#PCOSjourney

[d0y0ukn0wthemuff1nman]

September is PCOS Awareness month, and I'd like to point out some of the many symptoms people with PCOS deal with everyday...

moon face

excessive body hair, arm, chests, back, face, legs and buttocks

irregular periods

painful periods

extremely heavy periods

constant bloating

mood swings

struggle to lose weight

struggle to gain weight

food cravings

high cholesterol

insulin resistance

oily skin

acne

insomnia

fatigue

sleep apnea

depression

anxiety

tubular breasts

dark and sensitive underarms

skin tags

belly fat

high testosterone

excessive hair loss

thinning hair

pelvic pain

infertility

ovarian cysts

And so much more, as well as having to struggle to even find a doctor who will take any of our symptoms and pain seriously. The medical industry needs to take better care of women, intersex and trans folks with PCOS and Endometriosis.

Our pains are real and we deserve better.

[guqqie]

i hate pcos :(

[amity-moonrise]

“You don’t need a PCOS diagnosis, you only need it when you’re trying to get pregnant”

- my doctor at my most recent appointment after asking her about PCOS because both me and my mom are concerned

Dunno how to feel about this.

[officialblackwallstreet]

Meet the trailblazer who turned her lifelong struggle with PCOS and hirsutism into Umber By J. Lenay — a brand that’s changing the game for women who face similar challenges. --> https://bit.ly/3B0YJUV

[hpiiker]

starting progestogen medication for pcos finally, but i’m not gonna lie… im scared. my doctor just said that’s its okay. but should i worry about anything??

[vaerjs]

Ciao chatgpt, mi fai un elenco dei paesi che nel 2024 hanno il congedo mestruale? perché io non so se riesco a lavorare in queste condizioni per 10 ore oggi.

[tooedgyforbrunch]

Girlies with PCOS send me your tips and things that have worked for you. I’ve gained so much weight and losing it has been difficult. I feel so uncomfortable in my skin and it’s been very deflating to be honest.

[annagxx]

From the behalf of all the PCOS girly

I want to take a moment to share what it’s like to live with PCOS, because I feel like so many people don’t truly understand. Every day is a struggle, and it feels like I’m fighting a battle that no one else can see. I hear the same advice over and over: “You just need to lose weight.” But what people don’t realize is that I’m already trying my hardest. I’m watching what I eat, exercising regularly, and doing everything I can to feel good about myself. Yet, despite all my efforts, the changes I want just don’t seem to come. PCOS has a way of making everything feel impossible. It’s not just about weight; it’s about the symptoms that come with this condition. The hair thinning is disheartening—I used to love my hair, but now I constantly worry about how it looks. And then there’s the unwanted body and facial hair. I find myself spending so much time trying to hide it, trying to fit an image that society expects of me. It feels suffocating. The pain can be unbearable. There are days when I can hardly get out of bed because of the cramps and fatigue. I feel like I’m dragging myself through life, and even when I’m doing my best, I’m met with judgment instead of compassion. The moon face, the fatigue, it all contributes to a feeling of hopelessness. When I share my struggles, I often get responses that make me feel worse. I’m not looking for sympathy; I’m looking for understanding. When I mention that I don’t feel good in certain clothes, I don’t need someone to remind me to just lose weight. I need support. I need people to listen, to acknowledge what I’m going through, and to just be there for me. Every time someone brings up my weight or suggests a simple solution, it adds to my stress. Stress makes everything worse; it raises my cortisol levels and triggers more symptoms. I’m already feeling overwhelmed; I don’t need more negativity in my life. I just want to feel human. I want to be seen for who I am, not just my weight or my appearance. I’m trying my best to cope with a condition that I didn’t choose. If you can’t offer support, please be kind. Understand that every judgment, every comment adds to my pain. I’m asking for a little empathy. A little kindness can go a long way. It’s not easy living with PCOS, but with understanding and compassion, it can be a bit more bearable. Please, just be there for me. That’s all I need.

-A Message from a Girl with pcos

[ratatoast]

Whew, I’ve really been debating whether I should make this post or not, but I’ve decided that it is my civic duty as a fellow cyster to bring awareness and maybe help others understand or even recognise the symptoms and what it means to have PCOS

I could hit you guys with all the official terms and statistics, but I will let the pictures do the talking on that

I personally just thought that I should share my story and how I got diagnosed with PCOS, and how I’ve been managing since then

So, I got my first period when I was 10. Which is quite early, but it never really bothered me. I always had a very regular menstrual cycle, from the number of days I menstruated, to the length of each phase.

Well, that all stopped when I was almost 19. My periods stopped being regular, I even went 3 whole consecutive months without even ovulating once. I was always irritated, I gained a lot of weight, my skin was horrible and I just wasn’t really on top of my game in general.

But I just kept telling myself that everything would be fine. I floated through 2 years of my life without knowing if I would be getting my period each month. I didn’t understand why I was always so hormonal and I kind of started hating myself.

So this year, in the very beginning of july, now at the big old age of 21, I decided to go to the OBGYN. I was honestly scared shitless, but I was trying to gaslight myself into thinking that it would be all fine. Except it ended up not being all fine. Because I got diagnosed with PCOS.

Now, I don’t know about other OBGYNs, but mine didn’t particularly care to explain stuff to me, just gave me my papers and told me to get a bunch of tests done to find out my root cause. My regular doctor just gave me a pamphlet for dieting with diabetes/IR and basically told me to just figure things out on my own.

I think it’s honestly disgusting how little healthcare professionals seem to care about a condition that affects so many afab people. There isn’t a cure, because nobody cares to find a cure.

Well, they should.

Everyone should.

Living with PCOS isn’t easy. I have mental breakdowns about it on the weekly. I hate having to restrict what I can eat so much.

And I hate that it is worth it. I hate that I actually feel better when I don’t eat dairy, I hate that I actually feel awful physically when I eat carbs. It’s not fair.

And I hate that my sickness affects the most important (to me) aspect of my life: my fertility.

I have never not wanted children. Becoming a mother is the biggest dream I had since I was a kid. It’s my life purpose. And I might not ever get it.

But I can’t let my PCOS rule my life. I am me, first and foremost. Chronic illness or not.

And I really hope that every woman struggling with PCOS can look into the mirror at the end of the day and find beauty in what she sees.

You are beautiful.

You are strong.

You are loved.

[r4efromvenus]

Let me tell you something. Being a woman and having PCOS is like living my own hell on Earth. I can’t lose weight no matter how much diet and exercise I do. I have acne on my hole body, hair as well. I can’t sleep. I’m tired all the time. I’m sad, depressed and anxious all the time. And it doesn’t matter what I do this shit won’t go away. FUCK! I wish I was a normal girl like my friends. Skinny, beautiful skin, beautiful body. A smile like pearls. A healthy and shiny hair. I would dress cute clothes and wouldn’t be disgusted of myself.

[guqqie]

This might be a really awkward question to ask and if it is I am SO SORRY but I just got diagnosed with PCOS yesterday and I’m wondering how you deal with it if that makes sense??? Maybe cope is a better word idk either way any words are GREATLY appreciated tysm :D

NOT AN AWKWARD QUESTION AT ALL!! Let’s talk about this :)

Not sure if you mean deal with as in the diagnosis or the actual symptoms but I will touch on both!

When I got diagnosed the doctor seemed more upset about it than I was. Usually with PCOS (polycystic ovaries syndrome) it means you have a lower fertility rate. Meaning it’s not impossible to carry your own children but it’s very likely there will be complications or even miscarriages. With me, I guess I am lucky I never had that maternal instinct to want to carry my own children, so it wasn’t really a loss for me hearing that. I already decided from a young age that if I was gonna have kids that I would adopt. When I got my diagnosis also I had already accepted it as I suspect I had PCOS for about a year at that point, so it wasn’t a shocker to me and I had already l known.

As for symptoms, sadly I am still figuring out what works to ease mine. Altering my diet has helped, but everyone’s body is different and what helps me may send your symptoms the opposite way. It’s a trial and error thing. I can’t take the hormonal medication to help ease my PCOS, if I could I would. And if you have that as an option take it. I can’t due to there being a history of breast cancer in my family (my mother having lumps removed, my aunt battling it for years and only this year getting the all clear and my mother’s aunt passing from it shortly before I was born). Hormonal treatments can enhance that gene so I would much rather raw dog and find other ways to help my PCOS. One piece of advice I would give is to be patient and kind to yourself. There will be times where it is bad, or you are feeling bad emotionally. But remember this is a thing that also fucks with your hormones, so you will feel intense depression, anxiety etc (maybe you will, i do due to it!). Just give yourself a minute when it gets to that.

I hope this helped, I am not a medical professional so take anything with a grain of salt. I am glad to hear you have a diagnosis and hope that it gets better. You got this! ❤️

[artistic-shapeshifter]

September is PCOS awareness month. I've been hard at work on this comic. I've used my comfort ocs and characters in order to describe my experience with PCOS. I always put a part of myself in my ocs when I make them. In this comic, Pexio is worried he can't help the human he's assigned to as a guardian pinata because he doesn't understand the condition she's been diagnosed with. Ana teaches Pexio and JJ about PCOS and the effects it can have on women mentally, emotionally and physically. (with Sun and Moon's help) If any of my art were to blow up and get a ton of attention, please let it be this comic. I was invalidated, lost and hating myself thanks to my PCOS, other conditions and issues on top of it and...toxicity. I still am. Even with some of the help I'm finally getting after so long. If I can do one thing, I want to touch someone's heart. I want to make them feel seen and valid. I want to give someone else the validation and love that I didn't get. I hope you enjoy the comic :3 I put my heart and soul into it.

[depressedgirlwaitingforhs4]

Pcos pain got me likeee...

[helpimdizzy]

Trying to lose weight for my PCOS while having very few foods I like due to sensory issues is extremely hard. I need advice!

[bluecottonsoda]

I need to know because oh lord

My pain meds aren’t working anymore for my pcos cramps so does anyone have any over the counter recommendations? I’m currently taking 500 mg acetaminophen. Two pills in the morning and two pills at night. And I’m still in absolutely AGONY all day and I can’t find any stronger meds to really get me through the day

[sickvictorianangel]

Hey guys! I don’t really like asking for anything, but I really need your help.

I have pcos and I am pre-diabetic and I had to change my medication to ozempic. It’s almost 800 BRL and I really can’t afford it now. So, if you guys can reblog this post, it would mean the world to me 🩷

I have all details and better explanation on my ko-fi page.