spookietrex
spookietrex
Creature of Chaos
2K posts
Genderqueer/queer. Autistic. Hypermobile-EDS and POTS. Complex PTSD. They/them. 30. Trying to do better than my predecessors did and break generational curses (and stop hating myself along the way).
Last active 60 minutes ago
Don't wanna be here? Send us removal request.
spookietrex · 5 days ago
Text
I really need to relearn this lesson. Tried forgiving my mom recently and it went about as well as I expected it to go. (Think Lorelai and Emily on Gilmore Girls.)
Tumblr media
Daily reminder that no one belongs in your life if they can't respect your boundaries!
704 notes · View notes
spookietrex · 8 days ago
Text
Tell me how I get sexually assaulted at a massage place and a cop somehow makes it my fault?
0 notes
spookietrex · 17 days ago
Text
If you don't have your original family, handpicked is fine.
14 notes · View notes
spookietrex · 21 days ago
Text
Me: *submits all of my medicaid renewal paperwork, even having gotten help from the SSA office to complete it*
Medicaid: That's nice. *waits over a month, not giving me feedback on what I submitted*
Me: *Assumes everything is good*
Medicaid: No insurance for you. You didn't submit everything. Your case is now discontinued.
Me: *has now spent over 2 hours on hold dealing with this so far and no results*
Looks like I don't have insurance. FML 😭🙃
11 notes · View notes
spookietrex · 24 days ago
Text
Got 26 seconds into "ADHD" by Truslow and got distracted. If that isn't the most ADHD shit....lmao
0 notes
spookietrex · 1 month ago
Text
Tumblr media
I've said it before, and I'll say it again. Self-diagnosed autism is valid! There are so many reasons why people don't get diagnosed, the cost of a diagnosis being a big one.
1K notes · View notes
spookietrex · 1 month ago
Text
Tumblr media
54 notes · View notes
spookietrex · 1 month ago
Text
Tumblr media
So I got here early and was looking for the stairs to go up with my cane and the ADA section was literally right in front of the stage. So I found someone and explained just the POTS (too many other things to get into) and he told me he knew someone with POTS and to take an ADA seat but that my partner has to stand. We said deal and I'm now seated comfy with 30 minutes before the show.
Going to a concert tonight. I have really good seats but when I called about ADA seating just in case, I was told that I have 30-45 stairs to make it to my seat. There's no elevator and the ADA seats are worse than my current seats. Time to suck it up I guess. I asked "should I use my wheelchair or my rollator?" and she was like "what is that? Oh you should use a cane." Fucking rude.
23 notes · View notes
spookietrex · 1 month ago
Text
Going to a concert tonight. I have really good seats but when I called about ADA seating just in case, I was told that I have 30-45 stairs to make it to my seat. There's no elevator and the ADA seats are worse than my current seats. Time to suck it up I guess. I asked "should I use my wheelchair or my rollator?" and she was like "what is that? Oh you should use a cane." Fucking rude.
23 notes · View notes
spookietrex · 2 months ago
Text
Tumblr media Tumblr media Tumblr media Tumblr media Tumblr media
521 notes · View notes
spookietrex · 2 months ago
Text
Tumblr media
3K notes · View notes
spookietrex · 2 months ago
Text
This but I convince myself I don't need as high support of a mobility aid like my wheelchair and can just use my cane or rollator when 5-10 minutes into it, I'm dying.
Sometimes I tell myself that I don’t need to put on my braces or use my crutches because “I won’t be out that long” and/or “I’ll be fine… it only hurts a little today” and then I go out and I’m miserable and it sucks and I realize that maybe just maybe I have and use my mobility aids for a reason, but only maybe because I never cease to realize that I should use them regardless because I’ll feel better if I do.
114 notes · View notes
spookietrex · 2 months ago
Text
Y'all I am DYING with all these damn fireworks. People in my neighborhood have been letting them off at all hours of the day. As someone who has gun trauma, I am absolutely miserable. I'm talking 10:30 in the morning. This is absolutely unnecessary. I hate it here.
4 notes · View notes
spookietrex · 2 months ago
Text
My partner: I guess it's just my anxiety that made me leave the deodorant open with the lid off in the library.
Me: Yeah, I noticed.
Partner: Oh. Were you just waiting to see how long before I caught on?
Me: *nods with a smirk* Yeah.
Partner: Well, at least I caught on rather quickly!
So my partner @nullptr-exc has severe ADHD but didn't get diagnosed on the first trip to the psychiatrist because he was masking. Instead, he got a generalized anxiety diagnosis so it's become a running joke in our house.
*Partner and I have been sitting in the living room for well over 45 minutes with the light on in the middle of the day*
Partner: Every day I forget to turn off the light before going to bed. I like the light on when going upstairs because it's a little scary.
Me: Yeah, I noticed it but I wasn't sure whether it was on for a reason. Guess I should have asked.
Partner: It wasn't.
Me: I guess the light makes you anxious.
Partner: Well, my mom's house DID have lights...
7 notes · View notes
spookietrex · 2 months ago
Text
Guys why the fuck are able bodied people like this.
A family friend (don't know her too well) tried to hug me as she was leaving, and I politely tried asking her not to because 1) I'm in pain and 2) my spine is deteriorating due to a chemo drug. I really mean it when I say you can't hug me. But this bitch just went "no I'm gonna hug you" and shook me around and squeezed me like a dish towel while I was trying to push her off, and now a section of my spine and ribs is so fucked up I can't bend it and it really hurts. She literally injured me just because she couldn't take no for a fucking answer.
Like. This is why I have learned helplessness. This is why I give up so easily. At some point, having boundaries and asserting yourself and communicating your needs doesn't do jack fucking shit, because if people want to, they can overpower you and physically harm you in the process anyway. For nothing.
And this is why I don't buy people saying "it's YOUR responsibility to enforce your boundaries; just asking for something isn't a boundary <3." Because I physically can't. Most disabled people physically can't. A person in a wheelchair can't "enforce" someone not touching their chair. Yeah, after it happens, they can maybe avoid that person in the future as a way to "remove that person's access" to the wheelchair user. But at that point, assault has already been committed and it's not about boundaries anymore. It's about human fucking rights. "Don't assault me" is not a fucking boundary. It's an able bodied person's trigger word.
8K notes · View notes
spookietrex · 2 months ago
Text
As someone who is somewhat of a “veteran” of the online ND community, I’m disappointed in the lack of positivity and love for lesser known diverse cognitive conditions, and the opposing abundance of posts about “cures” or outdated criteria or treatments for those conditions. So, without further ado, I want to say hello to anyone with any of the disorders I’m listing, and give them the love and support that hardly anyone else in our community has… Shoutout to:
People with Down syndrome
People with Fragile X
People with William’s syndrome
People with dyslexia
People with dyspraxia
People with dyscalculia
People with dysgraphia
People with Prader-Willi syndrome
People with PANS or PANDAS
People with aphasia
People with a TBI (traumatic brain injury)
People with chronic/early onset mental illnesses
People with cerebral palsy
People with FASD or were otherwise disabled via other substances in utero
And many, many more I may have forgotten to list (but still support and love, I will add more to my list)
You are all beautiful and wonderful, and you all deserve so more love, appreciation, acceptance and support. You are just as neurodiverse as the rest of us, and your voices deserve to be heard and amplified.
I love you all ❤️
10K notes · View notes
spookietrex · 2 months ago
Text
Now that it's disability pride month, I want to remind people that being disordered doesn't mean you are immune to being ableist.
Yes this includes personality disorders.
Yes this includes autism.
Yes this includes PTSD.
Yes this includes people with high empathy.
Yes this includes physically disabled people.
Yes this includes cripplepunks.
No one is immune to ableism. Not Me, not you, not anyone. What we can do is recognize our mistakes and try to improve upon them and ourselves.
5K notes · View notes