#children with multiple disabilities

[specialsaathi]

Understanding the Multiple disabilities

Understanding the Multiple disabilities

  When a child is reported with few different types of disabilities then the term multiple disabilities is used. For example, a child may have difficulties in understanding, learning, along with controlling their movements, with a loss in hearing and vision along with speech and language impairment. The effect of multiple disabilities can be more than the combination of two individual…

[diversityinkidsbooks]

Why Does Mummy Hurt?

Helping Children Cope With The Challenges Of Having A Caregiver With Chronic Pain, Fibromyalgia, or Autoimmune Disease

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others. 

[danepopfrippery]

@christinaapplegatesm was the first presenter at the @televisionacad (and despite the abuser douche as host) she was given a standing ovation as she presented an award that would go to @ayoedebiri . She was using her @neowalksticks

She tearfully said ‘"Thank you so much. Oh my god, you're totally shaming me [and my] disability by standing up, It's fine. OK. Body not by Ozempic. OK let's go."

If you’re unfamiliar #christinaapplegate she grew to fame as a ‘hot dumb blonde’ on #marriedwithchildren so her body was her trademark along with her comedy. She later broke through with #samanthawho (hulu) and #deadtome (netflix) both excellent.

In the last season of dead to me she fell ill with what turned out to be #multiplesclerosis or #ms . She finished the season gaining 40lbs and said it was hard to get through such sudden changes.

Ive always loved her and givenn my own #disability hinders weight loss i love her comments

[imissjensi]

tw: brief mentions of the holocaust and slavery

obsessed with the idea of keefe stumbling into an american university and just walking into a us history lecture and finding it interesting so he keeps going. and he learns about how the us government has term limits and a system of checks and balances to prevent one group from becoming too powerful, and thinks about how that could be applied to the council. he learns about how women had to fight for their right to vote and are still fighting for equal rights and thinks about how those with lesser abilities need to work harder to be in the nobility. he learns about slavery, and thinks about how the elves did nothing to stop the enslavement and abuse of thousands upon thousands of humans. he finds a computer and does his own research.

he learns about the ADA, and how it is illegal in the united states to discriminate against someone on the basis of disability, and he connects it to the talentless not getting the chance to be nobility solely because of their lack of ability. in the same vein, he reads about therapists and mental health professionals. about how working with a mental health professional can help someone through their mental and emotion issues. he thinks about how if marella's mom had someone like that in addition to elixirs, maybe she wouldn't go through all that scorn. he comes across cps, and thinks about how if he or tam or linh had a support like that to help stop the verbal abuse they all went through, maybe they would be better off. he reads about the civil rights movement, and how if millions of black americans had not put their foot down and forced action from the people in power, they would not have gotten their rights. and he thinks about how the gnomes had to practically demand the council to say something about the plague. he reads about world war 2 and is horrified at how the elves did nothing to prevent the millions that were killed, and how they instead pulled the human assistance program entirely. he reads about eugenics, and is disgusted with the realization that this is what matchmaking is.

he reads about the horrific loss of life all over the world that could have been prevented. that should have been prevented. by elves. his people. and he thinks about how so many of these events can compare to elvin history. and he can barely stomach being able to call himself an elf anymore.

he thinks about something he's thought about many times. that the lost cities needs to change. but for the first time he seriously considers that they should change like the forbidden cities. that elves have plenty to learn from the people they shut out. he is determined to take what he's learned and to spark that change.

because it's one thing to go from one deeply damaged world to a perceived perfect one. but it's another thing entirely to come from the perfect one and go to the damaged one and be hit with the realization that their awful past is your world's present.

[thedisabilitybookarchive]

'You Are Enough: A Book About Inclusion'- O'Hair, Margaret. Sanchez, Sofia. Cardoso, Sofia

Disability Rep: Multiple Disabilities, Down Syndrome

Genre: Childrens, Picture Book, Realistic

Age: Childrens

Setting: N/A

Additional Rep: POC

For more information on summaries, content warnings and additional tropes, see here:

[journeysendinlovers]

My dad is starting to realize he's officially old and it's getting weird/interesting.

[uptownthots]

I was going write out this big long post about harm the patriarchy does to women vs the "harm" patriarchy does men but idk. I think the fact that there aren't large-scale male-led movements dedicated to fighting the patriarchy proves my point perfectly

[theoldandnewfirm]

Saw Elemental and enjoyed it a lot more than the trailer suggested I would. I should have remembered that Pixar's marketing is/always has been terrible and their movies are always more nuanced than it makes them appear.

It did leave me with a lot of questions about the...physics? Biology? Of the various elements, but other than that, it was a neatly packaged, touching little story. Probably won't rewatch it, but I'd still recommend it if you've got a free space on your "to watch list."

[thedragonboi]

Conservatives b like “wake up sheeple” then link you to an echo chamber community that uses cult tactics to manipulate you into staying in the echo chamber

[pansyboybloom]

as a teacher, reading about nex makes me fucking furious because I've seen that hate in the students I've taught. people who say young people aren't bigoted and once the old fucks die off the world will be perfect have no idea how cruel children can be when influenced by society's bigotry. while working with 8th grade, i had multiple situations of children harassing lgbt students, screaming slurs at black students, and mocking disabled, especially autistic, students. i was misgendered and degendered by these kids daily without them even knowing i was trans or gay, just that i was a feminine man. i had to dress hyper-masculine to have a smidgen of respect, and god forbid i let my disability show.

but what sticks with me the most when thinking about nex is when i had to intervene when a child proudly announced that she would murder her baby if they were trans (specifically nonbinary) because nb people were freaks, fully aware the person sitting next to her was trans. when i tried to intervene, i was disciplined because i was 'teaching my personal politics'.

this is what our schools look like. when people say they cant believe these girls could do this, i shake my head because, to me, it's no wonder nex is no longer with us. nex was a child with intersecting minority identities. our society is cruel and bigoted, and it is influencing our children. we HAVE to fix society because until we do, kids will stay cruel and kids will keep dying

[nicky-olives]

Today I was peeing in a public restroom and overhead a bunch of women with babies st the basins talking about how much they wished genderless toilets existed because it would make caring for children all that much easier.

Their arguments was that caring for children is easier when you can have two parents nearby, especially when you need to manage multiple children. Not only that, another one added, but sometimes single fathers need to help little daughters go to the toilet and are faced with the choice of 1) occupying the disabled people toilet or 2) risking taking their little girls into men's restrooms and having her see someone at a urinal because that's the only way they can keep a proper eye on them. And another one complained that sometimes she needs to change her crying baby's diaper while her little girl needs to go to - and all of this would be easier if only mums and dads were allowed in the same spaces at the same time.

And all I could think about while I finished peeing and heard this was that genderless public restrooms are a female need and would probably be an unanimously held feminist demand (similarly to reproductive rights) if it wasn't for radfems who are so gassed by their hatred towards men and trans people that they refuse to move forward with what should be a very simple and reasonable demand.

[quntress]

My mom says that people who walk slow, or take up entire sidewalks/escalators are “clogging the arteries of life”.

[mantomhive]

beginning to think my entire family is cursed atm

[rebirthgarments]

TW: Chemical w-rfare, Ab-rtion

Urgent Ask to evacuate Nara, a 🍉 disabled woman with MS who also has pancreatic cancer due to chemical w-rfare.

Support by financially contributing to her @FedUp4Palestine vetted funhnd-raizer (that I personally vetted): givebutter.com/NaraMedicalAid

+ resharing/ reposting this post!

I, Sky Cubacub- a Fed up 4 Palestine team member, have been in direct contact with Nara to get to know her and her story more over the past few days. We have become fast friends due to so many overlapping symptoms of our disabilities. Nara’s story caught my eye because I have post-viral ME/CFS which many times is a precursor to MS. I really want my disability community to show up for her to get this campaign funded that is so close to my heart so that she can continue medical treatment.

We have chatted extensively! During our chats, I found out from Nara that she had not previously had health issues until she was exposed in the white phosphorus attack in 2008. The long lasting damage and effects of phosphorus continue to compound and become more and more disabling to this day, even after 16 years.

Here is her story in her own words (edited for clarity):

“Hi I'm Nara,

I'm a cancer and multiple sclerosis patient. I need treatment, examinations, and follow-up on a regular basis, but the hospitals in which I used to follow up were bombed and the other one was turned into military barracks. All I need now is to leave Gaza for treatment, preserve my life, and live with my family in peace.

We're a family of 4, including my 12 and 7 year old children.

I had been diagnosed with a tumor in the pancreas as a result of inhaling phosphorus in a previous war. A couple years after being exposed to phosphorus, I became pregnant, and the fetus was pressing on the tumor, which drew the doctor’s attention to the cancer. My fetus was emergency aborted, and the spleen, 80% of the pancreas, and part of the small intestine were removed. I complained every now and then of a lot of pain as a result of the removal of part of the pancreas. I was having follow up care in the Turkish Friendship Hospital for hematology and tumors. But since the beginning of October, I have not been able to follow up because the hospital has turned into a military barracks.

The remaining part is talking about multiple sclerosis:

In 2018, I was diagnosed with multiple sclerosis. I had many complications, such as inflammation of the seventh nerve in the eye, the inability to walk with balance, movement with difficulty, and many symptoms. I was then required to take 12 injections every month and many medications and vitamins. I was following up at the Nasser Medical Complex in Khan Yunis, but unfortunately the hospital was out of service due to the war. So for a long time I have not received any injections. MS is truly difficult and it controls my life completely, and the attacks occur in many and varied ways.”

A note about her breathing apparatus:

Because people in displacement have to wait in long queues and pay to use the bathroom, Nara had started to restrict her water intake because of a UTI she never has been able to heal from. This has created a problem with raised levels of potassium, so doctors have placed her on oxygen for fear of the potassium affecting her heart.

Goals

she needs at least $15,000 to evacuate

2 adults at $5,000 each

2 children at $2,500 each

this price is subject to increase due to the cost of registration for evacuation continuing to go up

The other money will go to the cost of treatment and living costs.

Nara chooses to stay anonymous because she has had to mask her disabilities so much that only her family knows about her MS and Cancer, so we have not linked her instagram, but we are in direct contact with her and can verify that she is who she says she is! Because of this, she cannot promote her own fundraiser, so it is our job to collectively do it for her!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link. The @FedUp4Palestine logo is in the top left corner.]

[cowsabungus]

Art Hacks for Physical Disabilities!!

I know art can be inaccessible to physically disabled people for a lot of reasons, and I think art should be accessible to everyone, so here’s a couple of the things I found to help for a few different issues you may face that stop you participating!

I have a link to all these items (UK) in my link tree!!

IMAGE DESCRIPTION

Slide one: illustration of a white woman with pink hair, wearing a pink outfit, sitting in a power wheelchair, looking at the viewer with thumbs up. Text Reese “hacks to make art more accessible”

Slide two: illustration of three different kinds, using three different types of pencil grips. One hand uses a circular grip. 100 is a large, rectangular grip. Another uses a grip that is ergonomic and fit into the hand. Main text reads “Paul, grip, strength and dexterity”. Subtext reads “there are loads of different types of pencil, grips or design for different disabilities and conditions. Increasing the width of the pencil can give more texture for a better grip using a pencil with a thicker with also reduces the amounts of pressure needed to hold a pencil you can make your own using items like pool noodles. KT tape an air dry clay. You can also put these groups on things like paint brushes.“

Slide three: illustration of a hand using a tool that looks like a wrist support with a paintbrush connected to it text next to it reads “this talk next a paintbrush to your hand in a way that means you don’t need to hold the paintbrush with your fingers and you will need to move your arm around“ on the bottom right hand corner is in photograph of a guided hand device. Text read “regarded hand as a tool designed to reduce the need for moving your hands and fingers and relies on the movement of your shoulder and upper arms and can be used with different materials like paintbrushes, pencils, pens and styluses.

Slide four: main header reads “when in bed“. Illustration of an iPad pillow with a iPad in it is next to text that reads “iPad pillows, put your tablet at an easier to access level when sitting or lying down“. In the bottom left hand corner is an illustration of a girl sitting in bed in her pyjamas with a pillow behind her and a bed table as she is drawing. On the left hand side is a photograph of a bed table with the text reading “bed tables are used to give you a flat tire up surface while in bed, and are often height adjustable”. In the bottom right hand side is a bedsit, a pillow with the text underneath, reading “ bedsitters of specially shaped pillows that you put behind you in bed to help you set up and give you a soft surface to lean back on”.

Slide five: maisie had a read out “at a desk left”. On the left hand side is a photograph of the document holder with the text “document holders put your paper at an angle to help prevent crane in your neck down”. On the right hand, middle side is an illustration of someone using a armrest and on the bottom left hand side is a photograph of the armrest. Text next to them reads “economic arm rests clip onto your table or desk and give you a surface you lean you’re forearms or elbows on. This can be used to steady your arm and reduce pain and fatigue while sitting at a desk”.

Slide six: maisie reads “foot and mouth painters” . on the right hand side is an photograph of swapping Augustine, an Indian woman with no arms, wearing a sari painting with her left foot. In the bottom left hand corner is an illustration of a woman with green hair painting using her mouth. Text reads “foot and mouth painting is a technique used by artists who do not have, or cannot use their arms so hold the paintbrush in their mouth or using their foot. Swapna Augustine is a foot painter who has painted with her feet and participated in multiple exhibitions of foot and mouth painters. Her art is stunning and I would definitely recommend checking some of help work out.“

Slide seven: main text reeds “art without brushes and pens”. On the left-hand side is a photograph of a spin art device. Text next to read it reads “spin out involves using bottles of ink and squirting them onto a spinning piece of paper to create spiral art. On the middle right hand side is a illustration of a laptop with coding art written on the screen. Text me next to it reads “coding art involves making programs that design and create art pieces digitally. This could be used in conjunction with an eye tracking software.“ On the bottom left hand side is a photograph of a child in a power wheelchair with paint on their wheels painting onto a large piece of paper. Next to this is text reading “wheelchair painting involves putting paint on your wheelchair wheels and moving around and large piece of paper. Sometimes you can connect a roller to create more marks.“

Slide eight: text reads “what do you do to make art accessible for you?”

End of ID.

[relaxxattack]

ik it’s been said by much more knowledgeable people, but marriage for polyamorous people is more important than just representation or equal rights; it’s not just that poly people (and gay people) should be allowed to marry because it’s a symbolic ceremony that straight people get to do— it’s because it’s a LEGAL DOCUMENT giving you express LEGAL RIGHTS to that person’s well-being! it gives you the ability to make decisions for them if they are unable— say; unconscious, unwilling, or dead— it gives you the rights to their property, makes you next of kin guardian for the children you have together, makes it so you can file taxes together, makes it so you have the right to see your partner if something happens and they are confined to a hospital room. and so much more than that!

i feel like it’s so common to shrug off marriage rights for unconventional relationships or families because “it’s just a symbol and title— they can still just hold a wedding if they want to have one! they don’t need to do that to live together and raise children, so just leave it be.” but it’s NOT just a symbol or title. it is a fundamental right to be able to put YOUR future (your children, your estate, your possessions, your life if you’re in a coma) in the hands of people you actually love and trust

how many stories have we heard about trans people buried with their deadname, because the only people legally allowed to handle their funeral were their transphobic parents?

this is why gay people back in the day used to adopt each other. because marriage wasn’t legal and they needed SOME form of recognized protection if anything happened.

and, though i can’t speak much on it, this is also why the laws for disabled married people need to be different.

EVERYONE deserves the right to marry who they want. because marriage is a FUNDAMENTAL right, about CHOOSING who you trust to be legally handling your affairs.

and if who you trust is multiple partners, or even just several of your friends, it should be legal for you to tell the government that.