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#chronicillnessadvocate
jendotcohen · 1 year
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I really needed this today 💜 #Repost @thepotsiepanda ・・・ 💫Shout out to those who.. 🌈Have invisible symptoms 🌈Are battling a flare up right now 🌈Suffer from pain without diagnosis 🌈Are struggling with mental health 🌈Haven't found a treatment that works ❤You and your symptoms are valid. ❤You deserve to be heard. ❤I hope you find some relief soon. 📸Thankyou to the incredible @chronicverse for this amazing post. #ChronicShoutOut #ChronicIllness #HiddenIllnesses  #ChronicIllnessWarriors #InvisibleIllnessClub #ChronicIllnessAdvocate #InvisibleIllnessAwareness #DisabilityAdvocate #DisabilityAwareness #ChronicPain #ThisIsChronicIllness #ChronicPainWarrior #ChronicPainFlare #PotsWarrior #FibroFighter #ChronicPainFighter #FlareUpsSuck #Spoonie #SpoonieWarrior #LowOnSpoons (Image description: Set on a cream coloured background. The headline reads, SHOUT OUT TO THOSE WHO.. There are 5 images of different coloured rainbows that say different things. These are as follows, ●Dark pink, purple and light pink rainbow- have invisible symptoms. ●Pale blue, baby blue and grey rainbow- are battling a flare up right now. ●Pale orange, brown and dark orange- suffer from pain without diagnosis. ●Pale blue, lime green, darker green rainbow- a suffering with mental health. ●Purple, pink and light purple rainbow- haven't found a treatment that works yet. End of description.) https://www.instagram.com/p/CpApAYCu1Ut/?igshid=NGJjMDIxMWI=
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aliceeliza · 1 year
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God loves you more in a moment than anyone else can in a lifetime
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#godlovesyou #love #moment #lifetime #chronicillnessadvocate #chronicillnessandme #chronicillnesswarrior #mentalhealthishealth #mentalhealthawareness #mentalhealthisimportant #uksmallbusinessess #uksmallbusiness #wellnessmama #wellnessblog #wellnesslife #wellnesstips #ukmums #ukmum #ukmummyblogger #ukmumsquad
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wiseoldowl72 · 4 years
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Absolute truth. I'm at the end of my Ajovy, when it wears off and I'm ready for my next dose. Thankfully just a few days away on the 1st. The occipital nerve blocks worked, but I need the Ajovy too. It's still not a cure, but it's the closest we've come to something working yet, along with what I've come to call the staples of migraine medicine. . . But he's right, don't judge. Everything from if we can't work, to if we can't even wash our hair/shower often. In my case it physically hurts to have water touching my skull, shoulders, neck. Migraines aren't anything we can control. They are a disease we didn't ask for. And stress our caretakers definitely don't need. . . #lifeonosage #family #chronicmigraines #keepingitreal #migraines #chronicillness #migraineadvocate #chronicillnessawareness #migraineawareness #chronicillnessadvocate @the_mindful_migraineur @thedailymigraine @thedoctornextdoor . #Repost @how.u.feeling • • • • • Please do not judge the chronically ill. Follow us @how.u.feeling for more post about living with a chronic or mental illness. Our DMs are always open. Come introduce yourself to us and if you ever need to chat or vent we are always avail. You are not alone in your fight ❤️ (at Independence, Missouri) https://www.instagram.com/p/B7zqAJDAKeQ/?igshid=3iylf04jk32y
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kirasunshine · 6 years
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#everythinghurtsandimdying But really, Everything hurts and I’m dying. #lupusawareness #lupus #lupussle #sjogrens #fibromyalgia #fibro #chronicillness #chronicpain #chronicillnessadvocate https://www.instagram.com/p/BncCc6AACRr/?utm_source=ig_tumblr_share&igshid=wdteo3f9rq2f
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danika-alice · 6 years
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I love animals and I love learning about them. Yesterday I went to see my mum and my brother and we went for a walk in one of the museum parks where I got to hold this absolute beauty. I would tell you all about her, if I could remember anything the man said but all I remember is that she is an Asian brown owl. Animals bring me so much joy 🧡 What is something that brings you happiness? ✨ #owls #owlsofinstagram #owlcharity #conservation #animals #animaltherapy #mentalhealthadvocate #chronicillnessadvocate #spoonie #happiness #joy #mentalhealthawareness #mentalhealthwarrior #bpd #bpdblogger (at York)
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theridiculousdivine · 7 years
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Making #gold . . . . . . . . . . . . . #create #fibromyalgia #ulcerativecolitis #wellnesswarrior #spooniewarrior #spokesperson #imaworkinprogress #chronicillness #chronicfatigue #anxiety #depression #advocate #activist #art #artist #passionproject #actor #voiceoverartist #creative #spoonie #advocacy #chronicillnessadvocate #pain #rupikaur #wordstohealthesoul #world
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aslsuzyq · 5 years
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Description(for low vision): mid-age woman with wavy reddish/brown hair & burgundy/maroon lipstick. Wearing a maroon/burgundy top with light blue/maroon floral sweater over top. Doing #americansignlanguage #asl to #trolls movie song #truecolors CC: “don’t be afraid to let them show, true colors, true colors are beautiful “.... #signlanguage #deafawareness #deaftalent #hardofhearing #hearingaids former #aslinterpreter #chronicillness #deafadvocate #chronicillnessadvocate https://www.instagram.com/p/BvmMqCAHB5X/?utm_source=ig_tumblr_share&igshid=3sfyqxfsp1rb
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katie-sierra · 6 years
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Thinking about all the turkey I’m going to eat this week 🍗 Caption Credit: @spencerbarrett13 ________________________________________ Thanksgiving #chronicillnessawareness #chronicillnesswarrior #chronicpain #chronicillness #sjogrenssyndrome #rheumatoidarthritis #makeup #redlips #redlipstick #blueeyes #darkhair #fun #selfie #eyebrows #alltheturkey #sweaterweather #fall #boots #sweaters #chronicillnessadvocate (at Lexington, Kentucky) https://www.instagram.com/p/BqXrvjGH_DB/?utm_source=ig_tumblr_share&igshid=wkfv1jrs4kn4
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achronicvoice · 4 years
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[New Post] Thank you to all who contributed your perspectives! Click on link in bio to read: 'Best & Worst Part About Being Stuck at Home (From 32 People with Chronic Illness & Disability)'⠀ .⠀ "Whether you are an introvert, extrovert, or whatever ‘vert’ you view yourself as, this change in our normal routines creates a disturbance in our own lake of life, sending ripples across that impact everything else. There is a difference between peaceful solitude, and a reduction of freedom and human connection."⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #achronicvoice #spoonie #spoonies #spooniecommunity #invisibleillness #chronicillness #chroniclife #chronicpain #chronicallyill #disability #selfcare #selfawareness #anxietysupport #depressionsupport #stuckathome #homelife #perspetives #positive #negative #healthandwellness #selfpreservation #chronicillnessadvocate #itsokay #pandemic #lockdown #lockdownextension #society #humanity #human #people https://www.instagram.com/p/CAuYrQrDXJj/?igshid=dsgpm7m0uew5
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inmyskin13 · 4 years
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Today is one of those days guys. I’m exhausted and everything hurts. I haven’t gotten much sleep lately due to painsomnia and I can feel myself crashing. It’s time for some self care! Which for me means resting and rehydrating! I’m glad that I’m learning to listen to my body. You’d think by age 38 I would have learned that already but for a long time I didn’t listen until I would physically crash. I guess that’s just part of being in denial with chronic illness. I hope everyone has a great Sunday whether your resting or not. . . . If you have time today, and you haven’t read my first blog entry post, please do! The link is in my bio! . . .Follow me @khronikallykarly . . . . #khronikallykarly #relaxday #chronicillnessawareness #chronicpainwarrior #dysautonomia #pots #potssyndrome #potsawareness #ankylosingspondylitis #asawareness #disabledandcute #selfcare #selfcareday #selfcareisntselfish #teamnosleep #chronicfatigue #chronicfatiguesyndrome #cfs #cfssucks #meawareness #imnotlazyimsick #disabilityadvocate #chronicillnessadvocate #chronicillnessblog #ptsdawareness #ptsd #ptsdsurvivor #traumasurvivor #rechargeyoursoul (at Houston, Texas) https://www.instagram.com/p/B7PLceRAezg/?igshid=ks2vgnz8otje
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lulew1988 · 7 years
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In sickness and in health - Can a relationship withstand a chronic illness? http://crwd.fr/2wQDvGP #chronicillnesssupport #chronicillnessproblems #chronicillnessblogger #chronicillnessfighter #chronicillnessawareness #chronicillnesses #chronicillness #chronicillnesswarrior #chronicillnesssucks #chronicillnesslife #chronicillnesscat #chronicillnessquotes #chronicillness420 #chronicillnesss #chronicillnesshumor #chronicillnesscommunity #chronicillnesssurvivor #chronicillnessprincess #chronicillnesssiblings #chronicillnessmemes #chronicillnessyogi #chronicillnessprobs #chronicillnessmom #chronicillnessadvocate #chronicillnessfamily #chronicillnesswarriors #chronicillnesschallenge #chronicillnessfitness #chronicillness_420 #chronicillnesswontstopme #chronicillnessyoga #chronicillnessdiet #chronicillnessvlogger #chronicillnessfighters #chronicillnessmeme #chronicillnessandlife #chronicillnesswithstyle #chronicillnesssuccks #chronicillnessstruggles #chronicillnessasskicker #chronicillnessessuck #chronicillnesschronicles #chronicillnessrealness #chronicillnessdiaries #chronicillnessrecovery #chronicillnessisabitch #chronicillnessblog #chronicillnessproplems #chronicillnessbloggers
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kirasunshine · 6 years
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This week has been filled with doctors. One thing my primary and my therapist says okay to is me smoking weed. It has helped me so much that I can stay out of the hospital. When I’m having a mental break down if I smoke a little with anxiety pills I can get myself under control. Tomorrow I talk with the lupus doctor to see where to go from here pain wise and I’m anxious as fuck. So send me some good vibes and weed leaves.
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kirasunshine · 6 years
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Depression with body image.
Before I got sick I’d work out two hours about four times a week. I loved sweating I loved the pressure on my muscles. As I began getting sick I was stuck in bed for six weeks straight. As the years have gone my body has been getting weaker and weaker. I try to keep up by moving and cleaning, vacuuming, dishes, laundry. But what you don’t know is, after I vacuum I have to sit for 15 minutes not to pass out. I can PULL laundry down the stairs, not carry it. I can’t carry the laundry up at all. I have to sit to fold it put things in piles so it’s simple to move my husbands clothes from mine. Doing dishes is something small but it’s a toll. I get very hot from the water, my back starts hurting and I have to stretch my back multiple times and my hands start to cramp from moving them so much.
That being said, walking has become hard. I use to be able to do bleachers at 18. I’m 26 and I’m lucky if I can walk around the block without pain. I get so happy I do an extra lap and realize I pushed myself too hard and end in a flare the next day not able to move at all.
I swear A LOT more since I’ve gotten sick. The funny thing is it’s not in my armpits m. It’s in my staple, under my boobs, and the back of my neck. I’ve had to put a window air conditioning system in our bedroom window next to my side of the bed because I get so hot.
Far distances come with how far and do I choose a wheelchair or a walker. If I’m running into a store quickly I can go without my walker. If I go to a mall, I need my walker so I can sit and stretch out my legs. If I’m going to something with a lot of walking (Disney World) I have no choose but to use my wheelchair. I can get out and hold on to the wheelchair to stretch from sitting but it’s painful.
I can’t get my heart rate up without passing out. My muscles can’t take a normal workout. I want a personal trainer so badly but I can’t afford one. Someone who can tell me wen to stop because I don’t know when to.
Last night I stood in the mirror and cried. How did I go from 130 to 200 in seven years? I have stretch marks every where, my thighs are thick, I have too big of triceps, and my love handles are bigger than my ass.
I did start dieting last week. I hoping this can help with the pain. This body makes me so sad. I don’t know if I’m more upset about the inside of my body not working or the outside being so ugly.
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kirasunshine · 6 years
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We need a cure.
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theridiculousdivine · 7 years
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Inner. . . . . . . . . . . . . #mood #anxiety #depression #mentalhealth #innerscream #fearofjudgment #innervoices #somanyeyes #sketch #emotions #art #artist #artistsofinstagram #artoftheday #alleyesonyou #pencilart #deep #spoonie #advocacy #chronicillness #fibromyalgia #ulcerativecolitis #wellnesswarrior #spooniewarrior #spokesperson #imaworkinprogress #cantholditin #chronicillnessadvocate
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kirasunshine · 6 years
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As wedding planning continues (six months out!) I realize over and over and over again how lucky I found someone who supports me, always holds me up and loves me and doesn’t see me as sick but advocates for me too. All the heartbreaks were worth it to be with you. Love you sugar. #chronicpain #chronicillness #chronicillnessadvocate #gettingranked https://www.instagram.com/p/Bo9TTQYAdB9/?utm_source=ig_tumblr_share&igshid=14bm5rdx3y0ff
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