#handicap invisible

[ejcmedia]

Regard porté sur le handicap invisible

Témoignages sur les discriminations insidieuses subies par les personnes avec des handicaps invisibles dans tous les domaines de leur vie Couverture de la bande dessinée La différence invisible de Julie Dachez, qui présente sa propre histoire de femme autiste, un handicap invisible. Couverture de la bande dessinée La différence invisible de Julie Dachez, qui présente sa propre histoire de femme…

[lesouffleurdemots]

l'ABC des handicaps invisibles

26 lettres pour vous parler des handicaps invisiblesEt pourtant… Ce fut galère de trouver et je vous laisse trouver les intrus ! ⚠ Pour rappel, les handicaps invisibles concernent 80% des handicaps. 🚹 Un handicap invisible est un handicap non détectable, qui ne peut pas être remarqué si la personne concernée n’en parle pas. Les handicaps invisibles regroupent :🔸 les maladies invalidantes…

[chronicillnesshumor]

Source: a_h_reaume on Twitter

[kittycommitte]

[harriet-de-g]

Toujours mal quelque part

Avoir mal, quand ça dure depuis longtemps, c’est jamais juste avoir mal : c’est devoir adapter son quotidien, gérer l’incompréhension des proches, et faire plein de petits deuils, tout en gardant des espaces de joie. La douleur chronique est un truc qui touche énormément de gens. Pourtant, en dehors des recommandations médicales habituelles, peu de ressources s’attardent sur la gestion du quotidien. Comment on fait quand on n’a pas une thune ? Comment on en parle autour de soi, comment on adapte son existence à une donnée aussi imprévisible ?

Ce zine est un début de piste, qui s’adresse autant aux personnes qui vivent avec des douleurs chroniques, ainsi qu’à celle qui les entoure. Il te dira pas d’aller voir un médecin ou de faire du yoga, tu fais bien comme tu veux. Il existe juste pour te dire qu’il est possible de se rendre la vie plus facile et moins solitaire, même quand on a mal.

Il a aussi été pensé comme un outil pratique qu'on a envie de garder pas loin, avec des espaces de prises de notes et des illustrations pour accompagner sa lecture 🌱.

"Toujours mal quelque part" est disponible en pré-commande à prix libre. Il suffit de m'envoyer un message privé en précisant ce qu’on veut payer, son mail & selon le mode d'envoi : une adresse. Ce soutient financier servira en premier lieu à imprimer et diffuser ce zine. Plus largement, il contribue à l’existence de mon travail et j’en suis très reconnaissant·e. Comme d’hab, une version en ligne est est disponible en fin d'article.

À titre indicatif ✉️ Pour la poste française, le coût d'envoi est à partir de 2,90€ selon le volume, (1€ pour le reste de l'Europe).

Le zine fait une quarantaine de pages, imprimé sur papier bouffant, intégralement en couleur.

Toutes les références à la fin et bien plus sont répertoriées dans ce post.

Lien de téléchargement :

En page par page.

En cahier à imprimer et relier.

J’espère que vous aurez autant de plaisir à le lire que moi à le créer, à très vite!

[disabled-not-dead]

https://rdbl.co/47gppMi Rebubble

https://bit.ly/3uBt9JG Teepublic

[schwarzeneggr]

going into a depressive episod with a su*cide attempt at the end is painful enough, but it has its qualities. After the fail you basicly care about nothing anymore. The apathy is a relief. You cared so much, it hurt you so much that you had to put an end to the suffering. Truly nothing matters anymore.

Then, because your mind is sick unstable and volatile, you start caring again and smiling and stuff. Its only been 10 days since The Window. You hang out and joke like you havent written a will a mere few days ago. You'd think its a positive thing but it is tiring on its own. After all the cycle begins again even thou you know full well where it will end. You've lived this multiple times and the recipe has never failed. Youre happy, and then upset that youre happy. You want the apathy back, you don't wanna be hurt. It's a weird as fuck limbo

[umflowers]

and don’t fucking stare at people, not even ‘covertly’, who have visible disabilities - and i don’t just mean people with mobility aids. the amount of people who stare at my legs bc they’re deformed by lymphedema is staggering. we are not a freak show for your amusement or your ‘curiosity.’

i hope you guys know defending disabled people's right to exist in public also involves defending disabled people's right to exist in public in ways that others might perceive as annoying, unpleasant, uncomfortable, and inconvenient at times. a blatant example is the "slow walker" thing. someone with tourette's syndrome who has issues with verbally ticcing is likely going to have trouble staying quiet in a public space where they're expected to be. autistic children (and some adults) getting triggered into meltdowns due to an overstimulating environment. people with hearing problems having their phone on speaker while on a phone call. a wheelchair user taking up part of the road/sidewalk/aisle. people with autism, adhd, hearing problems, or other things that affect volume control having loud conversations. someone audibly talking to themselves, which can be attributed to many things. motor tics. dyskinesia. ataxia. pseudobalbar effect. the list goes on. some of thus may even be potentially triggering for your own issues if you're someone who's also mentally and/or physically disabled, but if you're well aware of how you can't help your response to it, you should be equally aware of how others can't help themselves either. people who aren't able to be disabled quietly and conveniently don't deserve to be punished or met with anger (or turned into a spectacle) for not deciding to shut themselves away.

[disbabeled]

Do you know how many times a day I want to scream at people "THIS ISN'T FOR YOU!" ?

Just yesterday, I was ten minutes late to my tutorial class because for whatever reason, almost every single person in my lecture decided to use the elevator instead of going down one flight of stairs while me and my classmates -- the ones who didn't have that choice -- were stuck waiting for the next elevator.

I constantly have to navigate around people walking up the ramps -- or, worse, standing in the middle of them -- because they couldn't get off their phones for two seconds to use the stairs instead.

At least twice a week I end up in far more pain than usual because people who don't need them take up the accessible seats on the bus and I either have to stand there and wait for somebody to get up (Which is already hard on my body) or just wrap my arm around the pole and try to suffer through a few stops until somebody gets off (Which has already caused several dislocations). As much as people like to brag about how they'd "always give up their seat for a poor handicapped person", they're far more likely to stay right where they are and ignore you in favour of watching Instagram reels on their phone.

And I've tried asking people to move. Directly. Making eye contact and everything. They'll just look down at their phone and ignore me until the bus driver or somebody else says something. And only then can they magically notice me and get up.

Before I get a bunch of people leaping to yell about people with invisible disabilities: I know. I know there are people with invisible disabilities, I spent most of my life with only invisible disabilities. I can guarentee that not every single person in my lecture of 60 people has an invisible disability. This is not the problem.

The problem is that able bodied people see these resources and supports made specifically for physically disabled people and assume they're entitled to them. Most of them see it as something that's put in place just to comply with certain rules or laws or regulations as a 'just in case' thing. Nobody thinks that disabled people are actually out and about. We're an afterthought to them.

And I get it. I do. We all have our blind spots.

But seriously, this is getting ridiculous.

[emacrow]

Welcome to the Starlight Toy Galore! Temporary close for the day!

Danny could only blush heavily in his ghost form. His brightened green eyes watched Jazz pick out an outfit for his date. Ellen looked at the deep blue colored scarf before throwing it to the aside to the pile of rejected other colored scarfs.

"Now you have the braille menu that Tucker sent you of the restaurant, right? Remember to take your black bandana if your eyes get irritated again. Sam, you missed a chibi toy on the right side of his hair." Jazz spoke as she was judging two different colored turtleneck with narrowed eyes.

To Danny's eyes, the bright colors felt normal in his ghost form compared to the black abyss in his human form beside the luminous foggy shapes of ghosts, spirits, souls, demons and faes in his sights.

He can still remember the horrifying shock in mom's and dad's eyes was the last thing he ever saw as the pure excruciating pain sizzle in his eyes as they were showing the Fenton Ghost On Sight double Blaster that will reveal any ghosts hiding invisible to the human eyes and unfortunately locked onto him once again and blasted directly into his eyes.

Waking up in a hospital bed only to see nothing at all was pure panicked, being touched by something or someone hugging him was worse, especially when he couldn't see a god damn thing, only to see ember's head appears was when he realized something immediately.

He couldn't see anything at all except Ghosts. It didn't stop there as he saw a dashing tiny being with wings stealing a cube of sugar, a red parasite bug whispering to some junkie that he pummeled into paste the wall, and a wild spirit messing around from the very black shape form of a person that he couldn't see before sneaking back in their form.

Jazz told him about her telling Mom and Dad the truth about him while he was in a privates hospital room thanks to Sam, Dad actually broken down and Mom couldn't stop staring down at her hands as she had been the one to do the example on the double blaster.

Two month of him still unconscious after that event, and thanks to Frostbite being brought to heal him, Along side teaching mom and dad his needs as it seem he can see in his ghost form, but not in his alive human form.

He couldn't see the damage of his eyes in his ghost form. Only his eyes were much green with much paler pupil, but apparently, what Tucker descriptive of his eyes were his pupil went brighter then a rainbow pearl that cause his iris to go from deep blue to a much paler icy blue.

The struggle was intensely real after he left the hospital, especially now handicapped and kept bumping into everything and every wall, Cujo thankfully helping him along with his new blind cane. Kitty and Johnny 13 actually helped him out, considering Kitty had a cousin who was born blind.

He couldn't be the astronaut that he wanted to be, especially when now he was blind. He was so down in his own depression state upon realizing that It took Jazz, Sam, Tucker, Ellen, and shocking, Dash dragged him, caving himself into his room after 5 months in. His hair was the length of his waist after that, but he didn't cut it since he didn't trust his dad or Jazz to cut his hair again.

They brought him to a great museum with an audio speakers for blind people like him, wandering the halls with glimpses of soul spirits embezzling in their masterpiece, even some in old toys on display, and accidentally finding himself into a kid's crafts their art room upon hearing the sounds of a crying child.

He couldn't see what they were crying, but he could see the well loved toy that was a Raggedy Andy doll so bright with a joyous old soul spirit of a elderly lady with plush separated arm on the floor.

Danny helped clumsily tie the doll's arm back in place with the help of that soul spirit whispering in his ear about which thread is tied where and tighten up.

He wouldn't know it but feeling the warmth glowing off a child's inner joyful spirit playfully peaking out the shell that was a human.

Danny felt a new dream born before his sightless eyes. He ended up fixing beloved toys here and there in Amity Park, then word got out after he made a beautiful music box that has a dancing ballerina in her box for a sweet grandma who was a retired Principal Dancer due to her torn achilles tendon after Danny saw how down her spirit mumbling how she wished to dance in the opera once last time.

A fix here, donated parts, threads, fabrics, buttons, cotton full of lonely spirits there, rebuild a lost dream of spirits all around all for 1 tiny trade each. He didn't know that the people he helped have been collectively anonymous a goFundme in Amity parks for him after he spoke about wanting to make a space theme toy shop and repair.

Danny would be 26 year old before he decided to invest in a building after going through a gigantic tsunami of customer wanting him to fix their old toys, plushy or antiques.

Danny had to change his last name due to the fact that nobody wouldn't let him rent a building nearly as far as new Jersey, much less a shop after hearing his last name being Fenton. Getting a cozy shop in a gotham full of saturated Ectoplasm was a wise choice.

It would be 3 months later meeting a lady with a soul spirit more wild peaking out of her body in a wheelchair who made his heart skip several slow beats after doing that Ashidon motion against the parenting section bookshelf even though her real body is still at the public library's counter.

7 months in of being befriended and compliments Babs Gordon, while her dominating spirit is nearly crossing the line. obviously flirting to him alongside whispering about how she loves to pull his silky hair again to hear him make that cute whine. If only people and ghosts could see the patient and restrain he had on himself, he would've probably already passed out again from the blood rushing to his head that day.

He learned many things about Babs, even though her wild spirit is dancing, showing off martial art techniques seductively, and talking the many many ways she can take him out that made Danny feel his heart about to stop.

Ellen, his sweet clone daughter, apparently was the first to say something about his most obvious crush on Babs and helped him practice, even though he failed miserable at the result. He got a date tonight.

Hopefully, everything goes well..

Part 2 link <-

[soft-niku-and-sake]

Zoro's eye scar theory:

x

Someone on Twitter has this theory that Zoro's eye scar is self-inflicted just like Luffy's and I genuinely can see that happening. It's more interesting and a better theory than Zoro having some hidden power under his eye or the baboons are the ones responsible for it LOL.

I mean Zoro doesn't really have a problem with handicapping himself just to prove a point. 

As you can see...

Zoro is like "You find it fun to poke my wound. I'll do you one better." *BAM! cuts himself*

But instead of "gaining his sense of honor" like what the original poster thought of, I kinda imagine Zoro doing this during his observation haki training with Mihawk. Compared to Rayleigh's training, wherein he's a tough but a gentler instructor, I can see Mihawk being stricter and would mock Zoro whenever he makes mistakes, and Zoro, being stubborn and arrogant, would slash his eye to prove to his teacher/rival he can master observation even with just one eye. (Well, this is also the same guy who would cut his legs during Little Garden and his hand when he was handcuffed with Usopp just to fight lol. Who says he won't blind himself. What a freak)

Moreover, people have been speculating that Zoro's potential enemy among the Blackbeard pirates would be Shiryu, who currently has the Clear Clear Fruit. If he were to fight someone who is a strong swordsman and can literally turn invisible, Zoro must have one hell of observational skill to defeat him. If we are going to see a flashback of him stabbing his eye, perhaps it will be during his battle with Shiryu.

I mean Oda could just give him a scar just to make him look cool (which is more likely lmao), but if it were to reveal what happened to his eye, I think this headcanon really makes sense, judging by the way Oda also likes to parallel Luffy and Zoro very much.

Luffy: Stabbing under his eye to prove a point to Shanks

Zoro: Slashing his eye to prove a point to Mihawk.

[todaysdocument]

Letter from Helen Keller to Herbert Hoover Regarding Her Upcoming Trip to the Far East

Collection HH-HOOVH: Herbert Hoover PapersSeries: Herbert Hoover Papers: Post Presidential Period: Individuals File

Helen Keller

ARCAN RIDGE

WESTPORT, CONN.

Noted

February 4, 1955

Dear Mr. Hoover,

It is a task both delicate and difficult for me to thank you in words for your most friendly tribute. The only adequate acknowledgement is the invisible, in-audible but non the less real heart-throbs of apprecia-tion that accompany these lines.

Your wonderful thought of me on the eve of my de-parture for the [pencil mark x] Far East will kindle my courage as I reach out into unknown and not easily attainable areas of service to the [pencil mark x] blind and the deaf who await the Light and the Utterance of the Life that is God's Gift to all men.

Hoping that you may help to keep warm in the interest in raising the handicapped to the rights and the activi-ties of normal humanity, I am, with renewed thanks,

Faithfully yours,

Helen Keller

[kittycommitte]

No one is able-bodied forever. We must add the cake for an accessible world now.

[harriet-de-g]

Ressources autour de la gestion de la douleur.

Cette Bibliographie est issue du zine "Toujours mal quelques part" sortie en janvier 2024. Les catégories reprennent les différents chapitres de celui-ci. La liste est régulièrement mise à jour et complétée. N'hésitez pas à partager vos propres ressources pour la faire évoluer!

C’est quoi la douleur ?

L’Institut national de la santé et de la recherche médicale a un dossier qui reprend des informations générales sur la douleur.

La douleur, quelle chose étrange, Steve Hains & Sophie Standing, livre, 32p.

La douleur chronique perturbe l’équilibre cérébral, Rev Med Suisse, 2008/145 (Vol.-6), p. 493a–493a.

Lien entre douleur et trauma

Le Trauma, quelle chose étrange, Steve Haines & Sophie Standing, livre, 32p.

Le corps n’oublie rien. Bessen Van Der Kolk. Il existe une version résumée en zine nommé « Ressources sur le traumatisme » (Morgan.e).

Comment les traumatismes d’enfance impacte la santé tout au long de l’existence (« How childhood trauma affects health across a lifetime ») Nadine Burke Harris.

Qu’est ce que le trauma? L’auteur de le corps n’oublie rien explique («What is trauma? The author of “The Body Keeps the Score” explains,) Bessel van der Kolk.

Childhood exposure to violence and lifelong health: clinical intervention science and stress-biology research join forces. Moffitt, T. E., & Klaus-Grawe 2012 Think Tank (2013). Development and psychopathology, 25(4 Pt 2), 1619–1634.

Mécanismes d’adaptation 

Pain-determined Dissociation Episodes, David A. Fishbain, R. B. Cutler, H. L. Rosomoff, R. Steele Rosomoff, Pain Medicine, Volume 2, Issue 3, September 2001, Pages 216–224.

Trop à l’aise avec nos diagnostics, zinzinzine,

Et toi, tu fais quoi dans la vie ?, Harriet de G, brochure, 4p.

Quand tout va bien

Une introduction en français à la technique du pacing.

Laziness Does does not exist, Devon Price, livre, 256p.

La culture du Valide Occidental, Zig Blanquer,

Les thérapies alternatives

A claire voie : manuel de savoir être fou en société, zine, 91p. Comporte un chapitre spécifique pour les premiers entrevus avec un·e thérapeute (dans un cadre psychiatrique).

Pour les proches

La théorie des cuillères, article wikipédia.

The spoon theory (La théorie des cuillères), Christine Miserandino, essai.

Soutien mutuel : les bases

Paillettes Toxiques et Sérum Phy : des pistes pour repérer des dynamiques de pouvoir dans nos relations (pas cis hétéro), zine, 275p.

Point drogue

Une carte interactive pour savoir où tester ses produits

Relation entre tabagisme et douleur : revue narrative de la littérature scientifique, D. Balayssac, Revue des Maladies Respiratoires, Volume 38, Issue 3, 2021, Pages 269-277.

Se faire mal : comment prendre soin de toi lorsque tu ressens le besoin de te blesser, Icarus Projets, zine, 56p.

Alternatives à l’auto-mutilation, Traduction de Choose recovery par Dandelion Guide pour décrocher des médicaments psychotropes en réduisant les effets nocifs, zine, Icarus project, 70p. Tumer Fue : Une méthode libre pour en finir avec la clope, Robin, zine, 80p.

Toxicophobie mon amour, Pour déconstruire ses préjugés sur l'usage de produits.

Pendant la tempête

Le manuel de sevrage des psychotropes, livre, Soutien Benzo, 196p.

Aider ses ami.e.x.s qui ont parfois envie de mourir à ne peut-être pas mourir, traduction par ezekiel and the weirdos, zine, 33p.

Le mouvement death positiv tente de réduire les tabous autour de la mort et d’explorer les façons de préparer sa fin de vie sereinement.

Living with depression, Kat Amarië, vidéo (traduite).

Dépression comment te quitter, Luks, zine, 20p.

En vrac :

Chroniques des chroniques : une émission autour des maladies chroniques (douloureuses), radio rageuse.

La souffrance: que ressent-on quand quelqu’un nie notre douleur ?, podcast Emotion.

The Cancer Journals (Journal du cancer), Audre Lorde, livre, 96p. Fragments, Fatou S, livre, 150p.

Guide de navigation en eau trouble : se fabriquer des ressources quand on vit une crise ou un moment pas cool, zine, 40p.

Les ateliers groupe soin, volume 1, 2 et 3, zines, groupe soin. Du partage de savoir et vulgarisation de concepts médicaux issus de rencontre en groupe pour s’autonomiser.

My Body Is a Prison of Pain so I Want to Leave It Like a Mystic But I Also Love It & Want it to Matter Politically, Johanna Hedva, vidéo et transcript.

Hollow, Mia Mingus, Traduction d'Emma Bigé et Harriet de g, zine. De la science fiction avec des handi·es autonomes.

[disabled-not-dead]

https://rdbl.co/47gppMi Rebubble

https://bit.ly/3uBt9JG Teepublic

[kaeso4ka]

You're being stalked. It becomes even more of a problem when you find out who it is

Pairing: yandere Optimus Prime x reader

Oddly enough, it started with a glance. You never suffered from paranoia, but it was impossible to ignore that feeling of constant scrutiny. Someone was peering at your back on the street, staring out your window, and even crossing their eyes with you a couple times, I think.

Jasper was a small town, and you worked at one of the most popular cafes. It wasn't strange that a lot of people knew you by sight and even sometimes recognized you on the streets. But a slight nod from a group of teenagers, to whom you made a discount yesterday by great kindness of heart - it's one thing, but the feeling of persecution - quite another.

During one of your shifts, you found a note on one of the tables, on which someone described your smile and hands in a very poetic and beautiful handwriting. It looked cute and weird in equal measure, so the strange note soon went in the trash and the memory of it went out of your head.

Then strange things started happening more often. Someone attached to the doors of the coffee shop not small notes, but whole letters in which someone addressed to you.

You tried to catch the joker for a long time: you watched the cameras, followed the visitors. But it didn't bring you any closer to an answer. It was as if someone was invisible: he did not meet anyone's eyes, bypassed all the cameras.

The situation began to get out of control at the moment when on the doorstep of your own house you began to find the same notes, but this time with presentations: scarlet roses, food, something that looks like jewelry. Someone continued to correspond with you one-sidedly, confessing their warmest feelings for you.

It sent a chill down your spine.

It wasn't normal.

Someone knew your workplace, your personal address. Someone was following you. Wanted to get you to like them. They were showering you with gifts.

And at one point, even contacted you.

It was an early Saturday: you woke up to the hot desert sun beating down on your face. And the sound of notifications coming in.

Normally, no one bothered you on weekends: your bosses knew you weren't going out on your day off, and everyone else preferred to rest rather than write to you.

And yet someone had broken a glorious tradition.

You frowned, unlocking your phone. Messages came from an unknown number.

“Hello. I apologize for disturbing you. Did I wake you up?”

“Jack, if it's you, I told you, just because you have ballet on Saturdays doesn't mean I'm going to go work a twelve-hour shift for you. Let's go without me somehow, friend.”

“This isn't your work colleague. I'm writing to make sure you liked all the presents. I didn't misjudge your taste?”

Sleep receded into the background soon enough. You sat up abruptly on the bed. Immediately you took screenshots of the correspondence. You weren't five years old, and she knew exactly what to do if you were being followed. At the very least you had to prepare evidence for the police.

“It's understandable. You do know there's still a statute for stalking in our state, right? That's a pretty serious violation of the law.”

“I apologize, there was a misunderstanding between us. I didn't mean to scare you at all. I'm just showing signs of attention.”

“Uh-huh, yeah. Tracked me down at work, at home, even got my personal phone number…. Not stalking at all, huh. If you wanted to meet me, you would have approached me yourself.”

“I can't.”

“What are you, a wheelchair user? Well, you'd drive up.”

You nodded your shoulder, remembering. Did a lot of handicapped people go to your coffee shop…?

“That's not the point. I can't come up to you right now. But I'll be able to soon.”

“You shouldn't bother. I did not like the note with which you began the acquaintance. I do not wish to continue it.”

You didn't wait long: you threw the undecided number on the block and drifted further into sleep. A sense of dread dulled the ironic hilarity.

The gifts and notes were gone. The unknown person didn't try to contact you again, and you exhaled hastily: it's nice when people around you turn out to be strange but understanding.

One shift, a tractor-trailer pulled up to the car food dispensing window. The red-and-blue, expensive-looking Paterbilt looked pretentious against the gray-and-yellow Jasper. Still, truckers often passed through this town on their way to Las Vegas, so you weren't surprised.

“Could you take the order outside?” a pleasant male voice asked quietly and conciliatory. “The booth is very high up. I won't be able to reach the order.”

“Yes, of course,” you nodded into the void, as if the person you were talking to could see you, ”the order will be ready in ten minutes. Wait in the parking lot, don't hold up the line.”

When the food was ready and stacked, you hurried out from behind your desk. You headed for the parking lot, which was empty except for Paterbilt.

The car door from the driver's seat was ajar, and you hurriedly reached forward with the bag of food, but… There was no one in sight. The cabin was empty.

“What the…?” the moment you reached forward to look for the trucker, who had obviously moved back to where they had a sleeping place, something yanked you forward by the arm. “What the…!”

Paterbilt's door slammed shut exactly as the plugs pulled you inside.

“I can speak to you personally now, my Spark.”