
Those facts are still there. They’ve become deep, welded scars in his mind. They’ll never go away.
But he’s learning. Very, very slowly. Those scars will never disappear, but maybe through this story, he can learn to traverse his trauma.
I hope so.
I really, really hope so.
(Drafted: January 23, 2023)
(I found this gathering dust in my drafts and decided to post it)
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There's a scene in the first season of Babylon Berlin where a characters reads a lecture on psychoanalysis and PTSD (the series are set sometime between the two world wars) and the audience boos him.
"Brain is an organ, not a poetry book," they say.
For me it put into perspective how important was what Freud did. Considering the setting he had to work in, the setting he had to overcome in his own mind first, we really don't value the guy enough.
Not like I didn't *know* it, but it helped immensely to see it in context.
He was the first who said that humans have an inner life that's neither sacred nor purely physical. That it's governed by its own predictable rules and breaks in predictable ways, and that it can be mended through talking. Not being electrocuted or medicated out of the patient.
Just how awesome is that. Just how much inner work that required in his times.
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I'm struggling a lot with my body image and I'm having a hard time not hurting myself.
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MY FUCKIMG GARLIC BREAD
THE ONE THING THAT DIDN'T MAKE ME SICK
GONE BEFORE I HAD A CHANCE TO EAT IT
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