probably time for this story i guess but when i was a kid there was a summer that my brother was really into making smoothies and milkshakes. part of this was that we didn't have AC and couldn't afford to run fans all day so it was kind of important to get good at making Cool Down Concoctions.
we also had a patch of mint, and he had two impressionable little sisters who had the attitude of "fuck it, might as well."
at one point, for fun, this 16 year old boy with a dream in his eye and scientific fervor in heart just wanted to see how far one could push the idea of "vanilla mint smoothie". how much vanilla extract and how much mint can go into a blender before it truly is inedible.
the answer is 3 cups of vanilla extract, 1/2 cup milk alternative, and about 50 sprigs (not leaves, whole spring) of mint. add ice and the courage of a child. idk, it was summer and we were bored.
the word i would use to describe the feeling of drinking it would maybe be "violent" or perhaps, like. "triangular." my nose felt pristine. inhaling following the first sip was like trying to sculpt a new face. i was ensconced in a mesh of horror. it was something beyond taste. for years after, i assumed those commercials that said "this is how it feels to chew five gum" were referencing the exact experience of this singular viscous smoothie.
what's worse is that we knew our mother would hate that we wasted so much vanilla extract. so we had to make it worth it. we had to actually finish the drink. it wasn't "wasting" it if we actually drank it, right? we huddled around outside in the blistering sun, gagging and passing around a single green potion, shivering with disgust. each sip was transcendent, but in a sort of non-euclidean way. i think this is where i lost my binary gender. it eroded certain parts of me in an acidic gut ecology collapse.
here's the thing about love and trust: the next day my brother made a different shake, and i drank it without complaint. it's been like 15 years. he's now a genuinely skilled cook. sometimes one of the three of us will fuck up in the kitchen or find something horrible or make a terrible smoothie mistake and then we pass it to each other, single potion bottle, and we say try it it's delicious. it always smells disgusting. and then, cerimonious, we drink it together. because that's what family does.
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I saw this on FB today and I wanna try and express something about it. Like, you know the curbcutter effect? Where when curbcuts are put in it benefits everyone (bicyclists, people with baby strollers etc) and not just disabled people?
There is also whatever the opposite of the curbcutter effect is. And this is that.
This isn't just anti-adhd/autism propaganda... this is anti-child propaganda.
Kids have developmentally appropriate ways that they need to move their bodies and express themselves and sitting perfectly still staring straight ahead is not natural or good for ANY CHILD.
Don't get me wrong, I was punished unduly as a kid for being neurodivergent (and other types of kid will ALSO be punished unduly for it... Black kids come to mind) and thus UNABLE to perform this -- but even the kids who ARE able to perform this type of behavior are not SERVED WELL by it. They don't benefit from it.
This is bad for everyone.
The idea that bc some kids may be capable of complying with unfair expectations, those expectations don't hurt them... is a dangerous idea. Compliance isn't thriving. Expectation of compliance isn't fair treatment.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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priest guy sending mixed signals, what is he up to?🤨🕶🤏
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[Image Description: A warm-toned comic featuring Trigun98 characters. It opens with Vash shouting "YOWCH!!" as a half-eaten donut flies through the air, a bruise on Vash's tongue. Meryl, editing papers, is annoyed as he complains: "Ow! Ow! I bi'e my 'ongue..." "What's the rush?" Meryl asks, "They're all yours." Vash, still hurt, tries to explain: "They're jus' sooo good!" Meryl argues back, "Well, savour it then!" Wolfwood has been watching the scene unfold as Meryl continues, "Satisfying your sweet tooth doesn't come cheap, unfortunately." Wolfwood clicks his lighter open and closed, again and again. Without a word, he leans closer, his thumb on Vash's lips. "Wolfwood...?" Vash trails off. Then, Wolfwood opens Vash's mouth and knicks his thumb on one of Vash's canines in one fell swoop. "Wah? Huh??" Vash says as Wolfwood pulls his bleeding thumb away. He licks the blood off the wound then snickers at Vash. Meryl looks disgusted, Vash has lit up in an embarrassed explosion, and Milly remarks, curious: "Those are surprisingly sharp, Mr. Vash!" Question marks float around Vash, and his donuts lay discarded on the table. Each panel is signed by raepliica. End ID]
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