Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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one thing im noticing abt ‘i saw the tv glow’ at the very beginning is how beautiful it is that maddy loves tara so much. that she says tara is super hot and badass and how she cries when tara beats the shit out of the monster of the week. how she loves this version of herself so much and she does not yet understand that it is her.
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off of my last post: i feel like corporate horror has such a rich seam of possibilities that are just begging to be mined. the helpless, nightmarish feeling of watching your life get chewed up by the implacable machinery of faceless corporations in which you are nothing but an easily-replaceable cog and knowing the whole time that you chose to be here. that you can, theoretically, leave any time you want. mindless, pointless busywork that you're expected to take pride in even when it has no measurable impact. feeling like you're running on a treadmill - always busy, never achieving anything. upper managers who only communicate with you by email. CEOs who never communicate with you at all, and may not actually exist for all you know. you can leave any time you want. but you can't, can you? not really. you still have to pay the bills.
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Thinking about the fact that Mabel and Dipper didn't know they had two great uncles.
Yeah they are 12 and at 12 I had a shotty understanding of my family tree- But really? Nobody brought up their great uncle? Stanley? Especially since they'll be staying with his twin brother, Stanford?
Shermie never went to Stan's fake funeral, which to me means the twos relationship was strained on some level. If Shermie is older that means his view of Stan was poisoned in some way, that even as kids they weren't close. If the Shermie is younger then he never even got to meet Stan and all he knew about him was how he failed his family. Hell, people probably barely mentioned Stanley TO Shermie.
The fact that Stan had become a black stain upon the Pines family name makes me so vividly upset. Stanley faked his death and the family just- seemingly decided to strike him from the record. To pretend he didn't existed to spare themselves the sadness and shame.
Stanford and Shermie Pines. The only children worth mentioning of Filbrick and Caryn Pines.
It was never Stanford that was lost to the world. It was Stanley, ever since he had to leave New Jersy- it was always him that had to be struck from the record. Change his name, change his state, change his affiliations, destroy the remains of ghost that was Stanley Pines. Kill him so the family doesn't bring him up, doesn't ask questions, stops asking "Stanford" about his twin.
I just keep thinking about the fact that since the day he made one single mistake all the way up until Ford walks out of that machine- Stanley Pines was killed and did not exist. And Stan himself had no one to blame, he had to play the part in his own demise- He is the only one who ever knew Stanley was alive and has been for decades.
He lives in the multitudes of every personality he's ever taken, all in the hope that he himself can stop being Stanley Pines.
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