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#is the doctor the problem or is there just no diagnosis
itsays · 1 year
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chubbychiquita · 2 years
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potentially helpful spreadsheet of fat friendly healthcare providers listed by city ☺️👍
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nexus-nebulae · 3 months
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me as a kid: i have all these problems
every adult around me: you're not old enough to know what's wrong with you, you're fine
me as an adult: i still have all these problems
my doctors after i finally got the opportunity to choose them myself: oh my fucking god why have you never gotten help for all these problems. you should have seen me 10 years ago
#problems i have finally gotten help for that i was told i was not old enough to know about:#AMPS (was told it was anxiety and then when i kept coming back they said it was fibro Quite Literally just to get me to shut up)#(like the doc i just saw literally said 'they diagnose fibromyalgia here when they dont know what the problem is but dont feel like testing)#multiple food allergies (was also told the stomach pain and vomiting was anxiety)#seborrheic dermatitis (i was told 'youre just stressed thats why you have a rash')#(which- if im so stressed my skin is literally dying MAYBE I STILL NEED HELP?????????)#autism and adhd (my father knew! but refused to get me assessed bc if i dont have a diagnosis theres no problem right :)#anxiety disorder (oh so when I'm in pain i DO have anxiety but when i say i have anxiety I'm overreacting okay)#dyscalculia and possibly dyslexia ('you just need to try harder' I've asked for a tutor five times)#some of my doctors don't actually believe me about some of these problems BECAUSE i have no records from when i was a kid#they're like 'it just popped up at 18? seems suspicious......' like I WASN'T ALLOWED TO GO TO THE DOCTOR'S UNTIL THEN#there's definitely more but I'm still mad abt it#i might not be in a wheelchair Almost All The Time if i had gotten help BEFORE i lost half the feeling in my legs#i KNEW the fibro was a BS diagnosis#i tried to get assessed for autism at 16 and was told i have schizotypal personality disorder instead with literally zero testing#like my psych just refused to allow me to get tested for autism she was like 'no you have spd i Just Know'#same psych that said there was zero way i had anything like DID because my symptoms didn't present Exactly like the Only other#patient at the clinic with DID. i want to note that that was a 14 year old boy still being actively abused#and i was a 20 year old who was in a safe environment and had distanced myself from my abusers and stressors
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realbeefman · 1 year
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for as much as house says “everybody lies” he does. believe patients about their symptoms far more frequently than any irl doctor would
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paranormeow7 · 5 months
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steaming hot take but there are just some things self diagnosed people just can’t talk over professionally diagnosed people about
#actual sugar post#don’t kill me for this I’m autistic#and I’m not completely anti self dx either#the medical industry is awful and has the power to take away the benefits my diagnosis allowed me to access at any time#and I’m not going to pretend that professional diagnosis is always the most reliable option because there is a lot of ingrained bias#but at a certain point#if you are self diagnosed you have to understand that you and I are different#and you have to be willing to listen to us sometimes#and hell. sometimes you’ll even have to listen to a doctor on the subject#sometimes their input can be valuable when they’re not calling you a fat hysterical bitch and asking you to cough up thousands of dollars#I’m not denying your symptoms and experiences as a self diagnosed person. i don’t know you and im not living your life#but maybe a second opinion from someone who’s been diagnosed is a bit more valuable than you think it is#we’ve had a lot of experiences that you haven’t#besides. You don’t need a label to acknowledge something you’re going through or validate your problems#for example it doesn’t NEED to always be autism if you show a few traits. you can just tell people you show those traits#do whatever makes life easier for you. you don’t need all these labels to have these issues#I’m going to get the worst anons for this I just know it#idk#sugars opinions#self diagnosis#professional diagnosis#autism stuff#autism#actually autistic#neurodivergent#adhd#audhd#actually audhd
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Just spent over an hour trying to explain to my mom that I actually have ADHD and not a case of lacking commitment which is why multiple doctors have prescribed me methylphenidate since I was a kid
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vinilsoup · 8 months
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I'm so mad at my neighbors, like this lady is a neuropsyhologist, and I mentioned getting treatment by the public healthcare (and private) and being denied multiple times bc I either was "too normal" or had to go to a psych ward according to them. Her husband asked what my diagnosis was, I didn't want to say bc I had just met them, but got embarassed said the truth, I believe I have autism and have been diagnosed multiple times with bpd.
She procceded to undiagnose me, talking like I had nothing wrong with me, specially not autism since all adults she worked with who thought they had autism didn't, bc autistic people "don't have the same perception of themselves like us so a true autistic doesn't notice it" which is outdated bullshit. I ain't even need to go to doctors anymore for them to get one look at me and tell me I'm normal I just want attention.
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orcelito · 9 days
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Whines bc im a few hours into my sleep and I'm not so nauseous now but my limbs...! My limbs, they ache...!!! And it's just all of them, the bone aches in all of them, so I feel like Peter Griffin Death Pose in this bed tonight
#speculation nation#sometimes the chronic pain decides Fuck You especially#i always have some measure of pain but sometimes it decides to flare in Multiple limbs. and it's never fun.#just laying here with pain radiating out of my limbs in a slow steady pulse#*why* dont i have a fibromyalgia disgnosis yet...? bc my fuckin liver readings were off & im waiting for a february GI appointment...?#would my Fucking liver make my limbs all hurt for no goddamn reason in their Bones?????#like i know my doctor is just trying to do her due diligence and if i have a liver problem that can explain the fatigue.#but idk man it's way more than just fatigue. and it's the fact that i have to wait until *february* before the GI appointment#that really gets to me.#if it was sooner id care less. like yeah lets cover our bases yeah. but i have to wait five Fucking months before i even have the Chance#to get a fibromyalgia disgnosis (and hopefully Treatment after)#and in the meantime my limbs will continue to Ache and Ache and Ache...#ive. lived with it up to this point. i can continue to live with it. as yes. this is just the rest of my life.#but god damn itd fucking be nice if i could get some Help for it ykno?#they cant rly change the chronic pain aside from pain relievers. which i dont wanna be too dependent on anyways#but just. idfk theres gotta be Something. some kind of treatment!!! massages?!? i dont know!!!!#i just know my limbs hurt and i have to wait At Least 5 months for a diagnosis (& even then it's not assured)#and it's just. so frustrating. i really hate our healthcare industry.#negative/
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thatuselesshuman · 1 month
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Me when someone says some dumb shit about my medical issues
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opens-up-4-nobody · 1 year
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autisticlee · 5 months
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having some sort of chronic pain and tiredness issue and joint problems and whatnot but not knowing exactly what the problem is is really good at leading you feeling like you're faking it or making a big deal out of nothing or making it up. especially if there's a good day where it's not as bad and you can walk straight without limping for the first time in a year. but then you can wake up the next day and can barely walk and wonder why you can't just walk normal. it's hard to not guilt trip yourself into dealing with pain by trying to ignore it and force yourself to walk "normal" all the time
#chronic pain#chronic exhaustion#idk what else to tag#another day of why was lee walking normal and barely pain at work yesterday but then today so much pain and exhausted#wish i knew what was exactly the problem. was diagnosed with “generalized hypermobility” but doesnt do much#not a real diagnosis. basically just a thing to tell me “theres nothing wrong. exercise more” but how???? i keep trying but hurt myself#my job is physical labor and therefore exercise. it hurts. is exhausting. no energy to do more. walking is exhausting#have to focus so much energy on not popping hips out of place and twisting knees and ankles and falling. never hurts less#still think about how failed the heds test by 1 point but had several people with heds or who have close friends/family with it who told me#they think i have it and should go het diagnosed or just ask me if i have it because they recognize the symptoms#and every time i tell them the doctor i saw about my joint issues and stuff denied it they get super confused and tell me to try#another doctor. unfortunately i have to go through my designated health system and they dont have multiple doctors of each specialty#and i in general have no clue how to navigate health stuff or how to advocate for myself and have no help or support system at all so 🤷#anyway. it makes me wonder if i *do* have that or if my floppy bendy joints are just similarly bad and exercise will cure me#and im just bad at it because i have no clue what is right and wrong movement unless someone watches me and corrects me the whole time#and no i wont learn or get better. im so disconnected from this body that i will never learn what feels right and wrong.#still cant even tell when im hungry until i almost pass out!!!!!!! of thirsty!! or even have to pee until its emergency level piss!!!!!!#so no way to tell when hypermobiling joints when exercising or when form is slipping and not correct anymore.#been trying things to get better at that but still hasnt improved at all#what was i talking about......right. dont think ill ever get heds diagnosis since cant pass the test for that. so cant get much support/help#am on my own with youtube tutorials and hoping i dont keep hurting myself wishing exercise will cure me and “good days” become permanent#also why are video tutorials SO HARD TO FOLLOW AND LEARN FROM. im sk bad at it yet everyone tells me its the best and only way to learn but#its SO HARD FOR ME 😭😭😭😭😭 MAKES ME SO FRUSTRATED AND UPSET
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gloriousmonsters · 2 years
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it's fascinating to see people running the exact same scripts as trensmeds/exclusionists but for mental illness.
I just crossed paths with a post that was a screenshot of a tiktok where someone was clearly frustrated because 'I thought I might have autism but when I tried to bring it up with my therapist she said she literally wouldn't discuss it with me because 'everyone thinks they have it because of tiktok', and the original poster/about 90% of the notes were... celebrating this. Either variations on 'lol based psych' and 'she was right' or people explicitly saying shit like:
'Well, I was trans diagnosed with autism/adhd before it was cool and trendy! I can't believe that the diagnostic criteria is getting made stricter, it's the fault of those transtrenders tiktok kids who pretend to have mental illnesses. I get to gatekeep because I really suffered!'
(Shoutout to the confusing outlier who sagely was like 'and usually they just have bpd' in the tags. just???? just, my fair sir? also source???)
And like. It makes sense and is also so incredibly frustrating for the same reasons as transmed/exclus stuff. When you're a hurt person stuck interacting with a system that makes a lot of decisions about your personal autonomy/function, it messes with your head. It taps into that particular reaction to trauma that there was that one great post about--the mindset you get in when you see people get help when you didn't, and get furious and often default to 'it shouldn't be so easy' or 'why should they get help when I didn't?' And if you're struggling with a system that is, lbr, way more about luck in what specific people you got to talk to than any kind of well-built system, which is historically very flawed and still very flawed... well, a lot of people don't want to admit the system is a crapshoot and the people in it can be wrong so, so often, because then what about my diagnosis? my confirmation that I am what I am? fuck kids with stargenders and self-dxed teenagers with autism, I suffered for this, you can't take it away from me.
Which they aren't. If diagonistic criteria for anything is being made stricter, that's not on tiktok teens, it's on the people who write the criteria and decided that this was how they were going to handle an uptick in people thinking they are/might be autistic. If people are passing anti-trans legislation, that's because they're transphobes, not because of demigirls and non-op trans people. And are all of these kids queer, or mentally ill/ND, in the way they think they are? Probably not. Being a teenager is fucking confusing and often traumatic, and it's also a time when most of them are investigating and trying to build their identities. But I'm willing to bet that almost all are genuinely struggling with something/deviate from 'the norm'; if you want to stop kids from 'believing they're something wrongly' maybe focus your energy on putting the message out that it's ok to be wrong about things, that self-discovery is a process-- in this specifically, how to interact with mental health diagnoses and manage your symptoms, no matter where they stem from, in helpful ways, etc etc.
But please do the bare minimum and don't let personal pain turn you into a bitter, smug asshole who celebrates when they see kids experiencing gatekeeping that could really, really fuck them over, OK? Like physical disability and queer identity, the few 'fakers' you'll 'catch' by being cruel and suspicious will in no way be worth the people dead because only people who REALLY need help should be able to get it.
#long post#sorry lol I just#I can get the emotional/mental place this attitude comes from but as always i feel like i'm the padme meme#'and then we realize those feelings are unreasonable and don't act on them right?'#'....'#'and then we realize those feelings are unreasonable.... and don't act on them#right???'#also just *pulls out another smaller soapbox for a moment*#'kids these days think all their problems and quirks are due to mental illness!'#kids Back In The Day died. or struggled all their lives. because the understanding of mental illness was even more fucked than it is now#do NOT be a fucking 'EVERYONE THINKS THEY HAVE DEPRESSION YOU'RE JUST A WEAK BABY' conservative guys#'oooooh everyone thinks they have adhd and autism'#everyone started 'thinking' they were trans or queer or whatever after learning that it was a possibility#and learning how to recognize whether that was the case with themselves.... fucking crazy right?#I LITERALLY SAW SOMEONE SAYING#'oh they're seeing how symptoms of autism are socially contagious due to tiktok'#do not make this another ROGD! do not make this another ROGD!#mental illness#pro self diagnosis#AND FINALLY. 'lol based psych' PSYCHIATRISTS ARE EXACTLY AS RELIABLE AS ANY OTHER KIND OF DOCTOR.#SLIGHTLY.#THEY CAN BE AND ARE WRONG A LOT#i say this as someone who's benefited a lot from therapy (although i've had to educate my psych on some things)#and who is on medication. doctors and psychs can be lifesaving but they can also#really truly fuck you over because they are human and sometimes idiots or jerks and we should not be trusting them solely#with our mental and physical well-being#ok ok my arms are hurting i shouldn't have typed this much
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pinkieroy · 1 year
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Felt validated when the doctor started to ask about autism symptoms, before I even mentioned it
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calling nhs 111 is great because in the first two minutes, youre told that you can do this online three times.
like buddy, i get it, ive tried 111 online and they tell me to call 999 immediately.
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unityrain24 · 9 months
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why... why am i just not good enough anymore? For the past few years, none of my art has won. For the past few years, I haven't had any friends. For the past few years, no one will actually give me an actual official diagnosis on a mental/physical problems. Is every facet of me not good enough? Am i just not good enough?
#unityrain.txt#i just... i don't understand#all the art i've submitted to things that didn't win... they weren't even bad things! i was really proud of them!#but i didnt win the art festival. i didn't win the nengajō competition (either level). i didn't even get in the top three of the jotun loki#design contest、which only had like 14 submissions.#given my streak i highly doubt i'll win the sonatina composition contest i entered either#with friends、i have none.#i used to have someone i was really really close with、but they left. And even though i've tried desperatly to make other friends、#no one seems interested#i do have some friendly acquaintances#but they don't seem to want anything more than that#i don't even fit in with my own family either#i'm very very lonely#with diagnosis、#my therapist (when i had one) said i definitely had anxiety depression and ocd、but that she couldn't actually diagnose me#also the general doctor i went to seemed to accept it and even offered medication that they don't usually give ppl my age#but if you actually look in my medical record it says nothing#and then i've had awful menstrual problems、and thought i probably had endometriosis、but when i went to the gynocologist#they said it wasn't that、but they didn't really seem to want to give me an actual specific diagnosis of whatever else it was either#they just said it was bad dysmenorrhea (medical term for cramps)、gave me a medication prescription、and then didn't put any diagnosis on my#record.#i just... why#vent#tw vent#vent in tags
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morganaspendragonss · 10 months
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being a woman literally does not have to mean accepting suffering as a part of life but we’re made to believe it anyway because doctors all but tell us being female makes us inherently less worthy of treatment
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