#spoonies in school

[spooniestrong]

[evilwriter37]

Here's to us chronically ill/disabled people who couldn't finish school because of our health. We're not lesser people for it, and we aren't weak for it either. We have inherent value as people, education or not.

[stellaltumi]

setting up disability accommodations at school is so weird with internalized ableism. hearing someone else say that I am disabled and that my disability is disabling????? out loud!!! bonkers

[trapped-in-a-burning-body]

I recently started using a cane everyday and so my previously invisible disability is suddenly visible. I also started medschool. It's been a while since I was properly social so I have questions...

People don't walk next to me. And if they accidentally do, they leave to walk next to someone else even if that means squeezing in three people on the sidewalk. No one talks to me if it's not to ask me "what's wrong". I have really tried to make an effort and talk to people but I don't know what to do.

Can it have something to do with my disability and my cane? Like they're scared to say the wrong thing? Or maybe it's because they've sensed the autism?;)

[4spooniesupport]

[cupcakes-n-rainbows]

Chronic pain sucks.

I'm fourteen. I'm young to be here, to be in these communities, to even have fully-formed opinions on things. But I've been here. I've had years to idle and stare at the wall, thinking about all the things I wish I could say in a way abled people would understand. Had years to read blog posts, to quietly seek out disabled role models, to call myself disabled inside my head. Because that's okay. It's who I am.

I hate playing the "Sick Olympics". I've never not been in pain, but it really started when I was eleven. I've been through shit. I have friends who have been through more shit. You can drown in a few inches of water as much as you can in a few feet. I have to remember that.

I'm fourteen. I write. I've been writing since I was eleven. First, it was for fun, to make up little stories to dance in my head. Then, it was to pass the time, sitting in waiting rooms and pre-op and spinning on the never-ending hamster wheel of too much, not enough. Now, it's to express myself. To craft the representation I never saw when I so desperately needed it. To, someday, help others feel seen. I've been told I defy the odds. I'm taking a college class and a high school course load when I should be in 8th grade. I write. I think. I stare at the ceiling. The world passes me by.

There are days when all I can do is curl in a ball. I'll never be normal. I never have been. I'll never have the middle school experience, probably won't have the high school one. I missed two years of school, but somehow stayed grades ahead. My mind is the only part of me that's all mine, and sometimes, I can't talk straight. The fog sets in, and it's like every word has to wade through honey to leave my mouth, to be typed onto my screen. I'm breaking at the seams.

It'll only get worse. This rare disease, what it all stems from, it's degenerative. The glue that holds my body together is faulty. I stretch and I bruise and I hurt, and someday, it feels like I'll disintegrate. I don't know what to do. Sometimes, I'm trapped.

I know what I want to do. I know what holds my heart, my interest, my passion. I know I'll never do it. Some things, you aren't selling yourself short. Some things, it'll just hurt to pretend you could until you have to admit it.

I hope it gets better. I really do.

[stardust-maple]

The stress of school with a chronic illness is simply unreal.

[lost-spoons]

This school semester ends around the first week of December, and I have around two dozen missing assignments times three (number of classes) that I need to do before December first.

Medieval Art History

ASL 1

Statistics

The goal is to get a 'C' that it, I don't have higher hopes then that.

Stil, wish me luck.

[im-a-freaking-joy]

Me, dealing with multiple flareups from my sundry and plaguing health issues: I should take care of myself! Im going to rest until I feel better, my teachers are all understanding and most of them dont have penalties for late work, i just have to get it in before the year ends!

The year ending in a month: 🫣

The stomach flu finding my weakass immune system: 😀

My ADHD: 😏

Me: Oh no! My class ends in 4 days and I havent done enough work in it yet to get the bare minimum to pass! I NEED to do my homework soon! Why Am I so Lazy?

[adventures-in-ibs]

Ayo

IBS in college that is made worse by stress so going to class is a constant struggle but like, you really want to graduate cheeeck

🙋‍♀️

[neonarboretumart]

🎄🌟December 18th: School Christmas Play🌟🎄

Do they do these in other countries? I have the vaguest memories of primary school Christmas performances, I think I was always part of the chorus, lol. But this little guy gets to be the star!

Yet again I’m a couple of hours late, I had to nap again. Hh.

Tomorrow’s prompt: Cold Winter Air

[Image ID: The first image shows a traditional illustration in alcohol markers. The drawing is of a little anthropomorphic tabby cat dressed as a shiny gold star. He’s just finished his school Christmas performance, and he’s running back to his parents gleefully. In one hand he’s waving a slightly scrunched up programme. To one side of his is the stage, edged with red tinsel, and there’s the bottom of a Christmas tree just visible on top of the stage. At the very left of the image, the back of the head and shoulder of the adult cat is visible. There’s bright confetti all over the floor.

The second image is cropped in on the little cat in his bright shining star costume. He’s beaming. End ID]

[humanlyimprobable]

Heyy shh shshshshsh don't cry, buy a bulk pack of pierogies (any flavour you like), bake until golden brown, top with sour cream, great value chipotle & ancho hotsauce, honey, and salt and pepper to taste.

Use a spare piece of bread to soak up any sauce left behind.

Ok?

[ohthehumanities]

25 September 2023

Another day of learning, another day of adventures!

I started teaching religious education yesterday: At least, I would have, if any of my kids had shown up to class! I have to send an email out to the parents introducing myself. As of right now, there are only three kids in my class.

I need to prepare today for two job interviews that I have tomorrow. Both are with eating disorder treatment places near my house. I doubt I'll get a job offer due to how recently I've been in treatment, but I'm feeling a really strong pull to continue exploring a career in mental health treatment.

To-Do

Finish book two of De Doctrina Christiana

Read Apologetics and Catholic Doctrine, chapter 10

Read Apologetics and Catholic Doctrine, chapter 11

Watch Fundamental Theology lecture 6.1

Watch Fundamental Theology lecture 6.2

Review Resume

Practice interview questions

15-Day Language Challenge

Day 4: The most challenging thing about your target language

Each language has a language-specific challenge (something I find hard specific to the language) and a personal challenge (something I find hard about the language due to my learning disability).

I find Spanish a relative easy language to study. Because I've heard it my entire life, a lot of the properties come intuitively. As I advance in my studies, I notice that I have trouble with the more complicated verb tenses, as well as the conjugation of haber. Those are the language-specific challenges. My personal challenge is that I have aphasia (an inability to recall words), which hinders my ability to name objects in my original and target languages. When I can't put words to the images in my mind in Spanish or English, it presents some obvious difficulties, which are more pronounced when I speak Spanish.

My main language-specific challenge with Hebrew is the lack of Greek or Latin cognates. When I can use cognates, it makes learning vocabulary a bit quicker because I can draw comparisons more easily between languages. Without them, I'm learning entirely new terminology for languages.

~ Esther

[blackholemojis]

Anyway, reasoning for why this blog is going to be slower for the time being

[ID: an emoji of a very tired figure slumped at a table with a pen in hand and a red mug to the side, trying to write on a few sheets of paper. Above them hovers the word “college…”. /End ID]

[spoonsforminutes]

It’s that time of year where I yet again have to explain why my experience with chronic illness and chronic pain and the mistreatment I’ve had with various levels of the healthcare system make me a good candidate for healthcare-related academic programs. And before you ask, yes, I did cry while writing it.

[the-spoonie-life]

Hi everyone,

Hope the first couple weeks back at school have gone well for anyone who’s gone back.

I’ve been doing onboarding stuff for a new job and also getting ready to celebrate my 25th birthday this Sunday (all weekend).

Hope you all have a good weekend

- Anastasia