because sometimes there are invisible tests and invisible rules and you're just supposed to ... know the rule. someone you thought of as a friend asks you for book recommendations, so you give her a list of like 30 books, each with a brief blurb and why you like it. later, you find out she screenshotted the list and send it out to a group chat with the note: what an absolute freak can you believe this. you saw the responses: emojis where people are rolling over laughing. too much and obsessive and actually kind of creepy in the comments. you thought you'd been doing the right thing. she'd asked, right? an invisible rule: this is what happens when you get too excited.
you aren't supposed to laugh at your own jokes, so you don't, but then you're too serious. you're not supposed to be too loud, but then people say you're too quiet. you aren't supposed to get passionate about things, but then you're shy, boring. you aren't supposed to talk too much, but then people are mad when you're not good at replying.
you fold yourself into a prettier paper crane. since you never know what is "selfish" and what is "charity," you give yourself over, fully. you'd rather be empty and over-generous - you'd rather eat your own boundaries than have even one person believe that you're mean. since you don't know what the thing is that will make them hate you, you simply scrub yourself clean of any form of roughness. if you are perfect and smiling and funny, they can love you. if you are always there for them and never admit what's happening and never mention your past and never make them uncomfortable - you can make up for it. you can earn it.
don't fuck up. they're all testing you, always. they're tolerating you. whatever secret club happened, over a summer somewhere - during some activity you didn't get to attend - everyone else just... figured it out. like they got some kind of award or examination that allowed them to know how-to-be-normal. how to fit. and for the rest of your life, you've been playing catch-up. you've been trying to prove that - haha! you get it! that the joke they're telling, the people they are, the manual they got- yeah, you've totally read it.
if you can just divide yourself in two - the lovable one, and the one that is you - you can do this. you can walk the line. they can laugh and accept you. if you are always-balanced, never burdensome, a delight to have in class, champagne and glittering and never gawky or florescent or god-forbid cringe: you can get away with it.
you stare at your therapist, whom you can make jokes with, and who laughs at your jokes, because you are so fucking good at people-pleasing. you smile at her, and she asks you how you're doing, and you automatically say i'm good, thanks, how are you? while the answer swims somewhere in your little lizard brain:
how long have you been doing this now? mastering the art of your body and mind like you're piloting a puppet. has it worked? what do you mean that all you feel is... just exhausted. pick yourself up, the tightrope has no net. after all, you're cheating, somehow, but nobody seems to know you actually flunked the test. it's working!
aren't you happy yet?
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i need help with vet bills (again).
hi. for those of you who remember, earlier this year i asked for donations to help me afford toos' vet bills, who we found out through your help had kidney failure, and again with your help we got her on medication for it. unfortunately it wasn't enough, and we lost her. and then shortly after, dexter began deteriorating, which we put down to his grief of losing toos - she kept him young, he followed her everywhere, he only played because of her, he only ate when she ate, etc. without her he just stopped. and then he started to have seizures and fits daily. we got him blood tests, but he was suffering so badly. we made the decision to put him down. i didn't ask for donations this time, because i was so deeply embarrassed to ask for help again. but we are still recovering financially from that, as well as the parts of toos bills that didn't get covered from donations. my mother hasn't worked for a very long time, she's disabled and very sick, and she receives PIP from the government that only covers her monthly medications that are not covered by the NHS. my father retired early to become her full time carer, and we are living off his pension. i am too disabled to work, but because my mother already receives PIP and i live with them, the government are resistent to giving me any help - so i have zero income, and rely entirely on my parents.
this is jenny. she's a 14 year old cairn terrier, who loves when we garden because she wants to help dig holes. she helped us bury dexter and toos, digging their graves for them with my dads help. she's an angel, and loves people so much she likes to escape under the fence and join other families for awhile. one time she got into someones back garden and asked to come in as they were eating lunch. she really hates flies, and will try to bite them out of the air (she has never succeeded but i believe she will one day). she will rub her face against you until you start stroking her, and will growl and even bark if you stop! we don't have the money to take jenny to the vets, for a checkup or for anything they may want to do. this has been an ongoing issue, but toos and dexter took priority, and it hasn't been a bother to her. she existed as normal for a long time, but that's since changed.
jenny has this lump in her mouth, it is larger than the picture shows, but she is a nightmare to force open her mouth since this got so big, i think it's uncomfortable or painful for her. she can't properly close her lips now, and it has pushed all her front teeth away, misshaping her mouth, and sometimes it bleeds profusely. eating has become difficult for her, she can't eat anything hard, and currently will only eat soft human foods like rice, scrambled egg chopped up so small she doesn't have to chew, and things like soups and gravy. she's lost a lot of weight, and i'm getting frightened. to add onto it, i've found lumps like this across her body. i've done as much research as i can, and i believe it to be an oral tumor, it fits, and it looks right, and it spreading across her body is called 'full staging'. and going by all i've read - they will want to remove them in surgery. according to my research, this will cost anywhere from £585 - £4,740 for just the lump in her mouth. that's not including any checkup/test costs, or the other lumps on her body.
she hasn't been to the vet yet, i don't have any secure goal or bills to share, just my assumptions and beliefs from researching myself online. my parents refuse to take her because we can't afford it. i want to save up money, have it in my bank, and show them that we can help her now, before it gets worse, or it's too late. as i said before, i don't have any income, so the only way i can do this is with help.
here's a link to my paypal.me
the icon is a little mouse, and the @ is rivellon
i struggled so badly posting the first post like this for toos. i felt so guilty and embarrassed and ashamed. but i have no choice again, i want to help jenny. i don't want her to suffer. and selfishly, i can't handle losing another dog so soon. this year has been waking nightmare, and i need your help to stop it getting even worse.
please reblog and share, even if you can't donate.
thank you for reading.
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crows use tools and like to slide down snowy hills. today we saw a goose with a hurt foot who was kept safe by his flock - before taking off, they waited for him to catch up. there are colors only butterflies see. reindeer are matriarchical. cows have best friends and 4 stomachs and like jazz music. i watched a video recently of an octopus making himself a door out of a coconut shell.
i am a little soft, okay. but sometimes i can't talk either. the world is like fractal light to me, and passes through my skin in tendrils. i feel certain small things like a catapult; i skirt around the big things and somehow arrive in crisis without ever realizing i'm in pain.
in 5th grade we read The Curious Incident of the Dog In The Night-time, which is about a young autistic boy. it is how they introduced us to empathy about neurotypes, which was well-timed: around 10 years old was when i started having my life fully ruined by symptoms. people started noticing.
i wonder if birds can tell if another bird is odd. like the phrase odd duck. i have to believe that all odd ducks are still very much loved by the other normal ducks. i have to believe that, or i will cry.
i remember my 5th grade teacher holding the curious incident up, dazzled by the language written by someone who is neurotypical. my teacher said: "sometimes i want to cut open their mind to know exactly how autistics are thinking. it's just so different! they must see the world so strangely!" later, at 22, in my education classes, we were taught to say a person with autism or a person on the spectrum or neurodivergent. i actually personally kind of like person-first language - it implies the other person is trying to protect me from myself. i know they had to teach themselves that pattern of speech, is all, and it shows they're at least trying. and i was a person first, even if i wasn't good at it.
plants learn information. they must encode data somehow, but where would they store it? when you cut open a sapling, you cannot find the how they think - if they "think" at all. they learn, but do not think. i want to paint that process - i think it would be mostly purple and blue.
the book was not about me, it was about a young boy. his life was patterned into a different set of categories. he did not cry about the tag on his shirt. i remember reading it and saying to myself: i am wrong, and broken, but it isn't in this way. something else is wrong with me instead. later, in that same person-first education class, my teacher would bring up the curious incident and mention that it is now widely panned as being inaccurate and stereotypical. she frowned and said we might not know how a person with autism thinks, but it is unlikely to be expressed in that way. this book was written with the best intentions by a special-ed teacher, but there's some debate as to if somebody who was on the spectrum would be even able to write something like this.
we might not understand it, but crows and ravens have developed their own language. this is also true of whales, dolphins, and many other species. i do not know how a crow thinks, but we do know they can problem solve. (is "thinking" equal to "problem solving"? or is "thinking" data processing? data management?) i do not know how my dog thinks, either, but we "talk" all the same - i know what he is asking for, even if he only asks once.
i am not a dolphin or reindeer or a dog in the nighttime, but i am an odd duck. in the ugly duckling, she grows up and comes home and is beautiful and finds her soulmate. all that ugliness she experienced lives in downy feathers inside of her, staining everything a muted grey. she is beautiful eventually, though, so she is loved. they do not want to cut her open to see how she thinks.
a while ago i got into an argument with a classmate about that weird sia music video about autism. my classmate said she thought it was good to raise awareness. i told her they should have just hired someone else to do it. she said it's not fair to an autistic person to expect them to be able to handle that kind of a thing.
today i saw a goose, and he was limping. i want to be loved like a flock loves a wounded creature: the phrase taken under a wing. which is to say i have always known i am not normal. desperate, mewling - i want to be loved beyond words.
loved beyond thinking.
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Please help a disabled lesbian trans woman pay her phone bill!
My name is Aly. I've been having a really rough month, and really need help to pay my phone bill before the 17th. I just need $80. I lose access to so much without a phone. Any amount of help is very much appreciated!
Thank you to anyone who is able to help!
C/\sh /\pp: $DrMothMaam
Update: I have enough for my phone bill now! Thank you so much to everyone that helped me! You're all amazing!
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