because sometimes there are invisible tests and invisible rules and you're just supposed to ... know the rule. someone you thought of as a friend asks you for book recommendations, so you give her a list of like 30 books, each with a brief blurb and why you like it. later, you find out she screenshotted the list and send it out to a group chat with the note: what an absolute freak can you believe this. you saw the responses: emojis where people are rolling over laughing. too much and obsessive and actually kind of creepy in the comments. you thought you'd been doing the right thing. she'd asked, right? an invisible rule: this is what happens when you get too excited.
you aren't supposed to laugh at your own jokes, so you don't, but then you're too serious. you're not supposed to be too loud, but then people say you're too quiet. you aren't supposed to get passionate about things, but then you're shy, boring. you aren't supposed to talk too much, but then people are mad when you're not good at replying.
you fold yourself into a prettier paper crane. since you never know what is "selfish" and what is "charity," you give yourself over, fully. you'd rather be empty and over-generous - you'd rather eat your own boundaries than have even one person believe that you're mean. since you don't know what the thing is that will make them hate you, you simply scrub yourself clean of any form of roughness. if you are perfect and smiling and funny, they can love you. if you are always there for them and never admit what's happening and never mention your past and never make them uncomfortable - you can make up for it. you can earn it.
don't fuck up. they're all testing you, always. they're tolerating you. whatever secret club happened, over a summer somewhere - during some activity you didn't get to attend - everyone else just... figured it out. like they got some kind of award or examination that allowed them to know how-to-be-normal. how to fit. and for the rest of your life, you've been playing catch-up. you've been trying to prove that - haha! you get it! that the joke they're telling, the people they are, the manual they got- yeah, you've totally read it.
if you can just divide yourself in two - the lovable one, and the one that is you - you can do this. you can walk the line. they can laugh and accept you. if you are always-balanced, never burdensome, a delight to have in class, champagne and glittering and never gawky or florescent or god-forbid cringe: you can get away with it.
you stare at your therapist, whom you can make jokes with, and who laughs at your jokes, because you are so fucking good at people-pleasing. you smile at her, and she asks you how you're doing, and you automatically say i'm good, thanks, how are you? while the answer swims somewhere in your little lizard brain:
how long have you been doing this now? mastering the art of your body and mind like you're piloting a puppet. has it worked? what do you mean that all you feel is... just exhausted. pick yourself up, the tightrope has no net. after all, you're cheating, somehow, but nobody seems to know you actually flunked the test. it's working!
aren't you happy yet?
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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don't you want to be a cult leader? - danyal al ghul au
this is mostly a joke post but i thought it was funny and had to share so--
his first mistake was, obviously, inheriting his father's inability to see an injustice and stand still. -- actually, danyal's first mistake was his lair being so big. a mountainous island with a large temple in the center resembling his old home in Nanda Parbat? With sprawling foliage and rivers and streams and waterfalls galore? What was he going to do with all that space? Let it go to waste? He had plants there! Native trees of the ghost zone growing from the soil! He couldn't let it all be left unchecked!
So naturally after helping a fellow teenage assassin ghost -- who he later learns is named Akihiko, -- from Walker of all people, he sent them over to hang low at his lair until it was safe enough for them to wander around the Zone. Walker couldn't get through Danyal's astrofield if his life depended on it, and trust him -- he's tried. Danny was clearing out debris from his stupid transport vans for weeks.
Honestly it wasn't so bad, he and Aki really quickly became fast friends and Danny loves having a sparring partner close to his level again -- he hasn't had this much fun fighting since he left the League. Aki was very dedicated and levelheaded, the both of them clicked really well because of it.
Nonono, the real trouble began after Danyal met some long-passed League members and allowed them to come join his island as well. Apparently they had made a few enemies of the zone, and maybe Danyal still felt some loyalty to the League. He couldn't just let them be left to rot. Their zealotry could be overlooked so long as they kept it contained and helped him take care of his island.
And it.. snowballs from there? He meets a teen squire aptly calling himself Ambroise -- whether that was his living name or not is yet to be seen -- who died during feudal france, who is just about as dramatic and passionate as every french stereotype makes them out to be. He calls Danyal "my moon and great muse" -- which is both flattering and little uncomfortable, but Danyal's grown up in the League as the Grandson of the Demon Head, he is used to mild worship. he passes it off as nothing more, nothing less. -- and while his energy is overwhelming on the worst of days, he helps Danny draw out of his shell more in ways that Sam and Tucker still struggle with.
Him and Aki butt heads a lot, but the two seem to hold the other in at least some positive regard, so Danny doesn't worry too much about them fighting while he's gone. It only becomes a mild issue when Aki also begins calling Danny "my moon". It's a little sweet, so Danyal brushes it off.
Then he takes in a troupe of ghosts some time after he defeats Pariah Dark and they begin calling him "great one" just as the yetis do in the far frozen. This is where he meets the twins -- a pair of sibling ghosts who call themselves Trixie and Missy (short for Trick and Mislead) -- who aren't quite as passionate as Ambroise but more energetic than Aki. Eventually they also start calling Danyal "my moon" and attach themselves to his hip, even within the living. They like to hide in his shadow and cause trouble for the rest of the students. He makes sure they don't hurt anyone.
He's pretty sure Aki is jealous, same with Ambroise, but he can't be too certain other than the fact that they become much more lingering (re: clingy) whenever he visits the island.. Something he's trying to do much more often these days due to the increasing amount of people living there now. Since when did he become so popular?
Then there's Pēnelópeia from the Greater Athens, who ran away from home and joined his Island after he ran into her while she was being chased by Skulker -- and he's pretty sure the reason was because of her chimeric appearance. Her strange eyes and mismatched wings and lion's tail and talons. She assimilates into his friend group very easily, she gets along well with Ambroise and Trixie and Danny usually finds the three of them climbing the trees to pluck the most fruit from the top. They can fly and he knows it, but they prefer to climb.
Then finally there's silent poet Akkara who comes from ancient mesopotamia, who gets along most with Aki -- which is no surprise there considering their similar personality dispositions. he watches Aki and Danyal fight each other and leaves comments on this or that that he notices. He writes Danyal poems on clay tablets and leaves them by his room.
They're one big mismatched group of outcasts, and Danny's got the other ghosts on his island to tend to, because they're living on his island and he wants to be hospitable even if he struggles with that. But he spends the most of his time with them.
Sam and Tucker are making fun of him. Tucker jokingly tells him 'careful Danny, at this rate you're gonna start a cult'. Danny really wishes he had taken that joke more seriously.
He just. keeps. collecting people. Wayward souls lost in the zone, looking for shelter or refuge from something or other -- whether that be another hostile ghost, or a past afterlife, or just a purpose. Danyal finds them, he takes them in, offers them a place on his island until they are ready to leave. Many seldom do. He's not complaining -- he has the space, and it feels like it's only ever growing.
His close friends, his "inner circle" as he's heard the others call them, keep insistently calling him "my moon". He starts calling them his stars, because then it only feels fair. They're his stars, this is his constellation. It becomes a thing; little star halos begin forming behind their heads, picking them out from the rest. He loves them so much, it's hard to place. Sam and Tucker are also his stars, but they reside in the living realm, they're his tie to Life. Meanwhile, his friends here know what it's like to be dead, and sometimes its nice to relate.
Those living on his island keep calling him "Great One" and he's beginning to notice zealotry in their care for his island. He really, deeply appreciates it. His close friends gain nicknames -- as his stars, it's only natural for him to pick them out from the cluster in the skies. Akihiko, his Sirius and bright star. Trix and Missy, Castor and Pollux, the twins and troublemakers. Ambroise, his zealous Antares and close friend. Penelopeia, chimeric and loyal Vega. And Akkara, his Arcturus and strength.
It's ridiculous how long it takes for him to notice; he is, of course, a deadly trained assassin. He is meant to be observant -- and normally he is! But somehow this becomes a blind spot. One that becomes too big to be dealt with by the time he realizes it.
He should've noticed when Aki, his Sirius, stood beside him one day while Danyal looked over his island and saw the sprawling spirits carrying on about their afterlife and bowing to him as they saw him, and said: "I looked down into the depths when I met you; I couldn't measure it." They aren't one for flowing prose, it took him so off guard he was silent for over a minute before he finally spoke.
Danyal should've recognized devotion for what it is, and yet he didn't. He should've recognized it when Antares began spouting praises about him, crowing about his radiance and resplendence to the heavens. He just brushed it off as Ambroise being Ambroise. He should've recognized it when Trix and Missy nearly broke Dash's leg after he knocked Danyal's books out of his hands, he excused it as them being protective. Of them coming from times where such violence may have been customary -- after all, that's what he used to be like. What he was still like, sometimes, when his emotions nearly got the better of him.
He should've noticed it when the people living on his island followed his word like gospel, looked at him like he hung the stars in the sky. When his friends gifted him a shawl with the moon phases delicately embroidered into it, with silver, shimmering thread and moving stars lovingly stitched into it. Their constellations seen clear as day in the dark fabric. When he found small shrines dedicated to him -- but they lacked any image of him beyond stones carved to look like moons, so he ignored it. When the religious imagery began popping up.
He really, really should've noticed it when a bunch of cultists accidentally summoned Antares, and Antares had turned to him when he arrived and called them heretics. But he was so centered on the fact that they had kidnapped one of his stars, that he hadn't paid much attention to what Ambroise had said.
Sages say that faith is blind, they should also say faith in you is even blinder.
It really only hits him one afternoon while he's sitting in Sam's room studying with Tucker, Missy and Trixie lounging at his feet, Aki sat on his right, Penelopeia braiding his hair, Ambroise draped against him, and Akkara lurking over him. Its one of the rare few times they're all in one room together.
It hits him like a bolt of lightning. He looks up from his textbook. "Oh Ancients," he says in no amounting shock. Everyone looks up to him.
"I've become my grandfather."
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so one of the things that's so horrifying about birth control is that you have to, like, navigate this incredibly personal choice about your body and yet also face the epitome of misogyny. like, someone in the comments will say it wasn't that bad for me, and you'll be utterly silenced. like, everyone treats birth control like something that's super dirty. like, you have no fucking information or control over this thing because certain powerful people find it icky.
first it was the oral contraceptives. you went on those young, mostly for reasons unrelated to birth control - even your dermatologist suggested them to control your acne. the list of side effects was longer than your arm, and you just stared at it, horrified.
it made you so mentally ill, but you just heard that this was adulthood. that, yes, there are of course side effects, what did you expect. one day you looked up yasmin makes me depressed because surely this was far too intense, and you discovered that over 12,000 lawsuits had been successfully filed against the brand. it remains commonly prescribed on the open market. you switched brands a few times before oral contraceptives stopped being in any way effective. your doctor just, like, shrugged and said you could try a different brand again.
and the thing is that you're a feminist. you know from your own experience that birth control can be lifesaving, and that even when used for birth control - it is necessary healthcare. you have seen it save so many people from such bad situations, yourself included. it is critical that any person has access to birth control, and you would never suggest that we just get rid of all of it.
you were a little skeeved out by the implant (heard too many bad stories about it) and figured - okay, iud. it was some of the worst pain you've ever fucking experienced, and you did it with a small number of tylenol in your system (3), like you were getting your bikini line waxed instead of something practically sewn into your body.
and what's wild is that because sometimes it isn't a painful insertion process, it is vanishingly rare to find a doctor that will actually numb the area. while your doctor was talking to you about which brand to choose, you were thinking about the other ways you've been injured in your life. you thought about how you had a suspicious mole frozen off - something so small and easy - and how they'd numbed a huge area. you thought about when you broke your wrist and didn't actually notice, because you'd thought it was a sprain.
your understanding of pain is that how the human body responds to injury doesn't always relate to the actual pain tolerance of the person - it's more about how lucky that person is physically. maybe they broke it in a perfect way. maybe they happened to get hurt in a place without a lot of nerve endings. some people can handle a broken femur but crumble under a sore tooth. there's no true way to predict how "much" something actually hurts.
in no other situation would it be appropriate for doctors to ignore pain. just because someone can break their wrist and not feel it doesn't mean no one should receive pain meds for a broken wrist. it just means that particular person was lucky about it. it should not define treatment.
in the comments of videos about IUDs, literally thousands of people report agony. blinding, nauseating, soul-crushing agony. they say things like i had 2 kids and this was the worst thing i ever experienced or i literally have a tattoo on my ribs and it felt like a tickle. this thing almost killed me or would rather run into traffic than ever feel that again.
so it's either true that every single person who reports severe pain is exaggerating. or it's true that it's far more likely you will experience pain, rather than "just a pinch." and yet - there's nothing fucking been done about it. it kind of feels like a shrug is layered on top of everything - since technically it's elective, isn't it kind of your fault for agreeing to select it? stop being fearmongering. stop being defensive.
you fucking needed yours. you are almost weirdly protective of it. yours was so important for your physical and mental health. it helped you off hormonal birth control and even started helping some of your symptoms. it still fucking hurt for no fucking reason.
once while recovering from surgery, they offered you like 15 days of vicodin. you only took 2 of them. you've been offered oxy for tonsillitis. you turned down opioids while recovering from your wisdom tooth extraction. everything else has the option. you fucking drove yourself home after it, shocked and quietly weeping, feeling like something very bad had just happened. the nurse that held your hand during the experience looked down at you, tears in her eyes, and said - i know. this is cruelty in action.
and it's fucked up because the conversation is never just "hey, so the way we are doing this is fucking barbaric and doctors should be required to offer serious pain meds" - it's usually something around the lines of "well, it didn't kill you, did it?"
you just found out that removing that little bitch will hurt just as bad. a little pinch like how oral contraceptives have "some" serious symptoms. like your life and pain are expendable or not really important. like maybe we are all hysterical about it?
hysteria comes from the latin word for uterus, which is great!
you stand here at a crossroads. like - this thing is so important. did they really have to make it so fucking dangerous. and why is it that if you make a complaint, you're told - i didn't even want you to have this in the first place. we're told be careful what you wish for. we're told that it's our fault for wanting something so illict; we could simply choose not to need medication. that maybe if we don't like the scraps, we should get ready to starve.
we have been saying for so long - "i'm not asking you to remove the option, i'm asking you to reconsider the risk." this entire time we hear: well, this is what you wanted, isn't it?
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