#rhuematoid arthritis

[silver-splinted]

Aesthetic Mobility aid ideas!! I decorated my cane personally and I love it. Decorating your mobility aids are a great way to feel like you’re reclaiming the life and the joy that was stolen from having a chronic disease.

[imsickofcoveringup]

Please check out my update. I'm heartbroken. I was in the hospital and everything is getting worse and scarier. I told my family and they didn't care. They get defensive and upset when I try to ask for help and I'm realizing more and more how little I mean to them. It would mean so so much If y'all would read and share my story. I've lost so much to my illnesses. But I just want to share positivity and love.

[gypsy-that-i-was]

[crsuccess]

If Your Suffering from Arthritis This will Help [LiveGood Products]

[nagichi-boop]

Can uhhhh can a 21 year old have arthritis in their knee? Asking for a friend.

[deaf-bakugou]

Hi there! I recently have been experiencing symptoms of autoimmune inner ear disease on top of my diagnosed arthritis/sjogrens, and I’m still working on getting the diagnosis but it’s very possible. Google was only giving me medical descriptions so I ventured to tumblr to read other people’s experiences. Scrolling through a handful of your posts was pretty enlightening, and deaf Bakugou is for sure going to be a coping mechanism for me haha. The headcanon always made me happy before, but now it’s even better. Do you have any advice or deaf bakugou fic recs? No worries if not

DUDE WAIT WAIT I HAVE AIED I HAVE AUTOIMMUNE OF THE INNER EAR DISORDER ALONE WJTH MH RHUEMATOID ARTHRITIS DUDE WAIT WE HAVE SIMILARITIES DUDE DUDE FEEL FREE TO MESSAGE ME ABOUT IT I don't have any recent fics I've read but u cab try to find my old rec list. If anyone has any new ones for me then please send them my way. My hyperfixation changed a bit ago but I am actually planning a rewatch. (Are you a supernatural being coming to remind me to start???)

[saranwrappedsusansarandon]

Hi spoonie/disability community, I got diagnosed with rhuematoid arthritis (RA) recently on top of fibromyalgia. Anyone have any tips for me?

[hello-my-morning-star]

Chronic illness problems are, I want to kick some ass bc im angry all the time but MY ass is gonna get beat bc im broken 😤

[juroguro]

anyone have recommendations for a physical symptom tracker journal? preferably one aimed toward people with ra. also preferably not forty dollars

[silver-splinted]

My cane! I named her “lullaby” because someone said it was “lana del ray coquette core”. I hand painted and decorated her cause she looked a little rough around the edges, and I wish I could use her more but the amount of pain she causes my wrists is criminal.

[imsickofcoveringup]

I know this is weird but my health is declining more and more daily. Please just read my story and share if you feel compelled. Anything helps 🖤🫶

[gypsy-that-i-was]

[disableism]

Welp, 24 years after they first replaced my right hip, it’s time to do it again. Saw the surgeon today & he said, “Looks like it’s time. I got an opening on Tuesday, you want it?” So I said Yes. It’s been popping & rolling worse as the summer has gone on. He said he thinks the joint is gonna fall right out once he opens me up, lol. But I’ll say, 24 years is nothing to scoff at! But, of course, no one likes having surgery. For me, the IV, the anesthesia, the glaring overhead lights in the operating room - that shits all traumatizing AF. TBH tho - as long as there’s no post-surgery nerve pain like with my left one a few years ago (please let’s not have that again) - the surgery day & the day-after will be the worst of it. After that it’ll just be rest, reruns of Bob’s Burgers, the Hogwarts Mystery video game my nephew turned me on to, and recovery exercises for a month or so. Sadly I’ll be missing my baby cousin’s wedding because of this, le sigh. Anyway, I’ll post on here when I feel up to it. With surgery on Tuesday, it may be Saturday before I remember to let you guys know how it went. I’m hoping I’ll be on the good drugs until then…though don’t get me started on how they told me to reduce my pain meds *now*, so I can raise them up again post-surgery. I was like, “But…I’m in pain *now*. That’s why I need the surgery.” Where’s the logic in this? I’m on 4 Norco a day currently. That’s the max and even that, my liver dr is not thrilled about because of the Tylenol in it. Idk what they’re plan is for pain control post-surgery, but I don’t wanna have to beg & plead for pain control that does the trick & doesn’t overload my liver. I do not want to be on Oxy a single day longer than I have to, but I also want proper pain control when I need it. Being in extreme pain is only going to hinder my recovery, after all. So cross your fingers the surgery goes well, there is no nerve damage, & they aren’t picky with my pain control. ✌🏼

[rasucks]

Hello world!

I decided to create a tumblr for my chronic illness, so I can scream into the void instead of constantly complaining to my wife.

I’m a 33 year old woman, who recently got diagnosed with rheumatoid arthritis and fibromyalgia. My mom has fibromyalgia as well, and for years I’ve assumed I had it and just Did Not Want to deal with it. And then in August my joints started swelling. Diagnosed Mid-September, I’m now on methotrexate, prescription strength naproxen, and folic acid (and CBD pretty much every evening and Tylonel sometimes too). I don’t have much permanent joint damage, yet, a bit of erosion in my feet bones. 

Honestly most of my issues are muscular and nerve related and the rhuematologist hasn’t really had time to explore the fibromyalgia part of my diagnosis yet. I have pretty severe hip pain (not the joint apparently so I don’t know what’s going on there) and back and shoulder pain. 

Other things about me: I’ve been married 3 years to the love of my life, we have two cats and two dogs. I have pretty severe anxiety. I work full time at the moment, though we’re planning to move cross country in the spring to Minnesota, it’s a lot cheaper out there and I won’t have to work. I’m really struggling with the full time thing, I’m on my feet all day and then come home and crash, and that’s no way to live.

[unlikelykingdomphilosopher]

Today my rheumatologist had to take the time to convince me I'm not dying and don't have cancer, which was actually kind of disappointing because it means my pain isn't life threatening, even though it feels like it is. She tells me to try and find something to distract myself and stop the dark thoughts in my head, and I agree. But I also know that a good attitude is never going to change stairs into an escalator. A good attitude isn't going to solve my brain fog. A good attitude isn't going to stop flares or solve discriminatory practices in our work culture. A good attitude only works when you have time and the privilege to rest. My REALITY demands that I work even when I can't. My REALITY is that my illness has taken my life. My REALITY is that I have $20 to my name, and a good attitude doesn't change that. I guess my question is: does anyone else get tired of being told that cheering up will fix their pain?

[perfectly-wilde]

I don’t mean to be overdramatic. I don’t want pity or your money. I do however want help. I want decent, affordable health care. I want to know that there’s someone out there who cares about my pain. I want someone to believe me when I say it hurts. The sad part is, I’m so used to it by now, that some of my pain I don’t even notice anymore. The heartburn is so constant that sometimes I don’t even notice it. The achy feelings in my joints are my new normal. I watch what I eat. I pay attention to my posture. I take my vitamins and yet I’m still cursed with an incurable invisible illness that some believe is just my way of getting attention. Do you honestly think I’d fake an expensive, unbelievable condition? Do you really think I’d waste thousands of dollars that I don’t even have on countless doctors appointments and medications that make me feel worse sometimes? No, I’d come up with something believable. Something that people wouldn’t look at me and scoff at. Something people wouldn’t have to fucking Google just to make sure I didn’t make it up.

Just once, I want to wake up one morning and not be in pain or be scared that the next thing I eat is going to make me nauseated. I don’t want to live in fear of debt collectors or collection calls from my doctors offices. I want to go out and not have to plan ahead for inevitable flares and bouts of nausea. I want to show up to work put together and look the part of a good Admin. I want to be able to sleep for more than two hours at a time. I just want... peace. Peace of mind. Financial stability. Hope for the future.

I’ll never be healthy. I’ll never be the person I used to be. That’s just not possible. Sometimes, I can pretend though. Sometimes I can get all dressed up, do my hair and makeup and play the part of the giggly blonde geek in the back. But not very often. It’s too exhausting pretending to be healthy. I have to rest after taking a damn shower. Sometimes I can’t even get out of the bath by myself.

I’d like to be able to say that in the fight against my body, I am winning. But right now I’ve been beaten within an inch of my life. I don’t see an end to the pain. I don’t see an end to the misery or the torment that my body puts me through or the judgmental stares I get from other people. I constantly feel like a burden—the awful reality that no one “needs” me lingers above my every move. They may want me around. But if I were to disappear, they’d miss me for a short while and then they’d move on. I’ve felt pretty much worthless my entire life. I think I’ve only had one person tell me that I could be anything I wanted—within reason. And some how becoming the first female president was more plausible than me becoming the next Hannah Montana (really Dad?). But even with all of his support—the world kept shitting on me and everyone else kept telling me it was my fault. If I’d had done it “this way” it would have worked out. If I hadn’t of moved away it would have been better. If I had “this thing” then I wouldn’t have to worry.

Excuse me for trying to be my own person. Excuse me for trying to be successful so that my poor (literally not figuratively) parents don’t have to worry about me anymore.

In Highschool I was bullied. I was told I was ugly. That I was worthless. That no one loved me. And five years later... that still stings. If you tell someone they’re something long enough... then they’ll start to believe it. That is scientific fact. It’s called the Labeling Theory. Go google that, Falicia. Even though I know this stuff to be false....it lingers in the back of my head. “Nothing you do is right.” “Your a screw up.” “You weren’t good enough”.

I wasn’t good enough to be a State FFA officer. I wasn’t good enough to be a College cheerleader for more than a few semesters. I wasn’t good enough for the Federal Scholarships/internships I applied for. Now....I’m not even good enough to make enough money to support myself. The list goes on and on.

Do you know how deep that hurts?

My parents struggled their whole lives. They’re still struggling. They’ve worked and worked and worked. Every day for their entire life and they still barely get by. Is that my fate? Is that my curse? Was being diagnosed with an incurable disease not enough? Am I that worthless to the world that I don’t deserve some help? Some relief? Has God abandoned me? Is he punishing me?

All of these thoughts have been swirling around in my head for years. And even with all the change I’ve forced upon myself. I moved. Got a better job. Fell in love. Yet.... all of it seems for naught. All of this effort. All of this heartache. All of this pain—I endured it for nothing. Only to be told that this is my reality.

How can I bring this into a relationship? How can I create a family like this? How can I condemn someone else to watch me suffer and wither away, knowing they can’t do a single thing to stop it? That is even more cruel than my own sentence of pain and torture by my own body for eternity. That isn’t fair. To them. Or to me. Or to anyone.

How can I ask for a raise—to better support myself if I can barely perform the tasks asked of me? I’m not worth it. I’m obviously not worth helping. But I promised myself that I wouldn’t give up. So how am I supposed to continue knowing that there is no relief for the foreseeable future?

The thought of enduring this for even just a few more months is heartbreaking. I don’t know that I can endure it much longer. But do I really have a choice?