Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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the problem is that being single is seen as the consolidation prize, and not the natural neutral state of being-a-person. at the end of the movie or the book or the poetry, there is a person waiting for you at the altar, and they love you. if the play is a comedy, everyone gets married. the metaphor is about how you are not-whole. the metaphor is about how everyone is going to be happily-ever-after. the metaphor is that romantic love is the most important resource on the planet, not just all-love. all-love is not a thing, that is a disappointment. the treasure is not the friends we made along the way. the treasure is the girl you landed.
the metaphor is that you cannot be alone, that means you are broken. are you getting over someone? that is acceptable, you can be getting over someone, but not for long. you must be single because you would rather not be single. you must be single and looking to not-be-single. you must want to date, eventually.
friendship and community are never seen as being equal-to or even-better than romantic connection. that person is your one! you need to find them. you need to hunt through the sand particles until you can shift out some kind of gem. this is regardless to your own experience of the beach and the sun. you need to be somewhere with someone.
if you are taking this time alone to heal, that is so sad. everyone gives you this little pitying look. the understanding is that you are not actually happier than you were before you were single. it is seen as a sort of pity - oh, you are choosing yourself, making yourself the priority? - that isn't quite right. you must mean that you are making yourself ready for the right person. you are just laying the bed better this time. open up your heart. you'll find them, we promise!
what do you mean you're really-truly genuinely-very happy? you are probably misremembering what it was like to be in a relationship. and besides, once you meet your person, that time will look grey and bland and wasted. your person is the only way for you to see in color. so what if you have taken this time - for the first time in your entire life - to actually-for-real do the fucking work. you can be proud of yourself, sure. but the way we need to know that you got better is that you get a partner. you're healed enough for the next bad part!
people don't choose to be single, they just say they're choosing to be single - they actually mean "nobody wants to date me." it doesn't matter how many people you have gently rejected or how many times you've talked it over carefully in therapy. what matters is that you are single, and by all accounts - that means you are something worth our pity. your successes and life all seem pale in the sunlight. sure, you have done amazing things and finally found your way in life. what matters is that there wasn't a person in the room with you while you did it.
you want to tell them - that's the whole thing. i didn't know how to be alone in the room. i didn't know how to handle the silence. every moment was so sharp, and i kept choosing the wrong way to close the door. i have spent my entire life in the empty well, living in the ricochet of someone else's cruelty. for once i have built myself a ladder. for once everything i taste is all mine, every bite of sunshine and laughter. i have learned how to sleep out in the open with my memories. recently, they have started to purr.
your father rolls his eyes. listen. this isn't about you. i just want a grandchild in my future.
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AO3 Ship Stats: Year In Bad Data
You may have seen this AO3 Year In Review.
It hasn’t crossed my tumblr dash but it sure is circulating on twitter with 3.5M views, 10K likes, 17K retweets and counting. Normally this would be great! I love data and charts and comparisons!
Except this data is GARBAGE and belongs in the TRASH.
I first noticed something fishy when I realized that Steve/Bucky – the 5th largest ship on AO3 by total fic count – wasn’t on this Top 100 list anywhere. I know Marvel’s popularity has fallen in recent years, but not that much. Especially considering some of the other ships that made it on the list. You mean to tell me a femslash HP ship (Mary MacDonald/Lily Potter) in which one half of the pairing was so minor I had to look up her name because she was only mentioned once in a single flashback scene beat fandom juggernaut Stucky? I call bullshit.
Now obviously jumping to conclusions based on gut instinct alone is horrible practice... but it is a good place to start. So let’s look at the actual numbers and discover why this entire dataset sits on a throne of lies.
Here are the results of filtering the Steve/Bucky tag for all works created between Jan 1, 2023 and Dec 31, 2023:
Not only would that place Steve/Bucky at #23 on this list, if the other counts are correct (hint: they're not), it’s also well above the 1520-new-work cutoff of the #100 spot. So how the fuck is it not on the list? Let’s check out the author’s FAQ to see if there’s some important factor we’re missing.
The first thing you’ll probably notice in the FAQ is that the data is being scraped from publicly available works. That means anything privated and only accessible to logged-in users isn’t counted. This is Sin #1. Already the data is inaccurate because we’re not actually counting all of the published fics, but the bots needed to do data collection on this scale can't easily scrape privated fics so I kinda get it. We’ll roll with this for now and see if it at least makes the numbers make more sense:
Nope. Logging out only reduced the total by a couple hundred. Even if one were to choose the most restrictive possible definition of "new works" and filter out all crossovers and incomplete fics, Steve/Bucky would still have a yearly total of 2,305. Yet the list claims their total is somewhere below 1,500? What the fuck is going on here?
Let’s look at another ship for comparison. This time one that’s very recent and popular enough to make it on the list so we have an actual reference value for comparison: Nick/Charlie (Heartstopper). According to the list, this ship sits at #34 this year with a total of 2630 new works. But what’s AO3 say?
Off by a hundred or so but the values are much closer at least!
If we dig further into the FAQ though we discover Sin #2 (and the most egregious): the counting method. The yearly fic counts are NOT determined by filtering for a certain time period, they’re determined by simply taking a snapshot of the total number of fics in a ship tag at the end of the year and subtracting the previous end-of-year total. For example, if you check a ship tag on Jan 1, 2023 and it has 10,000 fics and check it again on Jan 1, 2024 and it now has 12,000 fics, the difference (2,000) would be the number of "new works" on this chart.
At first glance this subtraction method might seem like a perfectly valid way to count fics, and it’s certainly the easiest way, but it can and did have major consequences to the point of making the entire dataset functionally meaningless. Why? If any older works are deleted or privated, every single one of those will be subtracted from the current year fic count. And to make the problem even worse, beginning at the end of last year there was a big scare about AI scraping fics from AO3, which caused hundreds, if not thousands, of users to lock down their fics or delete them.
The magnitude of this fuck up may not be immediately obvious so let’s look at an example to see how this works in practice.
Say we have two ships. Ship A is more than a decade old with a large fanbase. Ship B is only a couple years old but gaining traction. On Jan 1, 2023, Ship A had a catalog of 50,000 fics and ship B had 5,000. Both ships have 3,000 new works published in 2023. However, 4% of the older works in each fandom were either privated or deleted during that same time (this percentage is was just chosen to make the math easy but it’s close to reality).
Ship A: 50,000 x 4% = 2,000 removed works
Ship B: 5,000 x 4% = 200 removed works
Ship A: 3,000 - 2,000 = 1,000 "new" works
Ship B: 3,000 - 200 = 2,800 "new" works
This gives Ship A a net gain of 1,000 and Ship B a net gain of 2,800 despite both fandoms producing the exact same number of new works that year. And neither one of these reported counts are the actual new works count (3,000). THIS explains the drastic difference in ranking between a ship like Steve/Bucky and Nick/Charlie.
How is this a useful measure of anything? You can't draw any conclusions about the current size and popularity of a fandom based on this data.
With this system, not only is the reported "new works" count incorrect, the older, larger fandom will always be punished and it’s count disproportionately reduced simply for the sin of being an older, larger fandom. This example doesn’t even take into account that people are going to be way more likely to delete an old fic they're no longer proud of in a fandom they no longer care about than a fic that was just written, so the deletion percentage for the older fandom should theoretically be even larger in comparison.
And if that wasn't bad enough, the author of this "study" KNEW the data was tainted and chose to present it as meaningful anyway. You will only find this if you click through to the FAQ and read about the author’s methodology, something 99.99% of people will NOT do (and even those who do may not understand the true significance of this problem):
The author may try to argue their post states that the tags "which had the greatest gain in total public fanworks” are shown on the chart, which makes it not a lie, but a error on the viewer’s part in not interpreting their data correctly. This is bullshit. Their chart CLEARLY titles the fic count column “New Works” which it explicitly is NOT, by their own admission! It should be titled “Net Gain in Works” or something similar.
Even if it were correctly titled though, the general public would not understand the difference, would interpret the numbers as new works anyway (because net gain is functionally meaningless as we've just discovered), and would base conclusions on their incorrect assumptions. There’s no getting around that… other than doing the counts correctly in the first place. This would be a much larger task but I strongly believe you shouldn’t take on a project like this if you can’t do it right.
To sum up, just because someone put a lot of work into gathering data and making a nice color-coded chart, doesn’t mean the data is GOOD or VALUABLE.
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TOP TEN DINOSAURUSES
maybe you're wondering my most tenned favorite dinosauruses??? The science study of dinasacacers is called "dinosaurusology" by leading experts like myself, and it is constantly changing as we make new uncoveries almost every tuesday when we find new bones in my cousin rob's garage (he hasn't thrown anything out since the 90's!) As such bear in mind that up to two facts I am about to share could become dated over the course of the next century, however as both the king and queen of science this will only be true if I'm still available to approve the new facts. If I'm dead or kind of tired then nobody will ever know what's true anymore so you should be nice to me.
#10: OVIRAPTOR
OVIRAPTOR was a good model for what all dinosacans were like: it was a wrinkly lizard that slithered in filthy dirt and had difficulty standing upright because its bones were made of rocks. This is why we have the term "the stone age," so be grateful you're living in "the bone age!" Oviraptor's name means "eggs velociraptor" because it was a kind of velociraptor that stole eggs. It didn't know what to do with them because nobody invented cooking yet and raw dinosaur eggs were disgusting, so every oviraptor starved to death.
#9: IGUANADON
This was the last known photograph of IGUANA DON (not to be confused with his cousin iguana dan) when george washington invented photographs 2 million years ago. Don was an ugly disgusting hilarious lizard monster with one horn on its nose and he died because he evolved a dining room in his torso exactly the right size for 21 cavemen to walk in and eat his kidneys. This was not helped by don's instinct to sleep on a big porch under a chandelier.
#9 DIMETRODON
DIMETRODON was the most common dinosaur of jurassic, which was the fifth and final era of dinosaurs after the ice age but before the ediacaran. In fact dimetrodon was the very last dinosaur to ever exist on earth before they were all eaten to death by the ediacaran's dominant predator: a species of swirly looking weird rock. Nobody knows why these swirly looking weird rocks died out, but it's most likely because dimetrodon was so poisonous from its diet of entirely pufferfish. You can tell it was a sea dinosaur because of its fish fin!
#8: PTERADACTYL
PTERODACTYL was a regular dinosaur until it got married to a species of bat and its bat wife laid a bunch of pterodactyl eggs! This woodcut is however inaccurate: flying would not be invented until president obama discovered the first airplane in 1998, so pterodactyl couldn't possibly have stayed in the air and just immediately fell. The long 900 million year reign of the pterodactyl abruptly ended when the last one finally hit the ground (it took longer in those days because the oxygen disaster made so much more air)
#7 SNORKASAURUS
SNORKASAURUS was completely unique among all dinocaurs by having a really long neck. It was one of the largest creatures to ever roam the earth at over 7 feet tall, or exactly 12 meters to those of you living in Liberia or Myanmar! This is the last known photograph of snorkasaurus, giving birth to the first cavemen. Snorkasaurus went extinct because all of them did this instead of making baby snorkasauruses. This is because like all dinosaurii they had only a tiny peanut for a brain, and nobody was around to give them 'the talk' because that wasn't invented yet.
#6 SMILODON
SMILODON was a very special dinosaurn because it was the first one to stand up on its hind legs after years of rigorous exercise and weight training. By inventing this new way of walking, Smilodon made it possible for the first monkeys to evolve! This is called "convergent" evolution.
#5 BULBASAUR
BULBASAUR was a majestic and beautiful species of neopet unfortunately disliked by the scientific community because it is the reason there are no flying dinosuars. Bulbasaur was the first ever flying dyanasar ever invented, 19 billion years ago on September 10, 2001, but the project was discontinued when its first test flight ended in a tragic accident. That's right: on September 11, 2001, Bulbasaur crashed into the stock market, causing the great depression that lead to the civil war :'( now to this very day, flying dinosarers are against the law.
#4 YOSHI
YOSHI is a type of dinersaulophus called a "bird," which was actually the second attempt by early neanderthal alchemists to manufacture a street legal flying dinnersauran, but the New Zealand government realized if dinophlofbuses can fly, then bats would no longer be special, and since bats are New Zealand's only major export it would have been an economic disaster. The queen of Australia (New Zealand's largest city) ordered the CIA to sand all of the wings off of these early prototype birds. Every bird tragically went extinct when it looked down, noticed how high up it was and remembered it could not fly, activating the effects of Earth's gravitational field.
#3 ANOMALOCARIS
ANOMALOCARIS was the dinosorcerous that discovered the first primitive cave painting of a modern day crab and invented carcinisation. All the other dinanders laughed at Anomalocaris for wanting to turn into a crab, but guess what??? Every single kind of dinosaur is dead but there's a crab still alive at 29, making it the oldest person in the world. Who's FUCKING laughing now!!!!!!!!!!!!!!!!!!
#2 EARL SINCLAIR
This is the last known photograph of Earl Sinclair, seen here as an uncredited extra in "Avatar 3: Lost in New York." Earl Sinclair was a sindonaur species that could disguise itself as a human by putting on sunglasses, a necessary adaptation in order to hide from the largest predator dancasore to ever live: Mellisuga helenae. However, near the end of the coal age, M. Helenae finally remembered that sunglasses hadn't even been invented yet. Look carefully, and you'll notice nobody is wearing sunglasses at all in this scene, making Earl Sinclair stick out like a sore thumb! If you're still having difficulty, here's a zoomed in image of this majestic thunder lizard:
Unfortunately......this wardrobe malfunction made Mr. Sinclair just as obvious to his ancient enemy, and the last Earl Sinclair's brains were sucked out on September 11, 2001, the darkest day in British history because he was the only one who knew the recipe to chicken mcnuggets (the only british food.) To this day all british people are extinct but you can still see their fossilized skeletons waiting in line at the department of motor vehicles.
#1 CONCAVENATOR
Concavenator was an Early Cretaceous carcharodontosaurid up to six meters in length with an unusual pointed crest on its back.
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