#disability advocacy resources

[chronicsymptomsyndrome]

“alt text for more info” “turn on cations for more info” no actually this is not where more info goes. These have a very distinct purpose. There are plenty of other places for more info. If you’re going to make your post inaccessible, the least you could do is not use accessibility tools at your own leisure for whatever purpose you see fit.

[azuremist]

A guide to all accessibility-related needs on the indie web!

I've been sharing this site around in all sorts of places, but I wanted to post it here, too - the Accessible Net Directory!

The indie web has a problem with accessibility. Namely, it seems like very few creators care to implement it. Which I get! It seems daunting to tackle at first. But also, it makes the indie web really, really difficult to traverse for disabled folks.

The Accessible Net Directory is two-fold in its uses.

1) It provides disabled people a list of safe indie sites

In order for a site to be featured on the directory, it needs to meet basic accessibility guidelines. This includes (but isn't limited to) no autoplay, unlabeled flashing images, low contrast, small / hard-to-read fonts, keyboard inaccessibility or non-described images.

Additional, non-required accessibility options for the directory are encouraged, and listed in a site's description on the directory. (Such as zoom-friendliness and different font options.)

2) It provides webmasters a ton of resources for implementing accessibility

It not only provides a list of steps one can take to make their site more accessible, but also provides the "why" of each step.

For example - one listed guideline for the directory is to use rem/em instead of px units for font sizes. Why? Well, the directory explains, "Users with low vision may need to increase the size of the text in order to be able to read and see better. Therefore it is important to always use scalable units for text."

Then, it goes on to list RESOURCES for changing px to rem/em!!

This site is an absolute treasure trove of resources for making your site accessible, and doing so with ease! I've used the resources listed to make my own site more accessible, and it's made the process seem so much more manageable!

So! If you run a personal site, then give the site a look, learn about accessibility practices, and apply them to your site! An inaccessible web is not a free web!

[crippledpunks]

actually- my chronic & mental illness does define me- it's a very huge part of my life. it can't be ignored. it can't be placed on the back burner. it cannot be "powered through". it is there 24/7 whether or not i want it to be. i have to constantly explain to people why i do things is because of my schizophrenic and autistic neurotypes, or that im in severe pain from one of my various problems that cause pain

trying to mock certain disabled people who have to talk about and seek care for their disabilities on a daily basis is unnecessary and violent. it's oppressive. my disorders literally define me, my schizophrenia and autism dictate most of my behaviors. my body is constantly in pain, my guts are constantly affected by my IBS. i am constantly anxious from my PTSD and constantly dissociating from my DID.

if you personally feel as though your illnesses don't define you, that is great for you. i'm not saying chronically ill folks can't feel that way, but what i am saying is stop punching down on those of us who have a lot of their lived experience rooted in their disorders, diseases and neurotypes.

things go into remission or make progress with healing, but most chronic illnesses never fully go away and it's just bullshit to make chronically ill people feel like they can never complain about their issues. it's not an inconvenience to you, it's us expressing what we're going through. stop acting like us talking about our lived experience is an attack on your person. i'm sorry hearing that someone else is in pain sucks to hear but it sucks FAR more to BE IN PAIN

[thepeopleinpower]

Capitalism and colonialism took community away from us and I want it back. I’ve heard about it from my grandparents and in books and articles online. All throughout history and still today in some parts of the world. People looking out for each other. Regularly. Relentlessly. Neighbors watching each others children, having enough food to share and actually sharing it, being invested in each others lives because everyone has different strengths.

Today community has been strategically painted as a weakness and something to be skeptical of because it is a threat to the very foundations of capitalism. And that’s a real fucking shame because in reality, growing up with community and still having that through adulthood would probably make most people generally happier and less perpetually tired and stressed. It is renewable resilient versatile adaptable self-sustaining and kind of the Ultimate Resource.

[arocoded]

Covid is still here and it's surging!

[PT: "Covid is still here and it's surging!" End PT.]

Research shows that Covid is currently surging and a new variant has developed: Eris, a descendant of Omicron [x].

Wear an N95 or better mask. Check that it's certified on this list [x]. Make sure it properly fits your face and that air isn't escaping.

Covid is airborne and can stay in the air [x]. Install a HEPA filter in your home (avoid anything labeled "HEPA-style," "HEPA-ready," etc. [x]). Run it at full blast. Install a CO2 monitor as well. Open your windows to get air flowing.

Test regularly. PCR is the gold standard. If you do rapid tests, do serial testing— three tests over the course of 5 days. False negatives are very common for rapid tests [x]. Expiration dates for rapid tests have also been extended [x].

Keep track of COVID news online. Listen to immunocompromised / disabled people. Share research and information with family and friends.

Take political action. Demand better precautions from the government. Organize.

Most importantly: do what you can. Adapting to COVID is costly, especially without insurance.

Covid affects everyone.

Resources:

[PT: "Resources:" End PT.]

Resist Covid Eugenics Carrd [x]

How to Talk to Your Loved Ones About Covid [x]

Let Them Eat Plague [x]

Covid Docs compiled by Kim Crawley [x]

Twitter thread of research by Laurie Allee [x]

People's CDC [x]

People's PPE [x]

Project N95 [x]

Tiktok collection of info and commentary [x]

[always-angelic-aspie-alice]

Featuring the Ballet-Core Babe Outfit 🩰

This is one of the many unique looks featured in my upcoming Video Resource about Sensory-Friendly Outfits that will be published this weekend/10th of September.

I asked this question in my Spotify podcast S3E6 of Always Angelic Aspie Alice, which was, 'What is your current style aesthetic? Or do you rather not label your style?'

Looking forward to meeting you all on Tumblr! But, I am still getting used to this new social media platform- I only recently joined. The good thing is I aim to post my own content or reshare someone else's once a week.

Xo, Always Angelic Aspie Alice 🦋

[lilyliveredlittlerichboy]

okay this is gonna be Controversial or whatever and i don't really care but you have Got to stop acting like people using words in contexts you don't like. is the most important problem that we all need to focus a lot of energy on. This is vaguely in response to someone i saw going off at someone who's post they Entirely Agreed With but op said "delusional" in a not exactly positive context and THAT became the issue to focus on, rather than the actual subject at hand.

like please. can you stop. for a moment. take a deep breath. and remember that this is not the most important issue for disabled people in real life. nowhere near. nowhere near

we all have limited energy especially disabled people. and there's so many things you can do that will make disabled people's lives tangibly better, beyond just avoiding being upset by a string of letters. the words are not the problem. the words may be a symptom of underlying societal issues but please can we address the societal issues instead of yelling at people about words. you're just gonna make people defensive and then you've created a division and an enemy where there really needn't be one. when you could be spending your energy in so many other, more useful ways

here's a couple examples ok

disability benefits/welfare. lobby your government. get involved with activist groups. campaign for disabled people to get enough money to live on and then some. campaign to remove barriers to access to support disabled people are (/ should be) entitled to

social stigma around disability. this doesn't mean yell at people over words they use but it does mean this. tell people being disabled (/delusional/crazy etc) isn't a bad thing, campaign for mental illness and neurodivergence to be seen as disabling conditions, make people aware that the vast majority of us will become disabled permanently or temporarily at some point in our lives. destigmatise use of mobility aids and such. make support easily accessible and don't make disabled people have to ask and fight for support where it can be avoided. don't make disabled people prove their disability and don't make them have to get more sick in order to get help. etc.

there's so much more but this is like the most basic stuff n i might make a seperate post about this. point being. stop making it seem like words people use are the main issue When They're Really Not.

seriously. discourse about what words are okay to use in what context is a great way to stall progress and distract from the actual issues disabled people face, that threaten their lives and livelihoods. just look at what's happened with lgbtq activism - progress is reversed and erased while baby queers fight each other about slurs. its sickening

by arguing about language you're putting the cart before the horse. can we please make sure we don't have to fucking fight for our lives first. and THEN maybe we can tell people to stop using deluded in a negative way. but can we make sure disabled people can survive and thrive first. can that be the focus of our activism please. yelling about words is not real activism holy shit you guys.

[copperbadge]

I'm getting depressingly good at identifying the formula for Pop Academic Books About ADHD.

Regardless of their philosophy it pretty much goes like this:

1. Emotionally sensitive essay about the struggle of ADHD and the author's personal experience with it as both a person with ADHD and a healthcare professional.

2. Either during or directly following this, a lightly explicated catalogue of symptoms, illustrated by anecdotes from patient case studies. Optional: frequent, heavy use of metaphor to explain ADHD-driven behavior.

3. Several chapters follow, each dedicated to a symptom; these have a mini-formula of their own. They open with a patient case study, discuss the highly relatable aspects of the specific symptom or behavior, then offer some lightweight examples of a treatment for the symptom, usually accompanied by follow up results from the earlier case studies.

4. Somewhere around halfway-to-two-thirds through the book, the author introduces the more in-depth explication of the treatment system (often their own homebrew) they are advocating. These are generally both personally-driven (as opposed to suggested cultural changes, which makes sense given these books' target audience, more on this later) and composed of an elaborate system of either behavior alteration or mental reframing. Whether this system is actually implementable by the average reader varies wildly.

5. A brief optional section on how to make use of ADHD as a tool (usually referring to ADHD or some of its symptoms as a superpower at least once). Sometimes this section restates the importance of using the systems from part 4 to harness that superpower. Frequently, if present, it feels like an afterthought.

6. Summation and list of further resources, often including other books which follow this formula.

I know I'm being a little sarcastic, but realistically there's nothing inherently wrong about the formula, like in itself it's not a red flag. It's just hilariously recognizable once you've noticed it.

It makes sense that these books advocate for the Reader With ADHD undertaking personal responsibility for their treatment, since these are in the tradition of self-help publishing. They're aimed at people who are already interested in doing their own research on their disability and possible ways to handle it. It's not really fair to ask them to be policy manuals, but I do find it interesting that even books which advocate stuff like volunteering (for whatever reason, usually to do with socialization issues and isolation, often DBT-adjacent) never suggest disability activism either generally or with an ADHD-specific bent.

None of these books suggest that perhaps life with ADHD could be made easier with increased accommodations or ease of medication access, and that it might be in a person's best interest to engage in political advocacy surrounding these and other disability-related issues. Or that activism related to ADHD might help to give someone with ADHD a stronger sense of ownership of their unique neurology. Or that if you have ADHD the idea of activism or even medical self-advocacy is crushingly stressful, and ways that stress might be dealt with.

It does make me want to write one of my own. "The Deviant Chaos Guide To Being A Miscreant With ADHD". Includes chapters on how to get an actual accurate assessment, tips for managing a prescription for a controlled substance, medical and psychiatric self-advocacy for people who are conditioned against confrontation, When To Lie About Being Neurodivergent, policy suggestions for ADHD-related legislation, tips for activism while executively dysfunked, and to close the book a biting satire of the pop media idea of self-care. ("Feeling sad? Make yourself a nice pot of chicken soup from scratch and you'll feel better in no time. Stay tuned after this rambling personal essay for the most mediocre chicken soup recipe you've ever seen!" "Have you considered planning and executing an overly elaborate criminal heist as a way to meet people and stay busy?")

Every case study or personal anecdote in the book will have a different name and demographics attached but will also make it obvious that they are all really just me, in the prose equivalent of a cheap wig, writing about my life. "Kelly, age seven, says she struggles to stay organized using the systems neurotypical children might find easy. I had to design my own accounting spreadsheet in order to make sure I always have enough in checking to cover the mortgage, she told me, fidgeting with the pop socket on her smartphone."

I feel a little bad making fun, because these books are often the best resource people can get (in itself concerning). It's like how despite my dislike of AA, I don't dunk on it in public because I don't want to offer people an excuse not to seek help. It feels like punching down to criticize these books, even though it's a swing at an industry that is mainly, it seems, here to profit from me. But one does get tired of skimming the hype for the real content only to find the real content isn't that useful either.

Les (not his real name) was diagnosed at the age of 236. Charming, well-read, and wealthy, he still spent much of his afterlife feeling deeply inadequate about his perceived shortcomings. "Vampire culture doesn't really acknowledge ADHD as a condition," he says. "My sire wouldn't understand, even though he probably has it as well. You should see the number of coffins containing the soil of his homeland that he's left lying forgotten all over Europe." A late diagnosis validated his feelings of difference, but on its own can't help when he hyperfocuses on seducing mortals who cross his path and forgets to get home before sunrise. "I have stock in sunburn gel companies," he jokes.

[ctbraininjurysupportservice-blog]

Ongoing Silence! Lack of Transparency in Connecticut's Federally Funded Programs Raises Alarm

Secret Directory and Practices: Concerns Rise for Brain-Injured Individuals in Connecticut Medicaid

Federal Anti-Kickback Statute | Medicaid Referral Fraud | ABI RESOURCES

Transparency and Accountability Concerns in CT's Federally Funded Programs for Brain Injury Care

Care Managers. Do you have the right to change yours? Understanding Protecting Your Freedoms

Investigating the Legality and Impact of CCC's Secret Electronic Randomization System on Federally

Disability Rights Connecticut (DRCT) Team

Dear Brain Injury Alliance of Connecticut ( BIAC )

Dear Governor Ned Lamont, Advocacy Request for Brain Injury Survivors

Alleged Discrimination at Connecticut Community Care | Calls for Internal Investigation

The Importance of Informed Choice in Achieving Free Choice in Healthcare.

Informed Choice and Its Implications for Connecticut's ABI Waiver and MFP Programs

Steps for Consumers to Officially Change Care Managers in MFP and ABI Waiver Programs.

Enhancing Ethical Systems / Advocating for Consumer Rights and "Request to change Care Manager Form

Are They Leaving People with Slower Recovery Behind? MFP and ABI Waiver Programs

Freedom of Information Act Request - Connecticut ABI 1549P Consultation Services Funding.

[five-thousand-loaves-of-bread]

autism awareness & autism acceptance not either or. not mutually exclusive. can coexist. need coexist.

“there enough awareness for autism already 🙄 we need acceptance”

ok. you aware of high support needs autism? aware what that even means? not “need reminder take meds need remind take shower” “high” support needs autism, but “need full physical help do bADLs lack danger awareness may accidentally hurt self or even kill self without support” high support needs autism? not just higher support needs people who can be independently online do advocacy, but those who need help from others even be online, or those who cannot be online at. all.?

aware of nonverbal nonspeaking people? not just nonverbal nonspeaking people who can write grammatically correct cannot tell apart base on writing. not just nonverbal nonspeaking people who can be online who can advocate online.

aware of nonverbal nonspeaking people who cannot communicate in way that easily understood, either for now, or ever? aware of nonverbal nonspeaking people without functional communication, aware of how without functional communication, how that drastically limit communication, even though behaviors are valid communication? aware of nonverbal nonspeaking people who may never use AAC fluently even with best support?

aware of technically verbal but very limited verbal autistics who may only able say wants & needs but not other things and certainly not online advocacy, “despite being verbal”?

aware of just how much our life depends on caregiver/carer/PCA/etc? aware how vulnerable that make us? aware of abuse from caregivers? aware of caregiver burnout from lack of support for caregivers, & how that impact our care we receive? have you even heard of term respite care? aware of those of us who cannot separate ourselves from caregiver? aware of those of us who cannot participate in autism community without caregiver?

aware of visibly autistic people? aware how we not automatically believed? aware how we often bear blunt of violence because we most easily identified target because we visible? aware visible =/= get support, aware that many those diagnosed severe who now adult so no longer qualify for services under 21 year old, languish in hospitals because nowhere to go? aware how long life saving necessary waitlists are? aware that even to this day parents have to fight school fight day service fight government fight insurance for them give their nonverbal nonspeaking child AAC & be properly taught how use it? actually, are you aware of how properly teach AAC to nonverbal nonspeaking, developmentally delayed child who may or may not have intellectual disability?

actually, aware of autistics with (correctly diagnosed) intellectual disability & how they make up big amount of autistic? aware of institutional systemic & legal impact of mental [r word] right & the human rights abuse justified using r word right? wait, you aware that r word come from old term for intellectual disability, that, actually, still in many laws because no one bothered updating, right? aware of what severe profound ID look like? and aware they real and they still human deserve education deserve life deserve care, yes?

aware of early diagnosis 20 30 or even 10 years ago, not same as now, even less resources & knowledge about autism now? aware that while gender race class 1000% impacted diagnoses, a lot of early diagnosed people early diagnosed because… they die without support unlocked by diagnosis, right? but also, aware that in old times, early diagnosis often did mean doom, not because autism bad or anything, but because severe lack of support & diagnosis can literally bar you from so many things including basic education?

aware that for many people in special education, which impact specific group of autistic people, they not get degree when graduate high school, they just get certificate, which limit their educational & employment opportunities & others?

aware of life saving importance and necessity of masking for autistic of color especially Black autistic people, despite stress inducing traumatic? aware that live in broken system be victim of hate crime & police brutality just as traumatic often even more traumatic than masking? aware that many Black & other parents of color forced to teach their child masking because of this?

are you aware of most marginalized autistic people? aware of leadership of most impacted?

aware you can and need to care about autistic experiences & form of autism you not experience? aware that you can and need to do that without try twist your experience into our experience into our words our community?

aware that advocacy goes beyond about you?

aware that you can’t speak for all autistic? aware that you shouldn’t speak for all autistic?

are you aware of when you need to stop talking & listen & amplify others? aware of when and how to decenter self?

aware that even this long post, barely scratch surface? still so much to say?

[better worded version of original post]

[cy-cyborg]

We have communities - Writing disability quick tips

So often, stories centred on disabled characters, especially in modern settings, emphasise how lonely or isolated the character is because of their disability, especially if it’s a newly acquired disability or one that non-disabled people assume would have a big impact on our ability to do “fun stuff”. This will often be accompanied by statements of “no-one understands what living with [insert disability here]” is like!

And while isolation and loneliness are things a lot of disabled people deal with, a lot of us are not completely alone either, especially in the modern day.

Just like any group of people with shared experiences, we find one another. Sometimes this is through formal systems; some spinal rehabilitation centres for example, will pair newly paralysed people up with a mentor who’s had a similar form of paralysis for much longer to help guide the person while the adjust to their new disability. Other more formal systems can look like disability sporting organisations - the one I used to work for used to specifically encourage very newly disabled people to join so they didn’t feel like the had to learn everything about their disability alone, or support groups.

Other times though, these communities are much less formal. They may look like online forums, such as the ones on Reddit, built by and for disabled people to talk about their experiences and seek recommendations from others in the same boat, or parts of larger social media sites. For example, on Tumblr, there aren’t really any formal groups, but thanks to the hashtags we use in our posts, we often find one another fairly quickly there. We sometimes also carve out our own little subsections of fandom or hobby spaces, brought together by the shared interest itself, how things like disability might impact the way you interpret or interact with it, and how we can modify it (in the case of hobbies) to make it work for us.

A lot of disability communities, formal or otherwise, also form out of necessity, such as advocacy groups run by and for disabled people, and those built around ensuring the rights of disabled people are protected.

Isolation and loneliness are problems within the disabled community that many of us deal with, but this tends to be more in the context of isolation from the wider public, exclusion from public spaces and events (despite there being laws that are supposed to stop this because they’re often not enforced), disconnect from non-disabled friends and family, etc, most of which are the result of systematic issues or the lack of understanding or care and support from non-disabled people in our lives. Not always, but often.

The communities made by and for disabled people though are often (at least in part) made to help make up for this, and they’re more common than you might think, you just have to know where to look. It would be nice to see more creators reflecting this in their work a bit more often, or at least acknowledging that they are there, even if your character chooses not to engage with them.

However, as a reminder to authors and creatives: These communities, especially the online ones, are for disabled people, they are not there for you to use as a reference as a creator. Some communities are ok with you being there to learn, so long as you listen and don’t try to speak over/bombard their members with questions. Others are not. The ones that are, typically will have something written somewhere if it’s online (e.g. subreddits that accept writers wanting to write disabled characters will often have it written in the “about” section or the rules). There are also dedicated groups and platforms for non-disabled people seeking to learn more about us and our communities, which can be excellent resources for creatives like writers. Just remember to be mindful of where you are and respectful of people’s spaces and boundaries when doing your research.

[chronicsymptomsyndrome]

Barbie 2023 with asl <3

[cartoonistcoop]

CARTOONIST COOPERATIVE FOR DISABILITY ADVOCACY!

We encourage folks to share this resource with in-person event organizers who are responsible for the health and safety of immuno-compromised attendees, artists, and vendors.

[trans-axolotl2]

I've been reading Cripping Intersex by Celeste Orr and one concept that I think is absolutely crucial and one of the best resources I've found for understanding my own experiences as an intersex person is the term Compulsory Dyadism.

Dr. Orr coins the term: "I propose the expression 'compulsory dyadism' to describe the instituted cultural mandate that people cannot violate the sex dyad, have intersex traits, or 'house the spectre of intersex' (Sparrow 2013, 29). Said spectre must be, according to the mandate, exorcised. However, trying to definitively cast out the spectre via curative violence always fails. The spectre always returns: a new intersex baby is born; one learns that they have intersex traits in adulthood; and/or medical procedures cannot cast out the spectre fully, as evidenced by life-long medical interventions, routines, or patienthood status. And the effects of compulsory dyadism haunt in the form of disabilities, scars, memories, trauma, and medical regimens (e.g., HRT routines). Compulsory dyadism, therefore, is not simply an event or a set of instituted policies but is an ongoing exorcising process and structure of pathologization, curative violence, erasure, trauma, and oppression." (Orr 19-20).

They continue on in their book to explore compulsory dyadism as it shows up in medical interventions, racializing intersex + sports sex testing, and eugenic and prenatal interventions on intersex fetuses. This term makes so much sense to me and puts words to an experience I've been struggling to comprehend--how can it be that so many endosex* people express such revulsion and fear of intersex bodies and traits, yet at the same time don't even know that intersex people exist? Why is it that people understand when I refer to my body in the terms used by freak shows, call myself a hermaphrodite, remember bearded ladies and laugh at interphobic jokes--yet do not even know that intersex people are as common as redheads? Understanding the term compulsory dyadism elucidates this for me. Endosex people might not comprehend what intersex actually is or know anything about our advocacy, but they do grow up in a cultural environment that indoctrinates them into false ideas about the sex binary and cultivates a fear of anything that lies outside of it.

From birth, compulsory dyadism affects every one of us, whether you're intersex or not. Intersex people carry the heaviest burden and often the most visible wounds that compulsory dyadism inflicts, as shown through often the very literal scars of violent, "curative" surgery, but the whole process of sex assignment at birth is a manifestation of compulsory dyadism. Ideas entrenched in the medical system that assign gender to the hormones testosterone and estrogen although neither of those hormones have anything to do with gender, a society that starts selling hair removal products to girls at puberty, and the historical legacy of things like sexual inversion theory are all manifestations of compulsory dyadism. For intersex people, facing compulsory dyadism often means that we are subjected to curative violence, institutionalized medical malpractice that sometimes includes aspects of ritualized sexual abuse, and means that we are left "haunted by, for instance, traumatic memories, acquires body-mind disabilities, an ability that was taken, or a 'paradoxical nostalgia....for all the futures that were lost' (Fisher 2013,45)." (Orr 26).

Compulsory dyadism works in tandem with concepts like compulsory able-bodiedness and compulsory heterosexuality to create mindsets and systems that tie together ideas to suggest that the only "normal" body is a cisgender one that meets capitalist standards of function, is capable of heterosexual sex and reproduction, and has chromosomes, hormones, genitalia, reproductive system, and sex traits that all line up. Part of compulsory dyadism is convincing the public that this is the only way for a body to function, erasing intersex people both by excluding us from public perception and by actively utilizing curative violence as a way to actively erasure intersex traits from our body. Compulsory dyadism works by getting both the endosex and intersex public to buy into the idea that intersex doesn't exist, and if it does exist then it needs to be treated as a freakshow, either exploiting us to put us on display as an aberration or by delegating us to the medical freakshow of experimentation and violence.

Until we all start to fully understand the many, many ways that compulsory dyadism is showing up in our lives, I don't think we're going to be able to achieve true intersex liberation. And in fact, I think many causes are tied into intersex liberation and affected by compulsory dyadism in ways that endosex people don't understand. Take the intense revulsion that some trans people express about the thought of medical transition, for example. Although transitioning does not make people intersex and never will, and the only way to be intersex is to have an intersex variation, I think that compulsory dyadism affects a lot more of that rhetoric than is expressed. The disgust I see some people talking about when they think about medical transition causing them to live in a body that has XX chromosomes, a vagina, but also more hair, a larger clitoris--I think a lot of this rhetoric is born in compulsory dyadism that teaches us to view anything that steps outside the sex dyad with intense fear and violence. I'm thinking about transphobic legislation blocking medical transition and how there's intersex exceptions in almost every one of those bills, and how having an understanding of compulsory dyadism would actually help us understand the ways in which our struggles overlap and choose to build meaningful solidarity, instead of just sitting together by default.

I have so much more to say about this topic, and will probably continue to write about it for a while, but I want to end by just saying: I think this is going to be one of the most important concepts for intersex advocacy going into the next decade. With all due respect and much love to intersex activists both current and present,I think that it's time for a new strategy, not one where we medicalize ourselves and distance ourselves from queer liberation, not one where we sort of just end up as an add on to LGBTQ community by default, not even one where we use a human rights framework, nonprofits, and try to negotiate with the government. I agree with so much of what Dr. Orr says in Cripping Intersex and I think the intersex and/as/is/with disability framework, along with these foundational ideas for understanding our own oppression with the language of compulsory dyadism and curative violence, are providing us with the tools to start laying a foundation for a truly liberatory mode of intersex community building and liberation.

*Endosex means not intersex

Endosex people, please feel free to reblog!

[sweatermuppet]

What is it like being trans in New Hampshire? I'm trans in Maine and generally consider NH the black sheep of New England when it comes to queer politics. Some of my trans friends consider it a no-stop zone on our roadtrips.

uh it's pretty fine for me. i get kinda sad when people say NH isnt trans friendly (a sentiment ive seen a lot lately). i had an openly transitioning teacher in high school. i had many gay teachers in high school. i was one of the first kids to transition openly at my school & there were a lot of struggles but it was also 6+ years ago & mostly teachers were under-educated & didn't know how to protect me. i got in a fight & suspended over a kid who was transphobic toward me, but i was allowed to use the boy's bathroom & locker room & all of my core teachers were pretty good about using my name & pronouns

i have multiple trans friends, just locally, & know other trans people a little further out in NH from following them on IG. some pretty decent art scenes in various towns & those are LGBT-dense. one of my trans friends started estrogen yesterday (prescription thru informed consent). i will say in my experience, NH healthcare is lacking for transsexuals—it's been easier for me to go thru Massachusetts or NH planned parenthoods, but ive been able to receive treatment fairly easily (cost being one of the only major negative factors)

as for people, a lot of folks kind of don't care? there are of course republicans & conservatives & a disheartening amount of libertarians, but in my day to day, it's mostly "live free or die" & if you're not hurting anyone, it's not too big of a deal. some of the republicans in my life (like friends' dads) have the attitude of "well i don't get it" but they still call me silas & are generally alright with me, aren't hostile towards me

i see trans flags pretty often. i saw a bumper sticker last month that was the shape of NH completely colored in with the trans flag. there are a bunch of coffee shops & bookstores & artsy places nearby i can think of that employ trans people, house trans art, etc

recently, anti-trans & anti-LGBT bills have been introduced & passed in NH. two passed last month, which can be read about here. i saw some pretty disgusting sentiments shared about those bills on twitter when they were introduced. those make it harder to exist here, but it's not impossible & it does not immediately make all residents hostile toward transsexuals. i don't want people to abandon NH because they think it's too far gone or too hopeless. trans people will always exist in every state & every country & every corner, no matter how hostile those places become

people here love me, regardless of how political parties view me. people here fight for me. there are trans people & Black people & disabled people here who are more vulnerable than me who i want to stay & fight for & protect. if you'd like to learn more about diversity in NH & how to protect various human rights, here are some orgs i am familiar with:

NH PANTHERS (anti-racism advocacy & education)

Queer-Lective (art, education, & connection)

Black Lives Matter NH

GLSEN NH (LGBT resources & education for schools/teachers/students)

Reproductive Freedom Fund of NH (abortion fund, sex ed, LGBT advocacy)

603 Equality (LGBT advocacy & education)

Lovering Health Center (reproductive care, LGBT education, gender affirming care for NH, MA, & ME)

Black Heritage Trail of NH (Black history)

ACLUNH (civil liberties + human rights)

[autisticadvocacy]

The Autistic Self Advocacy Network (ASAN) condemns the United States Supreme Court ruling on two combined cases, Loper Bright Enterprises v. Raimondo and Relentless v. Department of Commerce. The decision overturns a decades-old legal principle known as the Chevron Doctrine, which gives federal agencies the authority to reasonably interpret ambiguous laws when they create federal regulations. These regulations are made legally binding through a rulemaking process that is shaped by the public servants within federal agencies, the input of subject area experts across fields, and anyone who chooses to share their opinion. Instead, federal courts will now have the final say in circumstances where knowledge of highly specialized, complex, and technical issues is required. This ruling will weaken the regulatory authority of all federal agencies, including the Departments of Labor (DOL), Education (ED), Health and Human Services (HHS), the Social Security Administration (SSA), the Environmental Protection Agency (EPA), and the Food and Drug Administration (FDA).

Federal agencies create regulations or rules that fill in the gaps of laws intended to protect disability rights, civil rights laws, housing, healthcare, and more. The overturning of Chevron and the deference it gives to the courts will have devastating impacts on all marginalized people, including disabled people and particularly disabled people of color. Often, these rules concern subjects well outside of the scope of legal training, including, as Marissa Ditkowsky noted, drug safety evidentiary standards, eligibility criteria for public benefits, the threshold for disability discrimination, or guidance around worker protections. This change will lead to inconsistent and conflicting adjudication across the country, driving avoidable litigation, confusion, and decisions that do not work well for the people they affect. These harms will fall disproportionately on marginalized people, including the disability community. As the American Cancer Society explained in its amicus brief, “The resulting uncertainty would be extraordinarily destabilizing, not just to the Medicare and Medicaid programs but also – given the size of these programs – to the operational and financial stability of the country’s health care system as a whole.” The same can be said for programs within DOL, ED, SSA, and many other federal agencies. This decision is also undemocratic, moving crucial decisions out of a process where the public has an opportunity to weigh in and into the purview of the courts.

This decision invites challenges to the forty years of legal precedents relying on Chevron. While these cases and the existing Code of Federal Regulations are not automatically overturned by Loper and Relentless, many will be challenged in the months and years to come. Future regulations are also under threat. Agencies may be less ambitious in fulfilling their mandates, protecting the public, and using taxpayers’ resources well in the face of increased risk that courts will undo their work. The endangered regulations include the Home and Community Based Services (HCBS) Settings Rule, the final rule implementing Section 504 of the Rehabilitation Act, the final rule implementing Title IX of the Education Amendments, and the final rule regarding section 1557 of the Affordable Care Act (ACA).

ASAN echoes the demands of the American Federation of Teachers (AFT): “Congress should urgently enact Chevron deference into law by passing the Stop Corporate Capture Act (H.R. 1507), a comprehensive blueprint for modernizing, improving and strengthening the regulatory system. That would ensure public input into regulatory decisions, promote scientific integrity and restore our government’s ability to help the workers and consumers it is meant to serve.”

ASAN will fight to safeguard federal agencies’ ability to protect the people we serve. We will continue to do what we always have: defend the rights, health, services, safety, and well-being of all people with disabilities.

Here are statements on this issue from our allies:

Democracy Forward

National Health Law Program (NHeLP)

National Education Association (NEA)

American Federation of Teachers (AFT)

The Autistic Self Advocacy Network (ASAN) is a national grassroots disability rights organization run by and for autistic people. We believe that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. ASAN works to make sure autistic people are included in policy-making, so that laws and policies meet our community’s needs. Our members and supporters include autistic adults and youth, cross-disability advocates, and non-autistic family members, professionals, educators, and friends.