does anyone - I’m begging - does anyone have experience with their spouse surviving a stroke? I just feel like I’m screaming inside and I don’t know how to handle it. There’s no doubt I wanna be with her and take care of her myself and she is herself — I love her more than anything and I just need help, I need someone to talk to. She’s only 30 and I just have no idea what to expect.
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Life Skills: Mastering Meal Prep & Steps for TBI & Stroke Survivors
Discover effective life skills strategies for TBI and stroke survivors, focusing on mastering meal preparations and steps to regain independence and confidence in the kitchen. Empower their journey to culinary success.
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If you consider yourself a disabled activist or ally and still go around saying shit like "Am I having a stroke?" or "I feel like I'm having a stroke!!" or "you/x must be having a stroke!" in a joking/insulting manner have you considered that maybe you aren't, you're just fucking ableist and I'm allowed to throw rocks at you
Today's disabled character of the day is Olivia from Fear and Hunger 2, who has vascular myelopathy. She is also a stroke survivor and a wheelchair user
Requested by @quote-cannon
[Image Description: Drawing of a woman sitting in a black metal wheelchair with grey tires. She is wearing a purple skirt, black glasses, black tank top, and a pink long-sleeved sweater. She has short brown hair and pale brown eyes. She has a light skin tone.]
Hi, my name is Morgan. I'm a lesbian, 26. My fiancé (she/her, 30) is the strongest person I've ever met. She's a chemist, who worked for a pharmaceutical company. She achieved her dreams, and was supporting me in doing the same for myself. We thought we were just about to get out of our hard-times, and unfortunately, life had other plans for us.
My fiancé suffered a stroke on April 29th, 2024. The stroke impacted the language centre of her brain, and it was a large area of the brain that was impacted. She will be able to work again someday, but her physical and mental deficits are going to require a lot of therapy to correct. Her recovery is projected to be 6 months - 2 years.
She was the main breadwinner in our household and worked so hard to get herself out on her own, and start our life together. She was kind enough to give me leeway to do what I've always wanted to do, and begin freelance work. She's so independent and this is the last thing she ever would have wanted. However, I know that she will have the ability to make it through to the other side.
In the meantime, however, it is not fair that just because she is now disabled - she will seemingly be at risk of losing her apartment, and other such services such as electric or gas, when this event was entirely out of her control. I have vowed to do my best to help, but I do not have regular income (other than a recent approval for welfare) and her immediate family is already stretched thin. We have contacted multiple stroke organizations and have been turned away, and cannot bank on any sort of government assistance for her at this time. Most organizations offer coverage for her therapy or hospital bills, however her insurance already covers this - thank god - but we are left at a loss.
Please, if you're able, please consider helping. She is the kind who would never ask for help, and neither am I. This is the first time I've ever considered crowd funding. However, I would be remiss not to try and help the love of my life not to lose her livelihood for something out of her control. Your money will go towards things like (her) rent, car insurance, electric, gas bills. (no subscription services or other frivolous things). Anything extra will go towards prescriptions, if applicable.
please let me know if I can provide any writing services for your donation/money, as well! my fiverr link is in my pinned. I can also make GIFS/GIFSETS for you, for tips.
Over a year and a half ago i was lucky enough to be part of an upper spasticity trial to have 5 weeks of intense hand therapy every weekday for 2-3 hours a day. it helped my arm, shoulder, and wrist. I saw immense improvements and actually had the best ever results recorded from the study at that time.
I think back and think to myself "it didn't work". I couldn't move my fingers by the end, and what is wrong with me. I had feelings of shame, guilt and hated myself for trying so hard and not getting the results i wanted.
I had my physiotherapist tell me recently that the problem wasn't in the joint, limb, ect itself, it was in my brain. Not long after that session I had my new psychologist tell me that my brain injury was a trauma in itself. two things i couldn't wrap my head around, because i thought the problem was with me and i just wasn't trying hard enough over the last 18 years to erase this huge part of me that i hated about myself.
Internalised ableism is something that has defined much of my life, and i didn't cause it, i was taught it. Ableism is defined as discrimination against disabled people and/or having a favour for able-bodied people. Internalised ableism is when you're disabled and have that belief about yourself. A short time after my stroke i went back to school a few days a week in a wheelchair where i was relentless bullied for being disabled. This was also a pivotal point in my life when self worth was being developed at the start of adolescence. It was taken away from me because i had the chance to form it like others my age. I was taught to hate myself and struggled coming to terms with what had happened to me, and i still do. I still whole heartedly believe that im living proof bullying can kill you; because it almost did. I spent over a decade of my life struggling with self harm, substance abuse and countless suicide attempts after that trauma, and now in recovery from drugs and alcohol, i can understand just how much that time of my life impacted me.
It's believed that damage to the basal ganglia in stroke victims can be reversed with neuroplascisity (rewiring your brain), yet i have to come to terms with the fact that wasn't a reality for me to a full extent. I am grateful to be able to walk without assistance (although my spatial awareness and coordination is poor), i can talk (with some disordered speech when fatigued and chronic dysphagia), and have somehow perfect vision aside from occasional nystagmus. I have dystonia, spascisity and high tone in my left arm/hand, and despite working endlessly hard on it, remains rigid and paralysed. I have myoclonic seizures on a daily basis and struggle to do some daily tasks, i do everything on my own yet do them slowly. I am very grateful to have a supportive family who cook for me, and ndis services to access the community. I am grateful for the progress i have made and one day hope to understand why this happened to me much like others with lifelong disabilities. After decades of being on pharmaceuticals i am so grateful to be living a holistic life full of amazing natural remedies that help me. This includes castor oil, magnesium oil, a clean diet and of course physiotherapy stretches and exercise.
I know like anyone that has suffered significant trauma in their lives, forging meaning and identity can be hard. Despite every obstacle i have come across in life i still work hard on my daily mobility. I hope one day to show others living with brain injuries and trauma that they too can have meaningful, impactful lives.