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#disabled issues
crippledpunks · 1 year
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i hate that bad backs aren't viewed as a disability. i hate that "Every back is a bad back" mentality. i hate minimizing back pain by encouraging people to "just take a tylenol". i hate that people who throw out their backs regularly are told to "just sleep it off" or even worse "just exercise, it loosens things up." i hate when people say "my mom has a bad back and she just powers through it."
let people with bad backs be disabled and talk about how much pain we are in, and how much of a disability living with a weak, broken, eroded, degenerative, or paralyzed spine is. let us talk about the horrors and dangers of spinal surgeries. listen to us when we talk about the limited options for pain management and how it is an absolute nightmare to get treated for back pain and receive medication that actually works.
having a bad back is a disability. being in back pain all the time is not trivial. having back pain so bad you can't sit or stand is serious. feeling shooting pain into your legs is a big deal. feeling like no matter how much you stretch or take medicine your back never seems to feel better is a genuine medical issue. listen to disabled people and stop dismissing our pain.
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butchfalin · 5 months
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the funniest meltdown ive ever had was in college when i got so overstimulated that i could Not speak, including over text. one of my friends was trying to talk me through it but i was solely using emojis because they were easier than trying to come up with words so he started using primarily emojis as well just to make things feel balanced. this was not the Most effective strategy... until. he tried to ask me "you okay?" but the way he chose to do that was by sending "👉🏼👌🏼❓" and i was so shocked by suddenly being asked if i was dtf that i was like WHAT???? WHAT DID YOU JUST SAY TO ME?????????? and thus was verbal again
#yeehaw#1k#5k#10k#posts that got cursed. blasted. im making these tag updates after... 19 hours?#also i have been told it should say speech loss bc nonverbal specifically refers to the permanent state. did not know that!#unfortunately i fear it is so far past containment that even if i edited it now it would do very little. but noted for future reference#edit 2: nvm enough ppl have come to rb it from me directly that i changed the wording a bit. hopefully this makes sense#also. in case anyone is curious. though i doubt anyone who is commenting these things will check the original tags#1) my friend did not do this on purpose in any way. it was not intended to distract me or to hit on me. im a lesbian hes a gay man. cmon now#he felt very bad about it afterwards. i thought it was hilarious but it was very embarrassed and apologetic#2) “why didn't he use 🫵🏼?” didn't exist yet. “why didn't he use 🆗?” dunno! we'd been using a lot of hand emojis. 👌🏼 is an ok sign#like it makes sense. it was just a silly mixup. also No i did not invent 👉🏼👌🏼 as a gesture meaning sex. do you live under a rock#3) nonspeaking episodes are a recurring thing in my life and have been since i was born. this is not a quirky one-time thing#it is a pervasive issue that is very frustrating to both myself and the people i am trying to communicate with. in which trying to speak is#extremely distressing and causes very genuine anguish. this post is not me making light of it it's just a funny thing that happened once#it's no different than if i post about a funny thing that happened in conjunction w a physical disability. it's just me talking abt my life#i don't mind character tags tho. those can be entertaining. i don't know what any of you are talking about#Except the ppl who have said this is pego/ryu or wang/xian. those people i understand and respect#if you use it as a writing prompt that's fine but send it to me. i want to see it#aaaand i think that's it. everyday im tempted to turn off rbs on it. it hasn't even been a week
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This is a friendly reminder that none disabled people often do benefit from the same accommodations disabled people benefit from.
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zebulontheplanet · 7 months
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Just a reminder that people who still live with their parents as adults deserve respect and for you to stop being ableist. There are multiple reasons someone could still live with their parents! From invisible to visible disabilities, finance issues, and more!
Stop using the “well they’re gonna turn into a creep living in their parents basement” punchline! It’s disgusting. STOP. BEING. ABLEIST. STOP. FORGETTING. THE. POOR.
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uncanny-tranny · 8 months
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Fat people deserve mobility aids, too. No matter if it's connected to their fatness or not, because having a mobility issue that is connected to one's fatness won't change that they're still fat and still have the issue at hand. Fat people don't deserve to "tough it out" because fatness should be this divine punishment doled out to those who "deserve" it. Fat disabled people deserve to have the peace of mind that they can exist in whatever way is most comfortable and accessible to them
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naritaika · 5 months
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Pls listen to her she brings up such a good point
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yellowyarn · 7 months
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i always see sensory avoidant autistic people talking about how their favourite foods are all plain carbs but where are the sensory seeking autistics who live on garlic and spicy foods? the ones who will eat a straight lemon and hate buttered noodles.
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phleb0tomist · 5 months
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tumblr users will have the most inaccessible, unreadable, low contrast, flashing carrd you can possibly imagine, with a dni full of insider acronyms with no translation and numerous link buttons labelled with cryptic captions, and then go ahead and put “ableists dni and kys!” on that carrd
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crippledpunks · 1 year
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cleaning is extremely difficult. cleaning your home, your office, your car, your personal space, your clothes, your body, anything- cleaning is an intensive process that involves a lot of small movements, focus, and stamina. many people struggle with the various aspects of cleaning, whether it's the executive function involved with executing or conceptualizing each step involved, fatigue from having to gather supplies and move around, pain from long periods of time on one's feet or repetitive motion, drain from struggling to focus, or whatever else,
a lot of people are affected by the difficulty of cleaning. depression, adhd, schizophrenia, autism, fibromyalgia, hypermobile joints, EDS, POTS, MS, chronic GI problems, chronic pain, chronic fatigue and other disabling conditions can make cleaning and keeping a space clean over time very difficult if not impossible for a lot of people- please be kind to those who struggle with cleaning, and kinder to yourself if you struggle to keep up with cleaning. it is a very difficult task. it's not your fault you struggle with it.
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thatadhdmood · 1 year
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@nutmegan17 on tiktoks eating tray hack
By keeping a tray full of no prepare necessary food, in the fridge it can be used to aid neurodivergent or fatigued people.
By putting food like, cheese and crackers, or whatever is a safe food for you personally on the tray, it can be taken easily to the couch or bed to be eaten from whenever you are hungry.
This prevents executive dysfunction or fatigue and any reason preventing you from eating. You need to care of yourself because everyone needs food to stay alive including you.
You deserve to eat even when on a bad brain day and are unable to prepare a meal for yourself.
If not having a full meal doesn't satisfy you, a snack may even give you the energy to make a full meal afterwards!
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moss-opossum · 2 months
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It’s okay to have low pain tolerance.
It’s okay to cry because your pain is at a 2 out of 10.
It’s okay to have higher tolerance for certain types of pain and lower tolerance for others.
It’s okay to be upset that your pain makes you dissociate, but not know any other way to deal with it.
Chronic pain is awful, period. Everyone who deals with it deserves compassion.
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inkskinned · 3 months
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you have to go to work so you can pay for your doctor, who is not taking your insurance right now, and if you say i can't afford the doctor's you are told - get a better job. it is very sad that you are unwell, yes, but maybe you should have thought about that before not having a better job.
(where is the better job? who is giving out these better jobs? you are sick, you are hurting - how the hell are you supposed to be well enough for this better job?)
but you go to the doctor because you had the nerve to be hurt or sick or whatever else. and they tell you that it is because you have anxiety. you try your best. you are a self-advocate. you've done the reading (which sometimes pisses them off worse, honestly). you say it is actually adding to my anxiety, it is effecting my quality of life. so they say that you are fat. they say that all young people have this happen to them, isn't it a medical marvel! they say that you should eat more vegetables. they say that you probably just need to lose a little more weight, and that you are faking it for attention.
(what attention could this doctor possibly give? what validation? that's their fucking job, isn't it?)
there is always a hypochondriac, right. someone always tells you about a hypochondriac. or someone who is unnecessarily aggressive during the worst days of their life. or someone looking "for a quick fix". or some idiot who wasn't educated about how to properly care for themselves who just abandons their treatment. and again, the hypochondriac, the overly-cautious hysteric. these people don't deserve to be treated like humans (right), and since you might be one of these people, you also don't get treated like a human. because those people can really fuck with the system, you now have to pay for it. and besides. you're actually probably faking it.
(more often than not, you find a 2:1 ratio of these stories. for every "hypochondriac", there are 2 people who knew something was wrong, and yet nobody could fucking find it. the story often ends with pointless suffering. the story often ends with and now it's too late, and it's going to kill me.)
you are actually just making excuses. someone else got that procedure or that diagnosis and he's fine, you should be fine too. someone else said they watched a documentary about other inspirational people with your exact same condition, maybe you should be inspirational, too. you're just too morbid. your pain and your experience is probably just not statistically concerning. it is all self-reported anyway, and you're just being a baby.
(once, while sitting down in the middle of making coffee, you had the sudden, horrible thought - i could kill myself to make the pain stop. you had to call your best friend after that. had to pet your dog. had to cry about it in the shower. you won't, but that moment - god, fuck. the pain just goes on and on.)
you know someone who went in for routine surgery and said i still feel everything. they told her to just relax. it took her kicking and screaming before they figured out she wasn't lying - the anesthetic drip hadn't been working. you know someone who went in for severe migraines who was told drink water and lose weight. you know someone who was actively bleeding out and throwing up in the ER and was told you're just having a bad period.
in the ER there are always these little posters saying things like "don't wait! get checked today!" and you think about how often you do wait. how often the days spool out. you once waited a full week before seeing the doctor for what you thought was a sprained wrist. it had actually been broken - they had to rebreak it to set it.
but you go into the doctor. the problem you're having is immediate. the person behind the counter frowns and says we're not taking your insurance. you will be paying for this out-of-pocket.
they send you home with tylenol and a little health packet about weight loss or anxiety or attention deficit. on the front it has your birthday and diagnosis. you think about crying, and the words swim. it might as well say go fuck yourself. it might as well say you're a fucking idiot. it might as well say light your money on fire and lie down in it. and the entire fucking time - the problem persists.
it's okay. it's okay, it's just another thing, you think. it's just another thing i have to learn to live with.
#spilled ink#warm up#can you tell what i'm mad about today specifically#i will say that there are a LOT of things that go into this. like a lot. this is ungendered and unspecific for a reason#it isn't just sexism. it's also racism. and ableism. and honestly classism.#and before a healthcare professional reads this as a personal attack: i understand ur burnt out#we are ALSO burnt out. your situation is also dire. this is not an attack on you.#this is a commentary on the incredible amounts of bigotry that lie at the heart of capitalism#where people have to pay money out of pocket to be told to fuck off.#your job is important. so is our humanity. and if you cannot accept that people are fucking mad as hell#at the industry - you are probably not listening .#anyway at some point im gonna write a piece about sexism specifically in medical shit#but i don't want terfs clowning in it bc they can't understand nuance#> it is true that ppl w/a uterus are more likely to experience medical malpractice & dismissal globally#> it is also true that trans people experience an equally fucked up and bad time in the medical field#> great news! the medical industrial complex is an equal opportunity life ruiner :)#(if you find it necessary to go into a debate about biology while discussing medical malpractice#i want to warn you that you're misunderstanding the issue. because guess what.#cis MEN might experience this. particularly black men. particularly disabled men.#so YES having a uterus can lead to more trouble for you. but this happens a LOT.#instead of fighting those ALSO experiencing your pain.... try working WITH them.#which btw. is like. actual feminism.)
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uncanny-tranny · 8 months
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To any disabled person undergoing tests to find What's Wrong: I hope your results come back the way you hope and that you receive the help you need. I hope you are not denied care, I hope you are taken seriously even after this, and I hope that you will be taken care of compassionately
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manyminded · 2 months
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here’s to disabled people who can’t speak/struggle to speak. wether it be a physical thing, mental thing, or both, it’s okay. you’re not any less a person for it.
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voidmire-system · 2 months
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shout out to clumsy people.
shout out to people with coordination issues.
shout out to people with dyspraxia.
shout out to people with apraxia.
shout out to people with muscle weakness.
shout out to people with paresis.
shout out to people with paralysis.
shout out to people with arthritis n/or joint deformities.
shout out to people with chronic pain whose pain makes it hard to control their movements.
shout out to people with chronic fatigue whose fatigue makes them hard to control their movements.
shout out to people with balance issues.
shout out to people with other conditions that make hard to control body n/or movements.
shout out to people who are undiagnosed n struggling with control movements.
it's not your fault. it's not your carelessness. you deserve support n accommodations. you shouldn't be judged or mocked. you deserve respect. your struggles deserve respect.
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crippledpunks · 1 year
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support every disabled person, especially those of us with symptoms and bodies you don't like or find "gross". support incontinent disabled people, support disabled people who struggle to or can't bathe, support disabled people who cant dress themselves, support disabled people stink, support disabled people with missing and no teeth, support disabled people with deformities, support disabled people with skin conditions, support disabled people who drool, support disabled people who have intense gastro intestinal symptoms, support disabled people with unkempt homes and dirty clothes. support all disabled people, not just "presentable" ones
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