#medium needs autism

[our-autistic-experience]

we had a fire drill at my school today

usually the school counselor is supposed to come get me early because of my 504 and other accommodations that i have

but apparently they don't actually care to help the disabled students if it's not a physical disability

so guess who was completely ✨shut down and nonverbal✨ for the rest of the school day and up until just now

[lightning-system]

As a medium/lower support needs autistic who works with young higher support needs autistic:

We all matter. We all have the same diagnosis. We all deserve to be treated with dignity and respect.

But we are not the same.

I can mask and might be seen as 'odd' or 'weird' in public. The students I work with are seen as 'dangerous' and 'practically little kids'.

I can go to university and work with accommodations. The students I work with likely will never live independently and a few might find jobs that support them but still pay them less than an abled worker.

I have full control of my finances. The students I work with aren't allowed to make independent financial decisions, even if capable.

If I say 'no,' I'm making a choice. The students I work with can't say 'no' without being labeled as defiant and difficult.

I can feed myself, bathe myself, and take care of myself with extreme challenges. The students I work with are unable to take care of themselves without high levels of support/one on one support.

I had an IEP in high school but was mainstreamed in classes. The students I work with take separate classes and some rarely get to interact with their abled peers.

Our experiences are fundamentally different. Higher support needs autistics will experience a specific type of ableism I never will, and can never fully understand.

Lower support needs autistics need to stop saying we understand what higher support needs autistics are going through and then present autism as only being disabling because of society/lack of acceptance because that is dangerous. We need to stop saying every autistic person is capable of everything if given the right support because that leaves out huge parts of our community who will never be able to do certain things, regardless of support.

We are worthy of existence regardless of our abilities.

Autism is a spectrum. It is not the same for every autistic person. Autism acceptance and advocacy has to come with accepting, acknowledging, and listening to our higher support needs peers.

[zebulontheplanet]

I think people have greatly watered down autism into this silly label or identity that they can collect.

I’ve seen multiple posts that defend that autism should be an identity, similar to how sexualities and gender labels are. I think they’re missing multiple things with this analogy. First, you cannot help your queerness. It’s not simply a “label” it’s your whole being. It’s who you are.

I want people to realize that autism is a serious disorder for over half of people diagnosed with autism. From more then 30% being higher support needs, to more than that having different comorbidities, it’s a serious disorder. Not only can it affect every aspect of your life, it can severely affect how your health is, how independent you are, etc.

To a lot of people autism isn’t “a silly label” it’s a disorder. A disorder that comes with comorbities, that affects how they speak or don’t speak, how they view the world, how the process or dont process things, etc.

Higher support needs people need to be recognized, and in turn you have to recognize the disorders that they have. You can’t ignore them. You can’t simply shrug it off as a silly little label or identity.

People deserve to have their life altering disorders taken seriously and not turned into something that’s shrugged off and seen as another add in the newspaper. Autism is serious. It’s a neurodevelopmental disorder. Say what it is. Don’t water it down.

That’s all.

[spooksforsammy]

Everyone love autism until the person needs someone to remind them or help do things like bathe, change clothes, and use the bathroom.

Everyone love autism until they need to be told what to do in social interactions and still can’t do it correctly.

Everyone love autism until they can’t communicate in the way you deem appropriate. Until they need other ways to communicate because they can’t verbally do it. They love autism until they can’t communicate even if they have aac. until they have NO (no) ways to communicate because they don’t understand they can.

Everyone loves autism until they can’t sit down and stop moving. Until they grunt or moan or make random sounds. Love until moves around and not even realize that their moving.

Everyone loves the idea of autism until it’s not level one low support needs. And not fair that high support needs, medium support needs, level 3, level 2 autistics get so much hate for things can’t help. They should still be loved!

[spectrumgarden]

This autism month please remember those of us who:

need verbal prompting (someone telling us each single, small step to a task) or hands on help for things like showering, getting dressed, cooking simple meals, using a toilet ....

who struggle to go outside alone or cant do it all, not out of fear or no motivation or anything but because we keep getting lost and cant find our way back, because the outside world is like a blurry maze that never becomes more logical no matter how many times we have walked that street, because we need help with mobility aids, or can not understand that cars are dangerous, other people can be dangerous, ...

whose bodies dont listen to what our brains tell it to do. Whose bodies throw things when we didnt tell it to, told it to stop. Who hit our head against the walls while wishing we could stop. Whose bodies freeze when we tell it to move. Not just for a task we are unable to start, but any movement at all. I dont mean when i'm stuck scrolling through my phone thinking about how much i should do that task but cant, I mean when im sitting on the kitchen floor and staring into space for an hour unable to even lift my hand to scratch my nose.

Those of us that will never work a job outside of sheltered workshops, if at all.

Who drool and scream and jump and hum and rock in the waiting room at the doctors office, on public transport, ...

[cryptid-aac]

Love post for ppl who type " weird "

Love you ppl who type " weird " because use AAC to type (hi, sometimes)!!

Love you ppl who type " weird" because have language disorder (hi)!!

Love you ppl who type " weird " because have I/DD!!

Love you ppl who type " weird " because have severe autism/higher support needs autism/Level 3 autism/however you identify (hi)!!

Love you ppl who type " weird " because English not your native language!!

Love you ppl who type " weird" because rushing thoughts (hi)!!

Love you ppl who type " weird " because blind!!

Love you ppl who type " weird " because that's how brain thinks!!

Love you ppl who type " weird " just because!!

Love you ppl who type " weird " because semiverbal (hi)!!

Love you ppl who type " weird " because nonverbal!!

Love you ppl who type " weird " for any reason not mentioned or no reason or reason that not know of!!

[boughkeeper-dainsleif]

thinking about the time i said to a couple people that i can't drive due to my autism, and one of them said something like "i don't have a choice bc my parents made me drive". that bothered me for a while, and continues to bother me. i don't have a choice either. if my life depended on me driving, i would die.

it feels to me like whenever i say "i can't do this because of my autism", allistics (or often times lower support needs autistics) assume that i have actually just decided not to do something, instead of understanding that i am physically incapable of doing it, even if my life depended on it, even if i desperately wanted to.

i wish allistics understood that an autistic person's limitations cannot be changed with motivation or different choices. sometimes it feels like other people have a harder time accepting my needs and limits. than i do myself.

[pumpkinspicedmochi]

People are always like "I'm autistic too and I CAN work/do thing! so you can too, those are excuses" or "I also have back pain and I can stand for HOURS to work you just lazy"/ "well my feet hurt all the time but I Still work so.."

but did it possibly occur to you that..MY autism isn't YOUR autism?, my scoliosis isn't yours ..mine for all you know could be worse than yours and even if yours is a higher curve number ours still won't be same neither will our pain be the same. Say this to say: don't compare yourself to others in that way, I've seen people do this with like adhd too like I don have adhd that I know but do struggle with executive dysfunction and just because you can do whatever and you don't struggle with it at all or as much as others doesn't then give you the right to say "well I have that too and so I know for a fact you CAN do the thing , you just lazy! I can say because I have same disorder and therefor-" please shut the fuck up, we not the same.

[twisted-rat-king]

so sick of seeing "their poor parents" in regards to someone who is delusional, psychotic, or otherwise "not normal." any time the topic comes up, someone's there to drop that steaming pile of shit. i promise you, the caretakers aren't suffering half as much as the person they're caring for. but nobody talks about that part.

[flirts-with-dragons]

Calling myself out

(Image description: stick figure sitting on the ground with an arrow pointing down at it from a text box that says, "doesn't know how to ask for things in a way that neurotypicals won't see as demanding or annoyingly apologetic", referring to the stick figure. End of description.)

[zebulontheplanet]

You. Are. worthy.

Even if you never drive. Even if you need help with basic tasks. Even if you need help with hygiene. Even if you’ll never work. Even if you’ll need help for the rest of your life. You’re. Still. Worthy.

Don’t let anyone tell you that you’re useless, or that you don’t deserve certain things. You’re amazing, and I see you.

[spooksforsammy]

Geniuenly like. So many people claim support disability. But then say something completely untrue

Y’all support autism? So what about when the person has intellectual disability or need help walk talk eat bath use bathroom? Does your support end when you see someone with higher needs?? Someone who actually genuinely won’t survive without support from others n that support is sometimes having other people do everything for them.

Y’all support depression? What about when the person can’t bring themself to get out of bed for days on end? What about when that person goes days weeks months without cleaning self because can’t get up even though need to?

Yall support schizo-spec disorders & psychosis? What about what the person get violent because of their delusions n hallucinations? The ones know are fake but still can’t help but believe in? The ones genuinely believe in their delusions/ hallucinations? What about the ones don’t don’t get violent to self n other because of the disorder? Those that just sit scared about the hallucinations n delusions. The ones that won’t leave their room/ house out of fear of their delusions/ hallucinations?

Y’all support those with physical disabilities? What about the housebound bedbound ones? The ones need gait trainers walkers wheelchairs? What about the ones who full time users? Or the ones that need power chairs to independently move around? What about the ones crying screaming throwing up from their pain?

What about the disabled that always have a horrible attitude because tired of yhr disrespect? Tired of having to explain everything about them to everyone even if personal? Tired being told get over it n just educate others?

The disabled ones tired telling people not use certain terms. Tired of being spoken over n for without being thought about or asked. Tired of hearing their communication isn’t valid for ‘xyz’

Y’all support but act very picky about who deserves support and who’s not worthy of it. It’s not support if you pickin n choosing

[spectrumgarden]

While it's true that for some people, (certain) stims are an easy way to observe distress, I think there needs to be more awareness in allistic people that a lot of autistic people just stim for the sake of it, simply because were understimulated and / or we just dont control our bodies movements.

I've been repeatedly asked if I'm fine by so called mental health professionals for rocking etc, who know I'm autistic. The immediate assumption is this is a sign of distress instead of my natural body language / movement. Less assuming, when you know someone and their stims well you might be able to tell that x stim means x emotion or situation, but for the rest of us, just maybe, dont? It's also just a bunch of stigma surrounding certain stims, because if I had been tapping my fingers etc i wouldn't have been assumed in distress. It's not my fault my body likes to rock.

[autismaccount]

I've reached 35 responses! They're very interesting, but the sample size is still small, and I don't think it's at all representative of the Tumblr autism community. If I can't reach at least 100 responses, I don't think I'll be able to analyze Tumblr community views on support needs in depth. I'll still post descriptive statistics for the overall sample, but I won't have the statistical power to do anything else.

I'd really appreciate if everyone could help by taking the survey and reblogging this post to their followers!

As a reminder, the survey is meant to understand how people use support needs labels. For example, what makes someone low support needs and not moderate support needs? The survey also helps show what the community is like in general in terms of demographics and experiences!

A summary of the current survey results are under the Read More. Again, especially if a community that you're in is under-represented, please help by spreading the survey link! I'd especially love to hear from more people AMAB, racial/ethnic minorities, people who are not yet diagnosed or were diagnosed as adults, and higher support needs individuals!

Age: Most participants are young; 60% are under age 25%, and 20% are under 18.

Gender: Over half of the sample is AFAB nonbinary, almost 1/3 is trans men, and almost all of the remainder (14%) is cis women. Only 2 people who are AMAB have taken the survey.

Race/Ethnicity: Non-Hispanic White people are very over-represented, making up 82% of the sample.

Diagnosis: 57% are professionally diagnosed, 20% are informally or soft-diagnosed, and 14% are seeking a diagnosis. Only 9% are neither diagnosed nor seeking a diagnosis.

The most common diagnoses are ASD with no level (33%), level 1 ASD (25%), and "mild autism" (13%).

16% were diagnosed before age 8, 24% between ages 9 and 15, 32% between ages 16 and 18, 12% between ages 19 and 25, and 16% over age 25.

Autism Support Needs: The most common self-identified support needs label is "low-moderate" (43%), followed by low (23%) and moderate (14%). Most would benefit from but do not need weekly support (31%), only need accommodations and mental health support (17%), or rarely need any support (6%).

Autism Symptoms: On a severity scale of 0 (not applicable) to 3 (severe), the average is 1.7 overall, 1.8 socially, and 1.7 for restricted-repetitive behaviors. The most severe symptom is sensory issues (2.1), and the least severe are nonverbal communication and stimming (both 1.5).

83% are fully verbal, and 97% have no intellectual disability.

38% can mask well enough to seem "off" but not necessarily autistic. 21% can't mask well or for long.

Most experience shutdowns (94%), difficulties with interoception (80%), meltdowns (71%), alexithymia (71%), echolalia (69%), and autistic mutism (66%). Very few experience psychosis (14%) or catatonia (11%).

Self-Diagnosis: 20% think it's always fine to self-diagnose autism, 29% think it's almost always fine, 31% think it's only okay if an assessment is inaccessible, 71% think it needs to be done carefully, and 11% think it's okay to suspect but not self-diagnose.

15% think it's always fine to self-diagnose autism DSM-5 levels (including if the person has been told they don't have autism), 15% think it's fine as long as autism hasn't been ruled out, 21% think it's almost always fine, 18% think it's only okay if an assessment is inaccessible, 36% think it needs to be done carefully, and 36% think it's okay to suspect but not self-diagnose.

26% think it's always fine to self-diagnose autism support needs labels (including if the person has been told they don't have autism), 29% think it's fine as long as autism hasn't been ruled out, 37% think it's almost always fine, 29% think it's only okay if an assessment is inaccessible, 43% think it needs to be done carefully, and 6% think it's okay to suspect but not self-diagnose.

Disability: 71% feel disabled by autism, 17% feel disabled by another condition but not autism, and 11% are unsure.

Comorbidities: The most common mental health comorbidities are anxiety (68%), ADHD (62%), and depression (56%).

The least common mental health disorders are schizophrenia spectrum disorders (0%), bipolar disorders (3%), tic disorders (6%), substance use disorders (6%), personality disorder (9%), and OCD (9%).

The most common physical health comorbidities are gastrointestinal issues (29%), connective tissue disorders (29%), autoimmune disorders (24%), neurological disorders or injuries (24%), and hearing/vision loss (24%). All others are below 20%.

Overall Support Needs: When considering comorbidities, the most common self-identified support needs label is moderate (37%), followed by low-moderate (31%) and low (17%).

[yellowyarn]

i love you autistics who don't have special interests

I love you autistics without sensory issues

i love you autistics who are hyposenstive

i love you autistics who are both hypo- and hypersensitive

I love you autistics who hate routine

i love you low empathy autistics

i love you high empathy autistics

I love you autistics with lots of freinds

I love you autistics who are hyper verbal

i love you autistics who make lots of eye contact

i love you autistics who can't mask

i love you autistics who dont know who they aren't behind their mask

i love autistics who are "childish"

i love autistics that have never had a meltdown

i love autistics with catatonia

i love autistics with intellectual disabilities

i love autistics with Anxiety and/or Depression

i love autistics with Psychotic Disorders

i love autistics with Bipolar Disorders

i love autistics with Obsessive-Compulsive Disorders

i love autistics with truma Disorders

i love autistics with Dissociative Disorders

i love autistics with Eating Disorders

i love autistics with Somatic symptoms Disorders

i love autistics with Sleep Disorders

i love autistics with addictions

i love autistics with Personality Disorders

i loved autistic systems

i love autistics with multiple disabilities

i love autistics that can't work

i love autistics that cant leave their house

I love autistics who can't live alone

i love autistics who use AAC

i love poc autistics

i love people with autism who prefer person first language

i love autistics who use function labels

i love autistics with outdated diagnoses

i love autistics who were/are misdignosied

i love self diagnosed autistics

i love all autistic people