Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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there are a lot of evil people in the world and a lot of darkness in the world and so it’s very important for me to stress that now more than ever is the time to spread kindness and compassion. combat the evil by not only not partaking in it, but actively refuting it. destroy the notion that being compassionate or generous or kind to someone is uncool or embarrassing or even scary. be the change you want to see. start a chain reaction. positivity only breeds more positivity. do an act of kindness for someone so that that person who is too afraid to do it themselves can see you, realize that they’re not alone, and perhaps sheepishly follow your example. and then the next person who is too afraid but sees that person can do the same. when bad news comes out about bad people or horrible atrocities in the world it’s such an easy impulse to despair, and obviously it’s important to feel what you need to feel. grieve. be angry. be sorrowful. be empathetic. but dust off your pants and get up and be a part of a chain reaction that, no matter how small the scale, and spread compassion and love and care. all the reasons why you might not—“it’s hard! it’s scary! people will make fun of me! it’s useless because there’s too much evil!” are all grade A arguments as to why you should. you have no idea how many people you could inspire to do the same. even if it doesn’t get you anyway far, you can at least say you have the nobility of trying. please choose love and please choose life. you are worth loving and you are worth inspiring others to love
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he says i hate everyone except you and that is addictive and that is kind of romantic and beautiful because you're young and you're kind of a sarcastic asshole too and you don't like bad boys, per say, but you don't really like good ones either. and you like that you were the exception, it felt like winning.
except life is not a romance book, and he was kind of being honest. he doesn't learn to be nice to your friends. he only tolerates your family. you have to beg him to come with you to birthday parties, he complains the whole time. you want to go on a date but - people are often there, wherever you're going. he's just so angry. about everything, is the thing. in the romance book, doesn't he eventually soften? can't you teach him, through your own sense of whimsy and comfort?
at first - you know introverts often need smaller friend groups, and honestly, you're fine staying at home too. you like the small, tidy life you occupy. you're not going to punish him for his personality type.
except: he really does hate everyone but you. which means he doesn't get along with his therapist. which means he has no one to talk to except for you. which means you take care of him constantly, since he otherwise has no one. which means you sometimes have to apologize for him. which means he keeps you home from seeing your friends because he hates them. you're the single exception.
about a decade from this experience, you'll type into google: how to know if a relationship is codependent.
he wraps an arm around you. i hate everyone except you. these days, you're learning what he's actually confessing is i have very little practice being kind.
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Ada Limón, from "Sanctuary," in The Hurting Kind
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Is it ... is it too much to ask for a smidgen of respect from a job anymore? Am I asking too much from a job to do anything but mindlessly accept every asinine assignment to my own detriment? Is the only way to survive anymore to submit your entire allotment of energy and emotional control to the job, for nothing outside of the workplace?
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