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#is to aid other people or not
mythicalcoolkid · 2 months
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You don't wish your disability was worse or more visible, you wish your disability was taken seriously. Please stop confusing the two, I guarantee you would not get the support you need JUST by being more severe or more visible. Please listen to visibly disabled people when we tell you it isn't better on our side
#m/cc#mine#I tried extremely hard to word this nicely because I KNOW people don't mean bad and often even know there are unique challenges#and believe me I know the challenges of invisible disability too!!#I have invisible disabilities!#but as someone who has also been at least visibly 'off' since they were 10 I am SO SICK of invisible disabilities being hailed as like#a unique extra oppression that us lucky visibly disabled people don't have to deal with#there are challenges to invisible disabilities that visibly disabled people DON'T have to deal with!#but you need to understand that *the reverse is also true*#there are MASSIVE benefits to being able to lie about your disability for example#or not dealing with the overt ableism that comes with your disability being obvious to everyone#*I do not have the option to pretend I'm not disabled.* that is never an option I have#I walk weirdly. I use a mobility aid now. my speech and face are 'off.' I lean to one side#for a long time I wore sunglasses 24/7 and often didn't make sense. I sometimes can't speak or won't react to others#for the most part people will always know that at the very least something is wrong with me#and more obviously I have people telling me they'll pray for me; telling me I can't do things I'm already in the process of doing;#wanting to shake my hand to tell me I'm an inspiration for not killing myself; giving me dirty looks for existing in public#and yes. I'm aware that this is very much an in-community issue. I know the average abled person doesn't know invisible disabilities exist#that's why there's so much awareness happening for it#but as a visibly disabled person I get SO TIRED of constantly hearing 'I wish my disability was visible :'('#it's just 'I wish I had your disability!' but from other disabled people
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bioswear · 2 years
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LOL what if someone comes in and calls me performative for reblogging that last post because it has an image description in it 😂😂😂😂COULD YOU IMAGINE
#you would HAVE to be a few plums short of a fruit pie if someone did that after the day I’ve had#LMFAO LMFAO IT WOULD BE SO FUNNY THO#but I don’t mind that bc the person who added it also included something worthwhile in addition to the post#like to me that shows the person was engaged enough with it to formulate an opinion and response to the original post#also again. why is the concept of manners so hard#like much how you don’t show up to an event empty handed you also should either ask#or give a little compliment to the person you’re adding a description on to like#when it’s just out of the blue it can seem a little unsolicited regardless of whether the intent#is to aid other people or not#like what so asking for consent only counts if it’s not about art??#i know what it is. it’s like reposting art without asking#like if you really want to add something on even a little ‘hey hope it’s cool I added this’ in the tags would be great#actually it’s really just called basic fucking manners and being polite#like you have to remember that you’re basically adding onto a strangers post#i don’t know you like that!#it’s fine if any given person has too small an understanding to get what I’m saying#i never said I had a problem with people adding descriptions on to my work#it saves me the fucking time#but I’m an artist that’s my creation that’s a piece of me#I’ve never called out anyone who’s added one into mg posts#like I get over it eventually it’s just the initial feeling of ‘oh a comment!!’ and then it’s NOT
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“See the person not the disability”
NO! SEE MY DISABILITY! IT IS AN IMPORTANT PART OF MY LIFE THAT SHOULD BE ACKNOWLEDGED! OF ALL THE ABLEIST CRAP THIS IS THE WORST ONE!
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heritageposts · 5 months
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chronicpaingirlie · 3 months
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besties we have GOT to have more love for and more representation of fat disabled people . especially here in our online circle of disability positivity . please remember to include fat disabled people when you talk about disability
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rudeboimonster · 1 year
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~help your local rat get stable housing~
edit post nov 2023: I GOT THE HELP I NEEDED THANK YOU SOSOOSO MUCH
dramatically sprawled out on the floor
so i gotta move for the third time in that many years. unfortunately between health problems and the General State of The Economy, I have been unable to find work to be able to save any money. i have no choice but to leave the entire state. i thankfully have somewhere to go, however I need help getting there. i've been trying to do the math to get what I need to its lowest amount possible, but even that is still at least $2.5k.
after this move, i should be able to get things more stable and I might even have a couple job prospects lined up in that area, but right now I'm really scraping the bottom of the barrel funds wise and desperately need help.
if you're able to spare anything, i've set up a goal through kofi so i can track it publicly. i have trouble asking for help but i really need what help i can get. thank you, so so so much.
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batwynn · 8 months
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Listen. The moment you get an older than 45 queer romance going in media I’m thrilled and I just don’t gaf if it’s sad, ‘Bad Rep’, light and happy, plot B, not ‘serious enough’, ‘too serious’, Can’t Happen Because One of Them Only is in Love With the Other Inside a Mind Split Work Place, Not Safe For Work, etc. I don’t care. I want it to exist and I will thoroughly enjoy it.
I grew up hearing about all the friends my mom lost in the queer community. I grew up knowing that those people would never have a romance that aged with their bodies. That they’d never have these kinds of stories. That the people who did survive still face hatred and violence just for holding hands in public even after living through this shit for so many years. So, yeah. I want to see the older queer couples in love, ok? I don’t care if it’s not the Young People Aesthetic or ‘Good Representation’ or wtfever. I just don’t care. They deserve to age, and love, and be messy, and be real people, and have stories told about it.
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acestims · 8 months
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Non-wheelchair users, please do not take accessible taxis when don’t need them!!! Had wait in storm weather for 10 minutes because all accessible taxis at train station taken by people. Don’t care that suitcases take up space, fit perfectly fine in regular car. Wheelchair users need space way way more (even taxi got in now not accessible even though looked like from outside so very annoying). Probably preaching to choir but please think about this.
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froggiethelesbian · 1 year
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There’s something so intimate with seeing another disabled person in public. I was walking down the street with a friend to a cafe, my red cane in hand. Coming down from the opposite street was a young women with her friend. I saw her bedazzled cane, covered in stickers and art then looked up to her eyes. She had been looking at my cane, covered head to toe in stickers, before looking up to me. We both smiled and kept walking.But with no words spoken there was a message.
“You’re just like me. We are both here, living our lives, walking with a friend like everyone else. We exist, not just online but here in person, we are not alone.”
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uncanny-tranny · 1 year
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The effort to turn every trans person into a political activist and place the burden of political leadership onto us is the same mindset as thinking trans lives are inherently political. Combating this means holding trans people to individual standards. If a trans person occupies political spaces, it should be because they have chosen to, not because people look at their transness and the "political implications" and it is all they can see
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Sometimes you just have to listen to the live version of a song and feel like you're ascending to godhood...
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shxwrunner · 1 month
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Hi, I hope you're doing well. ❤️ I'm writing to you with a heavy heart and an urgent request for help. My family is in a very danger situation due to the ongoing war, and I've launched a GoFundMe campaign to save them. 😢 Could you please share my campaign post from my profile? Each share could be a lifeline for my family. 🙏 Feel free to share it in any other social media platform if you would like. Our campaign has been verified by operation olive branch, and is entry number 26 on their spreadsheet. From the bottom of my heart I want to thank you in advance for all of your support and kindness.
!!! Hello Haya, I am happy to boost your campaign, I am so sorry you have to go through with this. To everyone reading this; Haya's campaign for their family of 8 is 71% of the way along!! With enough help and spreading the word, we can absolutely help this family reach safety. There are a lot of severe allergies in this family, making medical care extremely hard as Ibuprofen and most penicillin based medications. Not to mention having lost their home and food and generally everything. I will keep this post updated and reblog with updates and keep a watchful eye on your campaign and endorse others to do the same ♥ I do not currently have the funds to donate myself but will be spreading your word not just on tumblr, but I will make a post on twitter as well for you, although I know Tumblr is much much better for these things. However, I want as much spread as possible to host your campaign.
As of right now the goal is €100,000, and we are at €71,843. Only a little over €28,000 and this family can finally be safe, and work to rebuild what they have lost, and find a way to get medical treatment without concern. Donate HERE. We can do it, I know we can. Additionally, if people would like, if you show me proof of donation I can provide you with some quick doodles to add to it. Just DM me here on tumblr. I want to do as much as I can.
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insteading · 8 months
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As someone who’s done bereavement care for almost 20 years, I’ve observed again and again and again that it is not staying with grief that cuts us off from other people, it’s suffocating grief and suppressing grief. It’s impossible to repress grief without also repressing all sorts of other things like joy and memory. Actually, expressing grief naturally connects us empathetically to other people. It is not an accident that right now when there is such a profound suppression of global grief, we’re also finding ourselves in a moment of such isolation.
Rabbi Elliot Kukla, in them magazine
I sought out this piece because Rabbi Kukla was quoted in today's sermon in reference to the ongoing genocide in Gaza ("It is lifesaving to mourn our humanity in inhumane times").
But this paragraph about grief hit me so hard I wanted to single it out to share. It is relevant to corporate grief of the sort we might experience when a state is doing harm in our name (police brutality, displacement, execution). It is also relevant to individual griefs.
In the bereavement calls I do for hospice, I have noticed, this is precisely what gets people stuck in grief: the feeling that there is no safe space and time to express grief. Companies tend to give very little accommodation for bereavement, if they give any at all. Culturally we're expected to get over losses in a matter of days. But grief rewires us, and some losses-- particularly losses like war, displacement, and police brutality where a state or institution does the same kind of harm repeatedly-- are complex and ongoing.
Grief impacts sleeping, eating, executive function. (I don't ask people in bereavement calls, "How are you doing?" I ask, "How are you sleeping?" "How's your appetite?" Maybe "Are there moments from your caregiving, or from your [loved one's] dying, that keep coming up for you?" Because of course you're not fine! You just lost someone essential to you. What I want to know is, is your body getting a chance to repair itself as your mind and heart process what you've experienced?)
People have talked to me after a loss about feeling exhausted and overwhelmed by daily life. It's not unlike recovering from a major injury and having a sizable portion of your bandwidth given over at all times to the tasks of bone, muscle, and nerve repair that are not under your conscious control. When tasks you're used to thinking of as having one part suddenly make it clear how complex they are? Cooking a meal takes more out of you. Doing a load of laundry takes more out of you. If you're already an introvert, the cost of social engagement goes up, at a time when social engagement might actually be very helpful.
Doing some of our grief work with other trusted people shares the load. It recovers some bandwidth. But many folks learn early in the grieving process that they have fewer trusted people than they thought. Or that it feels like the wrong time to deepen an acquaintanceship they'd hoped might become a friendship. Or that they aren't as comfortable asking loved ones for help as they thought they would be.
And the bereavement model I'm trained in assumes that a grieving person has experienced one recent loss. We know that a recent loss might poke us in the tender spots left by earlier losses. But that's still different from the experience of a tragedy that affects a whole community at once (as in an entire region's population losing multiple loved ones in a very short time and being forced to flee).
I don't really have a conclusion here, but I'm finding the activism that feels most healing and hope-filled to me has lament built into it: a chance to name the people who've died in our county's jail, while advocating for better communication with families of people inside. A chance to call out the names of people lost to covid while advocating for policies that will mitigate risk to vulnerable people.
Maybe it takes days to name all the people impacted by ongoing genocides in Congo, Palestine, Yemen, while urging our government to end its role in those genocides. Maybe our systems and structures, which aren't even good at honoring our grief for members of the nuclear family we're taught is our primary world, are disinclined to give us that time. Maybe we ought to take it anyway.
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songofsunset · 2 months
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Tips for talking to someone with hearing loss
(this is what helps when people are talking to me, and when I'm talking to my relatives)
Make sure they can see your mouth. Lip-reading helps with clarity, and facing them while you talk also helps a lot with volume. People are really bad about getting your attention, starting to say something, then turning away mid sentence. Stay facing them the whole time!!! (People are the worst about this while we are shopping together!)
Be comfortable with repeating yourself. Either they will ask you to repeat yourself, or you will realize they misheard you. Both of these are fine- just repeat yourself clearly and make sure they can see your face while you do. "Never mind" makes me sad :(
If someone misheard you: try rewording your sentence! Maybe certain sounds are harder for them to hear than other sounds. Instead of "grab that shampoo!" three times at increasing volume, try "grab that blue bottle, the one next to the conditioner" or "I like that dandruff shampoo up there, can you put it in the cart?" There are a lot of ways to rephrase things that will give the person you're talking to more chances to understand, and it feels much less patronizing for everyone. And make sure you're facing them so they can see your mouth!!!
If someone misheard you: try a Yes, And approach. If your grandma didn't understand your question and starts telling you an unrelated story, enjoy it! When she is finished, thank her, and then try asking your question again with more clarity, or worded differently. "No, that's not what I said" is much less enjoyable for everyone involved.
Enjoy your conversation! Not everything needs to be understood perfectly. The important thing is that you are spending time together and talking to each other. Each conversation is a journey and you will get there in the end!!!
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jaxihammer · 1 month
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You will never convince me that Isabel Lovelace is not disabled post-canon. Think about it.
Of everyone in the crew, she's spent by far the longest time in space. Sure, she's probably been exercising, but that isn't going to fully stop her muscles atrophying. Her bones are going to weaken. Not to mention the fact that she went into the cryo chamber, which we know isn't GREAT for you (I know Eiffel is kind of an outlier but still. Even once is gonna fuck you up at least a little).
Then add to THAT the fact that the body Lovelace has now was created by the dear listeners. Not only are they recreating a body that's already undergone almost a thousand days of the trauma of space; they're doing it with zero existing knowledge of how a human body functions in Earth's gravity. The clones are almost perfect, but there are notable differences in internal organs, and I wouldn't be surprised if Lovelace was put back together with some inconsistencies.
All this to say, I think Lovelace would become a mobility aid user when the crew lands back on Earth. Everyone on the crew would probably end up in physical therapy, but the damage done to her body would be by far the most extensive. Whereas I don't doubt Jacobi, Minkowski, and Eiffel could regain most if not all of their mobility, I think Lovelace would use a wheelchair, and eventually with PT could use crutches or a cane some days. Even if she were to regain muscle function, she would probably have some sort of chronic pain that would necessitate mobility aids!
In conclusion Let Her Be Disabled thank you for coming to my TED talk
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apelcini · 1 year
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there is a hollowness inside of rich kids that truly terrifies me.
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