the fact that shakespeare was a playwright is sometimes so funny to me. just the concept of the "greatest writer of the English language" being a random 450-year-old entertainer, a 16th cent pop cultural sensation (thanks in large part to puns & dirty jokes & verbiage & a long-running appeal to commoners). and his work was made to be watched not read, but in the classroom teachers just hand us his scripts and say "that's literature"
just...imagine it's 2450 A.D. and English Lit students are regularly going into 100k debt writing postdoc theses on The Simpsons screenplays. the original animation hasn't even been preserved, it's literally just scripts and the occasional SDH subtitles.txt. they've been republished more times than the Bible
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
HELP PALESTINIAN ARCHITECT EVACUATE HER FAMILY FROM GAZA
This is a verified fundraiser for a family of four to evacuate to Cairo. The fund's creator, Amal Abu Shammala, reached out to me personally to share this since she's failed to get her fund on Operation Olive Branch and Let's Talk Palestine's fundraising linktree.
As of right now, she has raised €2,397/ €42,000. You can see the breakdown of what the money will be used for in the fund description.
it’s very easy to tell the good satires and pastiches from the bad ones because the bad ones are too afraid to live within the form. like if you are doing work with fairy tales and you are refusing to look closer at the underlying logic and unspoken rules of what can seem at first to be a senseless form, you are not going to create meaningful work. to borrow a turn of phrase originally used by maria tatar, if you refuse to enter “the house of fairy tale” as anything more than a gawking tourist, you will miss the particular order to the way the table is set, the rooms that are locked vs the rooms that are simply difficult to enter, the set of the floorboards and the position of the furniture. whatever you build will then be a gilded imitation of how you believe the house of fairy tale ought to look, the table set according to your educated specifications and every door open. there can be no interrogation of themes from a writer who views the form as beneath them!
I'm taking this free online class from Yale on the Science of Well-Being,
and it's free, so I'm gonna share the extremely short notes about what I'm learning. Why does well-being and happiness matter? Because people have more energy and more capacity to effect change if they are doing well mentally.
And because I think American culture in general is structured in a way that ignores human needs and leads to increased suffering in all sorts of ways.
I often do think it is important to call myself a woman. In past I've had kids ask me "are you a man or a girl" and in hindsight I think these kids were quite perceptive of the world. Especially when you're in your 20s it's men and girls, I've seen students write pieces describing themselves as men, but their female peers of the same age they call girls, but I have also heard bisexual women say they like both men and girls. In past I've fallen into that myself and said that yeah I'm a lesbian I like girls, but do I? No I am in my twenties and I am actually only attracted to my fellow adults - women. It does feel more serious, less trivial, both to be and be attracted to women as opposed to girls, and that can be a bit uncomfortable to be faced with. It is also important to me as a butch. I am no longer a tomboy I am a butch I am no longer a girl I am a woman. I am a woman and women can be like me. I don't feel like I've succeeded enough at adulting to call myself a woman, but that doesn't matter. I am 25, and if the word bears other connotations so be it, that's not my problem.
saw a post the other day that said that psych survivors were overexaggerating and fearmongering for saying that people should be aware that having diagnoses on your record can be a danger + impede your life. and the more i think about it the more annoyed i am. because i think people need to know that there are exceptions to health privacy laws that can make having psych diagnoses and psych hospitalization history on your record risky depending on your circumstances. diagnoses follow you through your health interactions-you do not have to consent to have your information shared between providers. judicial proceedings are also an exception to the HIPAA privacy rule, so for things like custody battles, guardianship, getting orders of protection--the court can petition for medical records. there's so many other situations where even if they can't legally access your information without your authorization, people will require you to disclose diagnoses, records, previous hospitalizations and refuse to give you services/hire you/whatever unless you share that information with them. for example in many states anyone (a provider, a cop, friends and family) can disclose that you have certain psych diagnoses like bipolar to the DMV which then might require that you undergo drivers license review as frequently as every 3 months. my university is actively trying to kick me out right now because i had to disclose my medical record, psych diagnoses, and hospitalization history to them as a requirement to stay enrolled.
and i don't want to scare people or make people think that having a diagnosis on their records is automatically going to mean that it is weaponized against us. because i do know plenty of people who have never faced issues with their records. but i do expect that the community supports the people speaking out about the ways that we have been harmed by diagnoses creating barriers to accessing necessary parts of our life. instead of attacking us or saying that we're lying about things we are currently experiencing.
The defintion of hell is knowing a show is incredibly well-received in its first season, but if people don’t become machines churning out tweets, content, and rewatching 24/7, there’s no likelihood it’ll get a chance to tell its whole story. This shit is madness. Shows in different genres shouldn’t have to pit-battle for dominance. First seasons are MEANT to be baselines establishing worlds and characters, not complete storylines. The idea that this golden age of television has turned into “get it done in one or get out” is revolting.
[ID Two drawing collage pages of Vash and Wolfwood from Trigun Maximum. In the first collage, top corner, Wolfwood looks upwards disgruntled with a flushed expression, lying against a pillow, as his hair is being pet by Vash's hand. Next shows Vash and Wolfwood from behind, Wolfwood with his top bare and hickies covers around his nape area. Vash lifts hair away from his nape and asks, "More?" Wolfwood nervously says, "No." Next is a side profile of Vash, his arms around Wolfwood from behind while Wolfwood rests his hands against Vash's arms. Next to this are two smaller drawings; Vash turns to Wolfwood and says repetitively, "Wolfwood, Wolfwood..." Wolfwood, not looking at him, says "What?" He finally turns his head and looks shocked as he exclaims, "So close!" Vash says plainly, "You just noticed?" Below these is a drawing of Vash and Wolfwood sitting together as Vash kisses and hugs him from behind with his right arm around Wolfwood's neck and his left hand around his side. He also has his right leg propped against Wolfwood's knee. Bottom of the page has a comic. Wolfwood looks annoyed, speaking to himself, "Where is that idiot?! Need to get out of town before--" A chat bubble exclaims, "Wolfwood!" The next panel shows Vash running from the townspeople, small text saying "Get him! Vash the stampede!". Wolfwood, mad and about to pull the Punisher off his shoulder, says, "Argh, you fucking dumbass!" Vash exclaims, "Ah, don't!" before pulling Wolfwood into a quick kiss. He then tugs on Wolfwood's collar and says, "There's no need to shoot, just run!" Wolfwood stammers, "R-right..." with a flushed, dumbstruck expression.
Second collage; Top left, Wolfwood spoons Vash in bed, his arms around his chest and the other beneath Vash's head. Vash has his hand on top of Wolfwood's as he sleeps while Wolfwood lies awake. Behind this drawing is faint sketches of Vash's face. In a small panel, Wolfwood hides in Vash's neck as he mumbles to himself "Stop. Stop thinking embarrassing things, Wolfwood..." Beneath this drawing is another of them in bed, Vash now turned to Wolfwood and a hand on his cheek as he kisses him good morning. In a simpler style, Vash wraps an arm tightly around wolfwood with the text "snork mimimi" next to him while Wolfwood says, "We need to get up. Spikey! HEY!" In this corner, there are faint sketches of Vash and Wolfwood; one of them looking at each other; Vash kissing Wolfwood's forehead; Wolfwood saying, "Hand" with an outstretch hand and Vash says "ok" behind a drawing of them holding hands, both turned away from each other shyly. Next is a 4 panel comic. First shows Wolfwood's face getting squished by Vash's hands with the text "squish" around his face. Next, his cheeks are stretched with the text "Chee--" Wolfwood then hits Vash's face with his palm, exclaimining "That hurts!" The last shows Vash on Wolfwood's lap, smiling to himself as he continues to have Wolfwood's face in his hands. Next to this is another comic; A close up of their hands, Vash holding Wolfwood's with both of his. He then kisses the palm of Wolfwood's palm and says, "They're soft!" Wolfwood looks at him with flushed cheeks, "There's no way that's true..." END ID]