Hey all, you know how internet searches suck now? When the results are awful, full-of-AI, death-of-the-internet levels of bad?
Start appending date constraints to your searches - "before:2023".
My results have gone from 90% AI bullshit to ~60% usable - which frankly at this point is a huge improvement.
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you know what boils my blood.
over the last 2 weeks, i've seen countless patients walk into my urgent care center, symptomatic for so many things, refusing to get tested for covid and flu, citing that they don't want to knowingly bring it to their holiday tables. i had a patient tell me, verbatim, "i don't want to test for covid, because i don't want to be the asshole who brings it on a plane."
i understand that - i understand that holidays are times where people look forward to meeting loved ones that they might only see once a year, or where they get a break from the hectic back and forth of their lives.
but here's the thing - whether they get tested or not, they will bring whatever they have to their holiday tables. it's pure recklessness to know that you're sick, and walk into someone else's house spreading the disease.
today, january 2, i saw 91 patients, many of them who have tested positive for covid and flu. many of these patients are the same ones who didn't want testing 3 days ago, until their events were over, and now, they will have to reach out to everyone they know to let them know that they were positive because they were showing symptoms well before their event.
the next week or two? we're going to see many, many more, all people with symptoms that started around christmas. these are the only two viruses we test for rapidly in our office, but they are potent and can be fatal in many people.
so here's why i wrote this post, and maybe it's a little late, but - if you care about your loved ones, please get tested if you know you're sick. it doesn't have to be at a clinic if you don't want it to, because the over-the-counter tests work just fine too (if you test within 5-7 days of symptom onset). just...please don't try to run from the knowledge that you might have covid, because immunocompromised people, elderly people, people with co-morbidities like asthma, pregnancy, diabetes, etc...many of them may not recover. and they may not be sitting at your holiday table in the future because of it.
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tsum events really are just the best, huh
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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SO IVE BEEN GOIN INSANE SINCE THIS TRAILER DROPPED. JUST. SIMON. SIMON. SIMON.
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On autonomy, and what it means to be Obliged to Help.
Bonus:
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When Shanks adopted Uta Buggy was very much “this is your project” but she quickly grew on him and soon Buggy was helping here and there behind the scenes.
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no because what do you MEAN the first thing benny does upon meeting castiel for the first time in purgatory is angrily confront him about why he left dean? meanwhile dean is clinging to the hope that it was just an accident, there’s no way cas would leave him intentionally, right? girl………
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saw a post the other day that said that psych survivors were overexaggerating and fearmongering for saying that people should be aware that having diagnoses on your record can be a danger + impede your life. and the more i think about it the more annoyed i am. because i think people need to know that there are exceptions to health privacy laws that can make having psych diagnoses and psych hospitalization history on your record risky depending on your circumstances. diagnoses follow you through your health interactions-you do not have to consent to have your information shared between providers. judicial proceedings are also an exception to the HIPAA privacy rule, so for things like custody battles, guardianship, getting orders of protection--the court can petition for medical records. there's so many other situations where even if they can't legally access your information without your authorization, people will require you to disclose diagnoses, records, previous hospitalizations and refuse to give you services/hire you/whatever unless you share that information with them. for example in many states anyone (a provider, a cop, friends and family) can disclose that you have certain psych diagnoses like bipolar to the DMV which then might require that you undergo drivers license review as frequently as every 3 months. my university is actively trying to kick me out right now because i had to disclose my medical record, psych diagnoses, and hospitalization history to them as a requirement to stay enrolled.
and i don't want to scare people or make people think that having a diagnosis on their records is automatically going to mean that it is weaponized against us. because i do know plenty of people who have never faced issues with their records. but i do expect that the community supports the people speaking out about the ways that we have been harmed by diagnoses creating barriers to accessing necessary parts of our life. instead of attacking us or saying that we're lying about things we are currently experiencing.
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So I've been thinking lately about how Mithrun is Kabru's dark mirror (more on that another time- it needs its own post), and I thought it interesting that one of their parallels is that they were both cared for by Milsiril, but in opposite directions. She took Kabru in as her foster after he was orphaned and tried to convince him not to become an adventurer. On the flip side, she helped rehabilitate Mithrun specifically so that he could rejoin the Canaries.
And I kept wondering: why?
For Kabru, obviously she loves him a whole lot- despite any other shortcomings in their relationship, I do believe that.
So I get why she tries to convince him not to go dungeoning, and, failing that, at least prepares him as thoroughly as she can.
But why help Mithrun? She used to hate Mithrun, but after realizing what a secretly twisted person he was, she actually thought of him more positively (oh, Milsiril). So it wasn't as if she held the kind of grudge that might motivate her to make his already-depleted life even more miserable by sending him back to the dungeons. And it wasn't that she felt bad for him either, since she didn't visit Mithrun for the first ~20 years of his recovery.
The Adventurer's Bible says that Utaya was the impetus for Mithrun returning to the Canaries, but Milsiril is the one who made the trip to see him and tell him about it.
Why would Milsiril work so hard to get her old coworker back into fighting fit? Why encourage him to return to such a dangerous lifestyle, when she was the one who chose not to mercy-kill him?
That last panel is such a crazy thing to hint at and then never elaborate on. Without it we could have just thought that Milsiril wanted the Canaries' work to continue without her, even if it seemed out of character. I think some people even assume she's just a natural caretaker as a foster mom and handwave it to include nursing Mithrun too. What could Milsiril's suspicious motives be? What does she gain from Mithrun joining the Canaries that isn't an altruistic desire to see dungeons safely sealed? Feeling a sense of responsibility for the work she left behind isn't an ulterior motive.
My theory is: Milsiril, knowing that Mithrun was empty save for the burning desire to face the demon again, wound him up like a clockwork doll and pointed him back at the dungeons.
Hoping that he'd eliminate the biggest threat to Kabru's life, before it was too late for him.
Milsiril the puppetmaster.
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Another thing that haunts me about this entire thing is that Amanda wasn’t just funny like her coworkers, or funny like other Disney and Nickelodeon actresses. Amanda Bynes was funny like Carol Burnett. Funny like Lucille Ball. She was effervescent and classic. Her comedic sensibilities were deeply intelligent. She had *it*. And she should have grown into one of the best actresses of our generation. But *something* happened and derailed it all. Even if she’s not the same, I truly hope she’s well and happy. I want nothing but the best for her, even if it’s a quiet and private life. I adored her back then and always will.
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I really feel like one of the best details in “A Scandal in Bohemia” that I never see people fixate on enough is that the story starts with Watson stopping in to see Holmes at Baker Street on a complete whim, because he happens to see that he’s home (and Watson is now married and living elsewhere). Like he doesn’t send word first, he’s not invited, he just shows up and surprises Holmes. Which is not that weird but then Holmes is like “oh good, I’ve got a case anyway, you might as well hang out!” which just makes it funnier when the King shows up and is like “I’d really rather speak to you alone, actually” and Watson tries to leave and Holmes is just like “anything you can say to me, you can say to my best friend John Watson, and if you ask him to leave, I would consider it a grave insult, you would be my enemy and I will not help you ever!!” And the king is like “…ok” and just moves on.
like, that is crazy behavior. Holmes is talking about how there’s probably lots of money in this case, and then almost turns away the client for…not knowing who the fuck Watson is?? He’s not even supposed to be there?? He just came to say hi?? “It is both or none”… girl, GET UP.
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crows use tools and like to slide down snowy hills. today we saw a goose with a hurt foot who was kept safe by his flock - before taking off, they waited for him to catch up. there are colors only butterflies see. reindeer are matriarchical. cows have best friends and 4 stomachs and like jazz music. i watched a video recently of an octopus making himself a door out of a coconut shell.
i am a little soft, okay. but sometimes i can't talk either. the world is like fractal light to me, and passes through my skin in tendrils. i feel certain small things like a catapult; i skirt around the big things and somehow arrive in crisis without ever realizing i'm in pain.
in 5th grade we read The Curious Incident of the Dog In The Night-time, which is about a young autistic boy. it is how they introduced us to empathy about neurotypes, which was well-timed: around 10 years old was when i started having my life fully ruined by symptoms. people started noticing.
i wonder if birds can tell if another bird is odd. like the phrase odd duck. i have to believe that all odd ducks are still very much loved by the other normal ducks. i have to believe that, or i will cry.
i remember my 5th grade teacher holding the curious incident up, dazzled by the language written by someone who is neurotypical. my teacher said: "sometimes i want to cut open their mind to know exactly how autistics are thinking. it's just so different! they must see the world so strangely!" later, at 22, in my education classes, we were taught to say a person with autism or a person on the spectrum or neurodivergent. i actually personally kind of like person-first language - it implies the other person is trying to protect me from myself. i know they had to teach themselves that pattern of speech, is all, and it shows they're at least trying. and i was a person first, even if i wasn't good at it.
plants learn information. they must encode data somehow, but where would they store it? when you cut open a sapling, you cannot find the how they think - if they "think" at all. they learn, but do not think. i want to paint that process - i think it would be mostly purple and blue.
the book was not about me, it was about a young boy. his life was patterned into a different set of categories. he did not cry about the tag on his shirt. i remember reading it and saying to myself: i am wrong, and broken, but it isn't in this way. something else is wrong with me instead. later, in that same person-first education class, my teacher would bring up the curious incident and mention that it is now widely panned as being inaccurate and stereotypical. she frowned and said we might not know how a person with autism thinks, but it is unlikely to be expressed in that way. this book was written with the best intentions by a special-ed teacher, but there's some debate as to if somebody who was on the spectrum would be even able to write something like this.
we might not understand it, but crows and ravens have developed their own language. this is also true of whales, dolphins, and many other species. i do not know how a crow thinks, but we do know they can problem solve. (is "thinking" equal to "problem solving"? or is "thinking" data processing? data management?) i do not know how my dog thinks, either, but we "talk" all the same - i know what he is asking for, even if he only asks once.
i am not a dolphin or reindeer or a dog in the nighttime, but i am an odd duck. in the ugly duckling, she grows up and comes home and is beautiful and finds her soulmate. all that ugliness she experienced lives in downy feathers inside of her, staining everything a muted grey. she is beautiful eventually, though, so she is loved. they do not want to cut her open to see how she thinks.
a while ago i got into an argument with a classmate about that weird sia music video about autism. my classmate said she thought it was good to raise awareness. i told her they should have just hired someone else to do it. she said it's not fair to an autistic person to expect them to be able to handle that kind of a thing.
today i saw a goose, and he was limping. i want to be loved like a flock loves a wounded creature: the phrase taken under a wing. which is to say i have always known i am not normal. desperate, mewling - i want to be loved beyond words.
loved beyond thinking.
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