#chronic illness things

[wormonastringtheory]

casting a head less hurty spell for february

[stagegoose]

shout out to those of us chronically ill people who have stacks of rare diagnoses that took years or decades to dx. Shout out. to those of us in those categories who had earlier diagnoses questioned because of our other, at this point undiagnosed, rare illnesses.

To have a doctor look at something very concrete and telling of a certain diagnosis (for me, it was a muscle biopsy that showed a very obvious mitochondrial cytopathy) and go 'nah i don't think its actually this thing we have evidence of' because you also have another completely unrelated rare illness is gross and inexcusable.

If you are in this situation, i pray that things prevail for you. Remember that you know your body far better than any medical professional ever will, and that no matter what they say, you're not crazy for having inexplicable symptoms.

to deny the idea that someone can be doubly sick with three or more different rare illnesses when we know so little about genetics and all the different ways the human body can screw itself over is extremely and without a doubt idiotic. we all deserve better.

[inkcurlsandknives]

Can someone explain to me why we're all experiencing a House MD renaissance? I'm not complaining, I just want to understand what zeitgeist has seized us all. Has the post-pandemic healthcare landscape become so grim and desperately understaffed we're all once again longing for the fantastical vision of a doctor who cares enough to find out what's wrong and actually treat us?

[plushies-and-petrichor]

[chronic-this]

Chronic illness is simultaneously being the burden, while carrying the burden.

(Or at least that’s what it feels like)

[1lostsoul0fishbowl]

I got a weighted electric blanket and holy moly I may never move again. I have achieved Peak Cozyness.

[plaguedghosts]

I love that vitamin B makes my piss the color of uranium glass

[dirtbunnii]

me: damn, ive been sick for like a week, but i dont actually feel that bad, just tired. weird also me: hey. u know how. like. u have that uh. chronic illness. that sometimes makes u tired all the time. me: ...no fucking way.

[bowtiepastabitch]

Chronic pain is fun because you get to have conversations like "yes I also deeply enjoyed our date, you probably won't see me again for at least a week because I will be in bed recovering from *checks notes* walking around the bookstore"

[citrusandsalt]

Disability Achievement UNLOCKED!

I have enough different prescriptions all on different refill schedules that when I walk in to the pharmacy, I don't even have to say my name anymore. The pharmacist just leans back and says "she's back again, boys!" The pharmacist leans a hip against the counter and takes out a little white notepad and says "What'll it be, hon?" The pharmacist shouts ALLEY-OOP and throws the prescription bottle to the cashier up front who slam dunks it in my open tote bag. They don't even fax my insurance anymore, they just have a dedicated phone line always open so they can, at any moment, submit a claim for yes, she's doing, it, there she goes -- it's another prescription! The crowd goes wild.

[anotherobsessedfangirl]

Abled people have no idea how traumatizing it is to constantly have to explain yourself, your condition your medical history over and over again and being reliant on the doctors opinion of you and your struggles. Never knowing if they will believe you or respect you or completely dismiss you. It feels like you have to explain yourself for everything you ever did in relation to your condition and your lifestyle and everyone has a different opinion about it. I am so tired of having to fight for treatments… I am tired of begging and explaining myself and trying to convince people that I am worth treating… I don’t want this anymore I feel like it’s a weight slowly crushing me…

[starstruckcollective]

ome of those days where youre just kinda tired and scared of life and your future as a chronically ill person yknow?

[idontplaytrack]

surprise! cant sleep bc im uncomfortable and feel a flareup creeping up on me 😐

[1lostsoul0fishbowl]

It’s amazing, the weird shit that becomes completely normal to you when you’ve got chronic illness. I’m about to go get a Botox treatment for my migraines and like. Wtf. That’s just so freaky when you really think about it. If you’d told me a few years ago that I was gonna go get LITERAL POISON shot into my FACE every couple months and I’d think it was awesome, I would’ve been like “wtf are you on about?!?” and yet here we are 🤷‍♀️

[ferniliciousness]

The urge to learn how to animate is fighting with the urge to write, all the while my body is fighting to just go back to bed 😂

[erggggggggg]

i’m so fucking tired it hurts