#medical and health activities

[poojaryfoundation0501]

[thebibliosphere]

tw: content under a cut for talking about calorie counting (in a positive way), restrictive medical diets, and MCAS 'remission.'

So it's been 5 months since I last saw the GI doctor who took me seriously regarding my mast cell dysfunction, and not only have I gained a LOT of foods back into my diet under his care without experiencing idiopathic anaphylaxis, but I've also managed to eat 2000 calories almost every day for the last 5 months.

Prior to his care, since 2020, I had been mostly surviving on a liquid diet with the odd bit of solid carbs and protein when I could handle it.

Which was better than the 2 things I could digest safely prior to 2019, which were oatmeal and filtered tap water toward the end when I was dying. But even after I recovered from that, any time I went over 700 calories a day in solid food, I'd be writhing in pain.

I still have days when the pain hits, and all I can manage is liquids, but those days are so much less, and thanks to being able to eat more foods, I can at least liquidate more nutrients to make sure I'm getting what I need.

Things will never be 100% healed. That's not the nature of this kind of immune disease. But they're better. I'm better. I'm still so scared to say any of this is in remission because MCAS is wildly unpredictable. But I'm so much better than I was.

And I'm going to go happy-cry and eat a gluten-free cupcake about it.

[spacedocmom]

Doctor Beverly Crusher @SpaceDocMom This is your friendly neighborhood Space Doctor reminding you that activated charcoal can negate a lot of medication including birth control, some anti-depressants, and some cancer meds. Do not eat activated charcoal as black food coloring, not even in small amounts! emojis: black heart, blue heart, masked, spoon 6:00 PM · Aug 30, 2024

x.com/SpaceDocMom/status/1829564973502124226

[us-the-voices-and-more-voices-2]

a quick reminder to everyone

I have SEVERE LEARNING DISABILITIES

I am literally disabled because of my learning disabilities, I have faced literal descrimnation because of it.

everytime you call us retarded or a retard you are ACTIVLY upholding the systems in which I am trapped in.

I take more offence in being called a retard than anything due to the literal DECADES of systematic abuse and descrimnation from the medical system, every single government resource, and almost all school alternatives.

fuck you greatly if you use these words against us, I have to live in a country where they hate people like me and would rather us dead than to do literally anything to help people like us.

call us what you will, but I will never call anyone retarded because it’s a basic decency reserved for everyone.

I’m a very happy retard, fuck your ableism!

I will happily live and love and learn even if THE LITERAL GOVERNMENT doesn’t want me too.

(yeah being a mid supports autistic with other learning disabilities and disabilities in general that made me unable to attend a school just means I deserve to die. 100% legit I deal with this literally all the time always fuck the Australian government)

so again fuck you all greatly, for using a literal slur against me one that has been used against me since I was a baby.

fuck you all, genuinely.

did I forfeit my rights to be treated as a human being the moment I had a bit of trouble learning things? Because if I did I’d like to break someone’s teeth with a brick.

Edit: the language and lines between what the fuck developmental disabilities and intellectual disability are is confusing as fuck.

I have gotten very confused between the 2 because they are grouped together half the time.

My apologies to everyone for being utterly confused where I fall because it is extremely confusing to figure out, and internationally it varies wildly according to my brief reading.

I did not mean to be mean or anything I just was genuinely going off what I’ve been told most my life lol.

Shout out to my developmentally disabled brethren you are loved

[kenobihater]

how we doin' netflix haters? 🫶🏼

[creepyscritches]

Ouuugh fuck yes the opthalmologist said I appear to be a strong candidate for LASIK :3c gotta coordinate with my other doctors for their opinions, but just this year my eyes finally stabilized enough to even HAVE these conversations in the first place!!! It probably wouldn't be something I pull the trigger on for at least another year, but very exciting to not be eliminated as a candidate bc of my autoimmune stuff :') it was also super cool as always to learn how providers explain some of these conditions + procedures on a patient level then a clinical level. Eager to talk shop with the opthalmology SME on my team :3

[rowenabean]

.

[spookietrex]

Had a neurologist appointment today that went really well. It was nice to just be...heard for once. I started in on my "my doctors aren't listening to me and are making things up" speech and she started to cut me off until I cut her off and explained that a certain hospital near us had actually documented in my medical record that I'd thrown up on purpose. (I didn't. They'd asked about nausea but unfortunately I'm dissociative in the hospital...especially if you're trying to involuntarily hospitalize me) and she stopped. She documented my symptoms and referred me to another provider who can actually help evaluate me for Parkinsons because my symptoms are more than just functional neurological disorder and I'm tired of being dismissed. She actually watched my videos of my tremoring and my muscles convulsing involuntarily and it switching sides.

[bpdnchill]

Because Spooky Season is close at hand I have a gentle reminder that Activated Charcoal is NOT your friend if you are on ANY medication. It will mess the efficiency of EVERYTHING up, be it Birth Control, antibiotics, psych meds, you name it.

In some cases, it can even turn your lifesaving medication into a useless sugar pill.

So if some cool holiday goodie has Activated Charcoal as an ingredient and you are on ANY medication, it may be best to pass.

[chuthulhu-reads]

[ID: Five panels from Trigun Maximum. The first shows Milly and Meryl looking up at something, startled. The second shows Wolfwood hovering around a corner, peering out from behind it. The third shows a closer up image of Wolfwood peering around the corner, a serious look on his face as he says, "Booze? Him? First thing in the mornin'? Ya gotta be kiddin'..." The fourth panel shows Vash crouching on the ground, a really awkward face smile on his face as he looks down on his coat, which has been splashed with whisky from a broken bottle. He's sort of laughing, the speech bubbles saying "Ha... heh heh..." but he doesn't really look happy. The fifth panel is a close-up of Vash's face as he slurps some of the spilled whisky off of his glove. Despite being close up, his face is so heavily shaded that it's almost impossible to make anything out. His left eye is sort of visible, closed and curved as if he might be smiling, but that's really not the vibe. End ID.]

I know I yell a lot about Nightow ruining my health and happiness but Colourless Expression really is such an INTENSELY impactful character chapter about SUFFERING. These people drink a lot for fun (can't blame 'em, given where they live) but in the aftermath of remembering about July Vash is day drinking to cope--and his friends don't even know he's been drinking until now. FUCKING OUCH

[religion-is-a-mental-illness]

By: Leor Sapir

Published: Dec 30, 2023

🚨🚨 IMPORTANT 🚨🚨

The World Health Organization is convening a guideline development group (GDG) on gender medicine.

I rarely circulate or ask followers to sign petitions, but I’m making an exception because WHO’s actions are very troubling.

Thread. ⬇️ 

On December 18, WHO announced that it will be developing a guideline on “the health of trans and gender diverse people.” As the petition notes, there are three areas of concern here. 

First, the composition of the GDG is heavily biased toward an “affirmative” approach that rejects safeguarding (“gatekeeping”) and considers any alternative to hormones and surgeries on demand as unethical “conversion therapy.” 

Of the 21 panel members, three-fourths are either trans-identified, members of “affirmative” advocacy groups, or members of WPATH, an activist group that presents itself as a professional medical association (and recognizes child "eunuchs"). 

Some members have failed to properly disclose conflicts of interest, and WHO seems to have made no effort to balance COIs by inviting diverse perspectives.

COIs are unavoidable; evidence-based medicine requires that clinical practice guideline developers balance COIs. 

For example, one of the panel members is Canadian law professor and transgender activist Florence Ashley (pronouns “they/them/that bitch”). Ashley has argued against any form of safeguarding for adults and adolescents. 

Ashley: the goal of medicine should be to help individuals achieve “gender euphoria” through “creative transfiguration.” Doctors are to help adults and “older teenagers” turn their bodies into “gendered art piec[es]” with hormones and surgeries.

Second, WHO’s public consultation period is suspiciously short and poorly-timed. Typically, public consultation periods last months, if not years. This is especially true, one would think, with novel medical interventions that carry significant risks and involve minors. 

WHO announced a mere 3-week public consultation period., No less suspicious, that period falls on Christmas, New Year, and the first week of January, a period when most people are on vacation or away from their desk. This is not a sincere effort to elicit public input. 

Third, the guideline development process is rushed. The proposed date for the GDG to convene in Switzerland is February 21—a mere two months after WHO announced the initiative. 

In comparison, the NHS/Cass Review process for reviewing evidence and developing new recommendations has been going on for over three years. 

In conclusion, it’s hard not to suspect that WHO is rigging the process to produce a desired and predetermined result. 

WHO may not undermine reform efforts in countries with strong health bureaucracies that are determined to conduct systematic reviews and rely on EBM principles, but it will likely shape the realities of gender medicine where debates are just starting to emerge (e.g., the US) 

If you are concerned about WHO’s motives or process, please sign and circulate the petition. Although all signatures are welcome, those of medical and mental health professionals and of researchers are especially needed.

[ Original thread: https://twitter.com/i/status/1741210385108136119 ]

--

We, the undersigned, strongly object to the World Health Organization's (WHO) biased panel tasked with creating new transgender health guidelines. Of the 21 panel members, over three-fourths are transgender activists. The few physicians either specialize in HIV or are “gender doctors.” There is currently a worldwide explosion of teenagers wishing to undergo a sex change; WHO’s stated plan to promote hormones and “legal recognition of self-identified gender” will harm innumerable gender-dysphoric youth, gays, lesbians and other women. WHO must cancel this group's first planned meeting in February and go back to the drawing board.

==

the goal of medicine should be to help individuals achieve “gender euphoria” through “creative transfiguration.” Doctors are to help adults and “older teenagers” turn their bodies into “gendered art piec[es]” with hormones and surgeries.

Jesus fucking Christ. That is not medicine. That's cosmetic surgery on-demand for delusion and fantasy.

How did we get to such a nadir that this is the kind of nutcase who is driving public policy? It would appear they've given up the whole "medically necessary" thing, though.

Signed.

[poojaryfoundation0501]

Poojary Foundation is always prepared and reaches to the downtrodden in the society whenever they need help. We provide our services in Mumbai, Maharashtra, India.

[definitelynotpetedavidson]

the going 24 hours without a cigarette to "my friends hate me and I am a bad person and should kill myself" pipeline is so real

[us-the-voices-and-more-voices-2]

still so incredibly, incredibly, pissed and angry about the NDIS changes.

people are already dying, important things are already canceled, what the fuck was the point?

save a couple billion dollars?

okay? now people are dead what was the point again?

it's not going to help people like me who SHOULD be on the NDIS for support and life shit.

(hi I suffer from post-covid! and severe debilitating asthma! not to mention learning disabilities that make things incredibly inaccessible to me because the government THEMSELVES don't make shit accessible!!!!!)

(I live in hell YAY!/j)

not to mention all the people on the waiting lists who are literally straight up dying, we already have mortalities!!!!!!

WE'VE HAD MORTALITIES FOR YEARS!!!!

we've only had the NDIS since 2013, I grew up without support from the NDIS because well I was born in the 2000s lol and it took a solid few years after that for it to work out some kinks and by the time it ended up being okay as a thing I had been disabled for 10 years and had 0 supports lol, and my family had been paying out of pocket.

also like my entire family didn't have any disability supports before me either, no one had them in those days, no one in the old country we only really got anything literally in 2018-2019 for one of my bisnonni THAT'S HOW BAD THE NDIS IS BTW.

at the very least she had a carer for some time, but it was not even a possibility for such a long time.

that again, one of my other bisnonni was completely fucked over, same problems effected her even worse in her own right.

(NDIS actually care about old people challenge: FAILED)

ALSO imagine having rights! hahahahahah.

(actually sobbing rn. most of us DO NOT, we are payed less then abled people!!!!)

I am bitching and moaning everyday, because I'm not stupid none of us are, even us stupid people (ily fellow learning disabled ppl and intellectually disabled ppl) we have been greatly fucked over for decades and decades, and still with the bare fucking minimum shit it gets snatched or abused or we get scammed.

it's fucked, it's so, so, fucked.

medicare doesn't cover optical, dental, or a shit ton of other things.

the government straight up hates us all, I can not tell you the amount of bullshit I've been through, the ableism is intense!!!!! it's why I got so good at masking my very obvious learning disabilities fuck all of us for real.

like, the depression and STRAIGHT UP FEAR!!!

dude, fucked up shit.

I have so so many stories, I can't even begin to tell you.

honestly shame on 'em, I'm using my newfound free speech to bitch and moan.

because like, I do not genuinely think half the things that allow me to bitch and moan about being disabled was a thing when I was a kid, like genuinely!

honestly I wish international disabled allies could idk join in and be angry with us, we have all been through hell.

and it's fucked.

[threnodians]

had a good first night at work, i am obnoxiously out of shape which was and is so fucking embarrassing and mortifying (we took the dogs for a walk along a trail and the fact that it was 80 degrees and literally 100% humidity paired with how out of shape i am caused me to basically be panting and heaving by the end but luckily my boss didn’t say anything; i am definitely bringing my inhaler from now on) and my back is absolutely killing me right now but i desperately need this job because it’s only 15min away and a 3hr shift in the evenings which is so perfect for me and i finally have a way to go on walks and, like, do things and be more active again! did some yoga when i got home which helped and hopefully sleeping will help even more! 🥲🤞🏻 working again tomorrow with someone else coming in to work with me (hopefully they’re nice otherwise i’ll cry) and then again on saturday with the owner coming in to work with me again as well so 👍🏻 for now i am going to take my meds and hopefully pass tf out asap because i am exhausted and i have to get up early and start some more laundry 💀

tldr; i am in so much pain right now but i am excited to go back in tomorrow ✨

[mythicalcoolkid]

All of the things that would be "awkward" for me to do around extended family are really not because of me or anything about the thing itself, but entirely about how my parents stopped telling anyone major information about me after like fifth grade

Like I can't bring have disability aids with me NOT because health stuff is weird but because it's much weirder that I have in fact had significant health problems since I can remember and have been disabled since, generously, 17 (more accurately 11 or 12) and my parents didn't tell anyone. I can't officially come out NOT because people would be weird about it (they would but I don't care) but because that would necessitate admitting that I've been living socially as male for going on ten years now and my parents never said anything and had me just. Pretend I wasn't. Like it's so funny now that I've had so many huge life changes that I CAN'T talk about it because the inevitable follow-up is "wait. This has been going on HOW long...?"