#endo warrior

[wilbursprincess]

for someone who’s disabled i sure get annoyed when my disability disables me

[moomindust]

Day 12 post op. Completely drained. Feel like I could sleep for weeks

[chronicallychilllllllll]

[sparkles-and-trash]

The medications I need for my chronic illnesses (chronic migraines, lupus, endometriosis ++) have gotten super expensive, so I have to swallow my pride and boost myself a little!

etsy shop - ko-fi - paypal

Reblogs are very appreciated!

[andiealessandra]

From @itsachronicthing on IG.

[endopositivity]

I am very aware of my endo this month.

💛💛💛💛💛💛💛💛💛💛💛💛💛

[endoshit]

Yes, being chronically ill sucks … but having a diagnosis after 13 years of everyone telling you you’re crazy is actually quite nice…

[missashyscreations]

March is endometriosis awareness month, it's also womans history month!

I have stage 4 of endometriosis, and I know the struggle is real, but we all are warriors! I made this shirt to represent our fighting spirit. If you're an endo warrior to, buy this shirt!! Thank you! 😊

[paddockbunny]

As if I get my period the very first day of my holiday 🫠💀

(Sorry if tmi but, it is what it is, hello world of pain from endo)

[willowsprout]

Hey besties!! Do you have a uterus? Are you sick and tired of living a boring, able-bodied life? Are you tired of your friends having Bad Cramps Cred, and they can stay home from work? Well, besties, I have a lucrative offer for you. For just $11.99 a month, YOU can subscribe to Endometriosis™ today!!

Perks Include:

*constant, excruciating pain!! You too can have that tragic, Girl-Interrupted aura you so crave!

*With Endometriosis, ALL of your underwear will be Period Underwear! Because you never know when the fuck your period is coming!!

*Anemia!! Do you want a grey-skinned, sickly victorian child vibe? Do you want to use a wheelchair in the airport? With the homicidal amounts of blood coming from your uterus, you'll be sure to have no red blood cells in no time!

*Are you looking to shed some pounds? Try Endometriosis!! You'll be so nauseated all the time, you'll barely be able to eat at all! Bonus points if you reduce calories intentionally in order to get your period to stop completely!!

*Do you have a vanilla ass sex life? Endometriosis can add some kinky spice!! You'll be in massive amounts of pain during and after sex, and you'll need to hide it in order to not hurt your partner's feelings!! Doctors will not listen or care!

*Are you Trans*? Happy pride month!! With our $14.99 Rainbow Package™, you can obtain an extra layer of devastating gender dysphoria!!

So subscribe to Endometriosis today!! With our revolutionary product, you can drastically increase your NSAID intake, emergency room visits, and the number of tampons you'll need. AND, for just $29.99, you'll receive our DIY hysterectomy kit!! Because you're life will be so miserable that cutting it out is your favorite solution!!

So call 1-800-FUCK-YOUR-LIFE today!! Don't wait, Endo is flying off the shelves!!

WARNING: Side effects of Endometriosis may include: various physical illnesses, mental illnesses, addiction, increased chances for a shark attack, demon possession, wishing you were dead, or actual death. Offers and exclusions may apply.

[orbitalsockets]

Ten Things I Wish Someone Would Have Told Me Sooner About Reproductive Health As A Person With PCOS and Endometriosis

Periods should not hurt. You read that right - I was shocked beyond belief when my doctor told me for the first time. Periods are, for normal people, uncomfortable and slightly unpleasant. However, normal period pain is often treatable with Tylenol, Ibuprofen or Midol. If your period is causing you pain to the point that none of these things help or it debilitates your ability to do everyday tasks, THAT IS NOT NORMAL. I believed from the age of 11 (I'm 23 now) that periods were just a horrible, painful, nauseating experience for everyone and many male doctors AGREED with me. It wasn't until I met my current gynecologist that I was informed that having to miss school, wear two pads to bed and cramping so hard that I threw up were all NOT normal period experiences. This ended up being my most ignored symptom, and it took twelve years to find out that - for me - it's a combination of PCOS and Endometriosis.

Penetrarion also shouldn't hurt. Since the first time I had sex, I have had pain with penetration. Even situations like a standard gynecological visit with tons of lubricant or using tampons often leave me crampy, in pain and sometimes bleeding. This is not normal, and for me was an indicator of endometriosis that went unnoticed for four years.

Your period skipping for several months at a time is not normal. When you first start your period it can be normal to experience some abnormality with your cycle timing, but it shouldn't be a chronic issue. If you find yourself missing your period more than having it and you're not on any medication that can impact it, THAT IS NOT NORMAL. This for me wound up being a symptom of severe PCOS that went unnoticed for six years.

If you are plus size, you have to advocate twice as hard for half the result when it comes to reproductive disorders. I am plus size and a large reason why I was dismissed by doctors was because of my size. Never mind the fact that my blood work indicated nothing about my weight being a factor and rather leaned into showing that my weight was a direct result of my PCOS - doctors saw fat and immediately assumed that my fatness was the problem instead of an underlying syndrome. This is one of the most gut wrenching parts of advocating for yourself, but you HAVE to keep fighting for an answer if you know something is wrong. Getting discouraged can be the path to chronic pain and worsening disorders.

Don't trust what hospitals have to say about your symptoms - If possible, go to a specialist as fast as possible. I spent months in and out of the hospital because the pain I was experiencing felt emergent (talking like an 11 on a scale of 1-10) and I was repeatedly told I was fine. I had over 20 ultrasounds in this hospital, and they claimed they didn't even see my PCOS that had been diagnosed years prior. They made me feel crazy, passive aggressively accused me of seeking out pain meds, and called me names outside of my door - It took my doctor ONE ultrasound to reconfirm that I indeed have severe PCOS. If the hospital tells you that you're fine, or even a doctor who you don't feel is taking you seriously, get a second/third/fourth/etc opinion until someone listens and checks.

If you and a doctor find that you're showing symptoms and need to move towards surgery, it's really easy to lose yourself in the limbo of finding out if something is there or not. I spent the last year in debilitating pain and for most of it didn't even know the cause - I just had my first endo surgery, and I spent the entire lead up wondering if I actually was crazy. I drowned in my own head with worry that I was actually faking it like so many people claimed. I woke up in the post op recovery room to news that I had been right, and I have endometriosis. Trust your instincts, no matter how deep the gaslighting around you tries to seep into your brain. You know your body better than anyone else.

If you have POTS or any other disorder that impacts your temperature regulation, be VERY careful if you decide to take Orilissa for endometriosis. The medication essentially puts you into medically induced menopause, which causes heat flashes. I have POTS and the heat flashes were too severe and disorienting for me to be able to continue the medication, which is why we moved onto surgery.

If you're diagnosed with insulin resistant PCOS and are given Metformin, you will most likely be asked by every medical professional you meet if you're diabetic, regardless of specifically stating that you take it for insulin resistant PCOS. This will happen even more frequently if you're plus size - it's annoying as fuck and you will have to repeat yourself, and even sometimes explain to the medical professional what PCOS is. The lack of knowkedge with medical professionals happens less with endometriosis in my experience, but you will most likely end up explaining what that is a few times as well.

Having a designated area for helpful items in whatever room you spend the most time in is legitimately one of the most helpful tools I've had through this experience. Many days prior to surgery (hoping it gets better, only four days post op so here's to hoping) I'd be in so much pain that I was exhausted and perpetually low on spoons. I made a drawer in my living room that holds snacks, drinks, medication, my heating pad, extra pads, underwear and comfort items, and it has been a legitimate godsend on my really bad days.

Even if you DON'T have symptoms, get checked anyway. Many people have endometriosis and don't find out until they're trying to conceive because they didn't have any symptoms. Endo is super weird in that regard - one strand of endometriosis can debilitate a person, but someone else can have their organs cemented together and experience no issues outside of difficulty conceiving. Even if you think there's nothing bad going on in there, checking in and making sure never hurts.

[joellesolo]

So, as badly as the Orilissa completely and totally fucked my body up, I really miss not having periods. To go almost two years without one, and now the last three months have just been excruciating. 

My period started a week and a half late this morning and I just want to curl around a heating pad and cry but nope, have to mother all day. Guess I got lucky it’s one of the days Pea is at preschool and thankfully I just put Lily down for her nap so I get a break finally. But it’s too fucking hot for a heating pad so I’ll just cry because no doctor will recommend painkillers ‘in case I get addicted’ even though i’m in SO MUCH FUCKING PAIN 🙃

[andiealessandra]

These pics were taken within minutes of each other.

I’ve zero energy. I can barely type this out tbh.

I’m flaring and have Covid. Fee extra exhausted.

All I’m doing right now is sleeping, reading and binge watching Netflix and Prime.

May the Goddess bless me for a speedy recovery ❤️‍🩹

I do have enough health issues without this. Can we stop throwing curses at me people.

🧿 Warding off the evil eye 🪬 so I’m protected. Have smudged and cleansed and given thanks to the Goddess’s.

Appreciate all of your msgs both public and private. It’s always when you’re sick you find out who your friends are 😂 sad but true.

Love and light to you all. Send healing ❤️‍🩹 thoughts if you can. I’d appreciate the at so much. 💙💜💙💜💙💜💙💜

Blessed Be 🌛🌕🌜

P.S Quote on my cushion is one of my faves of all time. Of course it’s by Poe.

“All that we see or seen is but a dream within a dream”

From his magical poem;

A Dream Within A Dream

Take this kiss upon the brow!

And, in parting from you now,

Thus much let me avow —

You are not wrong, who deem

That my days have been a dream;

Yet if hope has flown away

In a night, or in a day,

In a vision, or in none,

Is it therefore the less gone?

All that we see or seem

Is but a dream within a dream.

I stand amid the roar

Of a surf-tormented shore,

And I hold within my hand

Grains of the golden sand —

How few! yet how they creep

Through my fingers to the deep,

While I weep — while I weep!

O God! Can I not grasp

Them with a tighter clasp?

O God! can I not save

One from the pitiless wave?

Is all that we see or seem

But a dream within a dream?

#edgarallanpoe #eap #covid_19 #corona #blonde #blueeyes #exhaustion

#exhaustion #spoonie #chronicillness #fibromyalgia #cptsd #endometriosis💛 #cervicaladhesions #frozenpelvis #stageivendometriosis #endstageendo #1in10

#migraines #fever #covidrash #sleeingwithsirenstee #sws #sleepingwithsirensmerch #sleeingwithsirensuniversity

[chronicallysicky]

my colonoscopy yesterday has gone well. they didn't find anything bad, just some erosions that the doctor say could have being caused by the use of anti-inflammatory, which makes sense since I take ibuprofen on a daily basis. my bleedings could have been caused by this erosions. the doctor who performed the exam said there's none endometriosis tissue inside my bowels, but this doesn't exclude the possibility of endometriosis on the outside of my intestines or in other parts of my body.

I'm excited for my next appointment with the endo specialist to show this results and also the results of my last blood test (which accused very low testosterone)

[endopositivity]

I’ve had spotting all month and I’m only now on the placebo pills

weirdly enough my pre-cramping didn’t happen so either the constant spotting reduced it or I’m just in an endless state of cramping so I don’t even notice lol

I’m not looking forward to this week

But it’s okay I’ll do my best

💛💛💛💛💛💛