Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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What if we were both magic prodigies and it otherized us in different ways and we devoted ourselves to protecting a family member who has general other goals & priorities. What if we both did self-sacrifical devotion in opposite ways.
What if we were dark mirrors of each other and where I've grown
overcontrolling you've grown complacent. What if, bought as a servant into a pretty loving home, ownership and control is what love looks like to me, and to you neglected and lonely growing up, love is gratefully taking any scraps of it you’re lent.
By belonging to someone, even if she comes back injured or fails at finding Delgal, she feels like she belongs and is cherished, by owning someone he feels safe in them not leaving him.
She’s what’s tethering him do you see… And he’s the only thing giving her direction and purpose in her state. She needs a compass and he needs a support.
They’re both so out of it 😭 It’s the weirdly intense and unearned mutual trust and reliance on each other?? They’re each other’s weird little comfort codependent teddy bear. Or at least they were headed towards that before SHE DIED THEN HE DIED THEN THEY BOTH FORGOT ABOUT EACH OTHER AND NEVER MET EVER AGAIN. Though she’s also the guard attack hound keeping him safe… And vice versa he heals her and can rewrite her very being with just one wave of his hand. They’re both so so mentally and physically vulnerable both but they cling onto each other. They can’t perceive things accurately but despite it all someway somehow they stumble into something closer to resembling companionship just before they both die. Falin is just that kind and Thistle is just that lonely. Overworked.
We both haven’t lived for ourselves in a very long time, haven’t we.
They both have a similar devotion to the people they love but again the difference is that Thistle starts overtsepping while Falin is self-effacing. The other difference between them is that people care about Falin <3 People have given up on Thistle long ago, and he has given people reasons to, while people refuse to give up on Falin. Yaad has a mini arc about it dw about it it’s ok he’s not all alone in the end 😭😭 He reached out for Marcille’s hand but they already all wanted to help him, they just had to be given the chance to, Yaad just had to be given the chance to, it’s okay I’m okay
Hey what if we learned to get in touch with our own identity and the world around us and living in the present again through being in the worst codependent situationship ever.
Falin and Thistle sitting in a tree, sucking on flowers together because they’re h-u-n-g-r-y 💕💕💕
I bet he’s only ever thought of flowers as useless ornaments. Weak weeds. But she shows him they’re tasty and useful and good and pretty in their own right too and deserve existing without proving their worth and waaa <33 Thistles…... Did you know thistles taste sweet if you remove the thorns and eat them?
"Even as a chimera, her kind nature remains" you can’t suppress her in the way that matters. You can’t soothe him in the way that matters. It’s doomed. You’re doomed. It’s all doomed. Save me.
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Thinking a little bit about that one "I'm an English major and a professional as opposed to you amateurs" anon. Gonna roast 'em a little bit, but with the intention of addressing a thing we've had in mind for a while.
Real talk, coming from someone who WAS an English major; majoring in English is not necessarily a guarantee that someone is a good writer. For one, you can be bad at your major, full stop. For another, it's not even a guarantee that someone identifies as a writer to begin with. English as a major is pretty broad, and it covers reading too, among other things. There's library science, analytical academia, historical preservation & interpretation (MEDIEVAL MANUSCRIPTS HELL YES), editing, nonfiction trades (often crosses over with STEM majors), marketing (crosses over with business majors), and also book design and typography (<3 <3 <3 our favorite, crosses over with art majors).
Someone can major in English and take a specific minor with the goal of falling into a trade that is not writing literary fiction. In fact, we would argue that most people who get something useful out of their major are the ones that do that.
It's also worth noting that it's possible to be an English major focused on "lowbrow" fiction. There are people who major in English and use the experience towards the end of writing erotica. There are people who major in English with the intent to write genre fiction. There are people who major in English to study the history and social context of fanfiction.
These things are, in fact, worthy fields of study! The realm of the "amateur" is the realm where a lot of cultural conversations and innovations happen!
Expecting English as a major to be a tract specifically for producing acclaimed literary fictionists is not realistic, not how the discipline typically works, and it's certainly not a thing you can use to hold over other writers' heads. It is perfectly possible for people to write good things (professional-grade things even) without ever touching a college course.
I sat through so much bad writing in college. Technically bad, thematically bad, gramatically bad. And I routinely bump into non-graduate authors who write texts, formal and informal alike, that blow my own writing clean out of the water with their quality.
In short, dismissing other people in your general field as "amateurs" who are beneath you is an incredibly unprofessional thing to do.
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hi! saw your recent posts and wanted to ask for some advice, if that's okay. I'm a wheelchair user and I really want to get more involved in protests, but I feel pretty out of my depth. A lot of protests seem inaccessible and I just have a lot of questions about how things would work as a wheelchair user. I guess, do you have any tips about protesting as a wheelchair user and how you deal with inaccessibility?
Thank you!!
Hey anon! completely okay to ask for advice about this--I feel very passionate about this topic and am happy to share some tips! disclaimer that not all of the tips I share here are going to be applicable to everyone's situation--even among wheelchair users, we have so many unique situations, types of wheelchairs, health variations, other medical devices, etc etc. and many of us are multiply marginalized, which can also shape our experiences pretty significantly. so i'll share some general tips, and feel free to take what works for you and ignore the rest! most of this is based on my experience in the type of protests I go to in my city, so I also understand that this advice might not be applicable to every type of protest in every location. i've been involved in many types of protests for the past 9 years, from marches to die-ins to encampments, and have dealt with many situations including tear gas, riot cops, police brutality, fascist agitators, getting arrested, and many different types of high risk tactics. i don't want to position myself as an expert or anything, because i'm always learning and growing, but I do just want to share that for context!
I think the first thing I want to say is just to affirm that it is absolutely possible for wheelchair users to get involved in all kinds of protests, including higher risk and escalated protests. I'll focus on actual on the ground protests in this post because that's what you asked about, but know there are many many ways to get involved with organizing if protesting in the streets is not accessible for you. There are many of us involved in these type of actions already and figuring out ways to make it work for us, so you are not alone in that. I won't lie that it can be complicated, there's a lot of inaccessibility, and some shit might not be possible, but a lot of stuff can be made possible if we get creative.
Before the Protest
For me, one of the most helpful things is trying to find out as much information as possible before the protest, so that I can have a really good plan going in. Sometimes this might be more difficult, because there might be legitimate security culture reasons that a march route can't be announced publicly, for example, or specific tactics aren't posted about on social media in order to keep people safe from police surveillance. But when it is possible, this is the type of information I like to figure out:
What is the location? is it a stationary protest like a sit in or an encampment? is it a march? what is the route? how long is the route? are there obstacles in the route? are there curb cuts? is there hills? construction? other barriers? are there easily accessible exit routes? is there pavement, grass, gravel, etc? are there accessible transit stops nearby? are there accessible bathrooms nearby? if it's indoors, are there elevators and ramps?
A lot of times, to find out this information, I look through google maps street view, ask friends, or go in person if i can beforehand. for me, as a manual wheelchair user, I can deal with a lot of of nonideal circumstances such as hills, curbs, rough terrain, especially when I have a protest buddy who can help push me when needed, but it helps to know if i'm going to have to deal with those situations. Often times, protests are held in pretty inaccessible locations. Sometimes, this is because organizers are not considering accessibility which pisses me off, but sometimes, there are legitimate strategic reasons that we might need to protest at an inaccessible location because of the specific circumstances of the protest. (maybe we're even protesting at it because it's inaccessible!) You'll know best about what geographic features are inaccessible deal breakers for you and having that kind of information can help you make a decision about whether it's possible to attend.
What is the risk level? What tactics are being used? Are people intentionally risking arrest? What patterns of repression and brutality are most commonly used by cops in your city? How high is the risk of chemical weapons?
This can be really hard to predict--there's no way to ever say for certain how cops are going to respond and we can't see the future. But paying attention to how cops in your city have been responding to protests and learning the patterns of what types of protests are more high risk can help us make more informed guesses. We can reasonably estimate that a silent vigil in the daytime is likely going to be lower risk than a occupation of a building, for example. And for some of these things--there's no real way to make getting tear gassed an "accessible" experience for anyone, but for some of us, the consequences might be more severe than others. I have a comrade who uses a ventilator who cannot come to protests where we think there's a risk of chemical weapons, so that can be really important information to try to figure out beforehand.
What do I need to practice? Do I need to teach my comrades how to de-arrest a wheelchair user? Do we need to practice lifting me and my wheelchair over a barricade? Do I need to teach my comrades the safest places to hold onto my wheelchair if we're locking arms and moving as a line? Do I need to practice wheelies to get over curbs? How will I plan to protect the electrical parts of my wheelchair from chemical weapons? etc.
For higher risk protests there might be a lot of different tactics that we can use to navigate things like barricades, arrests, facing down a riot line of cops, etc. It is so, so helpful to be able to practice these skills with your protest buddies before a protest, so that when these situations start happening in a chaotic, fast moving environment, you and your comrades are prepared to navigate the inaccessibility that can come with a lot of these situations. You'll know what is possible for you and be the expert on what feels important to prepare for before an action.
2. At the Protest
Navigating a Crowd. To be honest this can be one of the most frustrating things for me to deal with while at protests. A lot of people are not aware of their surroundings, areas will get very crowded with little space to navigate, and people will block my view. The main ways I try to deal with this are by trying to be in the front of a march or on the sides of a march when possible, to try to have the most space to navigate. As we move, I continually scan our location to find the closest accessible exit route, paying attention to where cops are, curb cuts, etc. My protest buddies know that if we're in a middle of a crowd, they need to provide me with updates about cop movements or any other information that I can't see. I get loud and tell people to get out of my way when I need to. I try to stay near other mobility aid users, bike marshals, or people with wagons because they often leave more room for me to navigate.
Roles. There are lots of different roles we can take on at a protest that might make it easier for us to navigate. I sometimes like to join the bike marshals and help block off roads and intersections. Maybe you have medic training and you act as a street medic. Maybe it's more accessible to act as a scout and communicate police movement to your comrades. Other roles could include leading chants, handing out supplies like water and masks, acting as a legal observer, filming the cops, organizing art builds beforehand, etc.
Community. It's been super, super important for me to always go to a protest with a protest buddy so that we can watch out for each other and keep each other safe. Oftentimes, situations can change rapidly at higher risk protests, and we might end up in an inaccessible situation that we didn't plan for. If I don't have a protest buddy, I usually just turn to the nearest person next to me and start saying loudly "I need you to help me exit this situation/grab my handles and get me up this curb/tell me what the cops are doing etc." It can feel really scary and vulnerable to have to rely on complete strangers in these type of situations, but I've found that a lot of people are really willing to help if I tell them exactly what I need from them.
Surveillance. A lot of us really can't bloc up or hide our identities, because our wheelchairs are easily identifiable. This might shape what tactics we use, and also means there might be added surveillance concerns after a protest. When thinking about your own risk tolerance, grappling with the fact we are visible in a crowd is a really important consideration. This might mean we need to be even more careful about security culture, use encrypted messaging to communicate, avoid cameras, stay in a middle of a crowd to block visibility, and other things like that.
Unique advantages. There can be advantages and skills that we bring as wheelchair users! In flat locations and downhills, I'm much, much faster than my comrades who are walking--I can easily pass messages or get in front of a line of bike cops. I can usually carry a lot more supplies on my wheelchair backpack without getting tired. In my city, there's only one cop van that has a wheelchair lift, and at a recent protest where there were multiple of us in wheelchairs, I heard a cop say on their radio that "There are too many people in wheelchairs and we don't know how to arrest them all." In situations where it's logistically difficult to arrest us or the cops think the optics are bad, that can allow us to cause a LOT of logistical delays, act as a front line, get in between the cops and other people, and just generally make the cops lives a little more difficult.
3. After the Protest
Arrests. If we're risking arrest, there's a lot of wheelchair specific information we need to know. Theoretically, under the ADA, cops are supposed to arrest us with our mobility aid and let us have access to our mobility aid in jail. In practice, this doesn't always happen. Cops might arrest us with our wheelchair but then take it away from us in the holding cell, make us use the jail's standard transfer wheelchair instead, or just completely take away our mobility aid altogether. Cops might zip tie our hands so that we have no way to independently move. The cops in your city might have a van with a lift, or might try to get you to fold or disassemble your wheelchair and put it in a standard car. If they don't have a van with a lift and your wheelchair doesn't disassemble, they might have a contract with a wheelchair van company. Once we're taken to a holding cell, there's a lot higher chance we might get put in solitary. We often won't have access to wheelchair accessible restrooms. We might get separated from all of our comrades--at my last arrest, all my other comrades were taken to a location that processes mass arrests, while I was taken to a separate, wheelchair accessible location and held in solitary. It's super important that whoever's running jail support knows these things and can advocate for us and also track us in the system, especially if we're taken to a different location. If your area has a chapter of the National Lawyer's Guild, they often have a designated person running a hotline. It can be super important to memorize that number, and also to reach out beforehand and explain your needs as a wheelchair user if you're risking arrest.
Overall, there are a lot of considerations for protesting as a wheelchair user, and you are going to be the expert on what is important for you! My general approach is that I want to have as much information as possible so that I can make an informed decision about if I want to attend a particular action. Then, when I'm at an action, I expect my comrades to respect my autonomy and support me in making sure that I can participate and that all of us can stay safe.
Also, for any abled people reading this post, I want you to read this very carefully and understand just how many barriers there can be at protests for wheelchair users. You have a responsibility to your community to whenever possible, mitigate these barriers, choose accessible locations, communicate with your disabled comrades, and support us in the moment. If your excuse is that "oh there aren't any disabled people at our protests, so we don't need to think about these things," you're wrong, and this attitude ensures that no disabled people can show up to your protests. and if that's the case, you're missing out on so much meaningful experience and knowledge that your disabled comrades could bring to the table. "We keep us safe" means that we actually work to meet everyone's needs, including the needs of your disabled comrades.
anyway, this turned into a very long post, but any other wheelchair users feel free to add on your own advice! love to share as much community knowledge as possible, especially advice from people who have different access needs than my particular situation.
anon, please let me know if you have any other specific questions that i didn't cover, and best of luck!
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things we learn about scully in s1
she has a godson (and she told his mother that she thinks mulder is cute)
she did her residency in forensic medicine
she's good with dogs and is naturally drawn to all kinds of animals (even evil-looking monkeys)
she wants to keep her christmas tree up all year because her father always made her take it down as soon as the holiday was over
(and she was never positive that her father, who was in the navy and involved in the cuban blockade, was truly proud of her, because she joined the FBI instead of becoming a full-time doctor like he had wanted)
((and he didn't say "i love you" the last time he spoke to her. ouch))
when she was 14, she stole one of her mother's cigarettes, which she thought was disgusting, but she wanted to do something Forbidden for once
she once forgot her own birthday (which is february 23rd) when she was studying for her exams
she has a little cat sign on her apartment door <3
when challenged by the preacher's kid, she refused to deny the power of God; she was raised catholic, and remembers that "God never lets the devil steal the show"
(she's almost always wearing a cross necklace, even while declaring that she considers science sacred)
((and yes, her favorite movie is the exorcist))
she took some biology courses on bugs and is now going to tell you some bug facts
she has two brothers, one younger and one older
her dad- with whom she did not have the greatest of relationships- nicknamed her "starbuck"
(he called her this after the steady and rational first mate character from moby dick; all the more cruel when you consider he pushed her aside for joining the FBI rather than doing the "logical" thing, becoming a doctor. to cast her in a role of the dutiful daughter without her permission and then create a conditional sense of love is just. so mean. it's a miracle she didn't turn out as emotionally repressed as he did)
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i found a god awful doc about this one person (who, too, is a god awful being) trying to reason why mudClaw would be a bad leader. I'ma try to find the doc but meanwhile I'll submit this because someone could have the link, I'll need your honest thought about it bcs why are we defending oneWhiker now
Anon, buddy, I'm gonna have to sit you down and gently discourage you from casually calling random human people "god awful beings" in my inbox like this. Not when you're just talking about relatively basic media analysis. That isn't ok or normal.
I hope that when I speak harshly, it's coming from a place of condemning hurtful actions and the tangible harm that they cause. I don't appreciate people trying to get me to directly beef with other people directly by requesting I break down their individual posts or analysis documents (when I ask for people to share links, it's so I can see and prepare to counter the ideas because they usually "float downstream" if they get popular); but in a second ask, you linked this document and there's nothing harmful in it. In fact, it's got a far more neutral tone than I'd take if I was writing an analysis about Mudclaw.
If you couldn't tell the difference between a document like this and one that contains active abuse apologia rhetoric, I would be filled with concern. But I don't think you read it. I think you maybe skimmed it and stopped reading, or just heard the title.
Because this document literally says this;
and your takeaway, something you felt so strongly about that you came to me hoping I'd validate it, was "Why Are We Defending Onewhisker Now."
Art is a tool we can use to explore our own biases, and teach us something about ourselves. That overwhelming sense of anger and disgust that you probably felt when you saw "Mudclaw Would Be A Bad Leader" made you jump to an emotional conclusion and you assumed something that was not said. I know the feeling. You might have had a reactionary impulse.
You are not a bad person for doing that-- you're human. You can grow.
Why did it upset you this much, though? Is there something very personal about this that set you off? ...are you spending a lot of time in spaces online that keep you angry? These are questions for you to reflect with.
I do not know the owner of this document or "what they've done," if anything, so I will not link it, because their Discord is at the bottom of the doc. If they are truly a "god awful being", please do not engage, just block and move on. Nothing is accomplished by following around 'A Bad Guy' and boosting their cat takes.
But something VERY bad WOULD be accomplished if I indulged an anon for a situation I know nothing about and unwittingly became part of a harassment campaign. How do I know that you've got good intentions?
I usually just delete unsolicited links to docs and videos that are 'fightbaiting' like this-- trying to get me to beef publicly with a 3rd person. But I've seen more of these than usual lately so I would like to try and cool it down.
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