Everytime that I'm reminded other people experience the same things i do, a feeling swells within me, big and uncontrollable, happy and scared...
A song i love that i hear some else mumble, the night sky and stars our world and all the seeing eyes on her have been looking at since forever. The patches of dirt where swings are, where kids teens and adults have trampled the green grass that's no more. The little paths in flower fields or dirt roads to the countryside. The ruins of a home taken over by vines. A shop's door welcoming thousands of people. The paper i use to write down silly little doodles touched by all the people whose skill brought it to me in that form. We're not alone, and the silent presence of billions of us, and the little car honks and laughs from outside my window, it's all a reminder that living is a shared experience. And it's a hell of a good one.
Life's worth living. I miss everyone who's not here anymore and i miss the people who haven't yet treaded their own path. I love you. Because love is a shared experience, even when silent. And i want to scream it, I LOVE YOU! And, you, whoever you are reading this. You just shared an experience with me, however many miles apart we live from each other. Just by reading these words. And i wish you a good life, a good day, a good week. Whatever brings you happiness, i hope you experience it again and again and again. <3
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i will be mobile bound till later today! catch me on wire & discord for rapid fire stuff!! <3
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hugging and kissing all my mutuals
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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i have lots of flaws but i do at least take a fair amount of comfort knowing that, if i were a customer NPC in a fast food/retail management game, i would be one of the chill early-level ones that can wait a super long time before they start getting impatient, and you breathe a sigh of a relief when you see them show up in a harder level
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it kind of gets overshadowed by the horror of the rest of the episode, but. how funny is it that hunter Takes Off His Mask to yell at luz in the beginning of hollow mind. he's the perfect boy i just-
sorry i know it's my usual agenda rearing its head but i do think this is adorable. the Second the rebels are gone, hunter is like well fine. you just tackled me and fucked up my whole arrest and you're an anarchist shithead who constantly ruins my plans. but i KNOW you aren't going to attack me. for some reason i trust you implicitly. i don't need full armor here. what i NEED is for you to see JUST HOW LOUDLY I'M FROWNING-
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can everyone please do me a favor today and do one thing to make life gentler for yourself ? you deserve it i promise . 🫂
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Hate when people who already know that they’re taller than me ask my height like girl stop asking me for numbers the answer is YES i would have to get on my tiptoes to kiss you and also YES it would give me butterflies like whatever🙄
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