#being a chronically ill

[sweater-daddiesdumbdork]

Taking care of a parent is hard. Especially when they just lie to themselves and continously justify their bad habits that are hurting them.

To try and be supportive and pick them up all while you are doing your own journey in trying to fix yourself.

When you are peeling back your own layers and now seeing what their trauma has done to you and learning to forgive them for it. Or not. Everyone is different in this case and that's okay.

I do know everyday I will try to be firm in boundaries with them while attempting to be patient and understanding. That I will continue to try be a version of myself who can love gently the parts that need care as well as fiercely to the parts that need fixing.

[virtualplushy]

“what have you been up to lately?” i don’t leave the house

[little-pissbaby]

fun fact about me! I have hyperadrenergic Postural Orthostatic Tachycardia Syndrome (hPOTS). this means I am prone to fainting when I change positions or when I feel a strong surge of emotion, positive or negative. for me, laughing is my worst non-postural trigger.

this is a clip from playing lethal company with friends a few months ago. you can hear the eerie silence of presyncope at 0:19, and the sound at 0:23 is my face hitting the keyboard lmao. I played this for my mother and she literally pissed herself laughing and DEMANDED I show every single person I know (including my doctors, who thought it was funny to see and surprisingly helpful, especially for being audio only).

[chronicpaingirlie]

as much as i appreciate the intent of the “being disabled doesn’t make you a burden” type posts, i don’t really agree. a lot of times being disabled DOES make you a burden

& i think that maybe we should try to shift focus to the fact that even if you’re a huge burden on society and can contribute absolutely nothing, you’re still a human being who deserves to exist.

like. there’s nothing morally wrong with being a burden on other people. you aren’t a bad person for needing to rely on others. you’re allowed to be a burden & disabled people who are burdens on others, i love you

[adragoncalledcat]

The child athlete to chronically ill/disabled pipeline is NOT for the faint of heart

[wheelchairtetris]

IT IS OKAY TO BE A BURDEN! YOU ARE ALLOWED TO BE A BURDEN! IT IS NOT A REFLECTION OF YOUR MORALITY!

[plague-parade]

if upon being told about someones illness/condition, your first thought is to say “have you tried X?” i want you to step back for a moment and think to yourself “if i thought of X after hearing about this condition for the very first time, the person who has this condition very likely has thought of this and possibly tried it already”

we are tired of constantly being told to try the same things by people who didnt know our condition existed five minutes ago.

you dont need to offer any solutions or try to fix us. i know it might seem like a polite thing to do or that it shows you care, there are other ways to show us you care.

[starry-bi-sky]

i think i'm hilarious -- aka i made blood blossom danny au memes

all of these come from my DpxDC prompt "i am pushing the batdad agenda--" and it's corresponding additions in the reblogs ksdjlf.

i am. rotating them in my head. forever and always. personally i think there should be more batdad aus in dpxdc, their dynamic could be neat. :)

[thedisablednaturalist]

I think when people think of mental illness and what helps, especially with things like anxiety and depression, the treatment involves pushing yourself. Pushing yourself to get out of bed, to exercise, to take a shower, to go out in public, to order your own food from the cashier, etc.

And because the mental health movement has grown so much, people think that's the default of ALL illnesses. That the only way someone will get better is if they push themselves. That practice makes perfect. That you'll become more comfortable or strong over time the more you do something.

But what people need to realize is, with physical disabilities and chronic illnesses, pushing yourself in most cases is DETRIMENTAL. Pushing yourself past your limits can lead to flare ups or further injury. That's why it's important to know your limits, how certain activities may affect your condition, and learn how to either adapt or get help to complete the activity in question.

Also, most of us are already pushing ourselves. Most of us don't have access to the help or equipment we need. Most of us live in places where we frequently encounter inaccessible obstacles. Most of us NEED to rest.

So please don't try to be our physical therapists or doctors. There are people specifically trained to help us navigate our own conditions and limitations. There are people trained to help us strengthen our body's resilience without causing flare-ups or injury. Do not tell us "it'll be good for you" or "you need the exercise" when we say something is too heavy or too far or when we say we need our mobility aid(s). Your friend with depression may need to be encouraged to get out of bed, but your friend with chronic illness definitely doesn't.

Respect our rest.

[sweater-daddiesdumbdork]

It bites when it's finally nice out and your body just decides to shut down.

My period is here, with a heavier flow then normal, I can't stop yawning, shivering and my BP is low (due to other factors, but the period probably is not.helping any of that) and my entire body is aching due to all these things added up.

I guess on my afternoon I will be in bed instead.of taking Tika out exploring. 🥺

[akindplace]

it’s okay if getting better is taking longer than you hoped to. if getting better doesn’t mean getting cured. if somedays are better than others. if others seem to heal faster. if it’s exhausting. if your illness is chronic and progressive. it doesn’t mean people won’t love you as you are, it doesn’t mean you don’t deserve help, it doesn’t mean that you can’t ever be happy. you still deserve care, love and kindness when you’re suffering, and i hope you find it within yourself to feel compassion towards your own body, even if some people might not, even if it doesn’t work in the way you wished it would, even if it’s different.

[uncanny-tranny]

I think it would really benefit people to internalize that mental illnesses are often chronic and not acute. Some of us will never be able to jump the hurdle of managing illness, much less sustaining a sense of normalcy. Many of us will never "recover," will never manage symptoms, will never even come close to appearing normal - and this is for any condition, even the ones labeled as "simple" disorders or "easy-to-manage" disorders.

It isn't a failure if you cannot manage your symptoms. It isn't a moral failure, and you aren't an awful person. You are human. There's only so much you can do before recognizing that you cannot lift the world. Give yourself the space to be ill because, functionally, you are.

[fella-lovin-fella]

hey if you ever feel like you're faking your pain/mental illness/any symptoms, or if you feel like no one understands or believes you. i do. i believe you. i love you and i hope you do what you can to take care of yourself <3

[furfag-cringelord]

happy disability pride month to anyone having a really bad flare-up rn btw. take care of yourself

[wheelchairtetris]

Shout out to chronically ill and disabled people with underresearched or rare illnesses. It can be so frustrating to find very little information on your illness, very little community, or understanding. We deserve better.

[trek-tracks]

boy chronic illness really is just a series of small moments where you throw up your hands and internally scream, "THAT'S IT!! I'VE HAD IT!! THIS IS THE END!!" and then sigh and continue on as normal