#Cystic

[autumntrail69]

Uh

uhm

what she doin

[drpedi07]

Cystic Adenomatoid Malformation Of Lung

It is a birth defect of the lung characterized by cysts in the lung since birth leading to difficulty in breathing (respiratory distress) right from the first day of life.

[bruderdeslichtsblackmetal]

CYSTIC set release date for CHAOS RECORDS debut, reveal first track

http://bruderdeslichts.com/cystic-set-release-date-for-chaos-records-debut-reveal-first-track/

[smoov-criminal]

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

[platanosconlechera]

#cystic #metaldemuerte #swornenemyoflife #incinerationrites #deathmetal #totaldeathovermexicocity #totaldeath #totaldeathovermexicocityIV #TDOM #TDOMIV https://www.instagram.com/p/CgXwNMsOLoQ/?igshid=NGJjMDIxMWI=

[lordmushroomkat]

《The strong association of PCOS with cis womanhood, the defining of it as a disorder or syndrome, and its framing as a “women’s health issue” obscures the fact that PCOS is a natural hormonal variation, an endocrine difference that is illustrated through secondary sex characteristics. 

During my initial search for resources and community, I also learned that PCOS, given its characterization as a hormonal variance, falls under the intersex umbrella. This intersex umbrella covers a wide range of “individuals born with a hormonal, chromosomal, gonadal or genital variation which is considered outside of the male and female norms,” and PCOS meets that definition. 

This is not an attempt to sway every person who has PCOS to identify themselves as intersex—though it is an acknowledgment that we have the option and the right to do so if it rings true to us. Rather, this is to say that shifting my perspective on PCOS and viewing it through an intersex lens allowed me to better understand it as a natural human variation rather than an affliction causing my body to do the “wrong” thing. 

“I believe that someone with PCOS has every right to use the term intersex for themselves if they want, but I also understand it if they don’t,” said writer and intersex advocate Amanda Saenz.

“As an advocate and an intersex person, I opt to use a definition of intersex that is open ended and expansive,” Saenz explains. “The experiences that a term like ‘intersex’ hopes to define include differences in hormonal production and hormone reception, and the phenotypic effects these differences have on the body. To me, this is inclusive of things like PCOS.”

Discussing PCOS in this way is often met with indignation and resistance. Our society has a hard time separating gender from sex. This has resulted in a widespread misunderstanding of intersex identity as equivalent to transgender identity. Many who vehemently resist the idea of PCOS being under the intersex umbrella do so because they categorically link “female” with “woman,” and therefore misinterpret any acceptance of intersex identity as a denial of womanhood. Moreover, the stigma around and marginalization of intersex communities prevents many people from feeling comfortable with embracing it. 

“You can be intersex and cisgender, transgender, or nonbinary. The ‘opposite’ of intersex is endosex, not cisgender,” explained Eshe Kiama Zuri, founder of U.K. Mutual Aid. As a nonbinary intersex person, Zuri approaches these ideas with a clear understanding of how the bodies of intersex individuals as well as many people with PCOS interrupt binary thinking about both sex and gender. 

“The resistance to PCOS falling under the intersex umbrella is due to a white supremacist society’s desperation to cling to binary genders, which we know [have been] used as a colonial tool of control,” they offer. 

The same medical and surgical interventions that legislators seek to ban trans and nonbinary people from accessing—which would be gender-affirming, life-saving care for them—are often forced on intersex infants and children who are unable to consent. This is done in efforts to align intersex bodies with social expectations of female and male, man and woman; the same logic undergirds the societal and medical pressure to “feminize” the female-assigned bodies of PCOS patients. 

PCOS is “shockingly common [and] the most frequently occurring hormone-related disorder.” However, according to Medical News Today, “up to 75% of [people] with PCOS do not receive a diagnosis for their condition.” If we were to understand and accept something like PCOS as intersex, considering how “shockingly common” it is, the dominant idea of binary sex, with intersex being thought of as nothing more than a fringe occurrence, would be shattered. 

“PCOS is only one of many conditions that could fall under the intersex umbrella, and care for people with PCOS would be considerably better if it wasn’t for the forced gendering and resistance to providing actual support for people with PCOS, even if it challenges society’s ideas of gender,” says Zuri. 

Combating myths built around the gender and sex binaries would create more space to understand PCOS traits as part of normal human variation, rather than inherent problems to be fixed, symptoms to be eradicated. As Zuri so beautifully put it, “When we start to accept that this is not a body behaving ‘wrong’ and it is just a body, we stop blaming and punishing people for how their bodies work and start challenging societal expectations.”》

I was fucking right!

[eiraeths]

simon ghost riley the man you are

[jadenvargen]

Hiiii sorry, just wanted to ask what the age gap was between Martin and the old cowboy (Goerge I think?) Is? If that's okay

Yah in part 1 martins like 22-23 and george is late 30s

[mindblowingscience]

New research led by Queen's University Belfast has made a breakthrough in the field of microbiology, which could lead to the development of new treatments for people with compromised immune systems, such as those with cystic fibrosis. To conduct their study the researchers looked at the bacterium Achromobacter, which can cause chronic lung infection and tissue damage in the airways. The study reveals how this bacterium overcomes the body's immune defenses to multiply and continue to grow. The findings have been published in Cell Reports.

Continue Reading.

[things-erin-likes]

I know this is wildly different from my usual art posts BUT I have wanted to make it for a long, long time, because I love sharing any knowledge that might help someone else. SO...

If you (A) don't want to spend more than 1 minute on your face routine, (B) don't want to completely change what your face structure looks like with makeup to have a consistent skin appearance and/or (C) have cystic/nodal/regular acne that just doesn't go away no matter what people tell you to do,

then I give to you:

My One Single Product 1 Minute Makeup Tutorial For People Who Don't Wear Makeup

In which I bravely show you my face to illustrate

Before and after on one of my "best" skin days:

It's very likely this is common knowledge for a lot of people BUT I wish I had known it when I was in my teens and struggling with a severe skin condition I thought would eventually go away and never did.

[TLDR: It's a concealer stick that matches your skin]

No, having a skin condition doesn't mean you need to cover it. However, that doesn't mean it can't still hurt your self image, confidence, and relationships with people who give you unsolicited comments on it (because you want to throw them out the window).

SO HERE'S WHAT YOU NEED:

A concealer stick, my preference being Covergirl's CG Smoothers. They're non-comodogenic and somehow seem to help with my acne, maybe just because covering it helps me not pick at it.

Now, I am the pastiest, whitest shade of white, so I use two shades: "Fair" for my face, which has more of a pink hue, and "Neutralizer" (wheeze) for my neck because it gets even less sun than my face, and is both paler and less pink.

You might be able to get along just fine with one tone if you don't get acne on your neck and chest or have a more even skin tone, but the most important thing is to get the shade that matches your skin tone as close as possible.

To do this, either look in a mirror in the most natural light you can find and hold up your hands and arms until you find a spot that matches your face the closest, then compare the makeup in the store to this. OR.... Just bring a little mirror with you to the store.

STEPS:

1. Start with a clean face. (Wipe your face with a wet cloth if you haven't washed your face already that day)

Optional step 2. Put on a little moisturizer if your skin dries out and flakes, like mine does. I'm allergic to my cats so I use a medicated cream in place of moisturizer lmao

3. Swipe the concealer directly onto red spots, scabs, or bumps, and rub it in with your finger making a soft halo that blends in with the rest of your skin.

...and that's it.

You don't have to do your whole face. You're only adjusting the parts that stands out so they blend in and leaving the rest alone. Some days I cover a few spots, other days it feels like my whole face.

It can't always completely everything, but it makes everything much less noticeable. The shape of scabs may still be there:

It won't cover freshly bleeding wounds well, either... But it will cover the red skin around it:

Like with any makeup, always remove it before you go to bed!!! With makeup remover or a cleanser! Cheap, unscented makeup wipes work great for me.

So yeah, I'm 30 and only just now started finally seeing improvement in my own skin because I did my own research and asked a doctor to try treatments for hormonal acne instead of all the antibiotic approaches, meaning I'm on spironolactone and thus also a mandatory birth control. But hey! It's something.

Having control over how my face looks helps my confidence and self image, like controlling how my hair or clothes look. I don't feel like I have to wear it any more than I don't have to wear my hair short, I just like it that way.

I also hope that this might be able to help guys too, or anyone else who feels like they're not "allowed" to wear makeup but still struggle with the look of their own skin, since the lack of any other product means you really don't look like you're "wearing makeup".

Anyway, long post over, time to flee 🏃‍♀️

[yourdailyqueer]

Julian Benson

Gender: Male

Sexuality: Gay

DOB: 26 February 1971 

Ethnicity: White - Australian

Occupation: Talent agent, dancer, choreographer, reality star

Note: Has Cystic Fibrosis

[averixus]

I just learned today that in 2019 a new combination drug was released to treat cystic fibrosis and it's so effective that the projected lifespan of people who take it increases from 40ish (in developed countries with previous gold-standard treatments) to 82. a hundred years ago babies born with CF would die before age 5.

when people start taking the drug their lungs clear overnight. in people who respond well, the traditional "sweat test" gives normal results, as if they don't have CF. patients on the drug can safely interact without needing to maintain distance to avoid giving each other resistant lung infections. some who were previously infertile are able to become pregnant. make-a-wish no longer automatically accept applicants with CF because it is no longer automatically a terminal illness.

specialists have said that the only breakthrough this compares to is the development of HIV drugs in the 90s, which turned it from a guaranteed terminal disease to a treatable chronic one.

here's the article I read, for anyone else who might have missed it in the overwhelming torrent of bad news in the last four years

[cookinguptales]

time to shill for Big Salt!!!

Okay, so like I said in my last post, I recently became a ~Vitassium Ambassador~, which is a fancy way of saying that I shilled for this company for free for so long that now they're paying me to do it.

In salt. Much like a deer.

Anyway.

Vitassium is SaltStick's line of products specifically for POTS, EDS, Cystic Fibrosis, Vasovagal Syncope, and other forms of autonomic dysfunction. Essentially speaking, SaltStick has been making electrolyte products for years, and when they realized that a lot of their patients buying them were doing it for medical reasons, they started doing research into creating products specifically for that purpose. And that's how the Vitassium line was born.

Vitassium generally has more salt and less magnesium/calcium/potassium than SaltStick's other electrolyte products, which is good if you need a lot of salt and you don't want to take too high a dose of the rest. Personally, I tend to use a mixture of both of their lines so I can get a little calcium/magnesium boost sometimes but more salt other times. (The amount of potassium is fairly similar in both lines, with a little more in the SaltStick line.)

Either way, it has a lot less sugar than Liquid IV, which I get sick off of due to sugar sensitivities. Like... *googles* 11g of sugar in Liquid IV vs. 2g of sugar in Vitassium, with the same amount of salt in each serving. I have to be pretty careful about my sugar intake, and I suppose I can't speak for everyone, but my stomach handles Vitassium a lot better than most of the other alternatives on the market.

So I've been using it for several years now and I'm really happy with their products! Like -- I may now officially be a shill for Big Salt, but I don't plan on lying or exaggerating anything here. I use their products every day, and sometimes that's the only way I can manage to take a shower.

(My fellow POTS/EDS-sufferers know, the shower struggle is real. lmao)

Anyway, they just sent me one of everything in their Vitassium line. They didn't actually ask me to show it off, but I'm doing it anyway because this is my blog and I cannot be stopped.

From left to right, we have a bottle of their electrolyte capsules (these are sugar-free extended-release salt pills with a bit of potassium added), both flavors of their electrolyte fastchews (chewable electrolyte candies that provide quick relief... think salty sweettarts), a cute bottle full of packets of their electrolyte drink mix, sample packs of the fastchews, and some stickers.

Personally, I mostly use the fastchews. I've tried salt capsules in the past and had some stomach upset, but now that they sent these to me for free, I guess I'll try them out again. The fastchews are basically sour candy full of salt lmao. (They also have about 2g of sugar per serving, just like the drink mix.) They really are effective, though, so I tend to take them as needed throughout the day.

I usually just keep a bottle of them in my purse, but the sample size bags are resealable and fit well in pockets, bags, etc. I'm happy that they sent me some little sample bags because now I can refill them, haha.

I used to just buy the normal SaltStick fastchews, and my go-to flavors in that line are orange, wild berry, and lemon-lime! I haven't tried the mango because I'm allergic, the peach is okay if very sour, the coconut pineapple is a nice piña colada taste but a little sweet for me, and I really hate the watermelon ones!

(Look, I promised to be honest with you. lmao)

The Vitassium fastchews are newer, and they only come in two flavors so far. I always buy the fruit punch because I despise artificial grape flavor. They just gave me a bunch of grape ones, so I tried them. Good for what they are, but I still hate grape.

(Do any of my chronically ill followers want these? lmk)

The drink mix is the newest Vitassium product! I like it quite a bit; the relief is quicker when you drink it vs. eat it, and speaking as someone who generally hates drink mixes, the flavor is pretty good.

I've tried both the fruit punch and the pink lemonade, and I think I prefer the pink lemonade. The flavor suits the salt a little better, imo, and I think weirdly it mixes a little better?

I usually buy the drink mix in the canisters because it's cheaper that way and produces less waste (the canister pictured there is one I already had) but the packets are very handy to keep in your bag. They're easy to tear open and even when you tear off the whole top, the opening is small enough that it pours smoothly into small-necked bottles. I like to put some ice in mine and shake it up.

(Side note: Vitassium has specifically designed all their packaging to be as easy to open and use as possible because they know that so many of their customers have arthritis, EDS, and other connective tissue disorders. Which, as someone with EDS, I truly appreciate.)

Finally, one thing I genuinely like about Vitassium is that they try to make their products as accessible as possible for their customers who use them for medical reasons. They have something called the Vitassium Club, which allows registered users who have a medical condition to get 25% off all their electrolyte products. You don't have to get a doctor's note or anything like that, just send in a quick online form and wait for them to change the status of your account.

That brings the cost of the product down considerably for the people who need it most, which is good because honestly? Electrolyte boosters add up fast when you need to consume that much salt every day.

Uhhhh, I think that's everything for now! If you have any questions, lmk! I'm fairly passionate about this kind of thing because when I was first diagnosed with POTS/EDS like... god, 15 years ago now, they didn't have anything like this. I remember struggling to develop a diet that worked for me with no one to teach me and honestly? That fucking sucked. I don't want anyone to be in that position.

So now here in 2023, I'm happy to pass on any chronic illness-related tips I have. Like drink Vitassium! And add salt while you're cooking, not at the end! The flavor will be less strong that way! And a packet of sugar-free hot cocoa mix will often have as much sodium in it as a bag of chips!

Stay salty, friends. 🧂💜😎

[shurpart]

[wellsbering]

i generally don't post about my personal life on here, but i went to high school with ariel and watching her cystic fibrosis progress so rapidly in recent years has been devastating. she's entering hospice today and is raising money to pay for her care, as her insurance won't cover all of her medical bills and as we all know healthcare in the united states is unbelievably expensive.

please donate if you're able, and please reblog this so it can reach other people.

[iliveinprocrasti-nationn]

being ashkenazi in human genetics courses is so funny. “are there any populations where this genetic disease is more prevalent” hiiiii :3