Sorry, I haven’t done my work, yeah, I’m in spoon jail. Yeah, I was in really bad spoon debt, and I stopped paying my spoon taxes. Yeah, I can’t do anything until I gather enough spoons to pay my spoon bail.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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You know at first I didn't believe it when fiber artists on tumblr would tell me to be wary of the fiber art slippery slope. And yet. I hear the siren call of the spindle. Fellow crafters help me resist. Tie me to the fucking mast. Please.
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pros of keeping records of your old writing: whenever you refer back to it you will experience the unparalleled gratification of being able to see just how much progress you've made. you may even find yourself revisiting ideas you had that you didn't have the skills to fully realise at the time, but have since developed enough to renew your efforts.
cons of keeping records of your old writing: you will find yourself constantly mortified and tormented by the words of the stupidest most ignorant shit idiot currently drawing breath on earth, and that person is you
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something bad happened to you, and you died, and you came back wrong.
not wrong all the way. the little ways. you forget important dates, stopped going out with friends. it's harder to make you smile. you're apathetic towards things you used to love, afraid of places you used to go to cheer up. quieter. flinching. different.
you came back for love. you're still here for love. what pulled you back was a brightness so loud that even death couldn't outshout it. death heard the call and smiled at you and said okay. go home. somebody is waiting for you.
but you came back different. like lot's wife; you've turned into salt. you used to chirp through life in hops and skips; but now you lose skin just standing up. you have to move slower, skimming across this world without-touching-it. most things feel dull - until they're suddenly all-too-much. life, and being alive just rushes up and over you and you get hopelessly crushed.
you try to explain it to them: it is ugly, but this is what you are, now. the huge golden hoop of your halo now a little bronze ring. you are still watering your plants and wearing the same clothes. after all, you worked hard to come home. this life; so odd and off-color, now that you are wrong.
but they waited for you - it's just that they wanted the "you" that happened before this. the "you" that could sing in the show and hug people tight and look at a blade without breaking down to cry. the you with a smile in pictures. god, holyshit, it's like looking at a completely different person, isn't it. that other-you; the one they actually wanted.
you are the consolation prize. you are the body that forgot the ghost. you are the memory of the bad thing, and the death after; like you are wearing that memory as a banner. you are a fragment, an assembly. simulacrum. you don't make eye contact in mirrors, afraid the light will glance off and your true nature will flash back at you.
you hear them talk about it in their hushed, desperate whispers. sometimes they even admit it to your face; harsh and violent, acid thrown at christmas dinner. god, can you just fucking be normal again. you do not remember what normal is. you had to climb so far to get back here; you are far too exhausted. you want to open the glass door of your heart and show all the gears. can you help resolve whatever got messed up?
you try so, so hard. you came back for them. because you believed they would love you, even when you were so horribly broken. because you believed they would be patient. because you believed unconditional meant "without exception." you cannot do things the same way. you just get tired too quickly these days.
you want to put them on a couch and pour them the tea with hands that shake more than they remember. you want to line them up and draw them a map of where you have had to wander. you want to show every bruise in a backsplash; the little helpless ant of your soul carrying all that weight, over and over. you want to say: yes! it is different! but i did it for love!
you want to say: "i'm not the same, but i'm yours and i'm here. can that be enough?"
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The best fics are the ones that recognize that although Luke Skywalker may APPEAR on the outside to be a normal friendly twink who happens to have cool powers, especially when contrasted with such ship partners as Boba or Din or even Han, he is arguably the scariest person alive in the galaxy around the prequel era. AND, crucially, he is also a fundamentally weird guy. This man was homeschooled on a rural farm his entire life and then apprenticed to a swamp gremlin who showed him how to tap into the cosmic power of the universe. He blew up the death star age 19, killing approx 2 million-ish Imperials. He is a vortex of Force power that can communicate with the ghosts of dead Jedi. He’s staring into the distance and mumbling to himself and doing Yoda aphorisms and casually pulling out the “yeah I could crush that guy into a paste with my mind (:” and nobody around him knows what to do with that. I think he is a character who has very little frame of reference for how a Jedi or a person in general is supposed to act and there is some thing about him that is by necessity really fucking weird and a little scary but he’s so nice that it can throw you off the scent a little bit. Thanks for coming to my TED talk
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Not a day goes by where I do not think about the advent of medicine like PrEP and wonder just what the people - especially queer people - who passed from HIV/AIDs during the AIDs crisis would think
And then, I read this survivor's testimony and it just makes me emotional. I think this is the closest answer we have. HIV has changed, and we must always remember the people who didn't see that change before it happened.
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I JUST REALIZED I NEVER POSTED THIS WHOOPSIES-
I drew this after listening to the track that plays at the end of the pacifist route again, the acoustic guitar and whistling makes me emotional
really like the way the colors turned out
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