#meniere’s disease

[a-lil-perspective]

Crosshair having a Problem™ with rides is an interesting take.

Thank ye! He is the problematic one of the bunch.

Like, obviously he’s not afraid of heights at all BUT I like to think that gravity still messes with his system from time to time. I’ve always liked the idea that Crosshair suffers from vertigo to a degree, and so amusement park rides or even Tech’s flying can shake that up in him. I think he probably looks like a drunk stumbling off afterwards LOL. Maybe his tummy gets a lil sick too idk. But it’s mostly neurological/vestibular. That’s how I am! I have a stomach of steel and not afraid of heights, but g-force ignites a really strong episode of vertigo and I have to sit/lie down. XD Worth it though. XD

Anyway don’t tell anyone but Crosshair is holding onto Cyare afterwards. XD

[sleepyherbs]

I haven’t seen a flag for Ménière’s Disease anywhere before, so I made my own! Feel free to use. Credit is appreciated but not required, and anyone with Meniere’s can use it!

IMAGE ID - The flag in the center has nine evenly-spaced stripes. In the center of the flag is a simple white icon of a side-view of a person's head with a black spiral where their brain would be. From top to bottom, the colors are saturated medium blue, medium fern green, desaturated greenish-yellow, light yellowish-red, and off-black. The colors are mirrored below that strip, starting with light yellowish-red. The flags on the left and right are the same, but without the icon of the head in the center. /END ID

Color meanings below:

Blue represents hearing loss, and is colorpicked from the Deaf flag.

Green represents tinnitus, and is colorpicked (with slight variation) from this tinnitus flag.

Yellow represents vertigo.

Red represents inner-ear dysfunction and endolymph buildup.

Black represents sound sensitivity, and is colorpicked from the misophonia flag.

[labsportstherapy]

Epley’s Maneuver and Your Vertigo Relief Journey

Your Steady Tomorrow Starts Here As we conclude our exploration of Epley’s Maneuver and Vertigo Relief. Remember that finding balance is not just a hope – it’s a reality. If you’re uncertain about the origin of your dizziness, take the first step toward stability by visiting LAB Sports Therapy in Minnesota.

[gabbagepatch]

Listen guys, you don't need to look nice to go outside. Your health is more important than appearances.

I just went on a walk in my pajamas, greasy hair in a shitty bun, acne, and a pair of new balance sneakers. Cars passed by and I said hi to everyone who passed. Did I feel self-conscious? Of course, but it was worth it.

Now I feel a lot better, because I didn't A. Overextend by forcing myself to shower/get dressed/put on concealer beforehand or B. Avoid doing anything because I felt like a mess.

Go outside and be however you are. It's not your job to look good to random strangers, you deserve to go outside.

[scary-lasagna]

How would the creeps react to their s/o who has meniere's disease? I have it and it makes life extremely difficult at times

Jeff

The diuretics are an inside joke in your relationship, the medicine makes you constantly run to the bathroom throughout the day to balance the water build up in your ear.

"Go piss, girl!" He will yell, no matter your identity.

And he keeps extra meds in his nightstand incase you run out before your next subscription, nicking them from whatever houses he's assigned to.

He might sneak a Zofran sometimes because he likes the taste and feel of them when they dissolve.

But he's not very keen on giving up salty foods, and whenever he cooks he'll cook separately so he can salt his own food and giving you none/less depending on the dish and what you've eaten that day.

He doesn't pay attention very well, so you'll be bombarded with questions about what you've ate, if you're stressed, and how you're physically feeling.

He even has a little writing tablet for when your hearing isn't the best, but often just uses it for when he's across the room and wants to show you a stick figure drawing of two of you holding hands.

Lost Silver

Lost Silver is such a sweet s/o, he's very affectionate and considerate, and he's always looking out for you and your health.

He has a setup for his consoles, filled with beanbags and plushies, as well as cup holders and blankets.

And you have a designated spot sitting next to him, either playing together or watching him play on particularly bad days. This way, you can spend time together without straining yourself, and you don't have to get dizzy by standing and walking around, or laying down on the bed and getting nauseous.

Sometime ago, Silver actually bought a little gumball machine full of Zofran, and has timers set to ask if you've taken any daily medications you might be on.

And he'll play a game with one hand and give you head-scratches, tummy rubs, or back scratches with the other. Or if that's making you feel worse, he'll stay by your side nonetheless.

He'll keep you calm and stress free to prevent episodes before they start, but he's working on learning a little bit of ASL to help when your hearing fades in and out.

He's not a huge fan of salty foods, outside of ramen and soup, but he'll try to find ways to adjust to your taste.

[neurocute]

Meniere's Disease Resource Dump

feel free to reblog! here are some resources i've collected since being diagnosed.

General Information

Diagnostic criteria for Meniere's Disease, Jose A. Lopez-Escamez et al. through the Journal of Vestibular Research

Meniere's Disease: Symptoms and Treatment, from UW Medicine

Clinical review of Meniere's Disease, Johnny Harcourt, Kevin Barraclough, and Adolfo M. Bronstein through The BMJ

Section on Meniere's Disease from the Handbook of Clinical Neurology, vol. 137

Etiology, pathophysiology of symptoms, and pathogenesis of Meniere's disease, Michael M. Paparella & Hamid R. Djalilian

Meniere's Disease: Treatment Strategies, Manouchehr Saljoughian through U.S. Pharmacist

Coping & Symptom Management

Self care/self help strategies for persons with Meniere's disease: a systematic review, Andrew F. Long & Alison Brettle

"Day to Day" and "Self Management" articles from the UK Meniere's Society

Efficacy of Dietary Restrictions

Caffeine intake and Meniere's disease: Is there a relationship?, Inés Sanchez-Sellero et al.

Lifestyle and dietary interventions for Meniere's disease, Katie E. Webster et al.

The relationship between nutrition and Meniere's disease, Esma Oğuz, Aybike Cebeci, & Cennet Reyyan Geçici

[watercolourferns]

DAAAAAD C'MOOOOON!!! If I have Meniere's I have Meniere's!! What's the big deal!!! At least I'm 36 and not 56 like you when you got diagnosed, and I'm cutting down on a lot of things YOU DIDN'T. The % of people that 100% lose their hearing is very very low. There's a bit of loss, yes, but it doesn't mean I'll go deaf completely.

That's for one, and for another, if I need a device there's a shit ton of newer ones that work much better than the one you got when you were diagnosed!! There's even earbud-like ones now!

People all over the world require hearing aids, they lose their hearing, they go on wih life... BECAUSE DISABILITY IS JUST A PART OF BEING ALIVE!

Gods, I understand why he's so anxious and in denial, but IT DOESN'T HELP. This back and forth doesn't help, it exhausts me and I've told him and he still does it... He's so anxious even my anxiety has anxiety after I chat with him about these things. I love him too much to be harsher on him, but damn... I wish he'd stop thinking only from his POV and stepping into my shoes...

The vertigo is there, the signs are there! It could ALSO be a processing issue because I'm Neurodivergent and most likely have AuDHD? Yes. BUT IT'S AN "ALSO" NOT AN "INSTEAD"!!! Two things can happen at once!!!

[rumandstars]

It’s amazing how much better you feel when you aren’t throwing up blood every other week. Whew, those Ménière’s episodes were really wiping me out. I was ready for death just so I didn’t have to see/feel this ever fucking again: 🌀

I’ve had well over a hundred episodes the past five years, terrible, it’s hard to understand the level of medical trauma with this illness. Every episode = like being tortured mentally and physically, not exaggerating. Uncomfortable, painful, exhausting, disorienting, debilitating, scary because you worry about your esophagus getting long term damage from uncontrollable vomiting + there’s always a chance you could end up hospitalized due to dehydration. Ménière’s Disease, the illness that won’t kill you (probably), it’ll just make you wish you were dead.

This has been my best year in five (or six?) years…ahhhh. I���m so relieved ugh. Still have some symptoms like lack of balance, hearing fluctuations, and occasional dizziness upon waking but the extremely debilitating spells seem like they…*gulps nervously*…are starting to pass…

Eeee I wanna get back to living life. I’ve lost so many years to this illness! It’s been a hard road but I’m still here.

[dk-thrive]

A lack of understanding made into a mouthful of air. We know that something is wrong, but not why.

John Cotter, Losing Music: A Memoir (Milkweed Editions, April 11, 2023) 

[joneevarts]

Hey, does anyone with meniere disease knows what triggers the hearing loss and tinnitus? I know I always have severe back and neck pain when it happens, so I'm wondering if maybe bad posture or lack of stretching could affect it? I know salt and caffeine are a no no too.

[brennacedria]

Today's been miserable thanks to menieres. I'm finally home and I've gotten my medicine, and Brian's fixing me some soup cause I can't really stomach anything else. As soon as I'm done eating I'm going to sleep on the sofa until Brian gets his shower, then when he's out I'll get my shower, get cozy pj's, then actually go to bed. Probably.

[riverageleis]

Having a chronic illness is a wild ride. I was up at 2311 after 3 hours of sleep. I take Klonopin before bed. If I take .5mg I'm dumb all the next day, so I take .25mg and pray to Hypnos. Some days he grants my prayers. On other days he refuses. He's refused this week. No amount of rest has assuaged this bone-deep weariness. No cocktail of my medication regimen has touched the anxiety, aches, dizziness, and migraine. My jaw keeps subluxing in my sleep. I wake up and have to put it back in place manually. My therapist wonders if it's all the stress from the last several months. I was stable for 4 years with my illnesses. All of them. I got covid a year ago and every day has been a Sisyphean effort against the worsening symptoms. I constantly want to give up. Succumbing seems the best option. I just can't seem to, tho. It's always one more breath. One more step. One more sleep. One more meal. How many 'one mores' do I have? That's the question.

[aami98]

Me thinking people hear static noise when they sleep in the night.

My ENT attending: first of all that's tinnitus second that's not normal.

[gabbagepatch]

Having subjective symptoms is very isolating because there is no way for others to witness what you're going through. They just have to trust you and you have to trust them to believe you. I know everyone in my life believes it, but they don't get it. I expressed to my therapist that I feel that all of these symptoms begin rattling around in my head and it creates a barrier between me and others.

My world: hurting, trying not to show it, coping with pain, fearful, etc

Their world: normal, uneventful, happy evening

It's very difficult to have something happening to you that nobody else can see.

[wheres-all-the-tea-gone]

Would love to see Count Vertigo from DC somehow get a redemption arc or something in some cartoon.

(No I haven’t watched Young Justice but apparently he’s in there?)

I’ve been thinking about this because Baron Zemo got sorta turned into a good guy in the MCU. Apparently he was a nazi in the comics, and they seemed to have changed that for the MCU. So what I’m saying is I’d love to see that for the Count. (I bring up Zemo because both he and Vertigo are royalty of some fake Eastern European countries.)

Idk I just want major characters with Ménière’s disease pls 🙏 👂

[monkeymeghan]

So today I saw my ENT, since my GI doc wanted me to see him. It turns out that based on my symptoms he thinks I have endolymphatic hydrops. Idiopathic endolymphatic hydrops is also known as Ménière’s disease. Based on the reading I’ve done since I got home, I think I would have secondary, because SEH can be caused by ear surgery. This makes sense because the vestibular symptoms I’ve been having have been since my craniotomies. Fun times. So he wants me to try a certain medication for a few months and see how that goes. Fingers crossed!