you have to go to work so you can pay for your doctor, who is not taking your insurance right now, and if you say i can't afford the doctor's you are told - get a better job. it is very sad that you are unwell, yes, but maybe you should have thought about that before not having a better job.
(where is the better job? who is giving out these better jobs? you are sick, you are hurting - how the hell are you supposed to be well enough for this better job?)
but you go to the doctor because you had the nerve to be hurt or sick or whatever else. and they tell you that it is because you have anxiety. you try your best. you are a self-advocate. you've done the reading (which sometimes pisses them off worse, honestly). you say it is actually adding to my anxiety, it is effecting my quality of life. so they say that you are fat. they say that all young people have this happen to them, isn't it a medical marvel! they say that you should eat more vegetables. they say that you probably just need to lose a little more weight, and that you are faking it for attention.
(what attention could this doctor possibly give? what validation? that's their fucking job, isn't it?)
there is always a hypochondriac, right. someone always tells you about a hypochondriac. or someone who is unnecessarily aggressive during the worst days of their life. or someone looking "for a quick fix". or some idiot who wasn't educated about how to properly care for themselves who just abandons their treatment. and again, the hypochondriac, the overly-cautious hysteric. these people don't deserve to be treated like humans (right), and since you might be one of these people, you also don't get treated like a human. because those people can really fuck with the system, you now have to pay for it. and besides. you're actually probably faking it.
(more often than not, you find a 2:1 ratio of these stories. for every "hypochondriac", there are 2 people who knew something was wrong, and yet nobody could fucking find it. the story often ends with pointless suffering. the story often ends with and now it's too late, and it's going to kill me.)
you are actually just making excuses. someone else got that procedure or that diagnosis and he's fine, you should be fine too. someone else said they watched a documentary about other inspirational people with your exact same condition, maybe you should be inspirational, too. you're just too morbid. your pain and your experience is probably just not statistically concerning. it is all self-reported anyway, and you're just being a baby.
(once, while sitting down in the middle of making coffee, you had the sudden, horrible thought - i could kill myself to make the pain stop. you had to call your best friend after that. had to pet your dog. had to cry about it in the shower. you won't, but that moment - god, fuck. the pain just goes on and on.)
you know someone who went in for routine surgery and said i still feel everything. they told her to just relax. it took her kicking and screaming before they figured out she wasn't lying - the anesthetic drip hadn't been working. you know someone who went in for severe migraines who was told drink water and lose weight. you know someone who was actively bleeding out and throwing up in the ER and was told you're just having a bad period.
in the ER there are always these little posters saying things like "don't wait! get checked today!" and you think about how often you do wait. how often the days spool out. you once waited a full week before seeing the doctor for what you thought was a sprained wrist. it had actually been broken - they had to rebreak it to set it.
but you go into the doctor. the problem you're having is immediate. the person behind the counter frowns and says we're not taking your insurance. you will be paying for this out-of-pocket.
they send you home with tylenol and a little health packet about weight loss or anxiety or attention deficit. on the front it has your birthday and diagnosis. you think about crying, and the words swim. it might as well say go fuck yourself. it might as well say you're a fucking idiot. it might as well say light your money on fire and lie down in it. and the entire fucking time - the problem persists.
it's okay. it's okay, it's just another thing, you think. it's just another thing i have to learn to live with.
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"Do you know where we are going next?" I asked ART.
Y'know what, I think maybe I don't need any more Murderbot books. I think maybe ending things here is fucking perfect and as much as I love Wells's writing I'm genuinely not sure it can get better for me.
Like, so much of the books are about MB learning how to be a person, about becoming okay with being a complete individual with everything it entails. The first thing it does once it's actually allowed to decide on its own is it runs away from it all (admittedly to go on a mission to confirm some things about its past, because it genuinely just wants to be *good*). It shoves all its emotions away as much as it's able to. Then shit happens, and it makes its first friends, makes decisions based on these friendships, goes through a lot of emotionally intense situations...
And we get to this point here. MB having zero doubts about going with ART says a lot about its relationship with ART, but it also says a lot about its relationship with its humans - it knows that wherever it goes, when it comes back, the humans will still be there. Its humans actively acknowledge its struggles with being a now-free SecUnit and MB is willing to entertain the discussions to an extent and share information about its deeply personal experiences. Hell, System Collapse ends with MB admitting it might be somewhat broken, but that's okay as long as it can keep doing its job, and agreeing to basically do counselling - this is the guy what would rewatch its favourite TV show again and again in order to avoid acknowledging it even had Emotions a couple books back.
Reading this, I know that MB will be okay. It has hopes and goals and genuinely believes in itself and it has an amazing support system that its willing to lean on for the first time in its life. I'm convinced it'll go on to do great things with ART. And that's really the only thing I need to know.
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i think some of y'all don't understand. they are going to start charging disabled and immunocompromised people 1,000 for wearing a mask in public. they are already doing it in New York, they are planning to do it in Ohio.
They are going to put people who can't pay that 1,000 fine for protecting themselves with a mask IN PRISON for a year.
wear a goddamn mask to show solidarity with disabled folks now or openly admit that you don't care if we die.
we need you right fucking now. wear a fucking mask
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I've been having a severe PTSD episode for over five hours and it never registered because spending half the day in helpless fits of obsessive, murderous, paralysing rage is the nothing out of the ordinary for me. "Oh, I'm just an angry person like that" yes because I'm constantly triggered, retriggered and retraumatized by living disabled and dependent on Satan, who happens to be my egg donor.
It doesn't seem like I'll ever really internalise that these rages are PTSD episodes, especially since I'm a woman and therefore socially conditioned not to harm anyone except myself (that's a privilege reserved for six foot cis het men in charge of families who do the traumatizing). But in case it does anyone else good to hear: you aren't an "angry person". You have Complex PTSD. The rage outs are the exact equivalent of panic attacks and disassociation that Hollywood likes to show. The need to FIGHT is as a visceral, animal, instinctive and uncontrollable as the need for flight, to fawn, or to freeze. You aren't angry. You're fucking terrified and trapped and very, very ill.
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