#disability resources

[chronicsymptomsyndrome]

“alt text for more info” “turn on cations for more info” no actually this is not where more info goes. These have a very distinct purpose. There are plenty of other places for more info. If you’re going to make your post inaccessible, the least you could do is not use accessibility tools at your own leisure for whatever purpose you see fit.

[theygender]

August 24, 2022

There's a new recall that I would like to spread awareness of: Great Value Shredded Hashbrowns have been recalled for possible contamination with listeria. Listeria can cause food poisoning and flu-like symptoms in healthy adults, but it more commonly affects infants, pregnant people, senior citizens, and the immunocompromised. In these groups it can also lead to more severe infections including sepsis, meningitis, and encephalitis, and symptoms of listeriosis can appear up to 2 months after a contaminated food item has been consumed. This recall currently only includes 64 oz bags with the following date codes and UPC, but if you're seeing this on any date other than the one listed above please make sure to check if the recall has been expanded:

Description: Great Value 64 oz Frozen Shredded Hashbrowns

UPC: 7874215557

Dates: 7/25/2023, 7/26/2023, 9/14/2023

This recall hasn't yet been reported by the FDA and at the moment this information is only being communicated by email to people that Walmart has records of having ordered Great Value Frozen Hashbrowns within the past 6 months, so if people wouldn't mind reblogging to spread awareness (especially among disability and parenting circles) I would greatly appreciate it. The current direction from the company is to discard affected bags and request a refund from the store, but I would caution against accepting any compensatory gift cards from the store in addition to your refund because they may try to claim it as a settlement if you need to sue for medical bills or damages later on

[disabled-dragoon]

The Disability Library

I love books, I love literature, and I love this blog, but it's only been recently that I've really been given the option to explore disabled literature, and I hate that. When I was a kid, all I wanted was to be able to read about characters like me, and now as an adult, all I want is to be able to read a book that takes us seriously.

And so, friends, Romans, countrymen, I present, a special disability and chronic illness booklist, compiled by myself and through the contributions of wonderful members from this site!

As always, if there are any at all that you want me to add, please just say. I'm always looking for more!

Edit 20/10/2023: You can now suggest books using the google form at the bottom!

Updated: 31/08/2023

Articles and Chapters

The Drifting Language of Architectural Accessibility in Victor Hugo's Notre-Dame de Paris, Essaka Joshua, 2012

Early Modern Literature and Disability Studies, Allison P. Hobgood, David Houston Wood, 2017

How Do You Develop Whole Object Relations as an Adult?, Elinor Greenburg, 2019

Making Do with What You Don't Have: Disabled Black Motherhood in Octavia E. Butler's Parable of the Sower and Parable of the Talents, Anna Hinton, 2018

Necropolitics, Achille Mbeme, 2003 OR Necropolitics, Achille Mbeme, 2019

Wasted Lives: Modernity and Its Outcasts, Zygmunt Bauman, 2004

Witchcraft and deformity in early modern English Literature, Scott Eaton, 2020

Books

Fiction:

Misc:

10 Things I Can See From Here, Carrie Mac

A-F:

A Curse So Dark and Lonely, (Series), Brigid Kemmerer

Akata Witch, (Series), Nnedi Okorafor

A Mango-Shaped Space, Wendy Mass

Ancillary Justice, (Series), Ann Leckie

An Unkindness of Ghosts, Rivers Solomon

An Unseen Attraction, (Series), K. J. Charles

A Shot in the Dark, Victoria Lee

A Snicker of Magic, Natalie Lloyd

A Song of Ice and Fire, (series), George R. R. Martin

A Spindle Splintered, (Series), Alix E. Harrow

A Time to Dance, Padma Venkatraman

Bath Haus, P. J. Vernon

Beasts of Prey, (Series), Ayana Gray

The Bedlam Stacks, (Series), Natasha Pulley

Black Bird, Blue Road, Sofiya Pasternack

Black Sun, (Series), Rebecca Roanhorse

Blood Price, (Series), Tanya Huff

Borderline, (Series), Mishell Baker

Breath, Donna Jo Napoli

The Broken Kingdoms, (Series), N.K. Jemisin

Brute, Kim Fielding

Cafe con Lychee, Emery Lee

Carry the Ocean, (Series), Heidi Cullinan

Challenger Deep, Neal Shusterman

Cinder, (Series), Marissa Meyer

Clean, Amy Reed

Connection Error, (Series), Annabeth Albert

Cosima Unfortunate Steals A Star, Laura Noakes

Crazy, Benjamin Lebert

Crooked Kingdom, (Series), Leigh Bardugo

Daniel Cabot Puts Down Roots, (Series), Cat Sebastian

Daniel, Deconstructed, James Ramos

Dead in the Garden, (Series), Dahlia Donovan

Dear Fang, With Love, Rufi Thorpe

Deathless Divide, (Series), Justina Ireland

The Degenerates, J. Albert Mann

The Doctor's Discretion, E.E. Ottoman

Earth Girl, (Series), Janet Edwards

Everyone in This Room Will Someday Be Dead, Emily R. Austin

The Extraordinaries, (Series), T. J. Klune

The Extraordinary Education of Nicholas Benedict, (Series), Trenton Lee Stewart

Fight + Flight, Jules Machias

The Final Girl Support Group, Grady Hendrix

Finding My Voice, (Series), Aoife Dooley

The First Thing About You, Chaz Hayden

Follow My Leader, James B. Garfield

Forever Is Now, Mariama J. Lockington

Fortune Favours the Dead, (Series), Stephen Spotswood

Fresh, Margot Wood

H-0:

Harmony, London Price

Harrow the Ninth, (series), Tamsyn Muir

Hench, (Series), Natalia Zina Walschots

Highly Illogical Behaviour, John Corey Whaley

Honey Girl, Morgan Rogers

How to Become a Planet, Nicole Melleby

How to Bite Your Neighbor and Win a Wager, (Series), D. N. Bryn

How to Sell Your Blood & Fall in Love, (Series), D. N. Bryn

Hunger Pangs: True Love Bites, Joy Demorra

I Am Not Alone, Francisco X. Stork

The Immeasurable Depth of You, Maria Ingrande Mora

In the Ring, Sierra Isley

Into The Drowning Deep, (Series), Mira Grant

Iron Widow, (Series), Xiran Jay Zhao

Izzy at the End of the World, K. A. Reynolds

Jodie's Journey, Colin Thiele

Just by Looking at Him, Ryan O'Connell

Kissing Doorknobs, Terry Spencer Hesser

Lakelore, Anna-Marie McLemore

Learning Curves, (Series), Ceillie Simkiss

Let's Call It a Doomsday, Katie Henry

The Library of the Dead, (Series), TL Huchu

The Lion Hunter, (Series), Elizabeth Wein

Lirael, (Series), Garth Nix

Long Macchiatos and Monsters, Alison Evans

Love from A to Z, (Series), S.K. Ali

Lycanthropy and Other Chronic Illnesses, Kristen O'Neal

Never Let Me Go, Kazuo Ishiguro

The Never Tilting World, (Series), Rin Chupeco

The No-Girlfriend Rule, Christen Randall

Nona the Ninth, (series), Tamsyn Muir

Noor, Nnedi Okorafor

Odder Still, (Series), D. N. Bryn

Once Stolen, (Series), D. N. Bryn

One For All, Lillie Lainoff

On the Edge of Gone, Corinne Duyvis

Origami Striptease, Peggy Munson

Our Bloody Pearl, (Series), D. N. Bryn

Out of My Mind, Sharon M. Draper

P-T:

Parable of the Sower, (Series), Octavia E. Butler

Parable of the Talents, (Series), Octavia E. Butler

Percy Jackson & the Olympians, (series), Rick Riordan

Pomegranate, Helen Elaine Lee

The Prey of Gods, Nicky Drayden

The Pursuit Of..., (Series), Courtney Milan

The Queen's Thief, (Series), Megan Whalen Turner

The Quiet and the Loud, Helena Fox

The Raging Quiet, Sheryl Jordan

The Reanimator's Heart, (Series), Kara Jorgensen

The Remaking of Corbin Wale, Joan Parrish

Roll with It, (Series), Jamie Sumner

Russian Doll, (Series), Cristelle Comby

The Second Mango, (Series), Shira Glassman

Scar of the Bamboo Leaf, Sieni A.M

Shaman, (Series), Noah Gordon

Sick Kids in Love, Hannah Moskowitz

The Silent Boy, Lois Lowry

Six of Crows, (Series) Leigh Bardugo

Sizzle Reel, Carlyn Greenwald

The Spare Man, Mary Robinette Kowal

The Stagsblood Prince, (Series), Gideon E. Wood

Stake Sauce, Arc 1: The Secret Ingredient is Love. No, Really, (Series), RoAnna Sylver

Stars in Your Eyes, Kacen Callender [Expected release: Oct 2023]

The Storm Runner, (Series), J. C. Cervantes

Stronger Still, (Series), D. N. Bryn

Sweetblood, Pete Hautman

Tarnished Are the Stars, Rosiee Thor

The Theft of Sunlight, (Series), Intisar Khanani

Throwaway Girls, Andrea Contos

Top Ten, Katie Cotugno

Torch, Lyn Miller-Lachmann

Treasure, Rebekah Weatherspoon

Turtles All the Way Down, John Green

U-Z:

Unlicensed Delivery, Will Soulsby-McCreath Expected release October 2023

Verona Comics, Jennifer Dugan

Vorkosigan Saga, (Series), Lois McMaster Bujold

We Are the Ants, (Series), Shaun David Hutchinson

The Weight of Our Sky, Hanna Alkaf

Whip, Stir and Serve, Caitlyn Frost and Henry Drake

The Whispering Dark, Kelly Andrew

Wicked Sweet, Chelsea M. Cameron

Wonder, (Series), R. J. Palacio

Wrong to Need You, (Series), Alisha Rai

Ziggy, Stardust and Me, James Brandon

Graphic Novels:

A Quick & Easy Guide to Sex & Disability, (Non-Fiction), A. Andrews

Constellations, Kate Glasheen

Dancing After TEN: a graphic memoir, (memoir) (Non-Fiction), Vivian Chong, Georgia Webber

Everything Is an Emergency: An OCD Story in Words Pictures, (memoir) (Non-Fiction), Jason Adam Katzenstein

Frankie's World: A Graphic Novel, (Series), Aoife Dooley

The Golden Hour, Niki Smith

Nimona, N. D. Stevenson

The Third Person, (memoir) (Non-Fiction), Emma Grove

Magazines and Anthologies:

Artificial Divide, (Anthology), Robert Kingett, Randy Lacey

Beneath Ceaseless Skies #175: Grandmother-nai-Leylit's Cloth of Winds, (Article), R. B. Lemburg

Defying Doomsday, (Anthology), edited by Tsana Dolichva and Holly Kench

Josee, the Tiger and the Fish, (short story) (anthology), Seiko Tanabe

Nothing Without Us, edited by Cait Gordon and Talia C. Johnson

Nothing Without Us Too, edited by Cait Gordon and Talia C. Johnson

Unbroken: 13 Stories Starring Disabled Teens, (Anthology), edited by Marieke Nijkamp

Uncanny #24: Disabled People Destroy Science Fiction, (Anthology), edited by: Elsa Sjunneson-Henry, Dominik Parisien et al.

Uncanny #30: Disabled People Destroy Fantasy, (Anthology), edited by: Nicolette Barischoff, Lisa M. Bradley, Katharine Duckett

We Shall Be Monsters, edited by Derek Newman-Stille

Manga:

Perfect World, (Series), Rie Aruga

The Sky is Blue with a Single Cloud, (Short Stories), Kuniko Tsurita

Non-Fiction:

Academic Ableism: Disability and Higher Education, Jay Timothy Dolmage

A Disability History of the United States, Kim E, Nielsen

The Architecture of Disability: Buildings, Cities, and Landscapes beyond Access, David Gissen

Being Seen: One Deafblind Woman's Fight to End Ableism, Elsa Sjunneson

Black Disability Politics, Sami Schalk

Borderline, Narcissistic, and Schizoid Adaptations: The Pursuit of Love, Admiration, and Safety, Dr. Elinor Greenburg

Brilliant Imperfection: Grappling with Cure, Eli Clare

The Cambridge Companion to Literature and Disability, Barker, Clare and Stuart Murray, editors.

The Capacity Contract: Intellectual Disability and the Question of Citizenship, Stacy Clifford Simplican

Capitalism and Disability, Martha Russel

Care work: Dreaming Disability Justice, Leah Lakshmi Piepzna-Samarasinha

Catatonia, Shutdown and Breakdown in Autism: A Psycho-Ecological Approach, Dr Amitta Shah

The Collected Schizophrenias: Essays, Esme Weijun Wang

Crip Kinship, Shayda Kafai

Crip Up the Kitchen: Tools, Tips and Recipes for the Disabled Cook, Jules Sherred

Culture – Theory – Disability: Encounters between Disability Studies and Cultural Studies, Anne Waldschmidt, Hanjo Berressem, Moritz Ingwersen

Decarcerating Disability: Deinstitutionalization and Prison Abolition, Liat Ben-Moshe

Demystifying Disability: What to Know, What to Say, and How to Be an Ally, Emily Ladau

Dirty River: A Queer Femme of Color Dreaming Her Way Home, Leah Lakshmi Piepzna-Samarasinha

Disability Pride: Dispatches from a Post-ADA World, Ben Mattlin

Disability Visibility: First-Person Stories From the Twenty-First Century, Alice Wong

Disfigured: On Fairy Tales, Disability and Making Space, Amanda Leduc

Every Cripple a Superhero, Christoph Keller

Exile and Pride: Disability, Queerness and Liberation, Eli Clare

Feminist Queer Crip, Alison Kafer

The Future Is Disabled: Prophecies, Love Notes, and Mourning Songs, Leah Lakshmi Piepzna-Samarasinha

Growing Up Disabled in Australia, Carly Findlay

It's Just Nerves: Notes on a Disability, Kelly Davio

The Immortal Life of Henrietta Lacks, Rebecca Skloot

Language Deprivation & Deaf Mental Health, Neil S. Glickman, Wyatte C. Hall

The Minority Body: A Theory of Disability, Elizabeth Barnes

My Body and Other Crumbling Empires: Lessons for Healing in a World That Is Sick, Lyndsey Medford

No Right to Be Idle: The Invention of Disability, 1840s-1930s, Sarah F. Rose

Nothing About Us Without Us: Disability Oppression and Empowerment, James I. Charlton

The Pedagogy of Pathologization Dis/abled Girls of Color in the School-prison Nexus, Subini Ancy Annamma

Physical Disability in British Romantic Literature, Essaka Joshua

QDA: A Queer Disability Anthology, Raymond Luczak, Editor.

The Right to Maim: Debility, Capacity, Disability, Jasbir K. Puar

Sitting Pretty, (memoir), Rebecca Taussig

Sounds Like Home: Growing Up Black & Deaf in the South, Mary Herring Wright

Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms, Ilana Jacqueline

The Things We Don't Say: An Anthology of Chronic Illness Truths, Julie Morgenlender

Uncanny Bodies: Superhero Comics and Disability, Scott T. Smith, José Alaniz 

Uncomfortable Labels: My Life as a Gay Autistic Trans Woman, (memoir), Laura Kate Dale

Unmasking Autism, Devon Price

The War on Disabled People: Capitalism, Welfare and the Making of a Human Catastrophe, Ellen Clifford

We've Got This: Essays by Disabled Parents, Eliza Hull

Year of the Tiger: An Activist's Life, (memoir) (essays) Alice Wong

Picture Books:

A Day With No Words, Tiffany Hammond, Kate Cosgrove-

A Friend for Henry, Jenn Bailey, Mika Song

Ali and the Sea Stars, Ali Stroker, Gillian Reid

All Are Welcome, Alexandra Penfold, Suzanne Kaufman

All the Way to the Top, Annette Bay Pimentel, Jennifer Keelan-Chaffins, Nabi Ali

Can Bears Ski?, Raymond Antrobus, Polly Dunbar

Different -- A Great Thing to Be!, Heather Alvis, Sarah Mensinga

Everyone Belongs, Heather Alvis, Sarah Mensinga

I Talk Like a River, Jordan Scott, Sydney Smith

Jubilee: The First Therapy Horse and an Olympic Dream, K. T. Johnson, Anabella Ortiz

Just Ask!, Sonia Sotomayor, Rafael López

Kami and the Yaks, Andrea Stenn Stryer, Bert Dodson

My Three Best Friends and Me, Zulay, Cari Best, Vanessa Brantley-Newton

Rescue & Jessica: A Life-Changing Friendship, Jessica Kensky, Patrick Downes, Scott Magoon

Sam's Super Seats, Keah Brown, Sharee Miller

Small Knight and the Anxiety Monster, Manka Kasha

We Move Together, Kelly Fritsch, Anne McGuire, Eduardo Trejos

We're Different, We're the Same, and We're All Wonderful!, Bobbi Jane Kates, Joe Mathieu

What Happened to You?, James Catchpole, Karen George

The World Needs More Purple People, Kristen Bell, Benjamin Hart, Daniel Wiseman

You Are Enough: A Book About Inclusion, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso

You Are Loved: A Book About Families, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso

The You Kind of Kind, Nina West, Hayden Evans

Zoom!, Robert Munsch, Michael Martchenko

Plays:

Peeling, Kate O'Reilly

---

With an extra special thank you to @parafoxicalk @craftybookworms @lunod @galaxyaroace @shub-s @trans-axolotl @suspicious-whumping-egg @ya-world-challenge @fictionalgirlsworld @rubyjewelqueen @some-weird-queer-writer @jacensolodjo @cherry-sys @dralthon @thebibliosphere @brynwrites @aj-grimoire @shade-and-sun @ceanothusspinosus @edhelwen1 @waltzofthewifi @spiderleggedhorse @sleepneverheardofher @highladyluck @oftheides @thecouragetobekind @nopoodles @lupadracolis @elusivemellifluence @creativiteaa @moonflowero1 @the-bi-library @chronically-chaotic-cryptid for your absolutely fantastic contributions!

---

Submit a Book:

[scrumpster]

Jewish Resources (Assorted)

Since my last post seemed to be helpful to a lot of people, I thought I’d make another to share some additional resources. This list includes a bunch of stuff, meant for Jewish people in general. I would definitely encourage you to explore them! There’s a lot of useful stuff here. Goyim are welcome to reblog, just please be respectful if you’re adding tags or comments. Jewish Multiracial Network, an organization for multiracial Jewish families and Jews of Color Sefaria, a free virtual library of Jewish texts Sephardic Studies Digital Library Museum “The SSDC includes key books, archival documents, and audio recordings that illuminate the history, culture, literature, politics, customs, music, and cuisine of Sephardic Jews all expressed in their own language, Ladino.” (from their website) The SMQN, an organization for LGBTQ+ Sephardic and Mizrahi Jews Keshet, a group for LGBTQ+ Jews JQY, a group for LGBTQ+ Jews with a focus on those in Orthodox communities  Queer Jews of Color Resource List (note: this list is way more than just resources, there’s a LOT there) JQ International: “JQ celebrates the lives of LGBTQ+ Jews and their allies by transforming Jewish communities and ensuring inclusion through community building, educational programs, and support and wellness services, promoting the healthy integration of LGBTQ+ and Jewish identities.” (from their website) Jews of Color Initiative, an organization dedicated to teaching about intersectionality in the Jewish community, focuses on research, philanthropy, field building, and community education Nonbinary Hebrew Project: It’s hard to describe, but they’re working to find/create/add suffixes that represent nonbinary genders in Hebrew. If you speak Hebrew/another gendered language, you might know what I mean about gendered suffixes. Jewish Mysticism Reading List  (These are related to our closed practices, goyim should NOT be practicing these things) Ritualwell (you can find prayers and blessings related to specific things here, I personally like that they have blessings related to gender identity)  Guimel, an LGBTQ+ support group for the Jewish Community in Mexico. The site is in Spanish. I’m not a native speaker, but I was still able to read a little bit of it.  SVARA: “SVARA’s mission is to empower queer and trans people to expand Torah and tradition through the spiritual practice of Talmud study.” (From their website) TransTorah is definitely an older website, but there are still some miscellaneous pdfs and resources up on the “Resources” page. Jewish Disabilities Advocates: “The JFS Jewish Disabilities Advocates program was created to raise awareness and further inclusion of people with disabilities within Jewish organizations and the larger Jewish community.” (from their website) Jewish Food Society (recipes, have not spent a lot of time browsing here but maybe I should in the future) Jewish Blind & Disabled, an organization that operates mainly in providing accessible housing and living. Jewish Braille Institute International: “The JBI Library provides individuals who are blind, visually impaired, physically handicapped or reading disabled with books, magazines and special publications of Jewish and general interest in Audio, Large Print and Braille formats.” (from their website) Their services are free!)

[psychhound]

disability & mental health resources for gamers

hey all! so my day job is that i'm a social worker for neurodivergent people, and my (very awesome) boss asked me to put together a list of resources for our clients about gaming. this list focuses on video games, not TTRPGs, but i still wanted to share it here since there's so much overlap between our communities!

spreading this list is much appreciated. i am a game lover to the end but there is a lot of work our community needs to do for it to be as accessible, positive, and supportive as possible! you never know who might benefit from something on this list

resource list:

Games for Change - an organization that aims to promote a better world through gaming. Includes a curated list of games (with an accessibility features search) that promote growth or better mental health, or are disability accessible

Take This - decreasing stigma and increasing understanding, support, and resources for mental health in the gaming world. Includes mental health resources and consulting

Dager System - a disability in gaming journalism site that does educational videos, accessibility reviews, and has a searchable accessibility database (acquired "can I play that")

Taming Gaming (/ The Family Gaming Database) - an online searchable database designed to help parents and caregivers navigate good games for their kids. Includes curated lists of games for lots of different categories, including emotions and themes

Disability accessible game lists

Mental health game lists

Autism friendly games

AbleGamers - a charity making video games more accessible to the disability community. Includes consulting and adaptive technologies

Autistica Play - a branch of Autistica that aims to make video games more accessible to autistic people and educate game designers about autism

Autistic Gaming Initiative - streamers who raise funds for autistic led advocacy groups

Spectrum Gaming - an online / discord based community and advocacy group to unite autistic youth in gaming. lead by an autistic adult, but run by the autistic youth themselves

if people know of more, or know of orgs that focus on other disabilities (i mainly work with autistic people) please feel free to shoot them my way so i can update the list! using games to improve our lives and our world is a big passion of mine so i always appreciate learning about cool initiatives out there!

[sunnycanwrite]

grasping what it means to be chronically ill can be hard for people, as it can be different for each person. But most of us understand chronic fatigue, days of pain that feels like it will never end, being stuck in bed, having to set reminders to take necessary medications medications. Chronic illness is not a joke. It takes time to adjust to having s chronic illness.

So don't be an asshole when your chronically ill friends cancel on you. The about of energy I use trying to take care of myself on a daily basis doesn't much left for anything else. And understand they may have different needs, completely different foods to help deal with their conditions. Mobility aids, and parking closer to buildings. I can not stress enough, please park close for them. Understand that chronic illness is exactly that: chronic.

[laurellynnleake]

How To Talk To Your Loved Ones About Covid

Huge document by queer disabled people collecting tips and resources to help as many of us survive the pandemic as possible. It's full of practical advice like "So, you love someone who has stopped taking Covid precautions (or never took them to begin with)", and navigating the common misconceptions and misinfo out there. Now includes new sections on travel, grief, talking to children, respirator masks, environmental impact, and reaching out to organizations.

It's hard to have these conversations, but it's worth it. The way out of this is together, hand-in-hand.

[tiimelydeath]

hi! we are a group of disabled folks just wanting to make a community!!

"well, what kind of Disabilities count?"

anything! from physical to mental, alongwith amputees, chronically ill folk, genetic disability, birth defects, mental illnesses, neurodivergency. the owner is autistic and has a permanent chronic disability!!! (me)

"age requirements?"

13+

"What kind of things can i do here?"

we have a surplus of bots, you can make friends and community , and even vent! We have people who ID images, for screen readers, disability information, education, and awareness, a huge diversity of members and support for everyone. We uplift small businesses for accessible clothing, are primarily cripplepunk and raise awareness/acceptance. we help others with coping with their disability, accesibility issues, charities, funding, crowd sourcing, etc. we are a community!

[chronicallycouchbound]

Are you a mobility aid user tired of trying to hunt down accessible locations and venues? Me too! There's an app that's working to help with that called Roll Mobility!

It's created by reviews from the community and is incredibly simple and accessible to create a review! It is available both on Android and Apple devices.

(This isn't sponsored btw I just hope more people use it bc I've wanted something like this for almost 10 years)

If you're not a mobility aid user please consider sharing this resource anyways to make sure everyone who needs it can access it!

[disabledwxs]

Project Sekai Basic Communication Cards

nobody requested, self indulgent and made for our own use! based on the genshin ones we've made previously, we decided to have some fun with this website and create some pjsk ones.

feel free to use and print off for your own use! like/reblog if you save or enjoy!

(image id needed)

[chronicsymptomsyndrome]

Knowing and admitting you need help is one thing

but knowing what help you need or how to acquire it or where to even start is a whole other thing entirely.

Anyone have any tips or resources for this?

[stellersarson]

My partner asked me to upload this for all the wheelchair users out there, hope it helps someone!

It's a YouTube short, I haven't checked out the channel but the video in question seems like it could be useful to some.

[disabled-dragoon]

Disability in Graphic Novels #1

[ID: A poster reading "Disability in Graphic Novels (and Manga)" in black writing in the centre. A small, circular logo is in the top right corner. It is red with an open book in the middle, white leaves around the book, and the word "The Disability Archive" across the bottom. In the lower left corner, cartoonish clipart of a colourful stack of books. All of this is overlayed onto the disability pride flag. /end]

[ID: The same poster, edited. The writing has been removed and replaced by three book covers, with bulleted lists next to each. The images in both corners have been shrunken slightly. The book covers, from top to bottom, are:

"A Quick & Easy Guide to Sex & Disability" The phrases "Non-Fiction", "LGBTQ+" and "Self-Help" are listed next to it.

"Constellations" The phrases "Addiction", "LGBTQ+" and "Realistic Fiction" are listed next to it.

"Dancing after TEN" The phrases "TEN/Toxic Epidermal Necrolysis, Scars, Blind", "Memoir" and "Non-Fiction" are listed next to it. /end]

[ID: The same poster, with three different book covers. The book covers, from top to bottom, are:

"Everything Is An Emergency" The phrases "OCD", "Memoir" and "Non-Fiction" are listed next to it.

"Frankie's World" The phrases "Autism", "Ireland" and "Middle-Grade Realistic Fiction" are listed next to it.

"The Golden Hour" The phrases "Anxiety, PTSD", "LGBTQ", "Realistic/Contemporary" and "Gun Violence" are listed next to it. /end]

[ID: The same poster, with three different book covers. The book covers, from top to bottom, are:

"Nimona" The phrases "Amputee", "Fantasy", "LGBTQ+" and "Young Adult Fiction" are listed next to it.

"The Third Person" The phrases "DID", "LGBTQ+", "Memoir" and "Non-Fiction" are listed next to it.

"Perfect World" The phrases "Wheelchair User", "Contemporary Fiction", "Japan" and "Manga (Series)" are listed next to it. /end]

[ID: The same poster, with three different book covers. The book covers, from top to bottom, are:

"The Sky is Blue with A Single Cloud" The phrases "Short Stories", "Multi-Genre Fiction", "LGBTQ+" and "Manga" are listed next to it.

"Stars in Their Eyes" The phrases "Amputee", "LGBTQ+", "Young Adult Fiction" and "Contemporary Romance" are listed next to it.

"I Hear the Sunspot" The phrases "Hearing Loss", "Contemporary Romance Fiction", "Japan" and "Manga (Series)" are listed next to it. /end]

---

A collection of graphic novels and manga featuring disabled characters and/or discussions of disability!

I don't know if there'll be a part 2 to this, but if there is I might try and make it just a bit shorter.

Book List:

'A Quick & Easy Guide to Sex & Disability' by A. Andrews

'Constellations' by Kate Glasheen- Addiction

'Dancing After TEN: a graphic memoir' by Vivian Chong, Illustrated by Georgia Webber- Toxic Epidermal Necrolysis (TEN), Scarring, Blind

'Everything Is an Emergency: An OCD Story in Words Pictures' by Jason Adam Katzenstein- Blind

'Frankie's World' by Aoife Dooley- Autism

'The Golden Hour' by Niki Smith- Anxiety, PTSD

'Nimona' by N. D. Stevenson- Amputee

'The Third Person' by Emma Grove- DID

'パーフェクトワールド |Perfect World|' by Rie Aruga- Wheelchair User

'The Sky is Blue with a Single Cloud' by Kuniko Tsurita

'Stars in Their Eyes' by Jessica Walton and Aśka- Amputee, Prosthetic Leg

'ひだまりが聴こえる |I Hear the Sunspot|' by Yuki Fumino- Hearing Loss/Hard of Hearing

[murphysletsdraw]

How to (efficiently) hand wash dishes

Despite good intentions and decent physical ability, you often walk into the kitchen to find a mess. Dirty dishes piled high, no clean utensils to cook with and old food scraps and mysterious goo making the room feel awful. When you try to wash up you don't know where to start, it feels impossible and takes longer than it should have to, so you avoid doing it and soon get stuck with just as big a mess a few days later. If this sounds familiar, I’ve written this tutorial with you in mind. In other words, my aim is to help a person with executive dysfunction/brain fog/burn out and/or limited experience with housework to deal with a big pile of dishes in a messy, dirty kitchen in a logical, step-by-step way with the minimum of effort. For context: I am cognitively (and physically) disabled and after inventing this method for washing dishes my kitchen has gone from “always dangerously dirty” to “almost always clean”, even when I’m unmedicated for long stretches of time. I can’t promise similar results for you but I can at least promise I’m not an abled, neurotypical, naturally tidy person about to tell you to try harder.

You will need:

A comfortable dish washing tool (sponge, brush or cloth)

Two basins, one for washing and one for rinsing (meaning either a plastic basin and a sink or two sinks)

A dish drying rack

A cutlery dryer

Dish soap

A plug for the drain

Kitchen rags or sponge cloths

1-3 clean kitchen towels (fabric, not paper)

Rubber gloves (optional)

Step one is to get your work space in order.

This will involve some general cleaning and tidying, but trust me, it will end up saving you time and spoons. 1) Remove everything in your path that’s clean (things that shouldn’t be in the kitchen, clean dishes, food you want to keep etc) and storing it out of reach. 2) If possible, place an open waste bin on the floor within easy reach. 3) Remove trash and bigger loose pieces of food waste. 4) Gather up all dirty cutlery, spatulas, ladles and similar utensils and place them head down in a small pot, bucket, food container or similar. Fill the container with hot water and some dish soap and leave it someplace out of the way. 5) Gather your plates and bowls, scrape any bits of food into the bin and pre-rinse them as needed, and stack them by type. 6) Empty your pots and pans and stack them, fill them part way with hot water and dish soap and put them to the side. 7) Empty and pre-rinse your cups and glasses. If any are very caked in dirt, fill them with hot water and dish soap. 8) Gather any remaining miscellaneous dishes, pre-rinse as needed and stack them as much as possible to save space.

By now, your dirty dishes should be ready for washing and sorted by type and you should have some surface space available to work in. Pick one surface area to be your clean area, preferably within easy reach of the sink, and one area to be the dirty area (for now). I usually use my kitchen table (or the floor, as long as I can safely and easily move around the sink) to be my dirty area.

Ideally, your work flow should physically move in a line from left to right (or vice versa), going from dirty to washing to rinsing to drying. If you don’t have enough space, it’s more important to have the washing, rinsing and drying lined up that way.

9) Move all your dishes to the dirty area and keep them separated as before by type. 10) Empty and clean your sink(s) and/or wash basin. 11) Scrub your clean area very clean and dry it. Place a dish rack there or cover it with a kitchen towel. Leave a rag or something similar near the edge - the area will get wet so be ready to wipe up the water before it spills to the floor.

At this point, I usually take a moment to check in with myself. If I’m running out of energy or time, I only proceed to wash my pots, pans, chopping boards, knives and other cooking utensils, and leave my eating and drinking utensils for another time. Why? Firstly, because those cooking tools are usually the only dishes that will be permanently damaged if left dirty and/or moist for too long Secondly, it means that I’ll have everything I need to cook myself a meal and a neat, clean-ish space to cook in. This is after all the most important thing in a kitchen. Everything else is organized, even if it’s still dirty, so it’s easy to grab and wash a plate and a fork as needed so I can eat said meal.

When you’re ready to proceed, step two is to wash your dishes.

Now that things are tidy, there will be limited task switching and moving around from this point on, which I find to be the main reasons I get confused, distracted, stressed or overwhelmed when cleaning. I’ve suggested an order in which to wash your dishes that should save time and help preserve water by going from (usually) less dirty to (usually) more dirty. When the water in your wash basin starts to look or smell nasty, change it. You can also clear away the bin(s) now.

1) Get a clean kitchen towel and throw it over your shoulder so it’s always within easy reach. 2) As I mentioned above, you should arrange your wash basins/sink(s) so that everything will move in a straight, uninterrupted line - wash (in the basin if you don’t have two sinks), rinse in the sink and dry on the surface next to the sink. If you only have one sink/basin, wash everything first, then rinse, then dry. The aims are to minimize task switching, save time, save water and avoid dirtying your clean dishes by cross contamination. If you only take away one thing from this tutorial it should be to use this assembly line type of set up. 3) Fill your wash basin as much as you can with glasses and cups and top up with hot water and dish soap. Wash all of them. If you’re low on energy or time, focus on the rim of the glass/cup and the inside, those are the most important parts. Soak the next batch of dishes while you rinse and/or stack your current batch according to your set up. 4) Repeat with plates, then bowls. Between every stage, check if you have enough space left to work in - perhaps your dirty area is almost empty and you can clean some of it for extra clean space? 5) Cutlery and utensils go next. Since they’ve been soaking in hot water, maybe even twice at this point, you can just swipe the top half like credit cards in a folded dish sponge unless they’re very dirty. I like to arrange my cutlery handle-side up in another container before rinsing them, that way I can grab a handful easily, rinse the handful in one go and then put them handle-side down in the drying container. Else they tend to get tangled and fly everywhere, but that might just be me.

At this point, your clean/drying area is probably filling up. If you’re low on space, rinse whatever is left to rinse, dry it with a clean towel and store it out of the way. That way you’ll have room to wash and dry your pots, pans and other miscellaneous cookware, even if it’s been piling up, which should be your last remaining step.

Take a look around - I usually find that after washing dishes this way, I’ve basically tricked myself into tidying most of my kitchen (to get my clean belongings out of harm’s way and make room for my clean and dirty areas) and stove-top, so if you have the energy to spare this is a good time to quickly clean those down as well.

That’s it, that’s my method for washing dishes with the least amount of stress and effort. To me, a clear, logical workflow that I can write out into a series of steps to follow in order is the most helpful way to avoid stress and extra work when my cognitive functions are at their worst.

To sum up

If you’d like a much shorter step-by-step guide to print out and hang in the kitchen, you could sum it up like this

1) get rid of clean stuff 2) get rid of trash and old food 3) gather, pre-rinse and stack dishes 4) move in a straight line: wash, rinse, dry 5) when short on time, prioritise cooking tools over eating tools 6) wash dishes one type at a time

but you should of course tailor this list to include the stuff you’re most likely to forget or most likely to find useful.

Some other things to consider:

Anything that has come into contact with raw meat or chicken should always be washed separately and with more care. If you’re uncertain on food safety in general, please take a moment to look into it.

Non-stick pots and pans should be handled with care, replaced often and only washed with very soft tools - if they get scraped or damaged, even with age and normal use, they’re no longer safe to use. I would argue that they’re not safe to use anyway and that well-treated cast iron or other good metal cookware will fill the same functions if used correctly, but you should of course decide for yourself.

Don’t use dish soap on cast iron or leave it soaking in water, just wash it with hot water. Make sure to look up a guide to using and maintaining cast iron tools, and if you’re not able to wash it regularly immediately after use, it might be best to use stainless steel instead. Misused cast iron can be fixed, but it takes some effort.

Never pour grease, oil or other food waste down the drain - it will smell awful and eventually clog the drain which can be difficult and expensive to deal with.

Solutions to other problems:

Of course, there are other reasons why washing dishes might be difficult. If you have problems with fine motor skills, I recommend a dish sponge or a rag over a brush since it’s easier to feel what you’re doing and it lets you use your whole hand instead of just your wrist. Try every dish washing tool available to you and pick the one you prefer. Be honest about your difficulties, try to pinpoint their sources, take them seriously and allow yourself to problem solve with some imagination. An example: the reason my partner avoided doing the dishes in our new kitchen turned out to be that because of the poor design of the sink, the floor gets wet very quickly. Once she realised this, we got a set of indoor sandals each and now neither of us have to get our feet wet.

For other sensory issues, you can try:

choosing a dish soap that is allergy friendly and that either smells nice or is not perfumed

getting a nice, protective hand cream to use after washing dishes

blocking out unpleasant sounds with music or earplugs

wearing gloves

wearing a thick apron or other protective clothing to not get unpleasantly soaked, or at least change into clothes you’re don’t mind staining

use incense or an oil burner to get a nicer smell in the kitchen

If pain or fatigue hinders you, use a (safe!) seat instead of standing.

This list could go on much longer (and if you have some advice I’ve missed, please send it my way so I can add it) but the more important point is to get you thinking outside of the box both about what’s actually stopping you and what could be done about it. There is no real benefit to doing things the normal way, unless of course you’re living with ableist people who will punish you otherwise.

Avoiding mess in future

This tutorial hopefully helps you deal with a mess, but it won’t help you avoid a mess from piling up. If there’s interest, I might make a tutorial for that too - let me know what you think and what issues are the most challenging for you and I'll try to help! Of course, if the above method is helpful, just knowing how to solve the problem without having to think up a plan or spend more time and energy than necessary can help with procrastination or avoidance by itself.

Please give me feedback!

If this was helpful to you, or you think it might be helpful to someone else, please reblog it and take two seconds to follow me on youtube (link in notes) - I am disabled myself and making tutorials, especially in video form, is my dream livelihood. If it was very helpful and you'd like more tutorials, please donate to my ko-fi or patreon (link also in notes). If you'd appreciate pictures as a visual aid or to break up the wall of text, and/or if you would like this tutorial in video format, please let me know! If this tutorial was NOT helpful to you, either by being explained poorly or having steps that didn't work for you, please let me know that too! English is not my first language, and while no method will work for everyone I would like this method to be as widely accessible as possible. Thanks for reading and good luck!

[a-little-revolution]

Hey, sorry if this is a weird ask, but do you know of, or happen to know where I could find a list of the conditions that can cause proportional dwarfism?

I've been doing some research on the subject because I'm in the process of writing a character who has dwarfism that is proportional, and I want to be able to specify and properly portray the specific condition that they have. But, since disproportionate dwarfism is much more common, I can only find lists of conditions that cause disproportionate dwarfism, or very-difficult-to-parse general lists of all or most of the conditions that cause dwarfism (and which don't specify which form(s) of dwarfism they can cause.)

It's almost impossible for me to find much information related to the medical side of this form of the disability, so I figured your blog would be a good place to look to for leads. Even if I don't mention their precise condition in the text itself, it'd be really helpful to me to know if I'm portraying them accurately in regards to how their disability affects them, as I know different conditions will have different challenges surrounding them.

Any pointers for where I can look, or any info you may have would be helpful! Thanks so much!

Hello! Not a weird ask at all :) I've touched on the medical side of dwarfism, but that was early in my blog's creation - these days it's been a lot of the social sides of things - so I'm happy to revisit the subject.

Proportional dwarfism is most commonly caused by a growth hormone deficiency, whether it occurs in the womb as the baby develops (primordial dwarfism) or in early childhood (Seckel syndrome). This stunted or halted growth affects the whole body (hence "proportionate") and can result in other bodily conditions if organs such as lungs are underdeveloped.

I'm unfamiliar with other conditions that cause proportional dwarfism, as disproportional dwarfism is where I'm better versed, but here's a list of resources pertaining to dwarfism in general:

Dwarfism 101, Little People of Ontario's Dwarfism Fact Sheets

Little People of Ontario: Medical Articles Masterpost

Dwarfism Overview, Mayo Foundation for Medical Education and Research

Little People of America's Natural Histories of Dwarfism Types

A note to any researchers - when looking into dwarfism, steer clear of any articles that mention dwarfism "cures", and value articles written by Little organizations or professionals.

Hope this helps! - Elliot (they/them)

[kaonarvna]

I finally did it: I found the spoons to make an actionable (and semi-gameified) visual representation of spoon theory that I can actually use.

I've been thinking about doing this for months, and I've posted about it once or twice.

But, I finally did it, I made these bad boys for myself:

I have Hypermobile Ehlers-Danlos Syndrome. Which is to say, my body is very poorly held together, in a lot of pain, easily exhausted, and easily injured. I'm at the point now where I've had every intervention under the sun, nearly a decade of physio, we've found the best pharmacological interventions for me, and...we just have to get by. It's hard, it is, but it's the only mode of existing I know.

Maybe it's because I'm an aphantasiac, maybe it's because I'm (more than) a bit neurodivergent, but spoon theory has always been a little too abstract for me. I grew up on JRPGs (cough final fantasy has me in a choke hold), so putting things into just...stat bars and a table of effects, items, etc is more accessible to my fatigued, pained little brain. This is familiar. This makes sense to me.

Who needs an arbitrary amount of spoons, when you can have 200 HP & MP?

There's twenty notches in between the bars, so I can more accurately knock off health/mp as it ticks down. I teach in a primary school (children who only come up to my hip, mostly!), so you bet I've printed and laminated these, and have them slapped up somewhere I can easily see and access with velcro. If I can't see it? It doesn't exist. I can easily use a dry erase marker to take off my health/mp as I self-evaluate through the day, and start fresh the next.

「 As of this post going live, I've been using this for about a week! The MP drain seems accurate to life give or take, and the HP bar has been a good representation of just...the state of mess I'm in. There are injuries and "real life debuffs" that aren't on the list, but -20HP/-20MP has been a safe bet for those. The A4 is for at home, and one of the A5s follows me to work/out and about in my BUJO! 」

And it's not perfect, of course it's not! I'll probably tweak my board in a month or two. But, maybe just having a list of the things I can do to help myself right in front of me will help. Maybe, being able to show it to my spouse will help them help me better. It's worth a try. Bullet journalling and visual timetables are lifesavers, but they can only communicate so much at once.

I've made a blank version, in the event anyone wants to download it and fill it in for themselves.

This link should let you access a view-only version in canva. I'd imagine you should be able to make a copy and do it yourself! If not, don't hesitate to let me know and I'll try to find a workaround.

Hopefully this might help one or two busy-brained people like me manage their energy and pace their bodies a little bit better. Or, at the very least, give them a starting point for making their own resources.