I like to think that at least once, the Avatar cycle seemed to skip the Water Tribe—like people knew it was the water tribe’s turn, everyone was looking for them, the tests are done on all the kids, but like 60-80 years go by and no avatar until some Earth Kingdom kid shows up. People wonder if the cycle skipped a generation or what, but nothing serious was going on at that time so they shrug and move on.
It’s only many many years later that someone is researching Swampbender oral history and someone tells the story of “Ol Stinky Jess, she was a funny one, could light the swamp on fire an’ all sorts o’ shenanigans! Best catfishgator catcher in the tribe, she was” and thats literally it, she just lived a totally chill life in the swamp and nobody knew what an avatar was at the time so they just rolled with that funny gal’s odd bending ways.
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it's been said before and i'm sure said better than i can phrase it. but really, really - if you like making "i'm going to kill myself" jokes, please try switching to being ironically conceited instead.
anytime something goes wrong, say things like "ah well at least i'm beautiful and charming and everyone loves me." when you forget something, try "my big huge brain is so smart and thinking about too many other very big wizardly thoughts you wouldn't even understand." when you're frustrated by one of your symptoms, start talking like you're in My Immortal. "Life has come for me but my eyes are beautiful pools of gorgeous fire and my hair is amazing. I stuck my middle finger up at life and told it to fuck off and it did."
just... try it for a month or two. try saying the most absurdly self-congratulatory shit you can think of.
i know it's tempting to make suicide or self-harm jokes. and for me at least, a decade ago (!) when someone suggested i stop making those kinds of jokes, i was kind of at a loss for what to replace them with. i wanted to make light of these moments, but genuinely (at the time) my first thought really was suicidal ideation. there was a part of me that even felt like ... i was kind of "making light" of that voice. that if i could say i want to die lol, it would help take the sting out of that genuine (albeit passive) desire. like i could turn my illness into a joke.
when i started complimenting myself instead, it felt awkward and stupid. it felt really, really ironic. what i was actually saying was nobody would ever think this stuff about me, that's what makes it so fucking funny.
but. the effect was immediate. first thing i noticed was the people around me. when i dropped a glass and said ah my skin is too beautiful and sleek the glass has swooned and broken for me, other people were suddenly overjoyed to jump in with the joke. rather than making an awkward moment, we'd both start cracking up. ah princess sleek hands, i've heard of you.
i was 19. i hadn't noticed i'd been making others tense when i said i want it all to end. i know now that it's incredibly hard to know how to walk that moment - do you talk to them about your concern? do you potentially make them uncomfortable by asking if they're okay? do you ignore the situation? do you help them pick up the glass, or do they need to do it by themselves? are they genuinely made suicidal over this small moment? and most importantly, how do you - without professional training or supplies - actually help?
most people want to help you pick up the glass in your life, they just have no fucking idea how to do it. they don't want to make anything worse. they don't want to make assumptions about you. they love you, they're scared for you - and being scared makes people kind of freeze up. it's not because they don't love you. it's because they do.
now when something bad happens, my first thought is how can i make a stupid joke about this. it isn't my brain saying you're a dumb fucking bitch. i spend more time laughing. i spend more time being gentle with myself. i spend more time feeling good.
and the thing is - what's kind of funny - is that you'd be surprised by how many people agree with you. the first time i said i'm too pretty to understand that, someone else said to be fair you're the prettiest person in this room. i promise - you really don't know how kindly your friends see you. but they love you for a reason. they sort of reverse-velveteen-rabbit you. your weird and ugly spots fade away and you just become... the love they want to give you.
go love yourself ironically. the worst thing that happens is that you end up tricking your reflection into actually loving you.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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