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#Illness and Disability
chronicsickness · 2 years
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I don’t think people understand the grieving you go through when you become chronically ill. The realization that you’ll never feel healthy again. That you’ll have this struggle and this pain for the rest of your life. That your body won’t ever be or feel the same that it used to. Sometimes I just sit and I cry and I grieve because I miss healthy me. I miss her so much.
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It's lonely
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ella10pythonissam · 2 years
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I think you've already figured out that I have a thing for illness/disability fanfics, so do you know any?
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ginxedjoints · 2 years
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nondivisable · 3 months
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I need to say something and I need y'all to be calm
if it isn't actively bad or harmful, no representation should be called "too simple" or "too surface level"
I have a whole argument for this about the barbie movie but today I wanna talk about a show called "the babysitters club" on Netflix
(obligatory disclaimer that I watched only two episodes of this show so if it's super problematic I'm sorry) (yes. I know it's based on a book, this is about the show)
this is a silly 8+ show that my 9 year old sister is watching and it manages to tackle so many complex topics in such an easy way. basic premise is these 13 year old girls have a babysitting agency.
in one episode, a girl babysits this transfem kid. the approach is super simple, with the kid saying stuff like "oh no, those are my old boy clothes, these are my girl clothes". they have to go to the doctor and everyone is calling the kid by her dead name and using he/him and this 13 year old snaps at like a group of doctors and they all listen to her. it's pure fantasy and any person versed in trans theory would point out a bunch of mistakes.
but after watching this episode, my little sister started switching to my name instead of my dead name and intercalating he/him pronouns when talking about me.
one of the 13 years old is a diabetic and sometimes her whole personality is taken over by that. but she has this episode where she pushes herself to her limit and passes out and talks about being in a coma for a while because of not recognizing the limits of her disability.
and this allowed my 9 year old sister to understand me better when I say "I really want to play with you but right now my body physically can't do that" (I'm disabled). she has even asked me why I'm pushing myself, why I'm not using my crutches when I complain about pain.
my mom is 50 years old and watching this show with my sister. she said the episode about the diabetic girl helped her understand me and my disability better. she grew up disabled as well, but she was taught to shut up and power through.
yes, silly simple representation can annoy you if you've read thousands of pages about queer liberation or disability radical thought, but sometimes things are not for you.
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demonboyhalo · 4 months
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collection of useful things tumblr has taught me:
even if you can't fall asleep, laying down with your eyes closed will still rest your body
you don't have to brush your teeth standing up
you don't have to do any chore standing up, from dishes to showering
you don't have to shower with the lights on
if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath
if you can't do that, mouthwash kills a lot of bacteria
eating "unhealthy" food is better than eating no food
you can make the same meal everyday for however long you still want it
some pills come in syrups or chewables if you can't swallow them
kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time
if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are
we have free will—if doing something "out of the ordinary" makes life easier for you, do it
if you have even a dollar to spare, please consider donating to Alaikum's family.
they're a large family at only 10% of their goal to evacuate, and could use any help you can give!!
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wishful-seeker · 11 days
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I would like to see more people talk about how jobs treat disabled employees.
I used to prep, wash dishes, and cook at mellow mushroom. I had chronic pain that wasn't NEARLY as bad as it is today, but it was still very debilitating. I told my employer "i cannot stand more than 4 to 6 hours. I CANNOT do shifts longer than this due to my illness." And even though i made my boundaries VERY clear, everyday i worked it was 8 hours at the least and 10 or 12 at the most. I would go up to my manager and say "look i really need to leave, my shift is over, my chronic pain is killing me." And he'd say "we really need to here, you HAVE to push through." And so i did, and after one, ONE month of that job my crps got incredibly worse to the point where i could no longer walk my dog around the block which was .5 miles. I quit, and that was FOUR years ago, and ever since that day I HAVE BEEN BEDRIDDEN AND HAVE TO USE A WHEELCHAIR. It is my biggest regret in life.
My best friend who has seen my whole journey has recently developed undiagnosed chronic pain, and she is in the EXACT same scenario i was 4 years ago. Busting her ass at a pizza place with extreme pain that hurts her so much she tells me "im in so much pain i don't even feel like a person." She doesn't feel LUCID. And her manager and coworkers are saying the same thing "if you don't help us you will let us down, we'll be in the shit."
That job thats hurting you isn't fucking worth it. I promise you no money is worth losing all your physical abilities and never getting them back. Your coworkers and boss do not give a shit about you, so don't you dare suffer for them. They will never understand your struggle and they will never try. They truly think being understaffed is worse than whatever pain you experience. They would rather you permanently damage yourself than inconvenience them. FUCK THEM. DON'T FUCKING DO IT!
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commonzinnia · 1 month
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yeah, sorry i exhibited symptoms of the disorder i told you i have. it will happen again because i have that disorder and will continue having it. hope this helps!! 🫶🫶🫶
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This is a friendly reminder that none disabled people often do benefit from the same accommodations disabled people benefit from.
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lupusbaby · 2 months
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Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
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i-say-stupid-things · 2 months
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what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀
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butchboylesbo · 1 month
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able bodied people will freak out when they see an ambulatory mobility aid user not using their aids but won't question it when a hiker only uses a walking stick or trekking poles when they're hiking. they're the same thing.
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bee-fox · 2 months
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I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
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ella10pythonissam · 2 years
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Summary: When nurse Caroline Forbes is hired by Elijah Mikaelson to take care of his younger brother with a terminal illness, Klaus, she didn't expect to fall in love with the charismatic blonde.
Talking with the eyes - by Alexis_lupus567, on AO3:
Talking with the eyes - by Alexis.CursedMoon, on fanfiction.net:
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chronicandironic · 3 months
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Here is the goggle doc on what to do! Even if you don’t need to live in New York, you can message the tourism board.
Id: two photos with a yellow background of drawing of a man with baseball hat that says NY. He’s wearing a mask. Both images have the words action alert in white text on a black background. They also both have #nomaskbanny in the left corner of the image and covidadvocacyny.org in the left bottom corner. The first image says contact your ny state senator, then below the image of the man is more text. That says, and urge them to speak about mask bans and commit to not support mask band legislation. The second image on the right has contact GovernorHochul above the image of the man and bellow, and urge her not to mask with her phone number 518-747- 8390
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purrfurnax · 4 months
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